Literature Review

All posts tagged with “Research News.”



Intention to engage in advance care planning among community dwelling adults: A quasi-experimental study

01/10/26 at 03:40 AM

Intention to engage in advance care planning among community dwelling adults: A quasi-experimental studyAmerican Journal of Hospice and Palliative Medicine; by Lesley J. Thweatt, Katherine C. Hall, Shena Gazaway, Deborah J. Konkle-Parker, Lei Zhang; 12/25The validated Advance Care Planning Engagement Survey measured intention, knowledge, contemplation, self-efficacy, and readiness at baseline, 2-weeks, and 3-months following use of The Conversation Project Starter Guide. Advance care planning education positively influenced both the intention to engage [group] (commitment to making a change soon) and readiness to engage in advance care planning [group] among community-dwelling adults. The Conversation Project Starter Guide had a significant impact on intention to engage scores over time, with the most dramatic change observed between baseline and 2-weeks post-education. Chronic illness was a significant predictor of advance care planning engagement among community-dwelling adults.

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Association between patient-reported engagement and medical record of advance care planning among older adults in the ED: A cross sectional study

01/10/26 at 03:35 AM

Association between patient-reported engagement and medical record of advance care planning among older adults in the ED: A cross sectional studyAmerican Journal of Hospice and Palliative Medicine; by Nanako Shirai, Tadayuki Hashimoto, Sho Fukui, Upeka Samarakoon, Gabriel Paasche-Orlow, Seth N. Randa, Yuchiao Chang, Charlotta Lindvall, Katren R. Tyler, Hacho B. Bohossian, Kate R. Sciacca, Karina Klein, Allyson C. Sage, Donovan Nielsen, Eric Hanson, Milton Joel, Timothy F. Platts-Mills, Angelo Volandes, Kei Ouchi; 12/25Most older adults in the U.S. visit the emergency department (ED) in their final 6 months of life, providing an opportunity to engage patients in advance care planning (ACP) conversations ... While many report ACP engagement, the link between self-reported engagement and pre-existing ACP documentation in the ED, where ACP documentation is especially critical, remains unclear. ACP engagement was measured using the validated ACP Engagement Survey. On ED presentation, patient-reported ACP engagement correlated with the presence of pre-existing ACP documentation in the EHR. Conclusion: The ACP Engagement Survey may help identify older adults less likely to have documented ACP,  guiding targeted interventions in the ED.

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Automated lymph node and extranodal extension assessment improves risk stratification in oropharyngeal carcinoma

01/10/26 at 03:30 AM

Automated lymph node and extranodal extension assessment improves risk stratification in oropharyngeal carcinomaJournal of Clinical Oncology; by Zezhong Ye, Reza Mojahed-Yazdi, Anna Zapaishchykova, Divyanshu Tak, Maryam Mahootiha, Juan Carlos Climent Pardo, John Zielke, Benjamin H. Kann; 12/25Extranodal extension (ENE) is a biomarker in oropharyngeal carcinoma (OPC) but can only be diagnosed via surgical pathology. We applied an automated artificial intelligence (AI) imaging platform integrating lymph node autosegmentation with ENE prediction to determine the prognostic value of the number of predicted ENE nodes... Automated, AI-ENE node number is a novel risk factor for OPC that may better inform pretreatment risk stratification and decision-making.Publisher's Note: An interesting, and apparently effective, use of AI in prognostication.

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End-of-life care and hospice

01/10/26 at 03:25 AM

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Natural language processing to assess palliative care processes and health care utilization in seriously ill older adults with severe trauma

01/10/26 at 03:20 AM

Natural language processing to assess palliative care processes and health care utilization in seriously ill older adults with severe traumaJournal of Palliative Medicine; by Daniel I Hoffman, Sydney Moore, Mengyuan Ruan, Masami Tabata-Kelly, Kate Sciacca, Tamryn F Gray, Stuart R Lipsitz, Christine S Ritchie, Charlotta Lindvall, Zara Cooper; 12/25National guidelines recommend palliative care (PC) alongside life-sustaining treatment for older adults with severe trauma. However, outcomes associated with PC for these patients are not well-defined... Natural language processing was used to measure documentation of five inpatient PC processes: code status limitations, goals-of-care (GOC) conversations, hospice discussions, PC consultations, and health care proxy designations... PC was not associated with reduced health care utilization in older adults after trauma but was associated with one-year hospice enrollment. GOC conversations, specialty PC, and inpatient hospice discussions had low utilization, highlighting target areas for improvements in care delivery.

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Palliative care integration in oncology: A review and update

01/10/26 at 03:15 AM

Palliative care integration in oncology: A review and updateJournal of Hospice & Palliative Care; by Claire Wang, Thomas W LeBlanc; 12/25Palliative care (PC) is increasingly recognized as an essential component of high-quality cancer care, with evidence from randomized trials and meta-analyses demonstrating that it improves quality of life, mood, and goal-concordant end-of-life care. Despite these benefits, PC integration has been inconsistent, with many patients still receiving PC later in their disease course. Current models of integration include outpatient co-located PC clinics, inpatient consultation services, community- and home-based programs, and more recent innovations, such as telehealth and stepped approaches. Symptom control, coping support, longitudinal communication, and existential or spiritual interventions are among the active ingredients that are most consistently associated with improvements in patient outcomes. Implementation of precision PC requires embedding validated patient-reported outcomes and structured referral algorithms into oncology workflows, enabling real-time triage of targeted interventions.

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Minority stress, discrimination, and health outcomes among LGBTQ+ older adult dementia caregivers

01/10/26 at 03:10 AM

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Developing and testing a program to strengthen the dementia palliative care trial workforce

01/10/26 at 03:05 AM

Developing and testing a program to strengthen the dementia palliative care trial workforceJournal of Pain and Symptom Management; Ana-Maria Vranceanu, Hannah Puttre, Sarah Stone, Kathryn I Pollak, Jean S Kutner, Christine Seel Ritchie; 12/25To describe the development and early outcomes of the National Institute on Aging (NIA)-funded Dementia Palliative Care Clinical Trials Training Program (DEM-PCCT)... DEM-PCCT is a novel national training model that advances dementia palliative care by combining didactic training, experiential learning and structured grant development. Thus, DEM-PCCT builds the scientific workforce and serves as a model to accelerate evidence-based dementia palliative care interventions.

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Together we remember: Using topic modeling and semantic networks to study obituaries and collective memories of contemporary United States

01/10/26 at 03:00 AM

Together we remember: Using topic modeling and semantic networks to study obituaries and collective memories of contemporary United States Omega - Journal of Death and Dying; Haojian Li, Chengfang Wang, and Ping Hu; 12/6/25 Obituaries have long served as an important source in recording memories and social values in the United States. However, prior research has focused primarily on celebrities or specific groups, often overlooking the narratives of ordinary citizens and neglecting broader discussions of their collective memories. This study addresses these gaps by applying large-scale data analysis and computational methods. ... Overall, this study contributes new insights to obituary research and introduces a novel framework for examining collective memory through large-scale commemorative texts.

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Documentary sheds light on HIV patient’s science-advancing ‘last gift’ through UCSD study

01/06/26 at 03:00 AM

Documentary sheds light on HIV patient’s science-advancing ‘last gift’ through UCSD study San Diego Union Tribune; by Noah Lyons; 12/30/25 The documentary "The Last Gift" follows Jim Dunn's end-of-life decision to donate his tissues to HIV research, highlighting the altruistic act of giving back to science. The film showcases Jim's journey and the impact of his final act on advancing HIV research. It is a poignant reminder of the power of individual generosity in the pursuit of medical breakthroughs. 

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In their own words: Creating connections through narrative medicine

01/03/26 at 03:55 AM

In their own words: Creating connections through narrative medicineJournal of Patient Experience; by Sneha Mantri, Lissa Kapust, Jillian Goober, David K Simon; 11/25People with Parkinson's disease (PwP) often report feeling unheard or hurried through clinical visits, without the opportunity to share their unique illness story. Simultaneously, clinicians report increasing dissatisfaction with efficiency pressures that disincentivize active listening and patient-centered communication. This research brief outlines a guided short-form journaling activity, the 55-word story, for PwP to share their stories in a format that can be received by busy clinicians. By the end of each cohort, nearly all (31/35 participants, 88.6%) reported an improved relationship with their neurologist, communication skills, clarity about goals and values, and/or increased community with other PwP. An online guided journaling activity was feasible, enjoyable, and successful at improving the well-being of PwP. This model can be used at other institutions or with other chronic illnesses.

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Mending our souls: The role of textiles in death, loss, and navigating grief

01/03/26 at 03:50 AM

Mending our souls: The role of textiles in death, loss, and navigating griefOmega (Westport); by Emma M Mock; 12/25This literature review bridges the gap between research on the therapeutic benefits of engaging with textiles and the known benefits of art and narrative driven engagements for individuals and communities navigating grief. The prominence of textiles within historical and cultural contexts shows the way textiles are often key components in mourning rituals and have long been used as expressions of grief, despite its absence within the field thanatology. This article explores how the vast and varied ways people ritualize, memorialize, and engage with textiles have specific therapeutic benefits and support the frameworks within prevalent grief theory. This body of research encourages the application of textiles within personal and collective grief experiences, clinical settings, educational, and counsel spheres by establishing a body of research that addresses the breadth of textile's value as tools for navigating life after loss.

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323.3: What happens after the gift? Insights from organ procurement organizations on strengthening aftercare in the United States

01/03/26 at 03:45 AM

323.3: What happens after the gift? Insights from organ procurement organizations on strengthening aftercare in the United StatesTransplantation; by Levan, Macey; Akhtar, Jasmine; Sidoti, Carolyn; Kaplow, Katya; Klitenic, Samantha; Flower, Tessa; Yusef, Bola; Vanterpool, Karen; Parent, Brendan; Koons, Brittany; 12/25Each of the 55 U.S. organ procurement organizations (OPOs) is responsible for obtaining authorization for donation and supporting donor families through the donation process. While federal regulations mandate certain responsibilities related to authorization and coordination, there is no regulatory requirement that OPOs provide services to families after donation. Nonetheless, most OPOs have developed “aftercare” programs, which historically have focused on honoring loved ones, commemorating donation, and offering limited grief-related support. Facilitators of meaningful aftercare included peer connection efforts, standardized data processes, and tailoring services to diverse family needs. However, the structure, scope, and intensity of these programs vary widely, and there has been little national attention to standardizing or modernizing aftercare efforts. Common barriers to effective aftercare included limited access to mental health resources, low survey response rates, insufficient staffing or funding, and fragmentation between initial and long-term support teams. 

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Exploring and understanding different perspectives on the experience of engaging with death doulas and those in activity-aligned roles toward the end of life: An integrative review

01/03/26 at 03:40 AM

Exploring and understanding different perspectives on the experience of engaging with death doulas and those in activity-aligned roles toward the end of life: An integrative reviewPalliative Care & Social Practice; by Samara Gordon Wexler, Catherine Walshe; 11/25The death doula movement is expanding due to dissatisfaction with the medicalization of death and dying. The limited evidence from literature, including experiential perspectives outside of reports from death doulas or those in aligned-activities roles, indicates that research should continue to explore the benefits of adding these roles to end-of-life care. Positive experiences of engaging a doula or with those performing aligned activities appear related to role flexibility, which seems to facilitate other favorable experiences. However, flexibility also seems to be a cause of role confusion and boundary issues, shedding light on the need to develop regulation that protects both death doulas or those performing similar activities and those they engage with.

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Abstract 4364177: Underutilization of palliative care in peripheral artery disease: A state-of-the-art review across cardiovascular conditions

01/03/26 at 03:35 AM

Abstract 4364177: Underutilization of palliative care in peripheral artery disease: A state-of-the-art review across cardiovascular conditionsCirculation; by Odaly Balasquide-Odeh, Roberto Lapetina-Arroyo, Christiany Tapia, Alvaro Pinto-Rodriguez, Santiago Callegari, Mufti Rahman, Gaelle Romain, Kim Smolderen, Carlos Mena-Hurtado, Aseem Vashist, 11/25Peripheral artery disease (PAD) is associated with high morbidity and mortality, yet palliative care (PC), a supportive, team-based approach integrated remains underutilized. This review contrasted PC components, patient-level and program outcomes, and patient-reported outcomes across heart failure (HF), coronary artery disease (CAD), and peripheral artery disease (PAD). HF programs provide a transferable template for PAD, based on an early, structured and multidisciplinary PC. This could lead to a PAD-specific care model that integrates best practices from HF and that helps address underuse in a vulnerable and overlooked population.

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Neuropathology of Lewy body dementia: Lewy-related pathology, α-synuclein oligomers, and comorbid pathologies

01/03/26 at 03:30 AM

Neuropathology of Lewy body dementia: Lewy-related pathology, α-synuclein oligomers, and comorbid pathologiesMolecular Neurodegeneration; by Hiroaki Sekiya, Tomoyasu Matsubara, Michael A. DeTure, Dennis W. Dickson; 11/25 In this review, we provide a comprehensive overview of the underlying pathologies for Lewy body dementia and their molecular mechanisms and clinical implications. Lewy body dementia is the second most common form of neurodegenerative dementia, following Alzheimer’s disease. This umbrella term encompasses dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD). The distinction between these two conditions lies in the timing of the onset of cognitive impairment relative to motor symptoms. In DLB, cognitive impairment precedes or coincides with motor symptoms within the first year, whereas in PDD, cognitive decline occurs more than a year after the onset of motor symptoms. Clinically, in addition to cognitive decline, patients with Lewy body dementia have parkinsonism, visual hallucinations, and fluctuations of cognitive status.

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Translating the value of palliative transfusions for patients with blood cancers into high-quality end-of-life care

01/03/26 at 03:25 AM

Translating the value of palliative transfusions for patients with blood cancers into high-quality end-of-life careJAMA Network Open; by Pamela Egan, Dana Guyer; 11/25Studies have described how patients with blood cancers enroll in hospice care at lower rates than patients with solid tumor cancers, receive more futile chemotherapy, are more likely to seek emergency care at the EOL [end of life] , are more likely to be treated in intensive care units, and are more likely to die in hospital settings than their counterparts with solid tumors. The Medicare hospice benefit is structured in such a way that providing transfusions is cost prohibitive for hospice agencies. It is time to heed the call from the American Society of Hematology and palliative care and hospice agencies nationwide to revise the Medicare hospice benefit such that patients with blood cancers can receive hospice care as soon as their cancer-directed treatments are no longer valuable without sacrificing the quality-of-life–sustaining transfusions. This will be an important step toward ensuring high-quality EOL care for patients with hematologic malignant neoplasms.

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Addressing ethical conundrums in neuropalliative care

01/03/26 at 03:20 AM

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Palliative care in neuro-oncology

01/03/26 at 03:15 AM

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Neuropalliative care in dementia

01/03/26 at 03:10 AM

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Teaching primary palliative nursing care: A model of competency-based education

01/03/26 at 03:05 AM

Teaching primary palliative nursing care: A model of competency-based educationJournal of Professional Nursing; by Hannah Murphy Buc, Melissa McClean, Janet Armstead Wulf; Jan-Feb 2026Holistic care models such as primary palliative care offer individuals a coordinated, interprofessional and compassionate approach in any healthcare setting regardless of condition. Currently, palliative and end-of-life nursing care content is either threaded throughout nursing curricula or not included at all. This article documents the development of a required primary palliative care course in a baccalaureate nursing program and shares recommendations on competency-based teaching and evaluation methods to encourage implementation in other academic nursing settings. Course evaluations indicate that the class was well received and valuable to students' learning experience.

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She asked if she had dementia: Caregivers’ insights on lucidity in late stages of dementia and its impact

01/03/26 at 03:00 AM

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End-of-life care for older adults with dementia by race and ethnicity and physicians’ role

12/27/25 at 03:45 AM

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Trends in private equity acquisitions of assisted living facilities

12/27/25 at 03:40 AM

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Homeless services data vs health records to recognize homelessness

12/27/25 at 03:35 AM

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