Literature Review

Impact of patient and caregiver beliefs on utilization of hospice and palliative care in diverse patients with advanced lung cancerAmerican Journal of Hospice and Palliative Care; Melanie Besculides, Melissa B Mazor, Carolina Moreno Alvarado, Mayuri Jain, Lihua Li, Jose Morillo, Juan P Wisnivesky, Cardinale B Smith; 2/25A prospective cohort study of newly diagnosed patients ≥18 years old with advanced lung cancer and their caregivers was conducted. Participants completed validated surveys at multiple points and electronic health records were reviewed to evaluate utilization. Minoritized lung cancer patients held more negative beliefs about HC/PC [hospice care/palliative care] yet were more likely to receive HC/PC. Further work is needed to understand factors that impact utilization among diverse patients with advanced cancer.

Juniper House on National Historic Register K103, Portland, OR; 2/18/25 The Juniper House is among Oregon's latest entries in the National Register of Historic Places ... for its statewide significance as Oregon's first end-of-life care home dedicated exclusively to residents with HIV/AIDS [May 1987] and for its substantial impact on statewide healthcare and LGBTQ+ history. ... In addition to caring for residents, the work of Juniper House included advocacy and educational efforts that were crucial in shaping public opinion and responses to HIV/AIDS.

YoloCares: Breaking barriers in medicine, advancing DEI The Davis Enterprise; by Craig Dresang, Special to The Enterprise; 2/15/25 She is unassuming. She is a powerhouse. Her broad blissful smile can be disarming, but make no mistake, Jackie Clark RN, MBA, is a force of nature who knows how to get things done and how to lift people up in the process. The woman who California appointed as its first CEO for Correctional Healthcare Services, and now serves as the Board Chair for YoloCares, has some insight about the emerging challenges facing both healthcare and the country. Before her recent retirement, Clark oversaw the care of approximately 5,000 incarcerated patients annually, including one of the only hospice facilities in the country for incarcerated individuals. Clark expanded hospice care and developed a program for patients with Alzheimer’s and dementia. Recognizing the emotional impacts that an inmate’s death can have in the prison community, she also expanded an existing peer support training program to include preparing volunteers to aid hospice patients. ... Over time, Clark completely transformed the quality and delivery of healthcare in all of California’s 34 correctional facilities. ...

Immigration policies’ ‘chilling effect’ on the hospice workforce Hospice News; by Holly Vossel; 2/5/24 The White House recently issued several executive orders that have ramped up the nation’s immigration enforcement policies. The health care sector may be facing a host of staffing and operational challenges as the regulatory moves unfold, according to Hannah Liu, manager of immigration advocacy at Asian Americans Advancing Justice (AAJC). A tightening of immigration policies has come with “concern, panic and confusion” across diverse communities nationwide, Liu stated. “As the effects of these hostile immigration policies play out, patients may also face the life-or-death situations that arise from interruptions in care caused by staffing shortages,” Liu told Hospice News in an email. “Immigrants in the health care industry may fear the possibility of arrest and detention, including in workplaces like hospitals, palliative care facilities and clinics.” 

Nurses' perspectives on end-of-life care for Black/African American patientsJournal of Hospice & Palliative Nursing; Aaron, Siobhan P. PhD, RN, FNP-BC; Supiano, Katherine PhD, LCSW, FT, FGSA, APHSW-C; DeSimio, Samantha BS; 2/25In this qualitative examination of health care disparities based on race and ethnicity, the accounts of Black/African American nurses shed light on a range of critical issues within the health care system. These issues encompass stereotyping, bias, and a notable absence of cultural competence among health care providers, which often result in unequitable treatment for patients of color. Socioeconomic factors, including insurance and income disparities, further exacerbate these inequalities. Discrimination, whether implicit or explicit, continues to affect diagnosis and treatment, with a particular focus on disparities in pain management. Furthermore, the cultural perspectives and historical context surrounding treatment preferences were explored, emphasizing the profound impact of health care literacy, cultural viewpoints, and historical mistrust, especially within the Black/African American community.

Opioid painkillers less available to people of color HealthDay News / Coastal Breeze News, Marco Island, FL; 1/30/25 People of color now have less access to prescription opioid painkillers than white patients, an unintended consequence of efforts to stem America’s opioid epidemic. Communities of color have a 40% to 45% lower distribution of commonly prescribed opioids, compared to majority white communities, researchers reported in a study published Jan. 23 in the journal Pain. This could prevent opioid painkillers from reaching those in true need of them, like cancer patients, researchers said. 

Stillwater Hospice CFO: A winning recipe for improving rural hospice care Hospice News; by Holly Vossel; 1/23/25 Montana-headquartered Stillwater Hospice has found a successful rhythm to strategic rural-based growth and sustainability. The strategy hinges on building culture, staffing resources and a reputation for quality, according to CFO and Co-founder Chris Graham. Launched in 2017, the hospice company serves predominantly rural-based populations in Montana, northern Wyoming and South Dakota. ... What are the most significant concerns among rural-based hospice providers currently? How have the challenges of rural care delivery evolved in recent years? "Staffing is very hard. You’ve got to find staff who are willing and like to travel because they have a lot of windshield time. It’s also the logistics of remote care. We have patients that live 75 miles or more outside of a town, then once you get there it’s another 20 miles on a dirt road that could be covered in snow and ice. ..." [Click on the title's link to continue reading.]

Up to $212,500 funding now available to researchers investigating health disparities CMS.gov - Health Equity - Grants & awards; Minority Research Grant Program; via email 1/21/25, retrieved from the internet 1/21/25 The Centers for Medicare & Medicaid Services Office of Minority Health (CMS OMH) is pleased to release the Minority Research Grant Program (MRGP) 2025 Notice of Funding Opportunity (NOFO). This grant awards funding to health equity researchers at minority-serving institutions (MSIs) investigating health disparities and improving the health outcomes of minority populations.As a grantee, you will enhance your impact and visibility in the research community, support our mission to advance health equity, and join a prestigious group of awardees whose collective MRGP-funded research has been cited in more than 190 publications. CMS will award up to six grants, totaling up to $1,275,000, in 2025. Review the notice of funding opportunity CMS-1W1-25-001 and submit your application on grants.gov by April 1, 2025.

Michigan hospice's training empowers African Americans to dialogue Catholic Health world; by Lisa Eisenhauer; 1/16/25 Rev. Diane Smith knows the hospice education program she leads for predominantly Black churches resonates with those who enroll. ... Rev. Smith directs The African American Church Empowerment Project at Livonia, Michigan-based Angela Hospice and gives certificates those who complete the training. She is also the hospice's director of ministry engagement and chief diversity officer. The Empowerment Project isn't about promoting Angela Hospice's services, Rev. Smith explains, but rather about educating the community on hospice care and listening to concerns about end-of-life issues. Rev. Smith sees another primary reason for the disconnect between Black Americans and hospice providers. She says many people of color have a distrust of the medical community that is rooted in historically being both denied care and exploited ...

CMS Call for Nominations: 2025 CMS Health Equity Award U.S. Centers for Medicare and Medicaid Services; by CMS Health Equity; via CMS email 1/13/25Nominations for the 2025 CMS Health Equity Award are now open to organizations working to advance health equity, showing others how to reduce disparities in health care access, quality, and outcomes. Nominations are due February 18 at 11:59 pm PT.  ... Health equity is defined by CMS as the attainment of the highest level of health for all people, where everyone has a fair and just opportunity to attain their optimal health regardless of race, ethnicity, disability, sexual orientation, gender identity, socioeconomic status, geography, preferred language, and other factors that affect access to care and health outcomes. 

Special Bulletin – CA Wildfires Public Health EmergencyCommunity Health Accreditation Partner (CHAP); Special Bulletin; 1/14/2025 HHS Declares Public Health Emergency for California to Aid Health Care Response to Wildfires. The declaration follows President Biden’s major disaster declaration and gives the Centers for Medicare & Medicaid Services’ (CMS) health care providers and suppliers greater flexibility in meeting the emergency health needs of Medicare and Medicaid beneficiaries. HHS has waived sanctions and penalties for violations of certain provisions of the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule against hospitals in the emergency area. [Click on the title's link to continue reading]

Muslim American Heritage Month Celebration U.S. Department of Veterans Affairs, Washington, DC; Denis McDonough; 1/8/25 Dr. Salaam, thank you for your service in the Air Force, and for your service in communities around the country as an Imam and civil rights leader in the years since. Your words, principles, and perspectives are as inspiring as they are important ... [Describing VA Chaplain Omer Yigiter:] He became a VA chaplain at the Northport VA Medical Center, the only Muslim chaplain serving all of VISN-2 and one of only four Muslim VA chaplains across the country. ... We must learn and re-tell stories like those shared today—to ensure the experiences of Muslim American Veterans are acknowledged and honored. Truthful storytelling is also about authentic representation, about ensuring all Veteran voices and perspectives are heard and welcomed. So to our Muslim Veterans and colleagues, your unique perspectives make VA stronger. 

Navigating Aging: The LGBTQ+ community relives old traumas as they face aging on their own Northern Kentucky Tribune; by Judith Graham; 1/5/25 Bill Hall, 71, has been fighting for his life for 38 years. These days, he’s feeling worn out. Hall contracted HIV, the virus that can cause AIDS, in 1986. ... This past year, Hall has been hospitalized five times with dangerous infections and life-threatening internal bleeding. But that’s only part of what Hall, a gay man, has dealt with. ... By 2030, the number of LGBTQ+ seniors is expected to double. Many won’t have partners and most won’t have children or grandchildren to help care for them, AARP research indicates. They face a daunting array of problems, including higher-than-usual rates of anxiety and depression, chronic stress, disability, and chronic illnesses such as heart disease, according to numerous research studies. High rates of smoking, alcohol use, and drug use — all ways people try to cope with stress — contribute to poor health. Keep in mind, this generation grew up at a time when every state outlawed same-sex relations and when the American Psychiatric Association identified homosexuality as a psychiatric disorder. Many were rejected by their families and their churches when they came out. Then, they endured the horrifying impact of the AIDS crisis.