Literature Review
All posts tagged with “Research News.”
The role and professional standards of the Adult-Gerontology Nurse Practitioner in hospice and palliative care
03/30/24 at 03:00 AMThe role and professional standards of the Adult-Gerontology Nurse Practitioner in hospice and palliative careJournal of Hospice & Palliative Care Nursing, by Coats, Heather PhD, APRN-BC; Henrichs, Kelly DNP, RN, GNP-BC; 3/24The adult/gerontology (gero) nurse practitioner (NP) delivers primary and/or specialty palliative care to persons and their families who live each day with a myriad of serious illnesses. In this role, the adult/gero NP uses their skill set to address the whole person (physical, psychological, social, and spiritual/existential) to improve the quality of life for persons they care for. This article is the fourth in a series of 6 highlighting the different roles of the adult/gero NP and the advanced certified hospice and palliative registered nurse, and how these 2 roles overlap. The purpose of this article was to provide details of education and certification pathways for these NP roles, describe the overlaps in clinical care, and illustrate how the adult/gero NP in palliative and hospice care can contribute to leadership in program development for care of persons and their families who live with serious illness.
Racial Disparities in low-value care in the last year of life for Medicare beneficiaries with neurodegenerative disease
03/23/24 at 03:00 AMRacial Disparities in low-value care in the last year of life for Medicare beneficiaries with neurodegenerative diseaseNeurology Clinical Practice, by Margarethe E. Goetz, PhD, PA-C; Cassie B. Ford, PhD; Melissa A. Greiner, MS; Amy Clark, PhD; Kim G. Johnson, MD; Brystana G. Kaufman, MD; Sneha Mantri, MD, MS; Ying Xian, MD, PhD; Richard J. O'Brien, MD, PhD; Emily C. O'Brien, PhD; and Jay B. Lusk, MD, MBA; 4/24.We found racial disparities in care utilization among patients with neurodegenerative disease in the last year of life, such that Black decedents were more likely to receive specific low-value care services and less likely to receive high-value supportive care than White decedents, even after adjusting for health status and socioeconomic factors.
Transitions between skilled home health and hospice for persons living with dementia: a systematic review of literature
03/23/24 at 03:00 AMTransitions between skilled home health and hospice for persons living with dementia: a systematic review of literatureAnnals of Palliative Medicine, by Sharon E. Bigger, Robin Ann Foreman, Christiana Keinath, Gail L. Towsley; 3/24We found that persons living with dementia are at higher risk for early, unsuccessful discharge from-and readmission to-skilled skilled home health; and persons living with dementia are at higher risk for being discharged alive from hospice.
The determinants of actual place of death among noncancer patients with end-stage chronic health conditions: a scoping review
03/23/24 at 03:00 AMThe determinants of actual place of death among noncancer patients with end-stage chronic health conditions: a scoping reviewPalliative Care and Social Practice, by Sangduan Ginggeaw and Raeann LeBlanc; 3/24.This scoping review describes the percentage of actual places of death and determines social factors related to home as the place of death among noncancer patients with end-stage chronic health conditions.Publisher's note: While this study did not establish clear cause-and-effect relationships between factors, the authors used interesting methods and included thoughtful discussion.
Psychedelic therapy: A primer for primary care clinicians - psilocybin
03/23/24 at 03:00 AMPsychedelic therapy: A primer for primary care clinicians - psilocybinAmerican Journal of Therapeutics, by Burton J Tabaac, Kenneth Shinozuka, Alejandro Arenas, Bryce D Beutler, Kirsten Cherian, Viviana D Evans, Chelsey Fasano, Owen S Muir; 3/24.Aside from ketamine, psilocybin is the most clinically well-researched psychedelic drug, with trials that have enrolled hundreds of participants and multiple therapeutic applications. Phase III trials will determine whether psilocybin lives up to the promise that it showed in previous clinical trials.
Book Review: The Journey’s End
03/23/24 at 03:00 AMBook Review: The Journey’s EndAmerican Journal of Medical Quality, by Casey, Donald E. Jr MD, MPH, MBA; 3/24.Michael Connelly's "The Journey's End" is a highly engaging and insightful guide for bouth ourselves and our loved ones on how we ought to face death with dignity.
State of the service: Pediatric palliative and hospice community-based service coverage in the United States
03/23/24 at 02:05 AMState of the service: Pediatric palliative and hospice community-based service coverage in the United StatesJournal of Palliative Medicine, by Meaghann S. Weaver, MD, PhD, MPH, HEC-C; Tej Chana; Deb Fisher, PPCNP; Hope Fost; Betsy Hawley, MA; Kristin James, LCPC; Lisa C. Lindley, PhD, RN, FPCN, FAAN; Kaeli Samson, MA, MPH; Steven M. Smith, MD; Alix Ware, JD, MPH; and Christy Torkildson, PhD, RN, PHN; 11/23.Objective: To quantify and describe the inclusion of children in services, staffing, and care scope offered by community-based hospice organizations in the United States. Design and Subjects: This study utilized an online survey distributed to organizational members of the National Hospice and Palliative Care Organization (NHPCO) in the United States. Results: A total of 481 hospice organizations from 50 states, Washington DC, and Puerto Rico responded. Conclusions: Children remain underrepresented in the extension of care offered through community-based hospice organizations in the United States particularly in nonmetro settings.
Mortality risk following end-of-life caregiving: A population-based analysis of hospice users and their families
03/23/24 at 02:00 AMMortality risk following end-of-life caregiving: A population-based analysis of hospice users and their familiesSocial Science & Medicine, by Mike Hollingshaus, Ken R. Smith, Huong Meeks, Katherine Ornstein, Eli Iacob, Djin Tay, Caroline Stephens, Rebecca L. Utz; 3/24.Highlights:
Ethics Consult: Using hospice as "treatment" for behavioral problems of dementia
03/16/24 at 03:00 AMEthics Consult: Using hospice as "treatment" for behavioral problems of dementiaAmerican Journal of Geriatric Psychiatry, by Luisa Skoble MD, Jonathan Crane MPhil, PhD; 4/24This session will present 2 cases of individuals with advanced dementia who did not meet the traditional Medicare criteria for hospice, as both were ambulatory and did not have significant co-morbid medical issues. Both had significant aggressive behaviors that responded poorly to extensive trials of various medications during extended stays on a geriatric psychiatry inpatient unit. Both were referred to a local inpatient hospice where the staff use “suffering" as a hospice criteria and were “treated” with the usual hospice medications and expired in less than 3 weeks.
Courage
03/16/24 at 03:00 AMCourageJournal of Hospice & Palliative Nursing, by Ferrell, Betty PhD, MA, RN, CHPN; 4/24This issue is a quilt I would call “Courage,” with bold colors, vibrant images and creative designs providing warmth and comfort to those whose stories are told in these pages.
Correcting health disparities at end-of-life in persons of color
03/16/24 at 03:00 AMCorrecting health disparities at end-of-life in persons of colorJournal for Nurse Practitioners, by Leah D. Ward, Anthony Young; 4/24Forty years after the creation of the Medicare hospice benefit, low use of hospice and palliative care services in persons of color increases suffering and aggressive care at the end of life related to social determinants of death... This article provides tools for nurse practitioners and other health care personnel in spiritual, cultural, and goals-of-care assessments, quality improvement, and an explanation of the benefits of faith-based programs and partnerships
Perceptions of palliative care: Demographics and health status among the general population in Florida and the United States
03/16/24 at 03:00 AMPerceptions of palliative care: Demographics and health status among the general population in Florida and the United StatesAmerican Journal of Hospice and Palliative Medicine, by Brenda W. Dyal, PhD, DNP; Saunjoo L. Yoon, PhD; Keesha L. Powell-Roach, PhD, RN; Derek M. Li, MSc; Sheri Kittelson, MD; Michael Weaver, PhD, RN, FAAN; Janice L. Krieger, PhD; Diana J. Wilkie, PhD, RN, FAAN; 4/24Palliative care (PC) helps maintain quality of life for seriously ill patients, yet, many Americans lack knowledge of PC. Young adults compared with adults, middle-adults, and older-adults were less likely to agree that the goal of PC is to help friends and family cope with a patient’s illness, and that the goal of PC is to manage pain and other physical symptoms compared with adults, middle-adults, and older-adults. Participants with greater rural identity were more likely to agree that accepting PC means giving up. Increased knowledge of PC might be influenced through targeting educational interventions and educating the general population through social media use.
Social acceptability of psilocybin-assisted therapy for existential distress at the end of life: A population-based survey
03/16/24 at 03:00 AMSocial acceptability of psilocybin-assisted therapy for existential distress at the end of life: A population-based surveyPalliative Medicine, by Louis Plourde, Sue-Ling Chang, Houman Farzin, Pierre Gagnon, Johanne Hébert, Robert Foxman, Pierre Deschamps, François Provost, Marianne Masse-Grenier, Jean-François Stephan, Katherine Cheung, Yann Joly, Jean-Sébastien Fallu, Michel Dorval for the P3A Study Group; 2/24Internationally, there is a growing interest in the potential benefits of psilocybin-assisted therapy to treat existential distress at the end of life. However, the social acceptability of this therapy is not yet well known. The social acceptability of psilocybin-assisted therapy for existential distress at the end of life is rather high in Canada. These findings may contribute to efforts to mobilise resources and improve access to this emerging therapy in palliative and end of life care settings.
Palliative ECT for catatonia in a terminal cancer patient: A case report
03/16/24 at 03:00 AMPalliative ECT for catatonia in a terminal cancer patient: A case reportJournal of the Academy of Consultation-Liaison Psychiatry, by Arushi Mahajan B.S., Thanvi Vatti M.P.H., Andrew Coulter M.D., Elias Khawam M.D., Molly Howland M.D.Common end-of-life illnesses and medications can lead to catatonia. Catatonia can decrease interactivity, which worsens a terminal patient's quality of life. Treatment includes medications and electroconvulsive therapy (ECT). Though treating psychiatric disorders aligns with the palliative care philosophy, end-of-life ECT has been rarely reported. The few case reports on palliative ECT involved continuation of prior ECT courses for chronic psychiatric conditions in psychiatric settings after a terminal diagnosis. No studies have explored palliative ECT for acute catatonia.
Social model hospice: Providing hospice and palliative care for a homeless population in Salt Lake City, Utah
03/16/24 at 03:00 AMSocial model hospice: Providing hospice and palliative care for a homeless population in Salt Lake City, UtahJournal of Hospice & Palliative Nursing, by Jensen, Francine Bench, PhD, RN; Thorpe, Deborah PhD, APRN; 4/24Health care for the homeless population is a complex challenge and represents a significant gap in care, particularly for those at the end of life. Hospice care may be desired but is rarely an option for people without residences, social support, and payment sources. Social model hospice is a unique paradigm of care delivery that offers a viable solution to make hospice and palliative care possible for this population.
Evaluation of a novel hospice-specific patient decision aid
03/16/24 at 03:00 AMEvaluation of a novel hospice-specific patient decision aidAmerican Journal of Hospice and Palliative Medicine, by Channing E. Tate, PHD, MPH; Gwendolyn Mami, JD; Monica McNulty, MS; Deborah J. Rinehart, PhD; Robin Yasui, MD; Nicole Rondinelli, FNP; Jonathan Treem, MD; Diane Fairclough, PhD; Daniel D. Matlock, MD, MPH; 4/24[Randomized Controlled Trial] We tested a novel hospice-specific patient decision aid to determine whether the decision aid could improve hospice knowledge, opinions of hospice, and decision self-efficacy in making decisions about hospice... The intervention demonstrated significant improvements in decision self-efficacy but not in hospice knowledge or hospice beliefs and attitudes.
The PACT Project: Feasibility of a multidisciplinary, multi-faceted intervention to promote goals of care conversations
03/16/24 at 03:00 AMThe PACT Project: Feasibility of a multidisciplinary, multi-faceted intervention to promote goals of care conversationsAmerican Journal of Hospice and Palliative Medicine, by Eytan Szmuilowicz, MD; Rebecca K. Clepp, MA, MEd, MHA; Jayson Neagle, MD; Adeboye Ogunseitan, MD; Martha Twaddle, MD; Gordon J. Wood, MD, MSCI; 4/24Patients living with serious illness generally want their physicians to facilitate Goals of Care conversations (GoCc), yet physicians may lack time and skills to engage in these conversations in the outpatient setting... A multifaceted quality improvement intervention focused on serious illness communication skills can support a diverse clinical workforce to facilitate inpatient GoCc over time.
Large language models and generative AI in telehealth: A responsible use lens
03/09/24 at 03:50 AMLarge language models and generative AI in telehealth: A responsible use lensJournal of the American Medical Informatics Association, by Javad Pool, PhD, Marta Indulska, PhD, Shazia Sadiq, PhD; 4/24The findings emphasized the potential of LLMs, especially ChatGPT, in telehealth. They provide insights into understanding the use of LLMs, enhancing telehealth services, and taking ethical considerations into account. By proposing three future research directions with a focus on responsible use, this review further contributes to the advancement of this emerging phenomenon of healthcare AI.
Nonprofit behavior altered by monetary donations: evidence from the U.S. hospice industry
03/09/24 at 03:45 AMNonprofit behavior altered by monetary donations: evidence from the U.S. hospice industryThe European Journal of Health Economics; by Miao Guo; Lei Guo; Yang Li; 2/24This study investigates whether reliance on monetary donations alters nonprofit firms’ behaviors. Specifically, in the hospice industry, a shorter patients’ length of stay (LOS) speeds up overall patient turnover, allowing a hospice to serve more patients and expand its donation network.Publisher's note: Correlation does not imply causation...
The realities of work/life balance in palliative care
03/09/24 at 03:40 AMThe realities of work/life balance in palliative careBritish Journal of Community Nursing, by Brian Nyatanga; 3/24The philosophy of palliative care makes the idea of work/life balance a crucial component to providing that care. However, the difficulty of achieving this idealistic work/life split demands another way of looking at the concept.
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition
03/09/24 at 03:35 AM‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening conditionPalliative Medicine, by Katherine Bristowe; Debbie Braybrook; Hannah M Scott; Lucy Coombes; Daney Harðardóttir; Anna Roach; Clare Ellis-Smith; Myra Bluebond-Langner; Lorna Fraser; Julia Downing; Fliss Murtagh; Richard Harding; 3/24Children and young people can provide rich descriptions of their condition. Paying attention to their lexical choices, and converging one's language towards theirs, may enable more child-centred discussions. Expanding discussions about 'what matters most' with consideration of the losses and differences they have experienced may facilitate a fuller assessment of their concerns, preferences and priorities.
Healthcare access dimensions and racial disparities in end-of-life care quality among ovarian cancer patients
03/09/24 at 03:30 AMHealthcare access dimensions and racial disparities in end-of-life care quality among ovarian cancer patientsCancer Research Communications; by Shama Karanth; Oyomoare L Osazuwa-Peters; Lauren E Wilson; Rebecca A. Previs; Fariha Rahman; Bin Huang; Maria Pisu; Margaret Liang; Kevin C Ward; Maria J Schymura; Andrew Berchuck; Tomi F. Akinyemiju; 3/24This study investigated the association between healthcare access (HCA) dimensions and racial disparities in end-of-life care quality among Non-Hispanic Black (NHB), Non-Hispanic White (NHW), and Hispanic patients with ovarian cancer (OC). The final sample included 4,646 women. After adjustment for HCA dimensions, NHB patients had lower quality EOL care compared to NHW patients, defined as increased risk of hospitalization in the last 30 days of life (RR 1.16, 95% CI:1.03-1.30), no hospice care (RR 1.23, 95% CI:1.04-1.44), in-hospital death (RR 1.27, 95% CI:1.03-1.57), and higher counts of poor-quality EOL care outcomes (Count Ratio:1.19, 95% CI:1.04-1.36).
Trends in end-of-life care and satisfaction among Veterans undergoing surgery
03/09/24 at 03:25 AMTrends in end-of-life care and satisfaction among Veterans undergoing surgeryAnnals of Surgery; by Dualeh, Shukri H.A. MD; Anderson, Maia S. MD MS; Abrahamse, Paul MA; Kamdar, Neil MA; Evans, Emily MS; Suwanabol, Pasithorn A. MD; 2/24To examine trends in end-of-life care services and satisfaction among Veterans undergoing any inpatient surgery.
Illness trajectories of incurable solid cancers
03/09/24 at 03:20 AMIllness trajectories of incurable solid cancersBMJ, by Eric C T Geijteman, Evelien J M Kuip, Jannie Oskam, Diana Lees, Eduardo Bruera; 3/24[See article for] updated treatment illness trajectories for patients with incurable solid cancer include major temporary improvement, long term ongoing response, and rapid decline. Supportive and palliative care should be provided in conjunction with newer anticancer therapies to address patients’ physical, psychological, social, and spiritual challenges.
Public health and palliative care
03/09/24 at 03:15 AMPublic health and palliative careClinics in Geriatric Medicine, by Sarah H. Cross PhD, MSW, MPH; Dio Kavalieratos PhD; 8/23Meeting the needs of people at the end of life (EOL) is a public health (PH) concern, yet a PH approach has not been widely applied to EOL care. The design of hospice in the United States, with its focus on cost containment, has resulted in disparities in EOL care use and quality. Individuals with non-cancer diagnoses, minoritized individuals, individuals of lower socioeconomic status, and those who do not yet qualify for hospice are particularly disadvantaged by the existing hospice policy. New models of palliative care (both hospice and non-hospice) are needed to equitably address the burden of suffering from a serious illness.