Literature Review

Engaging bereaved parent educators in pediatric end-of-life workshops: A trauma-informed onboardingJournal of Pain & Symptom Management; by Kayla Solstad, Dannell Shu, Kelly McManimon, Stacy Remke, Susan O'Conner-Von, Anne Woll, Joseph M Miller, Miriam C Shapiro, Johannah M Scheurer; 3/26Recognizing that pediatric end-of-life (EOL) scenarios occur infrequently and are distressing for trainees and other healthcare team members, our group created pediatric end-of-life care skills (PECS) simulation-based workshops to improve trainee competence for these skills. We  ... provide interprofessional workshops, including trainees from the pediatric residency program, graduate school of nursing, and graduate school of social work. Since creation of the workshops, the group and curricula have benefited immensely from including the expertise of bereaved parent educators (BPEs), who have experienced the death of their own infant or child and have been integral team members ... from workshop creation through facilitation. Research shows that families who have experienced the death of a child appreciate an interdisciplinary approach to their care and communication at the EOL. When parents of pediatric patients were asked about priorities in EOL care, they highlighted the importance of communication, emotional expression and support by staff, and ready access to multi-disciplinary staff.

Introducing palliative care: Family caregivers’ knowledge, exposure, and preferred messagingAmerican Journal of Hospice & Palliative Medicine; by Elaine Wittenberg, Joy V. Goldsmith, Sierra Forrest, Hanna G. Lee, Eva YN Yuen; 3/26Most family caregivers have never heard of palliative care, making it challenging for clinicians to introduce the subspecialty. Semi-structured phone interviews with family caregivers of patients eligible to receive palliative care were conducted. Knowledge of palliative care was significantly associated with having heard about and being offered palliative care. Caregiver exposure to palliative care was associated with age and race, with older, White caregivers significantly more likely to have heard about palliative care compared to Hispanic caregivers. Caregivers positively endorsed all message strategies designed for introducing palliative care.

Racial disparities in non-stigmatized supportive care medication use in pancreatic cancerJournal of Pain & Symptom Management; by Olga Monika Trejos Kweyete, Chardaé Whitner, David L. Deremer, Yi Guo, Jiang Bian, Lisa Scarton, Sherise C. Rogers, Diana J. Wilkie, Xiwei Lou, John M. Allen; 3/26Pancreatic cancer (PC) is associated with a high symptom burden that contributes to reduced health-related quality of life (HRQoL) and adverse clinical outcomes. This study examined racial and ethnic differences in the use of non-stigmatized SCMs [supportive care medications] during end-of-life care among patients with PC. SCM use was defined as at least one outpatient prescription claim for antiemetics, appetite stimulants, cognitive aids, headache aids, or sleep aids. Racial and ethnic disparities persist in the use of non-stigmatized SCMs among patients with PC at the end of life. These findings extend prior evidence on inequities in cancer symptom management and underscore the need for interventions that promote equitable access to supportive care medications across diverse populations.

Repeated exposure to trauma narratives and professional quality of life in palliative and end-of-life healthcare providersPalliative & Supportive Care; by Suzanne A Brier, Amy L Nadel, Charlotte Stone, Rebecca M Schwartz; 3/26This study examined how repeated exposure to trauma narratives influences professional quality of life, including burnout, secondary traumatic stress (STS), and compassion satisfaction (CS), among end-of-life healthcare providers.  Conclusions: Repeated exposure to trauma narratives is a meaningful occupational stressor for end-of-life clinicians. Resilience and organizational support appear to protect against the negative impact of trauma exposure and promote CS, highlighting key multilevel targets for trauma-informed workforce interventions. Furthermore, by identifying specific resilience factors and support systems that buffer against psychological distress, these findings offer actionable insights for developing targeted interventions to mitigate long-term professional harm.

Limits of correctional health reporting: Findings from a nationwide jail mortality survey (2019-2024)Journal of Correctional Health Care; by Liz Harris, William Dennis; 3/26This article presents findings from a national survey of 287 counties across 43 states assessing jail mortality between 2019 and 2024 in an attempt to compare private health care provider outcomes with county providers. The findings demonstrated that currently available information cannot serve as a reliable measure of health care quality in correctional settings due to sociocultural reporting constraints. Institutional and cultural deterrents to objective reporting have led to incomplete records, misclassified causes of death, and failures to maintain legally mandated death reports. There is a clear need for health benchmarking and clear definitions for reporting in correctional health care to enable valid comparisons between health care provider models. The paper draws attention to a recently established correctional health care-specific patient safety organization as a potential solution to enable correctional health care providers to better understand the drivers of health care outcomes in correctional facilities.

Auricular acupuncture for symptom management in inpatient palliative careJournal of Hospice & Palliative Nursing; by Anup Bhushan, Dan Mazanec, Jessica Bullington, Justin Marsden, Jingwen Zhang, Kacie Bhushan, Patrick Coyne; 4/26Palliative care teams treat patients with intractable pain and debilitating symptoms on a daily basis [and] nurses play a significant role in the assessment and intervention of patients with chronic pain and ... symptoms ... Complementary therapy with acupuncture has proven to be helpful, but to date, there is little research examining the efficacy of auricular acupuncture in treating the acute-on-chronic symptoms associated with life-limiting illness in hospitalized patients. This ...  study of 101 participants examined auricular acupuncture’s impact on pain and symptom management, as well as pre- and post-intervention opioid utilization ... This study demonstrated statistical improvement in pain, nausea, dyspnea, and anxiety scores. Nurses and other providers trained in auricular acupuncture can provide a nonpharmacological intervention that improves pain and related symptoms for patients with serious illness.

Family caregiver perspectives on advance care planning discussions for residents with dementia led by trained nursing home staff: Insights from the APPROACHES project The Journal of the Post-Acute and Long-Term Care Medical Association; JAMDA; by Susan E. Hickman, PhD, Hillary D. Lum, MD, PhD, Kathleen T. Unroe, MD, MHA, MS; 3/6/26  Advance care planning (ACP) is essential in supporting family caregivers of nursing home residents with dementia, but nursing home (NH) staff often lack training to engage in proactive ACP discussions. An embedded pragmatic clinical trial was conducted to test a structured ACP training for NH staff called the ACP Specialist Program. This study explores family caregivers’ experiences related to discussions with the ACP Specialist, as well as needs and challenges in making ACP decisions for NH residents living with dementia.

The human thread: Weaving human-centered leadership in health care into culture transformationNurse Leader; by Stephanie Lonzo, Lindsey Colangelo, Kay Kennedy, Lucy Leclerc, Susan Campis; 3/26A large community hospital embraced implementation of Human-Centered Leadership in Health Care by including leaders from every discipline in a hybrid-style leadership development program. After completing the program, the leaders participated in the development of a hospital-wide brand statement which served as a collective WHY for the organization. This statement, which included human-centered principles, provided alignment, connection, and accountability across the organization. Leaders led differently, prioritizing care for self, and leading others in a relational approach. The culture transformation resulted in improved staff engagement, retention, patient experience, and quality outcomes. The senior nurse leaders share their culture transformation experience.