Literature Review
All posts tagged with “Research News.”
Top ten tips palliative care clinicians should know when caring for seriously ill patients with stimulant use disorders
09/19/26 at 03:15 AMTop ten tips palliative care clinicians should know when caring for seriously ill patients with stimulant use disordersJournal of Palliative Medicine; by Rebekka DePew, Nicole Dussault, Kyle Quirk, Erin Vipler, Josh Borris, Sandra DiScala, Teddy Scheel, Katrina Nickels, Gregg Robbins-Welty, Janet Ho; 8/26Stimulant use disorder (StUD) is common in the hospice and palliative care (PC) setting, though guidance for clinicians remains limited. Stigma around stimulant use is widespread and can lead to impaired clinician/patient communication, poor symptom control, and lower quality of care. PC clinicians should be able to diagnose StUD, understand the potential pharmacologic and nonpharmacologic management options, engage with patients in a trauma-informed way, and refer to addiction medicine colleagues when appropriate. When utilizing opioids for pain management, PC clinicians should be aware of the impact of stimulant use on opioid risk and toxicity. In this article, a multidisciplinary group of PC, hospice, addiction medicine, psychiatry, ethics, and pharmacy clinicians presents ten practical tips for caring for seriously ill patients with current or prior StUD.
Personalized sedation goals for agitated end-of-life delirium: Secondary analysis of RECORD trial
09/19/26 at 03:10 AMIntegrating care across the life course supports goal-aligned end-of-life care
09/19/26 at 03:05 AMIntegrating care across the life course supports goal-aligned end-of-life careNature - Communications Medicine; by M. Courtney Hughes; 7/26As global populations age and lifespan increases, health systems too often conceptualize “healthy aging” and “end-of-life care” as distinct phases. Yet emerging evidence from geroscience, palliative care, and health systems science suggests that aging and dying lie on a continuum of adaptation and care.
The role of hospice and palliative care in addressing climate change
09/19/26 at 03:00 AMThe role of hospice and palliative care in addressing climate changeAmerican Journal of Hospice & Palliative Medicine; by Erik S. Carlson, Nisha Shah, Jill Denny, Aldebra Schroll, Daniel Mahoney, Sarah Schear, Kate Jennings, Collins Uzuegbu, David Harris, Bhargavi Chekuri, Cecilia Sorensen, Janet Bull, Chris Jones; 8/26Climate change is a defining global health challenge of our time, acting as a threat multiplier that erodes decades of health gains and worsens social inequities. People living with serious illness, the population served by Hospice and Palliative Care (HaPC) professionals, are particularly vulnerable to these impacts. While leading health organizations have acknowledged the public health implications of climate change, HaPC has remained largely absent from this discourse. This narrative review and framework proposal situates the field’s competencies within the growing climate and health literature and identifies avenues through which HaPC can contribute to addressing climate change. We argue that HaPC professionals — drawing on strengths in serious illness communication, interdisciplinary collaboration, and person-centered care — are uniquely positioned to advance equitable climate adaptation and mitigation at the individual, organizational, and societal levels.
Perceived importance of good death components among patients with advanced cancer and family caregivers
09/15/26 at 03:00 AMPerceived importance of good death components among patients with advanced cancer and family caregivers JAMA Network; by Hammoda Abu-Odah, PhD, Gulbeyaz Can, PhD, Sotirios Plakas, PhD, Juanjuan Zhao, PhD, Xixi Wang, MSN, Alexandros Stergiou, MSc(c), Ourania Govina, PhD, Kimya Kilicaslan, PhD, Bahar Ozdemir, MD, Matthew J. Allsop, PhD, Mitsunori Miyashita, PhD, Alex Molassiotis, PhD, Janelle Yorke, PhD, and Frances Kam Yuet Wong, PhD; 9/14/26Importance: Although the concept of a good death is central to palliative care policy and practice, empirical evidence is largely derived from high-income Western or single-country contexts, limiting cross-setting relevance.Objective: To determine the importance of good death components, compare priorities across settings, and examine patient–caregiver differences and setting-by-role interactions. ... Conclusions and Relevance: In this cross-sectional study, patients with advanced cancer and family caregivers across 5 settings shared a broad aspiration for a good death, but priorities varied across settings. Emotional peace, dignity, and family connection were consistently highly valued. These findings suggest that culturally sensitive palliative care models should recognize both shared end-of-life priorities and setting-specific meanings of a good death.
How Latine families navigate pediatric loss amid broken systems: A qualitative study with caregivers and providers using Liberation Psychology
09/12/26 at 03:40 AMHow Latine families navigate pediatric loss amid broken systems: A qualitative study with caregivers and providers using Liberation PsychologyAdvances in Nursing Science; by Patricia Buzelli, Tolu O Oyesanya, Angelli Aguilar, Rosa M Gonzalez-Guarda; 8/26This study explored the challenges and strengths shaping Latine families' experiences of pediatric loss in the United States context. Eighteen semistructured interviews with healthcare providers (n = 7) and bereaved Latine caregivers (n = 11) were carried out using an integrated qualitative descriptive and Liberation Psychology approach. Four themes emerged that are heavily shaped by individual and contextual factors: (1) Unsupportive and hegemonic systems, (2) caregiver and provider discordance regarding end-of-life care, (3) caregiver identity transcendence in the "natural distress of grief," and (4) supportive networks and their limitations. Results highlight sociocultural realities that inform needed structural, policy, and practice changes.
PHarmacist avoidance or reductions in medical costs in PALLiative care inpatient services: PHARM-PALL
09/12/26 at 03:35 AMPHarmacist avoidance or reductions in medical costs in PALLiative care inpatient services: PHARM-PALLJournal of Palliative Medicine; by Celena Wilson, Jennifer Ku; 8/26Inpatient palliative care (PC) pharmacists have been shown to improve clinical and team outcomes. To quantify the cost avoidance (CA) associated with a full-time inpatient PC pharmacist based on clinical interventions. Conclusions: A PC pharmacist may help avoid significant health care costs, particularly in the areas of deprescribing, identifying untreated indications, and using PC expertise to make therapeutic recommendations.
Facilitating supportive care decision-making for persons with dementia: Qualitative insights from health care professionals
09/12/26 at 03:30 AMAdvance care planning in an urban hospital: Sustainability and growth in documenting care plans over four-years
09/12/26 at 03:25 AMAdvance care planning in an urban hospital: Sustainability and growth in documenting care plans over four-yearsAmerican Journal of Hospice & Palliative Care; by Khadeja Kausar, Edward Coffield, Sampath Gopalan, Regina Tarkovsky, Sarah Egan, Robert A Press, John Marshall; 8/26Many acute care patients are admitted without advance care plans (AC-Plans) which may result in patients receiving care misaligned with their preferences. Accordingly, ACP [advance care planning] is needed within hospitals, however, implementation barriers exist. [In this study] the hospital's ACP program components included: primary palliative care, simulation-based training, and ACP and AC-Plan training and education. The percentage of patients with ACPs at discharge increased from 4.4% to 19.1% from the first to fourth program year. The odds of having an AC-Plan at discharge in years 2, three, and four were 3.44, ... 5.87, ... and 8.97 ... times higher than the odds of having one during the first program year. The growth and sustainability of the hospital's ACP program demonstrates that barriers to ACP within hospitals can be overcome and successful programs implemented.
Timing prompts for advance care planning discussions and advance directive completion
09/12/26 at 03:20 AMTiming prompts for advance care planning discussions and advance directive completionJAMA Network Open; by Neil S Wenger, Fernando Javier Sanz Vidorreta, Chi-Hong Tseng, Victor Gonzalez, Ron D Hays, Maryam Rahimi, Lisa Gibbs, Katherine Santos, Rebecca L Sudore, Anne M Walling; 8/26Objective: To compare the association of an appointment-based ACP [advance care planning] behavioral intervention delivered with the patient just before a primary care visit vs a non-appointment-based intervention. Among patients receiving appointment-based interventions, 1143 (40.2%) had ACP discussion documentation in the EHR [electronic health record] compared with 714 (27.5%) of patients receiving only non-appointment-based interventions ... Appointment-based interventions were associated with more AD or POLST and documented ACP discussions than non-appointment-based interventions across all 3 ACP intervention groups.
Digital Deception: Survey Bots and the Ethics of Data Integrity
09/12/26 at 03:15 AMDigital Deception: Survey Bots and the Ethics of Data IntegrityEthics & Human Research; by W Frank-Ito, LA Eldridge, J Matthews; 9/26The rapid growth of artificial intelligence and automated systems has significantly impacted digital survey-based research, particularly when recruitment is conducted via social media platforms. This case study details the erosion of data integrity in a 2025 follow-up survey, originally designed to replicate a successful 2021 study. Despite implementing increasingly sophisticated antifraud mechanisms such as CAPTCHA, IP geo-restrictions, and behavioral validation, survey bots repeatedly infiltrated the study, rendering the dataset unusable. This highlights a critical tension between broad digital accessibility and the vulnerability of online research to fraud. Moreover, the use of financial incentives to participate in research, while effective in increasing response rates, was found to amplify bot activity and raise ethical dilemmas surrounding compensation and data quality... The authors call for the urgent development of fieldwide standards, institutional support, and robust fraud prevention strategies to preserve the methodological and ethical integrity of digital research.
Narrative review of the US specialty palliative nursing workforce 2025: Measurement for now and the future
09/12/26 at 03:10 AMNarrative review of the US specialty palliative nursing workforce 2025: Measurement for now and the futureJournal of Pain & Symptom Management; by Susan Lysaght Hurley, Morgan E Murphy, Marian Grant, Caitlin Brennan, Joanne Reifsnyder, Joan G Carpenter; 8/26A robust, expertly trained nursing workforce is needed to care for over 13 million people living with serious illness in the United States (US). Workforce data remain limited due to the diversity of nursing roles in hospice and palliative care. No comprehensive estimate exists for the broader palliative nursing workforce; however, a 2024 national survey estimated 56,619 registered nurses working in hospice. Palliative nursing education was not formally integrated into US nursing curricula until 2021 with the AACN publication of The Essentials, and only 12 healthcare organizations offer specialty nurse residency or fellowship programs. The National Board for Certification of Hospice Nurses was established in 1992 in the US and awarded the first certification to registered nurses in 1994; in 2025 nearly 12,000 nurses are certified.
Inspiring a culture of ownership through mutual accountability-A health care system's approach to connecting bedside expertise with boardroom strategy
09/12/26 at 03:05 AMInspiring a culture of ownership through mutual accountability-A health care system's approach to connecting bedside expertise with boardroom strategyNursing Management; by Torry Robinson, Stuart Downs; 8/26A health care system's approach to integrating the American Association of Critical-Care Nurses Healthy Work Environment (HWE) standards across organizational levels demonstrates a replicable pathway for aligning bedside expertise with boardroom strategy, an essential linkage in organizational strategic planning. This article describes one health care system's 3-year journey in embedding the HWE framework throughout the deployment of the nursing strategy. Following operationalization of HWE as a component of the nursing strategic framework, the health care system achieved sustained improvement across all domains of the Healthy Work Environment Assessment Tool (HWEAT), bolstering an organizational commitment to continuously improve and measure practice-environment health. This transparent, high-visibility approach emphasizes accountability from the Chief Nurse Executive to frontline nurses, underpinning a shared commitment that aligns clinical practice with organizational strategy. Organizations that embed HWE into their nursing strategic plan empower nurses at every level to shape and share ownership of the practice environment.
Time is of the essence: evaluating short-term prognosis tools in cancer and non-cancer patients
09/10/26 at 03:00 AMTime is of the essence: evaluating short-term prognosis tools in cancer and non-cancer patients Journal of Pain and Symptom Management; by Kayla Sheehan, Navasuja Kumar, Julia Pudar, Susan Duong, Megan Bricely, Mohamman Alhameed, Mohammed Kabeto, Donglin Zeng, Adam Marks; 8/27/26 Accurate end-of-life prognostication supports patient, family, clinician, and health system decision-making. The Palliative Prognostic Index (PPI), Palliative Performance Scale (PPS), and Short-Term Prognosis Signs (SPS) have been used in palliative care populations, particularly advanced cancer (1-3), but their utility for short-term prognostication in non-cancer patients is less established.
Sorrow, unpermitted: A narrative review of grief in chronic liver disease
09/05/26 at 03:35 AMHealth and health care access among Afghan refugee women in the United States
09/05/26 at 03:30 AMHealth and health care access among Afghan refugee women in the United StatesJAMA Network Open; by Nazineen Kandahari, Nilufar N. Kayhani, Fareha Moulana Zada, Zahra Kayhani, Zarin Noor, Nicholas Nelson, Susan L. Ivey; 8/26Afghans are one of the world’s largest refugee populations. Afghan women face compounded health risks due to sociocultural restrictions, low literacy, forced displacement, and limited health care access, yet little is known about their experiences with health care after resettlement in the US. In this qualitative study of 23 Afghan women residing in the US who shared their experiences accessing health care, key barriers included sociocultural constraints on women’s autonomy, inadequate interpretation services, culturally insensitive health care, intergenerational stigma surrounding sexual and reproductive health knowledge and care, and mental health challenges. Structural barriers produced mistrust in and miscommunication with clinicians and led to use of home remedies. These findings suggest a need for health care interventions that are sensitive to sociocultural contexts and immigration histories to address the needs of Afghan refugee women in the US.
When end-of-life becomes the beginning of new life: Application of the Society of Critical Care Medicine Clinical Practice Guidelines on Adult End-of-Life Care in the ICU to the setting of donation after circulatory death
09/05/26 at 03:25 AMWhen end-of-life becomes the beginning of new life: Application of the Society of Critical Care Medicine Clinical Practice Guidelines on Adult End-of-Life Care in the ICU to the setting of donation after circulatory deathCritical Care Explorations; by Ian M. Oppenheim, Rita N. Bakhru, Carolina B. Maciel, Katharina M. Busl, on behalf of the Donor Care Unit Network for Optimizing Recovery (DONOR) GroupThe recently published Society of Critical Care Medicine Guidelines on Adult End-of-Life Care in the ICU provide a detailed and well-thought-out approach to a vital component of critical care, although they explicitly refrain from discussing how they may apply to organ donation. As representatives of the Donor Care Unit Network for Optimizing Recovery (DONOR), a group of intensivists experienced in managing donation after circulatory death (DCD), we wish to endorse equal delivery of high-quality end-of-life (EOL) care for organ donors. Although some logistical differences must be addressed, the EOL recommendations outlined in the Guidelines are still applicable to patients being evaluated for or undergoing DCD. Recent accounts of unacceptable patient care in the setting of DCD highlight a critical threat to patient welfare and public trust. Our mandate is clear: implement and audit protocols that guarantee dignity and symptom control while demonstrating that DCD remains wholly consistent with a compassionate, honorable, and fulfilling EOL.
The prevalence of Medical Power of Attorney documentation in a large healthcare system: A retrospective cohort study
09/05/26 at 03:20 AMThe prevalence of Medical Power of Attorney documentation in a large healthcare system: A retrospective cohort studyJournal of Palliative Care; by Angeli Sirilan, Alexandria Ellershaw, Tony Gaidici, Jacob Lahti, Michael Ruta, Richard Elias, Sandeep Pagali, Kristina Balangue, Sumit Agarwal, Nimit Agarwal; 8/26Designation of a Medical Power of Attorney (MPOA) is a key component of advance care planning (ACP) that ensures patient preferences are honored when decision-making capacity is not present. This study aimed to quantify MPOA documentation rates [in adult hospitalized patients] and identify demographic and clinical factors associated with documentation presence. Male sex, White race, older age (67.0 vs 54.3 years), and unmarried status were associated with a higher MPOA documentation rate ... Dementia ... and malignancy ... were associated with higher odds, while discharge against medical advice was associated with lower odds ... of MPOA documentation. Conclusions: MPOA documentation rates were low, highlighting missed opportunities to identify alternate decision makers when a patient lacks capacity.
Using case studies to bridge the undergraduate nursing education gap in palliative and hospice care
09/05/26 at 03:15 AMUsing case studies to bridge the undergraduate nursing education gap in palliative and hospice careJournal of Hospice & Palliative Nursing; by Katherine Adams, Lisa Cross; 8/26Undergraduate nursing students struggle with understanding pharmacological pain management, especially in palliative care. New nurses indicate needing more experience with pain management and ethical dilemmas surrounding pain management. This project aimed to develop real-life case scenarios aligned with palliative competencies for use in undergraduate courses. Traditionally, palliative and hospice content is delivered with community courses, possibly limiting student competency across settings. These case studies present an opportunity for formative student assessment in pharmacological and other palliative management over 4 settings. Facilitation requires reflective techniques, and nurse faculty may need support in guiding discussions.
