Literature Review
All posts tagged with “Research News.”
Social acceptability of psilocybin-assisted therapy for existential distress at the end of life: A population-based survey
03/16/24 at 03:00 AMSocial acceptability of psilocybin-assisted therapy for existential distress at the end of life: A population-based surveyPalliative Medicine, by Louis Plourde, Sue-Ling Chang, Houman Farzin, Pierre Gagnon, Johanne Hébert, Robert Foxman, Pierre Deschamps, François Provost, Marianne Masse-Grenier, Jean-François Stephan, Katherine Cheung, Yann Joly, Jean-Sébastien Fallu, Michel Dorval for the P3A Study Group; 2/24Internationally, there is a growing interest in the potential benefits of psilocybin-assisted therapy to treat existential distress at the end of life. However, the social acceptability of this therapy is not yet well known. The social acceptability of psilocybin-assisted therapy for existential distress at the end of life is rather high in Canada. These findings may contribute to efforts to mobilise resources and improve access to this emerging therapy in palliative and end of life care settings.
Palliative ECT for catatonia in a terminal cancer patient: A case report
03/16/24 at 03:00 AMPalliative ECT for catatonia in a terminal cancer patient: A case reportJournal of the Academy of Consultation-Liaison Psychiatry, by Arushi Mahajan B.S., Thanvi Vatti M.P.H., Andrew Coulter M.D., Elias Khawam M.D., Molly Howland M.D.Common end-of-life illnesses and medications can lead to catatonia. Catatonia can decrease interactivity, which worsens a terminal patient's quality of life. Treatment includes medications and electroconvulsive therapy (ECT). Though treating psychiatric disorders aligns with the palliative care philosophy, end-of-life ECT has been rarely reported. The few case reports on palliative ECT involved continuation of prior ECT courses for chronic psychiatric conditions in psychiatric settings after a terminal diagnosis. No studies have explored palliative ECT for acute catatonia.
Social model hospice: Providing hospice and palliative care for a homeless population in Salt Lake City, Utah
03/16/24 at 03:00 AMSocial model hospice: Providing hospice and palliative care for a homeless population in Salt Lake City, UtahJournal of Hospice & Palliative Nursing, by Jensen, Francine Bench, PhD, RN; Thorpe, Deborah PhD, APRN; 4/24Health care for the homeless population is a complex challenge and represents a significant gap in care, particularly for those at the end of life. Hospice care may be desired but is rarely an option for people without residences, social support, and payment sources. Social model hospice is a unique paradigm of care delivery that offers a viable solution to make hospice and palliative care possible for this population.
Evaluation of a novel hospice-specific patient decision aid
03/16/24 at 03:00 AMEvaluation of a novel hospice-specific patient decision aidAmerican Journal of Hospice and Palliative Medicine, by Channing E. Tate, PHD, MPH; Gwendolyn Mami, JD; Monica McNulty, MS; Deborah J. Rinehart, PhD; Robin Yasui, MD; Nicole Rondinelli, FNP; Jonathan Treem, MD; Diane Fairclough, PhD; Daniel D. Matlock, MD, MPH; 4/24[Randomized Controlled Trial] We tested a novel hospice-specific patient decision aid to determine whether the decision aid could improve hospice knowledge, opinions of hospice, and decision self-efficacy in making decisions about hospice... The intervention demonstrated significant improvements in decision self-efficacy but not in hospice knowledge or hospice beliefs and attitudes.
The PACT Project: Feasibility of a multidisciplinary, multi-faceted intervention to promote goals of care conversations
03/16/24 at 03:00 AMThe PACT Project: Feasibility of a multidisciplinary, multi-faceted intervention to promote goals of care conversationsAmerican Journal of Hospice and Palliative Medicine, by Eytan Szmuilowicz, MD; Rebecca K. Clepp, MA, MEd, MHA; Jayson Neagle, MD; Adeboye Ogunseitan, MD; Martha Twaddle, MD; Gordon J. Wood, MD, MSCI; 4/24Patients living with serious illness generally want their physicians to facilitate Goals of Care conversations (GoCc), yet physicians may lack time and skills to engage in these conversations in the outpatient setting... A multifaceted quality improvement intervention focused on serious illness communication skills can support a diverse clinical workforce to facilitate inpatient GoCc over time.
Ethics Consult: Using hospice as "treatment" for behavioral problems of dementia
03/16/24 at 03:00 AMEthics Consult: Using hospice as "treatment" for behavioral problems of dementiaAmerican Journal of Geriatric Psychiatry, by Luisa Skoble MD, Jonathan Crane MPhil, PhD; 4/24This session will present 2 cases of individuals with advanced dementia who did not meet the traditional Medicare criteria for hospice, as both were ambulatory and did not have significant co-morbid medical issues. Both had significant aggressive behaviors that responded poorly to extensive trials of various medications during extended stays on a geriatric psychiatry inpatient unit. Both were referred to a local inpatient hospice where the staff use “suffering" as a hospice criteria and were “treated” with the usual hospice medications and expired in less than 3 weeks.
Courage
03/16/24 at 03:00 AMCourageJournal of Hospice & Palliative Nursing, by Ferrell, Betty PhD, MA, RN, CHPN; 4/24This issue is a quilt I would call “Courage,” with bold colors, vibrant images and creative designs providing warmth and comfort to those whose stories are told in these pages.
Large language models and generative AI in telehealth: A responsible use lens
03/09/24 at 03:50 AMLarge language models and generative AI in telehealth: A responsible use lensJournal of the American Medical Informatics Association, by Javad Pool, PhD, Marta Indulska, PhD, Shazia Sadiq, PhD; 4/24The findings emphasized the potential of LLMs, especially ChatGPT, in telehealth. They provide insights into understanding the use of LLMs, enhancing telehealth services, and taking ethical considerations into account. By proposing three future research directions with a focus on responsible use, this review further contributes to the advancement of this emerging phenomenon of healthcare AI.
Nonprofit behavior altered by monetary donations: evidence from the U.S. hospice industry
03/09/24 at 03:45 AMNonprofit behavior altered by monetary donations: evidence from the U.S. hospice industryThe European Journal of Health Economics; by Miao Guo; Lei Guo; Yang Li; 2/24This study investigates whether reliance on monetary donations alters nonprofit firms’ behaviors. Specifically, in the hospice industry, a shorter patients’ length of stay (LOS) speeds up overall patient turnover, allowing a hospice to serve more patients and expand its donation network.Publisher's note: Correlation does not imply causation...
The realities of work/life balance in palliative care
03/09/24 at 03:40 AMThe realities of work/life balance in palliative careBritish Journal of Community Nursing, by Brian Nyatanga; 3/24The philosophy of palliative care makes the idea of work/life balance a crucial component to providing that care. However, the difficulty of achieving this idealistic work/life split demands another way of looking at the concept.
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition
03/09/24 at 03:35 AM‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening conditionPalliative Medicine, by Katherine Bristowe; Debbie Braybrook; Hannah M Scott; Lucy Coombes; Daney Harðardóttir; Anna Roach; Clare Ellis-Smith; Myra Bluebond-Langner; Lorna Fraser; Julia Downing; Fliss Murtagh; Richard Harding; 3/24Children and young people can provide rich descriptions of their condition. Paying attention to their lexical choices, and converging one's language towards theirs, may enable more child-centred discussions. Expanding discussions about 'what matters most' with consideration of the losses and differences they have experienced may facilitate a fuller assessment of their concerns, preferences and priorities.
Healthcare access dimensions and racial disparities in end-of-life care quality among ovarian cancer patients
03/09/24 at 03:30 AMHealthcare access dimensions and racial disparities in end-of-life care quality among ovarian cancer patientsCancer Research Communications; by Shama Karanth; Oyomoare L Osazuwa-Peters; Lauren E Wilson; Rebecca A. Previs; Fariha Rahman; Bin Huang; Maria Pisu; Margaret Liang; Kevin C Ward; Maria J Schymura; Andrew Berchuck; Tomi F. Akinyemiju; 3/24This study investigated the association between healthcare access (HCA) dimensions and racial disparities in end-of-life care quality among Non-Hispanic Black (NHB), Non-Hispanic White (NHW), and Hispanic patients with ovarian cancer (OC). The final sample included 4,646 women. After adjustment for HCA dimensions, NHB patients had lower quality EOL care compared to NHW patients, defined as increased risk of hospitalization in the last 30 days of life (RR 1.16, 95% CI:1.03-1.30), no hospice care (RR 1.23, 95% CI:1.04-1.44), in-hospital death (RR 1.27, 95% CI:1.03-1.57), and higher counts of poor-quality EOL care outcomes (Count Ratio:1.19, 95% CI:1.04-1.36).
Trends in end-of-life care and satisfaction among Veterans undergoing surgery
03/09/24 at 03:25 AMTrends in end-of-life care and satisfaction among Veterans undergoing surgeryAnnals of Surgery; by Dualeh, Shukri H.A. MD; Anderson, Maia S. MD MS; Abrahamse, Paul MA; Kamdar, Neil MA; Evans, Emily MS; Suwanabol, Pasithorn A. MD; 2/24To examine trends in end-of-life care services and satisfaction among Veterans undergoing any inpatient surgery.
Illness trajectories of incurable solid cancers
03/09/24 at 03:20 AMIllness trajectories of incurable solid cancersBMJ, by Eric C T Geijteman, Evelien J M Kuip, Jannie Oskam, Diana Lees, Eduardo Bruera; 3/24[See article for] updated treatment illness trajectories for patients with incurable solid cancer include major temporary improvement, long term ongoing response, and rapid decline. Supportive and palliative care should be provided in conjunction with newer anticancer therapies to address patients’ physical, psychological, social, and spiritual challenges.
Public health and palliative care
03/09/24 at 03:15 AMPublic health and palliative careClinics in Geriatric Medicine, by Sarah H. Cross PhD, MSW, MPH; Dio Kavalieratos PhD; 8/23Meeting the needs of people at the end of life (EOL) is a public health (PH) concern, yet a PH approach has not been widely applied to EOL care. The design of hospice in the United States, with its focus on cost containment, has resulted in disparities in EOL care use and quality. Individuals with non-cancer diagnoses, minoritized individuals, individuals of lower socioeconomic status, and those who do not yet qualify for hospice are particularly disadvantaged by the existing hospice policy. New models of palliative care (both hospice and non-hospice) are needed to equitably address the burden of suffering from a serious illness.
Aging is not an illness: Exploring geriatricians' resistance to serious illness conversations
03/09/24 at 03:10 AMAging is not an illness: Exploring geriatricians' resistance to serious illness conversationsJournal of Pain and Symptom Management, by Alexis Drutchas MD; Deborah S. Lee MD; Sharon Levine MD; Jeffrey L. Greenwald MD; Juliet Jacobsen MD, MPH; 9/23Three key themes emerged that help explain the reluctance of clinicians caring for older patients to have or document serious illness conversations: 1) aging in itself is not a serious illness; 2) geriatricians often focus on positive adaptation and social determinants of health and in this context, the label of “serious illness conversations” is perceived as limiting; and 3) because aging is not synonymous with illness, important goals-of-care conversations are not necessarily documented as serious illness conversations until an acute illness presents itself.
First person profile: Betty Ferrell, PhD, RN
03/09/24 at 03:05 AMFirst person profile: Betty Ferrell, PhD, RNCancer, by Mary Beth Nierengarten; 2/24Dr Ferrell has built her career on the belief that palliative care should be offered from the time of cancer diagnosis rather than just as end-of-life care.Publisher's note: Honoring our heros...
Digital ‘communication bridge’ for seniors with aphasia is $13M closer to reality
03/08/24 at 03:00 AMDigital ‘communication bridge’ for seniors with aphasia is $13M closer to reality McKnights Senior Living; by Aaron Dorman; 3/5/24 An upcoming research program will examine the potential for telehealth and wearable sensors to address a specific and nasty form of aphasia. The University of Chicago was awarded $13.2 million by the National Institutes of Health to study the disease, as part of its five-year Communication Bridge Research Program. The university recently announced the grant windfall and has begun reaching out to potential participants for a clinical trial.
“Dying with a smile, just knowing that somebody’s listened to me”: End-of-life care and medical assistance in dying in Canadian prisons
03/02/24 at 03:40 AM“Dying with a smile, just knowing that somebody’s listened to me”: End-of-life care and medical assistance in dying in Canadian prisonsOMEGA - Journal of Death and Dying, by Jessica Shaw, Peter Driftmier; 3/24Medical assistance in dying (MAiD) has been legal in Canada since 2016 and some incarcerated patients who are at the end of their lives are eligible for the procedure. Interviews with nine incarcerated men at a federal penitentiary in Canada provide insight into some of the ways that people who are navigating aging and end-of-life in prison think about MAiD.
Knowledge gaps in end-of-life family caregiving for persons living with dementia: A study of hospice clinician perspectives
03/02/24 at 03:35 AMKnowledge gaps in end-of-life family caregiving for persons living with dementia: A study of hospice clinician perspectivesAmerican Journal of Hospice and Palliative Medicine, by Meghan McDarby, David Russell, Lori King, Elissa Kozlov, Elizabeth A Luth; 5/23More than 35% of hospice care recipients 65 and older have a dementia diagnosis. Yet family care partners of persons living with dementia report feeling unprepared to address their hospice recipient's changing needs nearing end of life. Hospice clinicians may have unique insight into the knowledge needs of family care partners and strategies for end-of-life dementia caregiving.
Close but not close enough: How distance caregiving is associated with hospice family caregiver hospice communication experiences
03/02/24 at 03:30 AMClose but not close enough: How distance caregiving is associated with hospice family caregiver hospice communication experiencesHealth Communication, by Lauren T Starr, Karla Washington, Kyle Pitzer, Debra Parker Oliver, George Demiris; 3/24Half of hospice family caregivers report having unmet information needs, which can contribute to poor pain and symptom management, emergency department use, and hospice disenrollment for care-recipients and to caregiver strain and stress. Effective communication between hospice teams and family caregivers is critical yet communication inadequacies persist. Despite the growing prevalence of distance caregiving, including in hospice care, and the relationship between caregiver proximity and communication effectiveness, little is known about how caregiver proximity is associated with caregiver perceptions of hospice communication.
Case histories of significant advances: Cicely Saunders and the modern hospice movement
03/02/24 at 03:25 AMCase histories of significant advances: Cicely Saunders and the modern hospice movementHarvard Business School, by Amar Bhide, Srikant Datar; 2/25/24This Case history describes the role of Dame Cicely Saunders (1918- 2005) in shaping the modern hospice movement. It is narrated in the first person through the words of her brother, Christopher Saunders (1926-2024) as told to one of the authors of this paper.
Oncologist perceptions of racial disparity, racial anxiety, and unconscious bias in clinical interactions, treatment, and outcomes
03/02/24 at 03:20 AMOncologist perceptions of racial disparity, racial anxiety, and unconscious bias in clinical interactions, treatment, and outcomesJournal of the National Comprehensive Cancer Network, by Alexandrina Balanean, Emily Bland, Ajeet Gajra, Yolaine Jeune-Smith, Andrew J Klink, Harlen Hays, Bruce A Feinberg; 2/24Cancer spares no demographic or socioeconomic group; it is indeed the great equalizer. But its distribution is not equal; when structural discrimination concentrates poverty and race, zip code surpasses genetic code in predicting outcomes. Compared with White patients in the United States, Black patients are less likely to receive appropriate treatment and referral to clinical trials, genetic testing, or palliative care/hospice.
Private equity's plot against older Americans
03/02/24 at 03:15 AMPrivate equity's plot against older AmericansJournal of the American Geriatrics Society, by James Webster MD MS; 2/24/24Over the past several decades more than 140 private equity investment firms have acquired entities in major components of healthcare in the United States... Private Equity firms have undertaken acquisitions of financially or administratively distressed hospitals, nursing homes, physician practices especially emergency care and medical specialties, hospices, home care agencies, physical therapy and rehabilitation operations, ambulance services, and nursing registries... Of particular importance for older Americans, Private Equity firms currently own a significant percentage of U.S. nursing homes; estimates range from 5% to 11%, and a rapidly increasing percentage of hospice and home care agencies. All three are important sources of seniors' care. Why should we be concerned about these issues considering all of the other current challenges to the medical system?...
Hospice fraud: Predicting ability and intent
03/02/24 at 03:10 AMHospice fraud: Predicting ability and intentIllness, Crisis & Loss, by Laura M. Waters, Patricia Moyle Wright; 2/28/24Hospice fraud is a growing concern around the world. Yet, little attention has been given to the study of hospice fraud in the extant literature.