Literature Review
All posts tagged with “Research News.”
Acupuncture vs massage for insomnia and pain in advanced cancer: Exploratory RCT
08/29/26 at 03:30 AMInsurance type and quality of end-of-life care in adults < 65 years with hematologic malignancies
08/29/26 at 03:25 AMMedicaid expansion and mortality among formerly incarcerated individuals
08/29/26 at 03:20 AMAdvanced care planning/Five wishes education through the lens of Caring Science
08/29/26 at 03:15 AMHow dementia is being defeated: Incidence among the elderly is falling fast
08/29/26 at 03:10 AMHow dementia is being defeated: Incidence among the elderly is falling fastThe Economist; 7/26When Eric Stallard, an actuary and academic, began looking into the incidence of dementia among elderly Americans, he was so stunned by his findings that he held off publishing his first paper on the subject for two and ahalf years while he double-checked his work... Instead of confirming the received wisdom that America faced an intensifying plague of the condition, they showed that the proportion of old people succumbing to it was in fact shrinking fast... Last year he and some colleagues published research in the Journal of the American Medical Association showing that, whereas 40 years ago three in every ten Americans aged 85-89 had dementia, by 2024 just one in ten had it.
Can I get a witness? The ethical dimensions of family presence in patient suffering
08/29/26 at 03:05 AMCan I get a witness? The ethical dimensions of family presence in patient sufferingThe Hastings Center Report: by Jennifer Blumenthal-Barby, Trevor M Bibler, Holland Kaplan, Adam Omelianchuk, Joanna Smolenski; July-August 2026For patients who are suffering, the bedside presence of a family member can provide comfort, and many people hold that there is moral value in being present with a conscious, suffering patient. Yet what is the moral significance of the absence of family members when a patient is minimally conscious or unconscious and not aware of their absence? Clinicians are often troubled when family members and surrogate decision-makers who are able to spend a significant amount of time at an unconscious, seriously ill patient's bedside do not do so. Clinicians feel frustrated that they must bear the burden of witnessing the patient's actual or perceived suffering while the family escapes this burden and therefore appears to fail to uphold a duty to the patient. Is it morally defensible to request or require family members to be present with an unresponsive patient to bear witness to their actual or perceived suffering?
An exploration of gratitude on well-being in hospice and palliative care familial caregivers
08/29/26 at 03:00 AMAn exploration of gratitude on well-being in hospice and palliative care familial caregiversJournal of Palliative Medicine; by Kathryn Levy, Pei C Grant, Hannah Rachiele, Gina Schuster, Jonathan L Rossi, Sheila Conboy, Andrew Gasper, Christopher W Kerr; 7/26Familial caregivers (FCGs) play a critical role in health care by providing unpaid care to loved ones with serious illness. Although caregiving is often associated with emotional and physical burden, increasing attention has been directed toward potential sources of meaning and psychological growth, including gratitude. Higher levels of gratitude were associated with greater flourishing and recognition of positive caregiving experiences and were inversely associated with caregiver strain among FCGs of hospice and palliative care patients. Future longitudinal and intervention-based research is needed to determine whether gratitude-focused approaches can improve resilience, psychological well-being, and relational connection in end-of-life caregiving.
Neighborhood poverty and end-of-life care among adolescents and young adults with cancer
08/22/26 at 03:40 AMEmpowering elderly Chinese Americans: Advance care planning educational workshop
08/22/26 at 03:35 AMEmpowering elderly Chinese Americans: Advance care planning educational workshopGeriatric Nursing; by Mengyao Zhao, Tammy Tyree; 7/26Advance care planning (ACP) is important to ensure an individual's values and preferences are followed at the end-of-life (EOL). However, elderly Chinese Americans have a much lower advance directive (AD) completion rate than the national average. This quality improvement project aimed to improve ACP engagement and AD completion rates among elderly Chinese Americans at a local senior center in Arizona. Three monthly culturally tailored educational workshops were conducted, and ... data analysis showed a significant increase in ACP engagement scores over time ... Additionally, AD completion rates rose by 220% after the intervention. These findings indicate that culturally tailored educational workshops can effectively improve ACP engagement and AD completion rates in elderly Chinese Americans.
Advance care planning in sickle cell disease: A scoping review
08/22/26 at 03:30 AMAdvance care planning in sickle cell disease: A scoping reviewJournal of Palliative Medicine; by Megan R Marshall, Miranda Ravicz Adelmann, Miriam A Osei, Sharl S Azar, Stephanie Kiser, Richard Newcomb; 7/26Sickle cell disease (SCD) is an inherited hemoglobinopathy characterized by abnormal red blood cell sickling, leading to pain, organ dysfunction, and early mortality. Its severe, unpredictable course and the emergence of complex decisions surrounding transformative therapies have prompted recommendations to integrate palliative care (PC) to support patients and families. The limited available evidence suggests that patients are open to ACP discussions with trusted clinicians, but few patients had participated in formal or informal ACP. Personal and environmental factors may influence ACP engagement, including patient-clinician trust, patient and clinician understanding of ACP in SCD, timing of ACP conversations, and previous experiences with critical illness or end-of-life care. Proposed steps for advancing ACP in SCD include education, early PC integration, and strengthened patient-clinician communication and relationships.
A brief advance care planning education intervention for socioeconomically disadvantaged dementia caregivers: A single-group pretest–posttest study
08/22/26 at 03:25 AMAdvanced medical care at home among patients with acute heart failure
08/22/26 at 03:20 AMGoal-concordant care for older adults with advanced heart failure: A retrospective cohort study
08/22/26 at 03:15 AMGoal-concordant care for older adults with advanced heart failure: A retrospective cohort studyPalliative Medicine; by Sarah Godfrey, Maryjane Farr; 7/26Older adults with advanced heart failure experience significant morbidity and mortality and face higher complication rates from advanced therapies. Of 212 patients, 91 (42.9%) underwent evaluation for advanced therapies, though few received a heart transplant (16, 7.5%) or left ventricular assist device (32, 15.1%). Most (148, 69.8%) had only one palliative physician visit. One hundred thirty-nine (65.6%) died, often in the hospital (55, 40%) and with life-sustaining therapy in the last 24 h (73, 52.5%). Most (167, 78.8%) received goal-concordant care, with the main reasons for discordance being the desire for advanced therapy (33, 15.6%) and complications post-implantation affecting quality of life (9, 4.2%). Conclusions: Few older adults received advanced therapies, and palliative care was underutilized, with many patients seeing palliative care only once. Most received goal-concordant care, but decisions were often made late, highlighting the need for earlier, longitudinal palliative care for these vulnerable patients.
Palliative care physicians' perceptions about using artificial intelligence for prognostication
08/22/26 at 03:10 AMPalliative care physicians' perceptions about using artificial intelligence for prognosticationJournal of Pain & Symptom Management; by Stacy M Fischer, Regina M Fink, Ahmed Y Alasmar, Eric G Campbell, Matthew DeCamp; 7/26Statistical and artificial intelligence (AI)-based methods have informed clinical prognostication for decades, evolving into machine learning models integrated into electronic health records. We conducted a national survey of n=2,500 Hospice and Palliative Medicine physicians in the United States (January 2024-March 2025) to assess current prognostic practices, AI knowledge, and perceived benefits and risks of AI-based prognostication. Conclusions: Palliative care physicians report limited current use of AI-based prognostic tools but generally favorable attitudes toward potential benefits, especially among current AI tool users.
Hospice family caregivers’ preparedness to provide care during the death vigil
08/22/26 at 03:05 AMSOS: What does Google and ChatGPT say about SSVI and quality?
08/22/26 at 03:00 AMSOS: What does Google and ChatGPT say about SSVI and quality?Substack; by Joan Teno; 8/26Medicare recently finalized a new hospice scorecard called the Service and Spending Variation Index (SSVI). It gives each Medicare-certified hospice a number from 0 to 16, built from nine billing-based measures, where a higher score flags a hospice whose spending and service patterns look unusual compared with its peers. A high score is not proof of bad care or fraud — it mainly signals to Medicare which hospices may be worth a closer look. In this post I asked Google Gemini and ChatGPT to interpret a sample hospice’s score, and I compare how well each explained what the number does, and does not, mean for a family choosing a hospice.Publisher's note: Even though Substack is a blog site rather than a journal, Joan's content is outstanding and also fits here on a Saturday research issue!
Reports from Duke University describe recent advances in managed care (the South had the lowest rates of hospice and palliative medicine-certified providers in the US, 2024): managed care
08/17/26 at 03:00 AMReports from Duke University describe recent advances in managed care (the South had the lowest rates of hospice and palliative medicine-certified providers in the Us, 2024): managed care Insurance Newsnet; by Staff; 8/13/26 A new study on Managed Care is now available. According to news reporting originating in Durham, North Carolina, by NewsRx journalists, research stated, “To improve access to care for serious illness, policy makers need evidence on how workforce capacity aligns with the need for palliative care. This study evaluated the palliative care workforce and policy environments at the state level, using a new data source: the 2024 Center to Advance Palliative Care’s comprehensive Serious Illness Scorecard.” Funders for this research include US Department of Veterans Affairs, Duke University, US Department of Veterans Affairs, Durham Center of Innovation to Accelerate Discover and Practice Transformation (ADAPT) at the Durham Veterans Affairs Health Care System. Read the study here.
Policy approaches to ensuring an adequate nursing workforce in coming decades
08/15/26 at 03:35 AMPatient- and caregiver-informed considerations for the design and implementation of generative AI–supported patient-centered clinical decision support: Qualitative study
08/15/26 at 03:30 AMImpact of palliative care consultation on neonatal end-of-life care utilization
08/15/26 at 03:25 AMMedical aid in dying: Bridging ethical guidance and bedside communication in nursing practice
08/15/26 at 03:20 AMMedical aid in dying: Bridging ethical guidance and bedside communication in nursing practiceJournal of Hospice & Palliative Nursing; by Jeanna Ford, Phyllis Whitehead; 7/26As MAiD [Medical aid in dying] becomes more integrated into serious illness care, nurses, particularly those in hospice and palliative care, are increasingly the first clinicians to receive patient questions about this option. These inquiries are often embedded in broader concerns related to suffering, loss of autonomy, fear of prolonged dying, and desire for control rather than solely requests for hastened death. The Hospice and Palliative Nurses Association’s recent position statement on medical aid in dying emphasizes compassionate, nonjudgmental care, respect for autonomy, professional integrity, and the ethical obligation of nonabandonment while recognizing the complexities of conscientious objection. This manuscript examines the evolving legal and ethical landscape of MAiD, explores the professional implications for nursing practice, and introduces the EXPLORE (Elicit, Explore, Probe Suffering, Learn Values, Observe Pressures, Review Support, Evaluate Next Steps) communication framework, a practice-based model developed to provide nurses with a structured, evidence-informed approach for responding to patient-initiated MAiD discussions.
Demystifying goals-of-care conversations in the emergency department: A step-based approach for older adults using the BRIEF-5 Framework
08/15/26 at 03:15 AMPalliative care and hospice: A practical guide for Nurse Practitioners
08/15/26 at 03:10 AMWhere hospice fails us: A qualitative study of facilitators and barriers in transitions to hospice according to palliative care clinicians
08/15/26 at 03:00 AMWhere hospice fails us: A qualitative study of facilitators and barriers in transitions to hospice according to palliative care cliniciansJournal of Palliative Medicine; by Morgan M Nakatani, Julia G Cohn, Kris W Herring, Thomas W LeBlanc; 7/26Transitions to hospice are challenging for patients, caregivers, and health care teams, yet few studies have examined gaps in care from the perspectives of referring palliative care (PC) clinicians. PC clinicians identify substantial barriers to hospice transitions, underscoring the need to improve access to comprehensive end-of-life care. Clinicians emphasized the value of hospice and the Medicare benefit, while identifying barriers to hospice transitions [including] ... inadequate caregiving support, limited reimbursement, uncertainty around eligibility and prognostication, and differences between for-profit and non-profit hospice agencies. These barriers contributed to inequitable access to hospice and gaps in care.
