Literature Review

All posts tagged with “Research News.”



Exploring the relationship between palliative care knowledge, health concerns, and education among seriously ill older adults and their family caregivers using survey and interview data: A novel approach

03/07/26 at 03:25 AM

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Home health nurses’ perceptions of safety

03/07/26 at 03:20 AM

Home health nurses’ perceptions of safetyHome Health Care Management & Practice; by Kiernan Riley, Kalei Crimi, Michael M. Evans, Natalie Faybisovich, Judith E. Hupcey; 2/26The purpose of this qualitative analysis was to evaluate perceived safety threats and the impact of these treats on home health nurses. Findings included overarching themes of fear and safety. Fear within practicing nurses was a consequence of impaired safety in the home setting. The theme of safety had 2 sub-themes: risks to safety, and nursing actions to enhance safety. Effective training and awareness for nuanced safety concerns, such as when caring for persons with SPMIs in a home setting, are required to enhance nurse safety and retention as well as optimize patient care.

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Values considerations in telemedicine: Pause before shifting

03/07/26 at 03:15 AM

Values considerations in telemedicine: Pause before shiftingJournal of Pain and Symptom Management; by Meaghann S. Weaver, Kenneth A. Berkowitz; 12/25As a contingency standard of care, telemedicine use surged during the COVID-19 pandemic. The Medicare telehealth flexibilities introduced during the COVID-19 pandemic expired in September 2025. Any ongoing sustained pivot to telemedicine warrants purposeful attentiveness to ethical considerations and not just technology use as an end unto itself. Telemedicine has the potential to complement face-to-face care practices and enhance clinical interactions when its use is based on shared values. Values such as access, equity, justice, compassion, autonomy, and dignity warrant thoughtful use of telemedicine. Patients and families need to be able to trust that clinicians and health systems will place patient welfare and shared values above technical convenience. As demonstrated in this case description, upholding values fundamental to the practice of medicine in telemedicine can enhance patient connection and foster trustworthy postpandemic practices.

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Cross-cultural validation of the Refusal of Care Informant Scale (RoCIS) for older adults with dementia in the European Portuguese population

03/07/26 at 03:10 AM

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Dementia, taboo, and the need for a cultural reckoning

03/07/26 at 03:05 AM

Dementia, taboo, and the need for a cultural reckoningJournal of Aging Studies; Kelly Marnfeldt; 3/26Dementia is one of the most feared and misunderstood conditions of our time. Even as public awareness has increased, people living with dementia continue to face exclusion, moral disregard, and systemic neglect. Decades of advocacy, education, and contact-based interventions have sought to reduce stigma. [This study] proposes that dementia becomes stigmatized not only because it is misunderstood, but because it violates cultural expectations of personhood, consistency, and intelligibility. The paper concludes by proposing culturally grounded provocations that imagine what it might look like to reframe how dementia is seen, told, and recognized, both socially and culturally.

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Trajectories of goals of care among patients with advanced cancer in the last two years of life

03/07/26 at 03:00 AM

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John Bowlby’s theory of attachment and separation: revisiting his original visions after 50+ years, what we know today, and where to go from here?

03/02/26 at 03:00 AM

John Bowlby’s theory of attachment and separation: revisiting his original visions after 50+ years, what we know today, and where to go from here?

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"The best, most difficult thing I've ever done": The complex experiences of palliative and hospice familial caregivers

02/28/26 at 03:45 AM

"The best, most difficult thing I've ever done": The complex experiences of palliative and hospice familial caregiversAmerican Journal of Hospice & Palliative Care; by Hannah Rachiele, Kathryn Levy, Gina Schuster, Sheila Conboy, Pei C Grant, Christopher W Kerr; 2/26Caring for chronically or terminally ill individuals comes with unique challenges and circumstances that are specific to each situation and individual involved. The purpose of the current study was to better elucidate the scope of challenges and benefits attributed to caring for a loved one with a serious, life-limiting illness. Four main themes emerged: (1) Burdens on the Caregiver, (2) Navigating Caregiving, (3) The Positives, and (4) Evolution of Relationships. Findings suggest that family caregivers of individuals with terminal or life-limiting illness experience complex, and often contradictory feelings, which may differ from perceptions by those not providing similar care to a loved one. The data suggest that clinicians working with the caregiving population should explore the duality of caregiving beyond just the anticipated negative impacts.

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Trends and disparities in left ventricular failure mortality in The United States: A 1999-2020 analysis

02/28/26 at 03:35 AM

Trends and disparities in left ventricular failure mortality in The United States: A 1999-2020 analysisJournal of Cardiac Failure; by Abdalhakim Shubietah, Hasan Munshi, Emmanuel Olumuyide, Muath Baniowda, Abdallah Hussein, Mohammad Alqadi, Qutaiba Qafisheh, Majd Oweidat, Omar Hamadi, Mohammad O Abdelhafez; 1/26 Left ventricular failure (LVF) is a significant cause of cardiovascular mortality in the United States. Despite advances in heart failure management, mortality rates have shown a notable increase over time, particularly in recent years. This study examines trends and disparities in LVF-related mortality using data from the CDC WONDER database from 1999 to 2020. LVF-related mortality has increased significantly over the past two decades, particularly after 2010, highlighting a growing public health concern. Disparities persist across sex, race, age groups, urbanization, and geographic regions. The high burden of deaths outside medical facilities suggests a need for enhanced outpatient and palliative care strategies.

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BMI at diagnosis and pre-diagnosis weight loss as predictors of stage and survival in hepatocellular carcinoma

02/28/26 at 03:30 AM

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Health impacts of nursing home staffing

02/28/26 at 03:25 AM

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Determinants of tele-palliative care utilization among heart failure patients

02/28/26 at 03:20 AM

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Palliative care utilization and timing for patients undergoing solid organ transplantation in a large multicenter cohort

02/28/26 at 03:15 AM

Palliative care utilization and timing for patients undergoing solid organ transplantation in a large multicenter cohortTransplantation; by Matthew W Kenaston, Ryan Baldeo, Tyler K Murphy; 1/26Palliative care ... referrals in transplant programs are infrequent, often reactive, and the benefits remain unclear. We retrospectively studied 12,676 heart, liver, lung, and kidney transplants across 3 Mayo Clinic sites (2018-2024). PC encounters were classified as pretransplant (≤1 y before admission), peritransplant (during hospitalization), or posttransplant (≤1 y after discharge). Only 8.3% engaged PC, with patterns varying by organ and timing. Timing of inpatient consultation showed a strong positive correlation with hospital length of stay, and pretransplant PC coincided with higher rates of goals-of-care discussions and fewer hospital interventions. Adapting screening criteria to focus on high-risk recipients, PC was associated with fewer short-term readmissions for heart and lung recipients.

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The roboagents are coming!: The promise and challenge of artificial intelligence advance directives

02/28/26 at 03:10 AM

The roboagents are coming!: The promise and challenge of artificial intelligence advance directivesThe Hastings Center Report; by Jacob M Appel; Jan-Feb 2026Advance directives have historically relied upon human agents. But what happens when a patient appoints an artificial intelligence system as an agent? This essay introduces the idea of roboagents-chatbots authorized to make medical decisions when individuals lose capacity. After describing potential models, including a personal AI companion and a chatbot that has not been trained on a patient's values and preferences, the essay explores the ethical tensions these roboagents generate regarding autonomy, bias, consent, family trust, and physician well-being. This essay then calls for legal clarity and ethical guidance regarding the status of roboagents in light of their potential as alternative health care agents.

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A qualitative study with patients, care-partners, clinicians, and bioethicists to identify ethical considerations of artificial intelligence tools in palliative care

02/28/26 at 03:05 AM

A qualitative study with patients, care-partners, clinicians, and bioethicists to identify ethical considerations of artificial intelligence tools in palliative carePalliative Medicine; by John Y. Rhee, Paul Miller, Zachary Tentor, Amanda Reich, Alexi A. Wright, Charlotta Lindvall; 1/26The use of artificial intelligence (AI) in medicine has surged. Given the sensitive nature of palliative care, it is crucial to apply AI tools in a patient-centered and ethical manner. From the interviews we extracted five main themes: (1) Primacy of the doctor-patient relationship over AI performance; (2) Humans have intuition and nuance that AI lacks; (3) Agreement about the importance of oversight of AI tools; (4) New AI technologies should include a process for patient education; and (5) AI increases efficiency, scalability, and a more unified approach to serious illness. When building and implementing AI-based tools, we recommend: establishing oversight committees; reflecting on the unique contributions of humans to care; proactively educating patients and contextualizing the tools; and ensuring data use is restricted to clinical care.

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Relearning the world through grief-informed case formulation: A critique of prolonged grief disorder

02/28/26 at 03:00 AM

Relearning the world through grief-informed case formulation: A critique of prolonged grief disorder Journal of Humanistic Psychology; by Eleonora Ramsby Herrera, PhD; 1/31/26 Drawing on existential and humanistic frameworks, this review article critically examines the diagnosis of prolonged grief disorder and questions the usefulness of reducing grieving to a fixed set of symptoms and timelines. ... Rather than viewing grief as a disorder to be treated, the article advocates for understanding it as a natural and potentially transformative human response and argues for integrating grief into the bereaved person’s life story as a way to relearn the world.

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"We are caring for the whole person": A qualitative study of social work's role in palliative cancer care

02/28/26 at 03:00 AM

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Cancer support camps and the measurement of quality of life among children of parents with cancer

02/21/26 at 03:40 AM

Cancer support camps and the measurement of quality of life among children of parents with cancerSupportive Care in Cancer; by Mia K. Price, Marcelo M. Sleiman Jr., Muriel R. Statman, Duye Liu, Rachel Adams, Matthew G. Biel, Alexandra L. Baldwin, Joseph M. Stilwell, Kenneth P. Tercyak; 1/26Children of parents with cancer face elevated risks of anxiety, depression, and impaired social-emotional functioning. This study aimed to develop and evaluate the Kids’ Experience of Summer Enrichment Measure (KESEM), a parent-report tool assessing psychosocial well-being among children attending a cancer support camp due to a parent’s cancer [and] ... the majority of parents (78%) strongly agreed that camp was favorably impactful and would recommend it to others.

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An exploratory analysis of advance care planning typologies in a sample of midlife and older adult sexual minority men

02/21/26 at 03:35 AM

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GOComm: A team-based communication intervention to improve clinicians' skills and distress tolerance in family meetings

02/21/26 at 03:30 AM

GOComm: A team-based communication intervention to improve clinicians' skills and distress tolerance in family meetingsJournal of Hospital Medicine; by Kimberly Bloom-Feshbach, Evgenia Litrivis, Elizabeth Brondolo, Alexandra Spinelli, Thomas Bozzo, Melissa Patterson, Robert Crupi, Cynthia X Pan; 1/26Medical training often omits systematic approaches to prognostication and goals of care (GOC) communication, leading to end-of-life (EOL) hospital care misaligned with patients' values, lower clinician self-efficacy, and greater clinician distress. We developed and implemented GOComm, a 4-h serious illness communication training program across eight campuses of a large health system.  Clinicians had statistically significant gains in GOC knowledge, self-efficacy, and distress tolerance. GOComm had high clinician acceptability: 96.2% indicated they would recommend GOComm to a colleague, and 83.2% credited it with changing how they will manage patients.

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Mediating effects of depressive and heart failure symptoms in their associations with quality of life in patients with heart failure

02/21/26 at 03:25 AM

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Connected care for older adults: A pilot intervention engaging community health workers to advance age-friendly care in rural Oregon

02/21/26 at 03:20 AM

Connected care for older adults: A pilot intervention engaging community health workers to advance age-friendly care in rural OregonJournal of the American Geriatrics Society; by Bryanna De Lima, Lindsay Miller, Elizabeth Foster, Jodi Ready, Elizabeth Eckstrom; 1/26Aging in a rural setting presents unique challenges including limited access to in-home care, lack of social support, language and cultural barriers, and the lack of transportation. We conducted a pilot study embedding community health workers (CHWs) into rural primary care teams to assist with implementation of the 4Ms of the Age-Friendly Health System: What Matters, Mentation, Medication, and Mobility. The program made a positive difference for 95% of responding patients (n = 120) and 100% of responding providers (n = 19) were "very satisfied" with the program. Clinicians cited the CHWs' ability to support resource connections, address social isolation and social needs, provide regular check-ins, and help to get patients and families engaged in care as positive components of the model.

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Too late to help? Disparities in palliative and hospice care among veterans with pancreatic cancer—A 10-year retrospective study at a VA medical center

02/21/26 at 03:15 AM

Too late to help? Disparities in palliative and hospice care among veterans with pancreatic cancer—A 10-year retrospective study at a VA medical centerJournal of Clinical Oncology; by Jonathan Blackmon, Mirza Mashaal Khan, Rahul Reddy Tirumalareddy, Zohair  Siddiqui, Saurin Chokshi, Alva Bowen Weir III; 1/26Pancreatic cancer is characterized by high symptom burden, rapid progression, and poor prognosis. ASCO [American Society of Clinical Oncology] guidelines recommend palliative care consultation at diagnosis or within 8–12 weeks. Despite guideline recommendations, many patients with pancreatic cancer did not receive timely palliative or hospice care. Delays were more pronounced among rural and Black patients, highlighting persistent disparities in access. These findings support the implementation of a quality improvement initiative at the Memphis VA to standardize early palliative care referrals for high-risk populations.

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Does palliative care reduce hospital stay in pulmonary hypertension?

02/21/26 at 03:10 AM

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Acupuncture and acupressure for cancer symptom management: An opinion statement based on preliminary evidence mapping

02/21/26 at 03:05 AM

Acupuncture and acupressure for cancer symptom management: An opinion statement based on preliminary evidence mappingCurrent Treatment Options in Oncology; by Nada Lukkahatai, Jingyu Zhang, Chitchanok Benjasirisan, Sutthida Phongphanngam, Aomei Shen, Phakjira Jaiman, Jennifer Kawi, Thomas J. Smith, Leorey N. Saligan; 1/26 Symptom management remains a critical priority in oncology, particularly as many survivors continue to experience fatigue, pain, sleep disturbance, neuropathy, and psychological distress despite advances in treatment. Conventional pharmacologic options often provide only partial relief and may be limited by side effects. Acupuncture and acupressure have emerged as promising non-pharmacologic approaches, but the supporting evidence is drawn from a broad and heterogeneous literature. In this opinion paper, we provide a preliminary overview of the current review-level evidence to highlight general trends and evolving areas of promise, while emphasizing the need for further sham-controlled studies to clarify effectiveness and guide integration of acupuncture and acupressure into supportive oncology.

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