Literature Review

All posts tagged with “Research News.”



Experiences of end-of-life care among incarcerated individuals: A qualitative interpretative meta-analysis

07/11/26 at 03:15 AM

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Outcomes for hospitalized patients with comfort measures only orders

07/11/26 at 03:10 AM

Outcomes for hospitalized patients with comfort measures only ordersJournal of Palliative Medicine; by Gina Piscitello, Donna Durant, Tami Minnier, Marika Haranis, Robert M Arnold, Jane Schell; 6/26Clinicians place comfort measures only (CMO) orders for hospitalized patients at the end-of-life when a decision has been made to focus on patient comfort and allow the natural dying process to occur. Our primary aim was to assess the associations of specialty palliative consults (SPC) or documented goals of care conversations (GOCC) with in-hospital mortality among patients with CMO orders. Of 6,789 hospitalized patients with CMO orders ... seventy-three percent died in-hospital, and 22% were discharged with hospice. SPC placed anytime during hospital admission were associated with lower in-hospital mortality ... and higher discharge with hospice ... In contrast, documented GOCC anytime during admission were associated with higher in-hospital mortality ...  and lower discharge with hospice ...

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Survival variation and predictors of length of stay in US hospice patients

07/11/26 at 03:05 AM

Survival variation and predictors of length of stay in US hospice patientsInternational Perspectives and Future Directions for Practice, Research, and Policy; by Ian Duncan, Xiyue Liao, Terri Maxwell; 6/26End-of-life (EOL) patients in the US Medicare program represent a large and growing population, as well as a disproportionate share of Medicare’s costs. Survival of patients in hospice is, however, highly variable, implying an opportunity for improved management by enhancing the prediction of survival. Actuaries, health economists, policy analysts, and health services researchers have studied expenditures at the EOL for Medicare decedents for many years, finding that survival at EOL is highly variable. We discuss the utilization of hospice benefits for patients at the EOL in the United States.

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An end-of-life care approach defining a new standard of care

07/11/26 at 03:00 AM

An end-of-life care approach defining a new standard of careJAMDA; by David N. Hoffman; 6/26The Institute for Healthcare Improvement (IHI) Leadership Alliance established an End-of-Life Care/Ending-Life Care Accelerator to define a continuum of care for patients as they progress from curative care, to palliative care, to hospice care, to final care planning, including ending life care interventions such as Medical Aid in Dying (MAiD), Voluntarily stopping eating and drinking (VSED), and palliative sedation. This accelerator defined as its goal the task of breaking down barriers between care providers which has been illuminated by research recently conducted by the Completed Life Initiative (CLI). CLI’s research efforts in this area started with an ongoing examination of nationwide hospice organization policies to provide referral for active intervention at the end of life. That effort was refocused on the widespread noncompliance of California and Washington state hospice organizations with a state law requirement to post on the organizations website a list of interventions made available by the hospice organization.

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Clinical Artificial Intelligence as a novice nurse: Leadership responsibilities for safe implementation

06/27/26 at 03:40 AM

Clinical Artificial Intelligence as a novice nurse: Leadership responsibilities for safe implementationNurse Leader; by Asiah Ruffin; 5/26Clinical artificial intelligence (AI) technologies are increasingly integrated into health care environments, influencing clinical workflows, documentation, decision-making, and patient communication. While AI is often introduced as a technical innovation, its implementation presents significant leadership responsibilities related to safety, workforce readiness, and organizational oversight. This commentary proposes an analogy that conceptualizes clinical AI systems as novice nurses—entities that require structured orientation, supervision, feedback, and ongoing development rather than autonomous trust. Using this analogy, the article examines risks associated with premature reliance on AI, including workflow disruption, performance variability over time, and limited user understanding of system capabilities and limitations. The commentary also outlines practical leadership considerations, including investing in workforce education, collaborating with human factors experts, establishing governance processes, and engaging in policy advocacy.

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Epidural and intrathecal catheter use at the end of life for cancer pain

06/27/26 at 03:35 AM

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Palliative care or hospice? Flipping the classroom for 1st year pre-clinical medical students with interactive online content

06/27/26 at 03:30 AM

Palliative care or hospice? Flipping the classroom for 1st year pre-clinical medical students with interactive online contentAmerican Journal of Hospice & Palliative Care; by Maxwell Vergo, Charles Wang, Lawrence Myers; 5/26Although palliative care competencies appear on USMLE [United States Medical Licensing Examination] examinations, pre-clinical curricula devote minimal time to end-of-life education. We created a 30-minute interactive online module in Articulate 360™ for first year students covering palliative care definitions, eligibility criteria, and care settings. In-class time was restructured to small group case discussions distinguishing primary palliative care, specialty palliative care, and hospice. Correct responses on a palliative care examination question improved from 57% (2020-2021, virtual lecture) to 66%, 67%, and 80% in subsequent years with the flipped intervention. The pre-work engaged students in learning (79-89% agreement), enabled focus on advanced topics during class (73-77% agreement), and was described as interactive and helpful in teacher evaluations.

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Palliative care involvement for pediatric hematopoietic cell transplant patients can enhance comfort-focused care at end of life without shortening survival duration

06/27/26 at 03:25 AM

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Pediatric home-based hospice and palliative care: A scoping review

06/27/26 at 03:20 AM

Pediatric home-based hospice and palliative care: A scoping reviewBMC Palliative Care; by Ellen Davis, Daniel H Grossoehme, Toluwalase Ajayi, Justin N Baker, Pamela S Hinds, Lisa Humphrey, Jill Ann Jarrell, Rachel Thienprayoon, Sarah Friebert; 5/26Pediatric palliative and/or hospice care is provided across a broad spectrum of settings, ranging from inpatient to outpatient to a child's home. Pediatric home-based hospice and/or palliative care teams offer a specialized, interdisciplinary approach to care, allowing children to stay in the home while offering comprehensive support. Common themes emerged [in this review] including studies analyzing models of care, characterizing the population, end-of-life decision making, clinical outcomes of home-based hospice and/or palliative care, costs and economic impact, family experiences, quality domains, specific treatment modalities, and the use of telehealth. Overall, the available literature supported home-based hospice and/or palliative care as an effective model of care, reducing the burden on families, improving quality of life, and allowing families to stay in their preferred setting for care without sacrificing clinical outcomes.

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Difficulties in honoring patient requests for hospice when relying on surrogate decision-makers: A case study

06/27/26 at 03:15 AM

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Comparison of end-of-life care utilization among patients with and without documented goals of care

06/27/26 at 03:10 AM

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“Nobody told us”: Inequities in end-of-life dementia care

06/27/26 at 03:05 AM

“Nobody told us”: Inequities in end-of-life dementia careJournal of Pain & Symptom Management; by Krista L. Harrison, Lingsheng Li, Jasmine Santoyo-Olsson, Niousha Moini, Lauren J. Hunt, Rebecca L. Sudore, Alex Smith; 6/26In the United States, one in three older adults dies with or from dementia. Despite increasing hospice enrollment, minoritized racial, ethnic, and LGBTQ communities face persistent inequities in access to timely, high-quality end-of-life care. We recruited bereaved caregivers of decedents with dementia from communities that experience health disparities. Just over half of the participants rated end-of-life care middling-to-bad. Reasons cited for receiving poorer care than others were age (40%), race, ethnicity, or nationality (36%), disability (20%), and weight (8%). End-of-life communication challenges reported by participants were often based in systemic racism and structural oppression, including: problems accessing language-concordant education and clinicians, missed opportunities for anticipatory guidance due to cultural biases or lack of access to healthcare, difficulty finding clinicians skilled in sensitive and tailored communication, inconsistent hospice admission criteria, and understaffed hospices.

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Nurse perceptions of end-of-life care quality across long-term care, home, and social model hospice home settings: A qualitative descriptive study

06/27/26 at 03:00 AM

Nurse perceptions of end-of-life care quality across long-term care, home, and social model hospice home settings: A qualitative descriptive studyAmerican Journal of Hospice & Palliative Care; by Helen Mavis Farrar, Kelley Easterling Scott; 5/26This qualitative descriptive study explored nursing perspectives on end-of-life care quality across 3 distinct community settings: long-term care facilities, patients' homes, and social model hospice homes. Nurses provide most of the direct end-of-life care in these settings, yet their perspectives remain understudied. Semi-structured interviews were conducted with 11 licensed nurses who had provided end-of-life care across all 3 settings. Analysis revealed 4 major themes: (1) setting-based care disparities, (2) nurses as educators and translators, (3) mediation of caregiver burden across settings, and (4) relationship-based care as foundational for peaceful deaths. Care setting profoundly influenced these nurses' ability to deliver quality end-of-life care. 

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Hospice care provider and compassion fatigue research project

06/27/26 at 02:00 AM

Hospice care provider and compassion fatigue research projectPersonal communication; by Michelle Jackson; 6/10/26Researchers at Missouri State University are conducting a research survey regarding compassion fatigue, resilience, and participation in meaningful activities for hospice care providers. Participation deadline 7/12/26. For additional information and to participate, click here.

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Flourishing within vulnerability: on human fragility and the conditions for a habitable environment

06/25/26 at 03:00 AM

Flourishing within vulnerability: on human fragility and the conditions for a habitable environment Theoretical Medicine and Bioethics; by Irene Quiliconi; 6/24/26 In recent philosophical discourse, "flourishing" has emerged as a concept of growing importance—often linked to the field of well-being studies and explored by various and different disciplines. The article approaches flourishing not as an abstract ideal, but rather as a condition that must be understood as rooted in the lived reality of human vulnerability. More specifically, I argue that any genuine account of human flourishing must regard vulnerability— human inherent fragility and reciprocal dependence—not as an impediment, but as the very foundation from which meaningful flourishing can arise. 

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Management of catatonia in Huntington disease: A scoping review

06/20/26 at 03:35 AM

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Caregiving stressors and sleep outcomes: Examining group differences among caregivers of persons living with dementia

06/20/26 at 03:30 AM

Caregiving stressors and sleep outcomes: Examining group differences among caregivers of persons living with dementia The Journals of Gerontology; by Fei Wang, Seungjong Cho, Anne Conway, Yejin Heo, Christine Lau, Karyne Machry; 5/26Caring for persons living with dementia often involves high levels of physical demands and emotional burden, which may undermine caregivers’ sleep quality. Few studies have examined sleep health among Black caregivers of persons living with dementia, despite the fact that they are underrepresented in dementia research and experience poorer sleep outcomes compared to non-Hispanic White caregivers. Subjective caregiving stressor (i.e., role overload) was positively associated with sleep disturbance. A significant interaction showed that the association between role overload and sleep disturbance was stronger among Black caregivers than in non-Hispanic White caregivers. Findings also suggest that Black caregivers of persons living with dementia may experience greater vulnerability to the adverse role of role overload in relation to sleep.

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Temporal association of palliative care consultation with the trajectory of broad-spectrum antibiotic use at the end of life in advanced cancer: A nationwide linked cohort study

06/20/26 at 03:25 AM

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Knowledge of advance care planning and advance directives among US adults: Implications for health policy and practice

06/20/26 at 03:20 AM

Knowledge of advance care planning and advance directives among US adults: Implications for health policy and practicePalliative Care & Social Practice; by Anisah Bagasra, Gretchen Agans; 5/26Advance care planning (ACP) is the process of identifying and communicating values and goals in preparation for future shared decision-making in medical settings. Decisions are legally supported by an advance directive (AD) document designating healthcare agent(s) and future medical treatment preferences. Although important, ACP engagement in the United States remains low. Findings indicate persistent gaps in ACP and AD literacy among US adults, along with misconceptions about access, time, and costs that may be contributing to low engagement. Increasing public education and expanding access to knowledgeable professionals may help reduce barriers and promote more equitable engagement in ACP.

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Goals of care discussions in medical training: Integrating palliative care for holistic, patient-centered care

06/20/26 at 03:15 AM

Goals of care discussions in medical training: Integrating palliative care for holistic, patient-centered careHealthcare; by Celine Rochon, Farzana Hoque; 5/26Goals of care discussions are essential communication skills in medical training that bridge patient values with clinical decision-making. Integrating palliative care principles into these conversations enables holistic, patient-centered care, yet medical trainees often lack structured preparation for these critical interactions. Integrating palliative care principles into medical training for goals of care discussions is essential for developing patient-centered clinicians. Combining structured communication frameworks, interprofessional education, targeted skills training, and technological support creates a comprehensive educational approach that prepares trainees to elicit patient goals, create individualized care plans, and deliver holistic care that honors patient values.

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Psychometric testing of the Hospice Perceptions Instrument (HPI) for patients and families in the United States

06/20/26 at 03:10 AM

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Serious illness care exclusion, disclosure, & trust for older gay men & caregivers in the Deep South

06/20/26 at 03:05 AM

Serious illness care exclusion, disclosure, & trust for older gay men & caregivers in the Deep SouthJournal of Pain & Symptom Management; by Korijna Valenti, Margaret Armstrong, Michael Barnett, Stacy Smallwood, Ronit Elk; 5/26Older gay men in the Deep South experience serious illness within healthcare systems shaped by heteronormativity and structural racism. Although disparities in access and disclosure are documented, less is known about how negative or ambiguous healthcare encounters are interpreted in serious illness settings. Using a community-based participatory research approach, we conducted semi-structured interviews with 16 participants (11 patients aged 50 years or older living with serious illness and 5 caregivers) residing in the Deep South. Five themes emerged: discriminatory experiences and bias, clinician communication gaps, exclusion from decision-making, system-level gaps in care quality, and disclosure, trust, and safety. Participants described overt and subtle forms of bias, dismissal of partners in clinical encounters, rushed or unclear communication, and institutional barriers that intensified vulnerability during serious illness. Black participants more frequently identified racialized experiences and contextualized mistrust within histories of systemic racism.

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Towards quality indicators in palliative care education: An umbrella review

06/20/26 at 03:00 AM

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A humanities curriculum for preparing medical students to work with dying patients

06/13/26 at 03:40 AM

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Health-related quality of life measures in incarcerated populations: A scoping review

06/13/26 at 03:35 AM

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