Literature Review

Black and white older adults’ end-of-life experiences: Does hospice use mitigate racial disparities? The Journals of Gerontology; by Clifford Ross, Brina Ratangee, Emily Schuler, Zheng Lian, Benmun Damul, Deborah Carr, Lucie Kalousová; 7/25Racial disparities in end-of-life care are well documented, but less is known about how these inequalities shape assessments of death quality. Proxies for Black decedents reported higher perceived death quality than those for White decedents, despite evidence of greater structural disadvantage. However, perceived care concordance was significantly lower among Black decedents. Hospice care was associated with improved perceived death quality for Black decedents but not for Whites. When accounting for socioeconomic and death experience controls, hospice care did not moderate perceived care concordance.

Issues in developing multilingual graphics-based digital caregiver guides for dementia careDiscourse, Context & Media; by Boyd H. Davis, Margaret Maclagan, Meredith Troutman-Jordan; 8/25To increase the opportunity to educate caregivers for persons with dementia, particularly the nearly 40% of migrant healthcare workers emigrating to the US, we have chosen an adaptation of graphic medicine as a means of presenting these workers with conversations about dementia care in two formats of ‘mini-comics’: photo-based and cartoon. Our graphic Caregiver Guides are a form of mediated digital discourse that incorporate both words and pictures, and thereby support caregivers as they draw immediately useful guidance from online materials when offering daily off-line care. Each guide covers a situation that occurs commonly as caregivers care for people living with dementia.

Caregiver-reported barriers and facilitators to hospice enrollment for persons with dementia: A systematic review of qualitative evidencePalliative Medicine; by Oonjee Oh, Connie M Ulrich, Lauren Massimo, George Demiris; 7/25Despite the increasing prevalence of dementia, persons with dementia often receive suboptimal care near the end of life. Dementia caregivers experience intrapersonal, interpersonal, emotional, logistical, and physical challenges in ensuring quality end-of-life support for their loved one (e.g. limited understanding of end-stage dementia, gatekeeping providers, and family conflicts). The unique needs of caregivers caring for a seriously ill family member with dementia are not being fully addressed by the current available services and policies.

350 health groups urge Congress to extend Medicare telehealth MedCityNews; by Marissa Plescia; 8/14/25 A group of 350 organizations, including the American Academy of Hospice and Palliative Medicine, are urging Congress to make Medicare telehealth flexibilities introduced during the COVID-19 pandemic permanent, or at least extend them for two years. In a letter to congressional leaders, the organizations emphasize the importance of telehealth for Medicare beneficiaries, particularly those with chronic conditions or in rural areas, and highlight the potential impact on health care access and infrastructure. Guest Editor’s Note, Judi Lund Person: Unless there is Congressional action after the August recess to extend the hospice face-to-face requirement through telehealth, that option will conclude on September 30, 2025.

CU School of Medicine receives $64 million NIH award to establish palliative care research consortiumUniversity of Colorado School of Medicine press release; by Kara Mason; 8/7/25The five-year award supports CU School of Medicine faculty at the forefront of research dedicated to improving quality of life for people living with serious illnesses. The University of Colorado School of Medicine has been selected as the prime award institution for a $64 million award from the National Institutes of Health (NIH) to establish a consortium focused on palliative care research. “While palliative care as a field has advanced significantly in the last few decades, there are still a lot of unmet needs. This consortium will serve as a springboard for filling gaps and offering resources to researchers who will ultimately improve the field,” says Jean Kutner, MD, MSPH, distinguished professor of medicine and chief academic officer of UCHealth, who will serve as a principal investigator of the Advancing the Science of Palliative Care Research Across the Lifespan (ASCENT) Consortium... The consortium includes principal investigators from the CU School of Medicine and four other academic centers across the country — New York University Rory Meyers College of Nursing, Duke University School of Medicine, Icahn School of Medicine at Mt. Sinai, and the Children’s Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania — and 40 key personnel from more than 20 institutions, representing the interdisciplinary approach that is integral to palliative care... The ASCENT Consortium’s creation comes at a critical juncture for palliative care research, as two vital programs — the National Institute of Nursing Research-funded Palliative Care Research Cooperative, which Kutner led at the CU School of Medicine for 13 years, and the National Palliative Care Research Center — have been expected to sunset in 2025... “We've gone from publishing observational and cross-sectional work to where we are today with demonstrating effective and innovative interventions,” Kutner says.

She wanted her dad to give her away at her wedding. A Niagara hospice made it happen NiagaraThisWeek.com - Grimsby Lincoln News; by Mark Newman; 8/10/25 Ron Oliver got to see his daughter get married. When the 67-year-old Grimsby resident moved into McNally House Hospice for end-of-life care on Wednesday, his daughter Alissa mentioned to hospice staff she wanted her father to see her get married and to give her away as part of the matrimonial ceremony before he dies. McNally House staff went to work, and 48 hours later Alissa was walking along an outdoor patio at the hospice with her father behind her in a wheelchair holding her hand.

I choose a lazy person to do a hard job, because a lazy person will find an easy way to do it. ~ Bill Gates

Few released under NC law that allows seriously ill incarcerated people to spend their final days at homeNC Health News; by Rachel Crumpler; 8/14/25Advocates hoped 2023 eligibility changes would increase medical releases. So far, that hasn’t happened. North Carolina expanded its prison medical release eligibility in 2023 to allow more sick and aging incarcerated people to be released, but the number of approvals is still low. Since 2019, the Parole Commission has granted medical release to 67 people.Thank you Mark Cohen, Guest Editor, for calling this interesting article to our attention!

UnitedHealth Group’s acquisition of Amedisys closesHospice News; by Jim Parker; 8/14/25On the heels of an agreement with the U.S. Department of Justice, UnitedHealth Group has closed its acquisition of the home health and hospice provider Amedisys. Amedisys announced the news in a U.S. Securities and Exchange Commission (SEC) filing on Thursday. The UnitedHealth Group subsidiary Optum, in June 2023 inked its agreement to acquire Amedisys in an all-cash transaction of $101 per share, or about $3.3 billion. Amedisys on Thursday also stopped trading on the Nasdaq.

Pennant Group expands through Amedisys acquisition Pulivarthi Group; 8/12/25In a significant shift within the healthcare landscape, the Pennant Group has announced its intention to acquire home health and hospice agencies presently owned by Amedisys and UnitedHealth. This move marks an essential strategic expansion into the Southeast U.S., a region already experiencing increasing demand for quality home health services. ... This post provides an in-depth analysis of the home health acquisition landscape while addressing key challenges such as reimbursement issues, staff retention, and access to care for vulnerable patients.

Healthy Together Cleveland receives foundation grant [from Hospice of Cleveland County] The Home Page for Cleveland County, North Carolina; Press Release; 8/14/25 The Board of Directors for Hospice Cleveland County Foundation recently awarded a $50,000 grant to support the Everyone Eats Emergency Food Fund Drive, spearheaded by Healthy Together Cleveland (HTC) to combat food insecurity in Cleveland County. "As we continue to face unprecedented challenges, community support is vital. Everyone Eats is a testament to what we can achieve when we come together with a shared purpose. We are delighted to provide this grant to launch the campaign and hope it will inspire others to participate," said Katie Borders, President, Hospice Cleveland County Foundation. Last month, HTC announced that 1 in 6 people in the county are experiencing food insecurity. ... The mission of the Foundation is to strive to maintain the success of the hospice tradition in Cleveland County by supporting efforts to help people lead healthy, productive lives and experience peaceful, dignified deaths. We seek to ensure that all people - especially those with the fewest resources - have access to the opportunities they need to succeed in school and in life.Editor's Note: May we all learn and live from Hospice Cleveland County Foundation's mission and action. Thank you.

Governor creates new LTC oversight board, pledges to fill surveyor openings by year’s end McKnights Long-Term Care News; by Jessica R. Towhey; 8/12/25 A new politically appointed Nursing Home Oversight and Accountability Advisory Board is being proposed as a way to strengthen facility oversight in a state that has a 42% vacancy rate among its public inspectors. Gov. Glenn Youngkin (R) called for the board, which will consist of members appointed by the state Secretary of Health, in an executive order issued Monday. Both LeadingAge Virginia and the Virginia Health Care Association / Virginia Center for Assisted Living applauded the overall goals of the executive order but cautioned that resources to implement the directives are needed. Guest Editor's Note, Judi Lund Person: The Virginia governor, Glenn Youngkin, has taken steps to address surveyor vacancies and strengthen oversight for nursing homes in the state, calling on partnerships with other states for training. Advocates cited the state, as in many other states, is hampered by flatline funding from federal partners and the lack of clinical staff willing to fill surveyor roles.  

Building a strong foundation for pediatric palliative care in Connecticut Solomon Center for Health Law and Policy at Yale Law School, Targeted News Service; by Wendy Jiang, Elle  Rothermich, Eugene Rusyn; 8/12/25 The Solomon Center for Health Law and Policy at Yale Law School has released a white paper outlining concrete pathways for Connecticut to guarantee pediatric palliative care (PPC) from diagnosis--not only at end of life--while building a workforce equipped to deliver it statewide. The report highlights two foundational barriers: coverage that generally triggers only when a child receives a six-month terminal prognosis, and a shortage of clinicians trained in primary palliative skills, leading to delayed referrals and fragmented support for families facing serious childhood illness. The authors recommend two primary coverage strategies for the state.Editor's Note: Though written for Connecticut, this 42-page white paper from Yale provides excellent information and recommendations to examine for one's own state. Its sub-title is "Establishing a statewide coverage pathway & expanding primary palliative care education for pediatric clinicians."