Literature Review

All posts tagged with “Research News.”



Exploring the anxiety, depression and perceived burden in advanced cancer: A longitudinal view on patients and caregivers

01/31/26 at 03:15 AM

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Best teaching practices in primary palliative care education for health professions students in the United States: An integrative review

01/31/26 at 03:10 AM

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Palliative care in the Emergency Department: An emerging role

01/31/26 at 03:05 AM

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Evaluating palliative care needs in patients with advanced non-malignant chronic conditions: An umbrella review of needs assessment tools

01/31/26 at 03:00 AM

Evaluating palliative care needs in patients with advanced non-malignant chronic conditions: An umbrella review of needs assessment tools Healthcare; by Chrysovalantis Karagkounis, Stephen Connor, Danai Papadatou, Thalia Bellali; 12/24/25 Patients with advanced non-malignant chronic conditions experience illness burdens and palliative care needs comparable to those of oncology patients, yet palliative care is often introduced late. Identifying individuals with potential palliative care needs is complex, and although multiple tools exist, the most appropriate approach for assessing needs in this population remains unclear. This umbrella review aimed to identify and evaluate tools used to systematically assess palliative care in adults with advanced non-malignant chronic conditions, with a specific focus on their content, structure, and psychometric properties.

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Changing the story data tells about Black health

01/27/26 at 03:00 AM

Changing the story data tells about Black health The Seattle Medium, Seattle, WA; by Joseph Williams; 1/26/26 When it comes to the health of Black Americans, the numbers don’t lie. ... Last August, Word In Black launched its Insights & Research Division, a data-focused department centered on the perspectives, priorities, and lived experiences of Black Americans. The goal is straightforward: find out what Black people think about the issues affecting them most, analyze the results, and use those insights to reshape the narrative.

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"The lack of preparation compounds provider grief": Results from a needs assessment on grief training delivered to pediatric residents

01/24/26 at 03:55 AM

"The lack of preparation compounds provider grief": Results from a needs assessment on grief training delivered to pediatric residentsClinical Pediatrics; by Erin Hickey, Erica L Jamro; 12/25Educational interventions to prepare pediatric residents to care for grieving people are rare.  Pediatric residents completed a survey conducted from March to April 2022 that assessed their experience, attitudes, skills, and knowledge of organizational support related to caring for grieving patients and families.  Despite improvements in competence with delivering difficult news with years in residency ... , only 35.7% felt competent by PGY3/4 [post-graduate year 3]. Only 19.5% of residents overall believe adequate grief support exists within their training program. Opportunities for residents to receive formal grief training are inadequate.

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Taking care of themselves: Cannabis use among informal care partners of older adults

01/24/26 at 03:55 AM

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"He needs to die in the hospital": A caregiver's distress call

01/24/26 at 03:50 AM

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Palliative care in pediatric phase I oncology trials: A scoping review

01/24/26 at 03:45 AM

Palliative care in pediatric phase I oncology trials: A scoping reviewPediatric Blood & Cancer; by Andrea Cuviello, Harisankeerth Mummareddy, Alanis N. Gomez Martinez, Holly Spraker-Perlman, Allison Uber, Jordan Wrigley, Erica C. Kaye; 12/25Clinical trials, particularly Phase I trials that test drug safety and feasibility, are imperative to advance outcomes for children with cancer. These trials, however, pose risks for increased symptom burden and suffering. Early integration of palliative care (PC) during Phase I trial enrollment offers a potential reduction in suffering and improvement in quality of life.  PC integration was associated with earlier hospice enrollment, increased home and hospice deaths, decreased hospitalizations and intensive care unit utilization, improved care coordination, and better symptom management. 

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Palliative care staff attitudes toward music therapy for hospitalized adult patients

01/24/26 at 03:20 AM

Palliative care staff attitudes toward music therapy for hospitalized adult patientsAmerican Journal of Hospice & Palliative Medicine; by Katherine A. Carney, Rachel M. Wiste, Susanne M. Cutshall, Christina Wood, Rachel C. Gentes, Brianna E. Larsen, Nana A. Tiwaa, Amelia E. Tetlie, Regina M. Mackey; 12/25There is emerging evidence that music therapy (MT) is an effective tool within palliative care to manage patients’ complex needs. This performance improvement project aimed to assess palliative care staff members’ attitudes toward the current utilization of MT within the institution’s hospital-based interdisciplinary practices. Top reasons for MT referral were psychosocial support, pain and symptom management, and coping. The most common symptom-focused indications were anxiety, mood, and existential distress. In this single-institution performance improvement project, staff attitudes were highly favorable toward MT for palliative care patients. MT is utilized for a variety of reasons, can be highly effective for improving patients’ quality of life, and may also be of direct benefit to staff.

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GITalk: Communication skills training for gastroenterology fellows improves self-assessed preparedness for serious illness conversations

01/24/26 at 03:15 AM

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Integrating compassion and policy: Highlights from IAHPC Advocacy, 2025

01/24/26 at 03:10 AM

Integrating compassion and policy: Highlights from IAHPC Advocacy, 2025Palliative Medicine in Practice: by Katherine Irene PettusIn 2025, the International Association for Hospice and Palliative Care (IAHPC) advanced advocacy for palliative care as an ethical, clinical, and human rights imperative. As a non-state actor in official relations with the World Health Organization (WHO), the association worked across policy, faith, and professional domains to integrate palliative care into universal health coverage frameworks. This report summarizes IAHPC’s global activities from February to November 2025, including engagement at the 78th World Health Assembly (WHA), collaboration with WHO and the International Narcotics Control Board (INCB), the launch of the Leadership and Advocacy Development (LEAD2) program, and new interfaith and educational initiatives.Assistant Editor's note: As I peruse peer reviewed journals to bring you relevant and current summaries of research, I am amazed at the large number of articles published now about palliative care. It wasn't this way just a few years ago. As a long-time hospice and palliative care nurse, I am delighted to see the ground swell of interest in the principles, the need, the value, and the effectiveness of palliative care. I feel like 'We Have Arrived' (finally!). Kudos to all of you who have worked tirelessly over many years to educate professionals and the public at large, about palliative care and its virtues. I know we are not done; there is more to do. But we've come a long way baby!

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Implementation and evaluation of high-yield clinical skills session to improve medical students' confidence in palliative care skills

01/24/26 at 03:10 AM

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Video conversation aids to assist in goals-of-care discussions with older adults in a medical setting: A systematic review

01/24/26 at 03:05 AM

Video conversation aids to assist in goals-of-care discussions with older adults in a medical setting: A systematic reviewAmerican Journal of Hospice & Palliative Care; Ashna S Karpe, Mokunfayo O Fajemisin, Stephanie Martinez Ugarte, Lara Ouellette, Martin L Blakely, Gina H Khraish, Shreyans V Sanghvi, Min J Kwak, Jessica L Lee, Lillian S Kao, Thaddeus J Puzio; 12/25Goals-of-care (GOC) discussions align medical treatment with older adults' preferences, yet are hindered by communication barriers, provider discomfort, and misinformation. Video-based decision aids improve understanding and reduce decision conflict, though data on their use in older populations remain limited. Video variability and differences in measured outcomes limited comparisons and generalizability. Video-based decision aids show promise for improving knowledge and aligning treatment preferences. Further studies are needed to investigate the impact of video-based decision aids on GOC conversations in older adults in acute care settings.

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Limited English proficiency and its association with quality of care and bereavement at the end of life

01/24/26 at 03:05 AM

Limited English proficiency and its association with quality of care and bereavement at the end of lifeAmerican Journal of Hospice & Palliative Medicine; by Maxwell D. Chen, Joan M. Teno; 12/25Of 17.1 million deaths, 5.4% occurred in Hispanic decedents, compared to 3.0% among non-Hispanics ... The strongest disparity was a 12.9-point lower adjusted quality-of-care rating for Hispanic decedents with LEP [limited English proficiency] ...  Respondents of Hispanic decedents with LEP reported trends of higher unmet needs for dyspnea palliation and receipt of goal concordant care. Conclusion: LEP is prevalent in Hispanic decedents, with those with LEP reporting lower ratings of the quality of care compared to non-Hispanics without LEP.

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Expanding the boundaries of palliative care: Diseases of the nervous system and survival prognosis in home-based programs

01/24/26 at 03:00 AM

Expanding the boundaries of palliative care: Diseases of the nervous system and survival prognosis in home-based programsAmerican Journal of Hospice & Palliative Medicine; by Mônica Isaura Corrêa, Igor de Oliveira Claber Siqueira, Sonia  Souza, Eduardo Bruera, Ana Paula Drummond-Lage; 12/25Home-based palliative care (HBPC) is increasingly recognized as an essential strategy for managing patients with non-oncologic and life-limiting conditions. However, prognostic factors influencing survival in this population remain underexplored. Diseases of the nervous system (DNS) were the most frequent referral diagnoses [in this study] (32.3%). Patients with Alzheimer’s disease and related dementias demonstrated longer survival than those with other DNS or no DNS diagnoses ... While PPS [Palliative Performance Scale] remains a useful tool, its discriminatory capacity was modest, underscoring the need for refined prognostic models in non-oncologic palliative care.

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New voices, shared vision: How emerging research scholars are supporting HPNA's research priorities

01/17/26 at 03:55 AM

New voices, shared vision: How emerging research scholars are supporting HPNA's research prioritiesJournal of Hospice & Palliative Nursing; by Jyotsana Parajuli, Kristin Levoy, Avery C Bechthold, Lyndsay Degroot, C Robert Bennett, Shena Gazaway, Heather Coats; 12/25Evidence-based practice is critical to providing high-quality hospice and palliative nursing care. Professional organizations, such as the Hospice and Palliative Nurses Association (HPNA), play a critical role in shaping the future of the hospice and palliative nursing field by identifying gaps in the science and fostering collaborative research efforts to inform evidence-based practices. One such driver is the tri-annual HPNA Research Agenda, which outlines key research priorities in hospice and palliative nursing, ultimately aiming to accelerate translation of research into practice and practice improvements. In this article, 6 emerging research scholars in the field and present and former co-chairs of the HPNA Emerging Research Scholar Special Interest Group reflect on the experiences that led them to pursue research careers in hospice and palliative nursing. Through a process of collective self-assessment, these scholars articulated their shared progress toward addressing the research priorities outlined in the 2023-2026 HPNA Research Agenda as a means of generating insights to direct future research efforts in the field.

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Existential communication with patients and families: A qualitative exploration of multidisciplinary oncology clinicians’ experiences

01/17/26 at 03:50 AM

Existential communication with patients and families: A qualitative exploration of multidisciplinary oncology clinicians’ experiencesAmerican Journal of Hospice & Palliative Medicine; by Megan Miller, William E. Rosa, Haley Buller, Meghan McDarby, Alix Youngblood, Betty R. Ferrell; 12/25Existential concerns are inherent in serious illness and at the end of life, yet communication to address such concerns can be challenging. Themes across clinicians’ experiences of existential communication with patients and families included existential questions, guilt/regret, fears about the future, grief, preparing for death, values and goals of care, spiritual concerns, and letting go. Meaningful experiences included bearing witness; providing emotional support and information; easing suffering; learning and growing; and the honor of accompanying patients and families through the end of life. Challenges included discomfort when talking about death; facing denial; being unable to “fix it”; resistance to palliative care among oncology team members, patients, and families; fear of saying the wrong thing; navigating conflicting values; responding to spiritual concerns; barriers to inclusive, high-quality care; and struggling with emotions.

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Neuropalliative care in movement disorders

01/17/26 at 03:45 AM

Neuropalliative care in movement disordersContinuum: Lifelong Learning in Neurology; by Benzi M Kluger; 12/25Over the past decade, significant progress has been made to advance palliative care approaches for patients with Parkinson disease and other movement disorders. This population has significant palliative care needs that are poorly met under traditional models of care, including nonmotor symptom management, advance care planning, psychosocial support, spiritual and existential support, care partner support, and timely referrals for specialist and end-of-life palliative care (hospice). Clinical trials demonstrate that specialist palliative care can improve many patient and family outcomes. Neurologists can use the five-pillars framework (nonmotor symptoms, advance care planning, psychosocial and spiritual support, care partner support, and timely involvement of specialist palliative care) to systematically address common sources of suffering that are poorly recognized in traditional models of care. This framework can be integrated into previsit screening forms and note templates to improve the detection of palliative issues.

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Improving palliative care knowledge and intentions among Great Plains American Indians: Efficacy results from a randomized clinical trial testing a culture-centric palliative care message

01/17/26 at 03:40 AM

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Rural-urban differences in the prevalence of chronic pain among adult cancer survivors

01/17/26 at 03:35 AM

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All hands on deck: A case report of an interdisciplinary team preventing elder financial abuse at a skilled nursing facility

01/17/26 at 03:30 AM

All hands on deck: A case report of an interdisciplinary team preventing elder financial abuse at a skilled nursing facilityCureus; by Grace Yi, Nicholas S. Cho, Karen Galvez-Maquindang, Christine Sun, Navid Darouian; 12/25Elder financial abuse (EFA) is a common but under-reported form of maltreatment among elderly individuals. This case describes an 84-year-old woman with cognitive deficits residing in a skilled nursing facility (SNF), who was exploited by a purported friend who took funds, important documents, and attempted to designate herself as the patient’s power of attorney. The situation was quickly identified by the multidisciplinary care team at the SNF and mitigated through early action and collaboration. The case emphasizes the importance of multidisciplinary efforts to identify at-risk patients and the establishment of protocols surrounding abuse identification and reporting to protect elderly patients from financialexploitation and preserve their autonomy, dignity, and quality of life.

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A peer support intervention for Black family caregivers of persons living with dementia: A feasibility study

01/17/26 at 03:25 AM

A peer support intervention for Black family caregivers of persons living with dementia: A feasibility studyJournal of the American Geriatrics Society; by Karen O Moss, Alai Tan, Abraham A Brody, Karen Bullock, Kathy D Wright, Kimberly Johnson, Mary Beth Happ; 12/25Black family caregivers of older adults living with dementia are at high risk for physical, spiritual, and psychosocial challenges. Culturally responsive interventions are needed to address disparities in this population. The purpose of this National Institute on Aging Stage Model 1A study was to test the feasibility, acceptability, and fidelity of the Peer Support for Black Family Caregivers of Persons Living with Dementia (Pair 2 Care) intervention. Pair 2 Care is a culturally responsive, non-judgmental, flexible, co-designed virtual peer support intervention in which former caregivers are paired as peer mentors with current caregivers for 6 months.  On average, participants rated their overall Pair 2 Care satisfaction as very high (4.6/5).

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Caregivers’ positive emotional language predicts their depression trajectories after dementia caregiving ends

01/17/26 at 03:20 AM

Caregivers’ positive emotional language predicts their depression trajectories after dementia caregiving ends  The Journals of Gerontology; by Jenna L Wells, Julian A Scheffer, Suzanne M Shdo, Claire I Yee, Kevin J Grimm, Alissa B Sideman, Bruce L Miller, Jennifer M Merrilees, Katherine L Possin, Robert W Levenson; 12/25There are striking differences among caregivers of people with dementia in their health and well-being during active caregiving and after caregiving has ended. A key factor influencing caregiver health is the emotional quality of the caregiver-care recipient relationship, which may be reflected in the emotional language caregivers use when describing this relationship. Caregivers who use more positive words when describing their connection with the care recipient may be more resilient, underscoring the potential role of positive emotional qualities of the caregiving relationship in preserving caregivers’ mental health after caregiving ends.

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Preparedness as a bridge: How religious coping shapes acceptance of death in dementia caregiving

01/17/26 at 03:15 AM

Preparedness as a bridge: How religious coping shapes acceptance of death in dementia caregivingClinical Gerontologist; by L. Blake Peeples, Lauren Chrzanowski, Benjamin T. Mast; 12/25This study examined the role of religious coping and preparedness in shaping caregivers’ acceptance of death following the loss of a care recipient with Alzheimer’s disease or related dementias. Bivariate analyses indicated that both positive and negative religious coping were significantly associated with greater preparedness, and preparedness was strongly related to acceptance. Findings suggest that interventions focused on religious coping enhance preparedness which improves caregivers’ acceptance in the bereavement process.

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