Examining education models for clinical staff working with people with intellectual and developmental disabilities in hospice and palliative care: A narrative literature review

Examining education models for clinical staff working with people with intellectual and developmental disabilities in hospice and palliative care: A narrative literature review
American Journal of Hospice and Palliative Care; by Caitlyn M Moore; 5/25
Despite individuals with intellectual and developmental disabilities (IDD) living longer with serious illness, healthcare professionals report inadequate training in this area. Additionally, IDD specialists consistently express discomfort and limited knowledge regarding HAPC [hospice and palliative care]. Findings indicate that while several studies demonstrate positive outcomes regarding knowledge, self-efficacy, and satisfaction among participants, there is a lack of standardized training and patient-centered metrics. Existing interventions largely focused on improving the knowledge of IDD staff regarding HAPC, with limited attention given to educating HAPC professionals on the nuances and complexities needs of people with IDD. This review underscores the importance of developing and implementing evidence-based and standardized training programs that encompass the needs of both HAPC and IDD specialists.