Literature Review

All posts tagged with “Research News.”



Mandatory mortality surprise question screening in the ED: Identification and associations with end-of-life care outcomes

08/08/26 at 03:15 AM

Mandatory mortality surprise question screening in the ED: Identification and associations with end-of-life care outcomesJournal of Palliative Medicine; by Nancy Kim, Karen Jubanyik, Peiyuan Liu, Giselle O'Connor, Ling Han, Rohit B Sangal, R Lynn Fiellin, Jennifer Kapo, Elizabeth Prsic, Shelli Feder; 7/26Early identification of patients with serious illness remains challenging in the emergency department (ED), where clinical decisions are made under time constraints. The mortality surprise question (MSQ) is a brief prognostic screen that may help identify patients needing end-of-life services. Results: Among 113,397 admissions (74,816 patients), MSQ completion was 100%; 7.8% received a "No" response. A "No" response was strongly associated with increased palliative care consultation ... , ACP documentation ... , hospice referral ... , comfort-measures-only orders ... , hospice disposition ... , higher inpatient mortality ... , and increased 30-day readmission ... Palliative care consultation occurred earlier among MSQ "No" than MSQ "Yes" encounters.

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Opportunities for improving end-of-life care for veterans receiving hospice in community nursing homes

08/08/26 at 03:10 AM

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What the tests missed: A journey through misdiagnosis

08/08/26 at 03:05 AM

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"It felt like throwing in the towel": Family caregiver perspectives on end-of-life decision making in chronic obstructive pulmonary disease

08/08/26 at 03:00 AM

"It felt like throwing in the towel": Family caregiver perspectives on end-of-life decision making in chronic obstructive pulmonary diseaseJournal of Palliative Medicine; by Natalia Smirnova, Tivona Batieste, Sarah H Cross, Samir Jamdar, Catherine S Peterson, Camille P Vaughan, Dio Kavalieratos; 7/26Chronic obstructive pulmonary disease (COPD) has an unpredictable trajectory and high symptom burden, complicating end-of-life (EOL) decisions around place of death and hospice use. We conducted semi-structured interviews with bereaved caregivers of people with COPD who received pulmonary care at a U.S. academic center and died within 12 months. Fifty-six percent of decedents received hospice; 33% died at home. Caregivers described five themes: missed prognostic cues and poor communication; hospice as both loss and relief; home as ideal but hospital as default; financial influences on decisions; and mismatch between hospice and COPD needs. Caregivers identified a readiness gap driven by prognostic uncertainty, communication challenges, and financial constraints.

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Private equity ownership in hospice care: a systematic review (2012-2026)

08/04/26 at 03:00 AM

Private equity ownership in hospice care:  a systematic review (2012-2026) American Journal of Hospice and Palliative Medicine; by Denise D. Quigley, PhD, MA, Shannon Walsh, MPP, Cordt T. Kassner, PhD, Lara Dhingra, PhD, and Andrew W. Dick, PhD; 7/28/26 Hospice care is associated with improved end-of-life outcomes. Recent shifts in hospice utilization highlight several key trends. Alzheimer’s disease and related dementias (ADRD) (25%) have surpassed cancer (23%) as the leading primary diagnosis. Concurrently, industry ownership has transitioned from predominantly nonprofit to for-profit (70%) and private equity (PE) ownership has grown dramatically from 3% to 15%. To date, no study has synthesized evidence on PE ownership in hospice care.  We conducted a systematic review of English-language, peer-reviewed studies published 2012-2026, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines.

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Friend caregivers among older adults

08/01/26 at 03:40 AM

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Quality domains in home-based pediatric hospice and palliative care: Adolescent and young adult perspectives

08/01/26 at 03:35 AM

Quality domains in home-based pediatric hospice and palliative care: Adolescent and young adult perspectivesBMC Palliative Care; by Daniel H Grossoehme, Claire A Crawford, Jhansi Chandra Ellakula, Toluwalase Ajayi, Justin N Baker, Sarah Friebert, Lisa Humphrey, JillAnn Jarrell, Rachel Thienprayoon, Pamela S Hinds; 7/26Previous research with pediatric providers and caregivers concluded that pediatric hospice and palliative care have unique attributes. Not known is how adolescent hospice and palliative care patients understand quality palliative care. Methods: Semi-structured interviews with 10-26 year-olds who received home-based hospice and/or palliative care visits in the prior three years at six diverse sites in the United States. The results address an important gap by including adolescent/young adult patients' voices regarding delivery of home-based hospice and palliative care. Clinical implications include prioritizing and making time to build trusting relationships directly with the AYA, empowering them to participate in their care to the extent appropriate and prepare for transition to adult care when needed, providing support for family members, and training for all providers in generalist spiritual care.

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High flow nasal cannula and high velocity nasal insufflation as a goal-concordant support tool for dyspnoea relief in palliative and end of life care

08/01/26 at 03:30 AM

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Functional outcomes and quality of life for patients with cachexia and solid tumour cancers: Findings of a systematic literature review

08/01/26 at 03:25 AM

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Apathy in dementia with Lewy bodies: Frequency, correlates, and impact on patient and caregiver experiences

08/01/26 at 03:20 AM

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Pruritus, fever, and sweats at the end of life: Nursing assessment and management considerations

08/01/26 at 03:15 AM

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One clinician, every conversation: Palliative care delivery by solo APRN hospitalists in Critical Access Hospitals

08/01/26 at 03:10 AM

One clinician, every conversation: Palliative care delivery by solo APRN hospitalists in Critical Access HospitalsJournal of Hospice & Palliative Nursing; by Melissa Skoff; 7/26Advanced practice registered nurses (APRN) who practice as solo hospitalists in critical access hospitals are often underrecognized in their role in providing palliative and end-of-life care. This article describes the full scope of the solo APRN hospitalist in a critical access hospital setting with close attention to how complex patient demands contribute to the challenges in providing high-quality end-of-life communications. This article examines clinical, educational, and ethical dimensions of this work, and presents a case example that illustrates how these pressures present during a shift. Strategies to strengthen rural palliative care capacity are discussed, including tele-palliative care, remote ethics support, and APRN-centered education. As rural workforce shortages persist and continue to rise, alongside rising patient acuity, naming and addressing these structural gaps is essential in improving quality of care and protecting the well-being of a solo APRN hospitalist.

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How nurse leaders can cultivate a culture of inquiry to drive evidence-based practice, research, and clinical innovation

08/01/26 at 03:05 AM

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[Canada] Listening to young people on childhood death: a youth-focused participatory approach to children's palliative and end-of-life research and policymaking

08/01/26 at 03:00 AM

[Canada] Listening to young people on childhood death: a youth-focused participatory approach to children's palliative and end-of-life research and policymaking Children & Society; by Sydney Campbell, Nika Rovensky, Ryan Kent, Lauren Delaney, Franco A. Carnevale, Mary Ellen Macdonald; 6/23/26 Conclusion: Our study is one of the first to investigate the perspectives of young people in Canada regarding children's palliative and end-of-life (P-EOL) care, and the first in Canada to employ a participatory approach with young people in research about childhood death and dying. ... To date, the lessons we have learned can help researchers from diverse contexts aiming to carry out similar projects related to children's P-EOL care, based in the belief that the only way to truly shift current practices that overlook young people's voices and engagements as meaningful is through continuous advocacy, development, and application of engagement practices in all matters affecting young people.

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The embedded model for bridging essential delivery of care in assisted living facilities—EMBED-ALF

08/01/26 at 03:00 AM

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How the nurse-led model of care reimbursement gap undermines health equity

07/25/26 at 03:45 AM

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Implementing the PAR scale in a pediatric concurrent care setting: A quality improvement project

07/25/26 at 03:40 AM

Implementing the PAR scale in a pediatric concurrent care setting: A quality improvement projectJournal of Hospice & Palliative Nursing; by Taylor Ronne, Andrea Cahill, Kassidy Horst, Leeza Struwe, Kelly Gonzales; 6/26Pediatric patients in concurrent hospice and palliative care often face fragmented communication regarding family goals of care during acute hospitalizations. This quality improvement project evaluated clinician and care coordinator experiences with the implementation of the Preference for Acute Rehospitalization Scale at Children's Nebraska. A pre- and postimplementation survey design ...  assessed awareness of family goals, confidence in decision-making, and perceptions of the tool among an interdisciplinary team. While clinicians expressed general openness to standardized communication tools, results showed no statistically significant differences in survey items, highlighting that successful adoption in complex pediatric settings requires sustained education, seamless workflow integration, and robust interdisciplinary engagement to ensure treatment remains aligned with family preferences.

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Caring with confidence: A guided approach to end-of-life care

07/25/26 at 03:35 AM

Caring with confidence: A guided approach to end-of-life careJournal of Pain & Symptom Management; Laura Maldoon, Stacy L. Nilsen; 6/26Nurses may face uncertainty when caring for dying patients due to inadequate education and experience. This uncertainty coupled with varying practices for end-of-life care may affect both care quality and nurses’ attitudes. In nurses caring for hospitalized End-of-Life patients, does having a guided End-of-Life template and care resources, compared to current practices, improve registered nurse attitudes in providing individualized end-of-life care? Two inpatient nursing units received a 30-minute End-of-Life educational intervention utilizing the City of Hope’s Comfort, Airway, Restlessness and Delirium, Emotional and Spiritual Support (CARES) toolset as a standard resource to assess and prioritize end-of-life symptom management and family communication. This project suggests improved comfort and confidence among RNs in providing end-of-life care with the use of the CARES toolset. Nurses also demonstrated increased interest in seeking additional education.

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The effect of palliative care involvement in vascular patients at the end-of-life

07/25/26 at 03:30 AM

The effect of palliative care involvement in vascular patients at the end-of-lifeJournal of Vascular Surgery; by Angela McCarthy, Kristy Wrana, Emma Triantafyllou, Ya-Huei Li, Carol Strycharz, Lindsay Lynch, Edward D Gifford; 6/26Vascular surgeons frequently manage critically ill patients and support complex end-of-life decision-making. Despite well-documented benefits of palliative care in serious illness, prior studies report that only 25% of vascular patients near the end of life received such support. Those without a palliative consult were more likely to undergo a code (18.0% vs. 6.6% ... ). After palliative consultation, the proportion of patients with a code status of do-not-resuscitate increased from 50.0% to 77.4%, and the proportion with a full code designation decreased from 50% to 22.6%  ... Patients with the goal of care to allow natural death increased to more than half of the patients from 18.4% after the palliative consultation ... These findings highlight an opportunity for vascular surgeons to proactively integrate palliative care, improving alignment between clinical interventions and patient preferences.

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Exploring the relationship between usage of a digital mindfulness app and perceived stress among caregivers of persons living with dementia

07/25/26 at 03:25 AM

Exploring the relationship between usage of a digital mindfulness app and perceived stress among caregivers of persons living with dementiaAging & Mental Health; by Michael P. Williams, Morgan Seward, Elizabeth M. Allen, Raquel G. Tatar, Darby M. Simon, Jennifer Huberty, Ana-Maria Vranceanu, Evan Plys; 6/26Mindfulness digital health interventions (DHIs) can support stress management among caregivers of persons living with dementia (PLWD), yet few studies investigate dose-response relationships. This study is a secondary analysis of a feasibility randomized controlled trial of Healthy Minds Program for Caregivers (HMP-C), a mindfulness DHI to reduce stress among caregivers of PLWD, against an educational podcast control (Wellness App [WA]). Participants were instructed to use HMP-C or WA 10 min per day. Every 10 min of HMP-C usage per week was significantly associated with a decrease in perceived stress by 0.7 ... Higher baseline stress and anxiety were related to lowered usage in active control ... , but not in HMP-C.

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Social determinants of death anxiety in patients with advanced cancer receiving outpatient palliative care

07/25/26 at 03:20 AM

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Comparison of health care cost trajectories in the last year of life by age at death

07/25/26 at 03:15 AM

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“A lot of the times, patients really don’t know what questions to ask:” Communication perspectives of Black patients with advanced lung cancer

07/25/26 at 03:10 AM

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The ASCENT Consortium - Two Requests for Applications are now open!

07/25/26 at 03:05 AM

The ASCENT Consortium - Two Requests for Applications are now open!ASCENT Consortium press release; 7/22/26The ASCENT Consortium is pleased to announce two Requests for Applications (RFA) are now open, with letters of intent due 8/10/26:

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How would hospice use differ if every Medicare beneficiary were in Medicare Advantage?

07/25/26 at 03:00 AM

How would hospice use differ if every Medicare beneficiary were in Medicare Advantage?Journal of Palliative Medicine; by Claire K Ankuda, Karen McKendrick, Melissa Aldridge; 6/26Hospice use is higher in the growing Medicare Advantage (MA) program compared to Traditional Medicare (TM). It is uncertain if this is due to different hospice referral patterns. Among 5153 decedents, 35.3% were in MA at death. Compared to TM decedents, MA decedents were younger, more likely to be Hispanic, less likely to reside in a facility, and less likely to report serious illnesses (dementia, cancer, stroke, heart disease, and lung disease). We estimated that if TM decedents had been enrolled in MA, hospice use would have been 6.1% higher ... This difference was pronounced among those with higher education and serious illnesses in TM: for example, 10.1% higher for those with dementia ... versus without dementia ...

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