Literature Review

In praise of hospiceJAMA; by James R. Nicholas, MD; 4/24... Joan did what she wanted to do: she, with the help of hospice, made her dying as easy as possible for me and our children. I have the same wish for myself. I doubt if I will achieve it as well as did Joan, but I will have her as a guide. And I hope I will have the kind of hospice team that Joan had.

The value of screening for a history of incarceration in the palliative care settingAmerican Journal of Hospice and Palliative Medicine; by Joseph Michael Schnitter, Joshua Hauser; 5/24In this article, we explore existing literature that highlights the unique physical, cognitive, and psychosocial challenges that formerly incarcerated patients face. We proceed to argue that palliative care providers should screen for a history of incarceration to identify and address the needs of this patient population. We also offer strategies to create a safe, welcoming environment to discuss past traumas related to these patients’ time in prison.

Textures of Black sound and affect: Life and death in New OrleansAmerican Anthropologist; by Matt Sakakeeny; 6/24In a traditional New Orleans jazz funeral, the characteristic shift from mourning to joy is propelled by brass band musicians weaving melodies and rhythms together. This article is about how these thickly layered textures of sound elicit shared sentiments of lament and of joy.

Making end-of-life health disparities in the U.S. visible through family bereavement narrativesPEC Innovation; by Cassidy Taladay-Carter; 4/24End-of-life experiences can have important implications for the meaning-making and communication of bereaved family members, particularly due to (in)access to formal healthcare services (i.e., palliative care and hospice). Grounded in Communicated Narrative Sense-Making theory, this study extends knowledge about how the stories told about end-of-life by bereaved family members affect and reflect their sense-making, well-being and importantly, potential disparities in end-of-life care. ... Four themes illustrated the continuum of communication that families engaged in when making sense of end-of-life experiences, including reflections on silence, tempered frustrations, comfort with care, and support from beyond.

"It's a heavy thing to carry": Internal medicine and pediatric resident experiences caring for dying patientsAmerican Journal of Hospice and Palliative Medicine; by Lindsay M Gibbon, Laura Buck, Lauren Schmidt, Jori F Bogetz, Amy Trowbridge; 5/24Our data suggests a model for the process by which residents learn affective skills critical to EOL care: residents (1) notice strong emotion, (2) reflect on the meaning of the emotion, and (3) crystallize this reflection into a new perspective or skill. Educators can use this model to develop educational methods that emphasize normalization of physician emotions and space for processing and professional identity formation.

Time to rethink assisted dying?Bioethics; by Udo Schuklenk; 5/24... But who should be tasked with the provision of such services [assisted suicide and / or voluntary euthanasia], given that it would no longer be the case that only people defined as patients would be eligible for an assisted death. Healthcare professionals might object to providing such services to people who aren't patients. Different societies could decide to introduce permissive assisted dying regimes tasking different professionals with the provision of such services. If doctors are the profession tasked with the provision of such services in a particular jurisdiction, they ought to provide it to those eligible in that society. However, it is worth considering whether a newly created assisted dying profession, that is equally tightly regulated, may be a preferable way forward.

Hospice satisfaction among patients, family, and caregivers: A systematic review of the literatureAmerican Journal of Hospice and Palliative Medicine; Timothy Hoff, PhD, Kathryn Trovato, MPH, Aliya Kitsakos, BA; 6/24Thirty-eight studies were included in the review. Key findings were: (a) higher levels of hospice care satisfaction among patients, families, and other caregivers; and (b) correlates of hospice care satisfaction falling into the categories of communication, comfort, and support. The published literature had fewer findings related to demographic correlates of satisfaction such as age or race/ethnicity and was lacking in comparative research examining satisfaction across different types of hospice care settings.

Dana-Farber retracts string of studies in systematic review of data integritySTAT+, by Angus Chen; 4/18/24An ongoing investigation into data integrity at Dana-Farber Cancer Institute has resulted in a string of retractions, the latest of which is a 2006 Science paper co-authored by institute president and CEO Laurie Glimcher. The retraction notice, published in Science on Thursday, noted that the authors had become aware of discrepancies in key scientific images that led them to lose confidence in key figures in the study, although the study’s lead author opposed the retraction. The issues with this paper, along with concerns with more than 50 other articles co-authored by four of Dana-Farber's top researchers, were highlighted in a January blog post by the scientific sleuth Sholto David.

How do people in prison access palliative care? A scoping review of models of palliative care delivery for people in prison in high-income countriesPalliative Medicine, by Emma Gilbert, Nick De Viggiani, Joana de Sousa Martins, Tanuka Palit, Jessica Sears, Daniel Knights, Audrey Roulston, Mary Turner, Lucy E Selman; 4/24We identified a typology of three models of care delivery for people in prison in high-income countries: (1) Embedded hospice model, typified by an interdisciplinary team and volunteer caregivers providing care on-site; (2) Outsourcing Care model, in which end-of-life care is provided outside the prison; (3) Collaborative community model, which involves prisons engagement with other healthcare facilities or practitioners. ... Embedded hospice models in the USA are prevalent and demonstrate promising evidence for enhancing the care experience for recipients and peer caregivers. Chaplains, social workers and peer caregivers provide psychosocial support, yet documented assessment and strategies for managing the distinctive needs of this group and their families are lacking, despite their acknowledged complexity.

Strategies to enhance the affordability of hospice and palliative care servicesDigital Commons @ University of South Florida - Annual Undergraduate Research Conference, by Jhanav Sabharwali, Roy Chen, Valerie Vargas Ardila (mentor Dr. Irene Hurst); 4/24This research aims to find efficient solutions to aid affordability in vulnerable populations, specifically the hospice and palliative care population.Publisher's note: Interesting topic for an undergraduate research conference!

Formal training in palliative care for the trauma surgeon: Hospice and Palliative Medicine FellowshipCurrent Trauma Reports, by Alison Haruta, Ian McCurry, Allyson Cook Chapman; 4/24Palliative care aims to alleviate suffering across multiple domains and treat the patient and family as a unit to provide goal concordant care. Utilization of palliative care principles in trauma surgery has emerged as a crucial component of comprehensive patient care. We discuss formal hospice and palliative medicine training, the benefits of this fellowship, and how surgeons integrate this into their careers.

Journal of Religion & Health Issues Research Articles in April 2024 Edition Targeted News Service posts list of titles; 4/18/24; Journal published by SpringerThe Journal of Religion and Health, a journal that says it explores modes of religious and spiritual thought with emphasis on their relevance to current medical and psychological research, published research articles on the following topics in its April 2024 edition (Vol. 63, Issue 2): [Click on the title's link]Classification/Subject: Religion (96%), Muslims & Islam (92%), Suicide (91%), Assisted Suicide (90%), Death & Dying (90%), Diseases & Disorders (90%), Ethics (90%), Medicine & Health (90%), Psychology (90%), Research Reports (90%), Cancer (89%), Novels & Short Stories (89%), Associations & Organizations (87%), Indigenous Peoples (79%), Adolescents & Teens (78%), Alternative Medicine (78%), Bioethics (78%), Health Care Professionals (78%), ...Editor's Note: Click here for access to the journal.

Cultural values influence on rural family caregivers' decision-making for ill older adult loved onesShena Gazaway, PhD, RN; J. Nicholas Odom, PhD, RN; Ivan Herbey, MD, MPH; Margaret Armstrong, MSN; Felicia Underwood, LICSW, MPA; T. Vantrice Heard, PhD; Ashley Allen, BSN, RN; Christiana Ekelem, BS; Marie A. Bakitas, DNSc, CRNP; Ronit Elk, PhDRural older adult Americans receive more intense treatment at end of life. Studies indicate that those who participate in goals of care conversations receive care more concordant with their values. Yet, rates of documented goals of care discussions are lower in rural and Black communities. Although multi-factorial, the role that rural family caregivers play in decision-making for ill loved ones is understudied.