Literature Review

Rainbow 35th anniversary cookbook available Watertown Daily Times, Jefferson, WI; by Kenyon Kemnitz, Rainbow Community Care; 11/22/25 Rainbow Community Care, a trusted independent healthcare provider serving Jefferson, Dodge, and surrounding counties, is excited to announce that its commemorative 35th Anniversary Cookbook, “Nourishing Body & Soul” is officially available for purchase. This community-sourced cookbook features over 300 recipes. It is a beautiful, heartfelt keepsake filled with the best-kept family secrets and cherished stories from the very people who built Rainbow: volunteers, local families, dedicated healthcare workers, and community supporters. All have been part of Rainbow’s 35-year journey of providing compassionate care to rural South Central Wisconsin. “This is more than just a cookbook,” said Rainbow Community Care Clinical Liaison Dana Traynere. “Every recipe tells a story of connection and community, ...Editor's Note: Yes, this creative fundraiser is "more than just a cookbook" with its family recipes filled with memories and relationships from the past for the present and family meals ahead. What favorite family recipes--filled with stories of loved ones who have died--will grace your Thanksgiving table tomorrow?

Letters without limits: Jesse Tetterton The Johns Hopkins News-Letter; by Omkar Katkade; 11/22/25 Letters Without Limits, founded by students at Johns Hopkins and Brown University, connects volunteers with palliative care and hospice patients to co-create “Legacy Letters.” These letters capture memories, values and lessons that patients wish to share, preserving stories that might otherwise be lost. By honoring these voices and preserving legacies, Letters Without Limits hopes to affirm the central role of humanism in medicine, reminding us that every patient is more than their illness and that their voices deserve to be heard.

Balancing caregiving and personal well-being: The role of palliative care WISHTV.com-8, Indianapolis, IN; by Alfonso Ruvalcaba Trujillo; 11/17/25 Nearly 60 million Americans are providing unpaid care for loved ones facing serious illness, often without the necessary support, according to recent reports. ... Dr. Michael Gabriel, National Medical Director for Carelon Palliative Care, explains that palliative care offers an extra layer of support alongside regular medical treatment, focusing on improving quality of life by addressing physical, emotional, and spiritual needs.

Hospice of Orange & Sullivan’s sixth annual community breakfast features caregivers’ emotional stories of courage, compassion and dignity FocusMedia, Middletown, NY; Press Release; 11/7/25 Hospice of Orange & Sullivan Counties, Inc.’s Sixth Annual Community Breakfast celebrated the profound difference Hospice makes through caregivers who shared touching stories of supporting patients during their final life journey. The ”Real Stories, Real Impact” panel discussion was moderated by Eric Gatsik, President and CEO of Hospice of Orange & Sullivan Counties and Heather Bell-Meyer, President and CEO of the Orange County Chamber of Commerce. About 115 attendees at the Barn at Villa Venezia connected, reflected and were inspired by stories of love, dignity and trust offered to patients at the end of their lives. 

How to prepare for your death [podcast] MedPage Today's KevinMD.com; podcast by KevinMD with Joseph Pepe; 10/31/25 Physician executive Joseph Pepe discusses his article, “A doctor’s guide to preparing for your death.” He shares practical and compassionate advice on planning for life’s inevitable end, from organizing essential documents and creating a “death folder” to protecting loved ones through wills, trusts, and life insurance. Joseph explains why facing mortality head-on allows people to live more freely and meaningfully. 

A rapid review exploring overnight camps for children with chronic or serious illness as a palliative care intervention for caregiversJournal of Palliative Medicine; by Tracy Fasolino, Benjamin Parry, Alexandra Skrocki, Janice Withycombe, Barry A Garst, Ann Gillard, Ryan J Gagnon, Robert Hollandsworth; 9/25Strong evidence supports the benefits of overnight camp for children with chronic and serious illness, yet little research exists on the role of these camps as a palliative, non-hospice intervention for caregivers. Several camps [included in this study] focused on education and disease management skills, whereas others offered an environment of relaxation and reconnection for the caregivers. Several positive themes emerged from the review, such as social well-being and psychological impact. Evidence suggests overnight camps may serve as a palliative intervention for caregivers of children with serious and chronic illnesses.

Mentorship, military legacy, and making a difference with Susan Combs Advisor Today; podcast with Susan Combs; 10/25/25 Susan Combs is the Founder of Pancakes for Roger, a nonprofit that honors veterans and amplifies their stories through a grassroots “pancakes” movement. She created it after her father, a Major General, asked for pancakes while on hospice, inspiring a campaign, book, and advocacy project.Editor's Note: Though Veteran's Day is only two weeks away, you have time to implement Susan's amazing "Pancakes for Roger" for the veterans you serve, via their annual national (and international) campaigns each February. Explore more information. 

The Family Caregiver Act—Safeguarding the human care chainJAMA Pediatrics; by Eli Y. Adashi, I. Glenn Cohen; 9/25On August 9, 2024, Jay Robert Pritzker, governor of Illinois, signed into law House Bill (HB) 2161 (Public Act 103-0797), likely the nation’s leading caregiving antidiscrimination legislation. The new law, which took effect January 1, 2025, prohibits employment discrimination against individuals saddled with family caregiving responsibilities. It is by dint of the enactment of HB 2161 that Illinois became the sixth state or district to legally require some form of this employee protection. Alaska, Delaware, Maine, Minnesota, New York, and Washington, DC, precede it, though some of these limit their protection to parents. Moreover, HB 2161 defines personal care as activities wherein a family member assumes responsibility for one or all of the basic needs of an ailing relative, replete with the provision of emotional support and/or transportation to medical appointments. A covered family member may include a child, stepchild, spouse, domestic partner, sibling, parent, mother-in-law, father-in-law, grandchild, grandparent, or a stepparent.Assistant Editor's note: "The Human Care Chain"--what a wonderfully descriptive title this is to describe the Illinois law. Those words evoke strong images of connectedness, humanness, caring, compassion, dedication, goodness, and love. As end-of-life and serious illness care providers, we understand the tremendous value, comfort and necessity of The Human Care Chain.

[South Africa] Capturing the comfort and care of palliative care this World Hospice and Palliative Care Day Good Things Guy, South Africa; by Nothando Mthembu; 10/7/25 It’s said that a picture is worth a thousand words, and it is upon this very adage that the Association of Palliative Care Centres (APCC) of South Africa has launched a powerful photographic campaign to capture the dignity, comfort and support that patients facing life-threatening illness receive and deserve through the provision of palliative healthcare services. With the hope of showcasing the impact of palliative care through real-life stories and images, the ‘Through the Palliative Care Lens’ campaign aligns with the theme for World Hospice and Palliative Care Day 2025 (WHPCD2025): ‘Universal Access to Palliative Care’.

Doyel: I didn't know how strong and kind my special Mom was. Not until she started dying. Indianapolis Star, Indianapolis, IN; by Greg Doyle; 10/1/25 The last time we talked, I told my mom the truth: I’d missed just how wonderful she was. Make no mistake, I knew she was wonderful. Kind, considerate, strong – she checked all the best boxes. And generous? Mom’s the most generous person I’ve ever known, and I’ve known it for years. But I didn’t know just how generous she was. Not until she started dying. Didn’t know how strong she was, either. Not until she was so weak she couldn’t stand on her own two feet. That’s when I finally saw it. ...

Study provides new insight into loneliness among home care recipients McKnights Home Care; by Paul Katz, MD and Barbara Resnick, PhD; 9/22/25 ... A team of international Investigators, led by researchers at the University of Waterloo, recently reported on the link between loneliness and mortality among home care recipients in Canada, Finland and New Zealand. The study can be found in the July issue of the Journal of the American Medical Directors Association (Vol 26 (7) 105687 July 2025). ... Home care recipients may be more prone to loneliness, given mobility and sensory problems that limit engagement in the community.  ... Interestingly, investigators noted that individuals with less informal care had the highest rates of loneliness. An explanation may be that those with less complex health needs requiring  less support from family members may lead to more social isolation.

Americans choosing cremation at historic rates, NFDA report finds National Funeral Directors Association (NFDA), Brookfield, WI; Press Release; 9/18/25 Americans are choosing cremation more than ever before, setting a new milestone in funeral service trends for 2025. According to the National Funeral Directors Association (NFDA) 2025 Cremation & Burial Report, the U.S. cremation rate will reach 63.4% this year, more than double the projected burial rate of 31.6%. These shifting preferences reflect lasting changes in family priorities, funeral profession practices and cultural attitudes. Key 2025 Report Highlights: 

Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care Palliative Supportive Care - Cambridge University Press; by Swasati Handique, Michael Bennett and Scott D Ryan; 9/12/25 Results: Four major themes were established using thematic content analysis: (1) impact on holistic well-being, (2) role of family in wish fulfillment, (3) cultivation of gratitude, and (4) collaborative leadership in wish fulfillment. In wish fulfillment, the results significantly pointed to the need for more intricate evaluation among patients and interventions that cover beyond the physical aspect. Significance of results: Palliative and hospice care settings should work toward securing sustainable funding for structured wish-fulfillment programs to address existing accessibility gaps and further enhance the holistic nature of care in these settings. Editor's Note: For hospice organizations that can receive donations, setting up a Wish/Bucket LIst fund makes for a meaningful, easy-to-demonstrate ROI on donated gifts. You need to have some type of discretionary review/approval process in place, with assurances of confidentiality when important to the person and/or family.