Literature Review

ALS and mental health: The importance of caring for the whole person ALS Association; by Amber Johnstone, MSW, LISW-S; retrieved from the internet 5/27/25 ... May is ALS Awareness Month and also Mental Health Awareness month. ALS and Mental Health go hand in hand. One of the first things I tell newly diagnosed individuals that I work with is that ALS affects the whole family. And to be truthful, it affects many more than just that nuclear family unit. A person living with ALS is like a pebble thrown into a pond. That first splash is the biggest, but then the water ripples all the way out to the edges of the pond. Those ripples are all the people with which the person with ALS shares their journey. ... The ALS Association understands how important mental health can be.  ... The ALS Association is proud to offer ALS Academy to community healthcare professionals and caregivers.  ALS Academy is free, online, self-paced, catalog of ALS education videos.  

From an old ambulance, they help the growing homeless population CT Mirror; by Ginny Monk; 5/25/25 The needs of the unhoused are becoming more complex, and the fight for state support is fierce. ... Launched in 2021, the [Neighborhood Health workers] team drives a refurbished ambulance to shelters or encampments, then provides health care on-site for people experiencing homelessness. They’re out nearly every day. In recent months, as more people, particularly seniors, have lost their housing, health workers are finding that the cases they handle are more complicated. People often have multiple diagnoses, and with older age groups, there are often health complications that make the illnesses or injuries harder to treat. Sometimes, conversations are veering to end-of-life care. These conversations between health care professionals and patients are poignant as state lawmakers debate funding for the systems that offer shelter and other services for the unhoused population. ...

Johnson champions Eddie's Law to bring dignity to end-of-life-care in Illinois Public, Springfield, IL; News Release; 5/22/25 After an incarcerated man named Eddie Thomas died alone in a prison infirmary without receiving any end-of-life care, State Senator Adriane Johnson is championing legislation to bring dignity, compassion, and transparency to hospice and palliative care services in Illinois correctional facilities. "This bill is about basic human dignity," said Johnson (D-Buffalo Grove). "No one should die in pain, in isolation or without the comfort of care - no matter who they are or where they live. House Bill 2397 brings transparency to a system that too often leaves people to suffer silently." ... House Bill 2397 would require the Illinois Department of Corrections to prepare and publish an annual report detailing its hospice and palliative care programs. The bill aims to provide lawmakers with data that can guide future policy decisions on compassionate and medically appropriate end-of-life care for people incarcerated in Illinois. 

The shorter way to do many things is to only do one thing at a time. ~ Mozart

Spouses accused of prescription fraud: Nurse took meds from hospice patients, deputies say The Daily Record; by Staff; 5/22/25 A hospice nurse and her husband are accused of diverting and trafficking controlled prescription medications from several pharmacies during her employment at Liberty Home Health and Hospice. Juana Nicole Hull, 42, is charged with six counts of conspiring to traffic opium or heroin and four counts each of obtaining a controlled substance through fraud; embezzling or diverting a controlled substance; and trafficking opioids. Her husband, 38-year-old Robert Wayne Hull, is charged with six counts each of obtaining a controlled substance through fraud and trafficking opioids. 

BrightSpring Health Services (NASDAQ:BTSG) Q1 earnings: Leading the senior health, home health & hospice pack StockStory; by Jabin Bastian; 5/22/25 The end of an earnings season can be a great time to discover new stocks and assess how companies are handling the current business environment. Let’s take a look at how BrightSpring Health Services (NASDAQ:BTSG) and the rest of the senior health, home health & hospice stocks fared in Q1. ... The 7 senior health, home health & hospice stocks we track reported a strong Q1. As a group, revenues beat analysts’ consensus estimates by 2.3%. ... 

[United Kingdom] Hospice cuts staff and beds to secure its future BBC News, Yorkshire, UK; by Alex Moss; 5/23/25A hospice in Huddersfield has announced it has made 19 staff redundant and reduced the number of inpatient beds in order to save its future. The Kirkwood provides end-of-life care to about 2,000 patients each year but its chief executive Michael Crowther said it had faced a "perfect storm" of rising operational costs over the past few years. ... He said: "This has been the single hardest decision we have ever had to make." Another nine staff members have agreed to cut their hours and several others have decided to retire to help reduce the annual costs by £1.7m, the hospice added. ..."As you can imagine, this has been one of the most difficult periods in The Kirkwood's history. ..."Editor's note: Read more--directly from The Kirkwood--at "Securing Our Future Together: A New Way Forward." 

Primary mental health competencies for hospice and palliative medicine physicians: A Delphi studyJournal of Pain and Symptom Management; by Lisa Podgurski, Danielle Chammas, Keri O Brenner, Leah B Rosenberg, Neha G Goyal, Maria I Lapid, Sue E Morris, William F Pirl, Bridget Sumser, Benjamin W Thompson, Lindsey Wright, and Daniel Shalev; 5/20/25  Objectives: To establish and prioritize 'primary mental health competencies' for specialist hospice and palliative medicine physicians using expert consensus methods. Results: The expert panel proposed 68 competencies divided into: (A) psychological foundations of serious illness care, (B) diagnosis and management of mental health disorders in serious illness, and (C) systems-based practice. After first-round voting, 23 competencies were recirculated for a second vote. Following second-round voting, 32 competencies were included in the final list: 7 from part A, 20 from part B, and 5 from part C.

Mom takes first picture with new baby, not knowing in weeks he'll be gone Newsweek; by Daniella  Gray; 5/24/25 A grieving mom has shared the first picture of herself with her newborn baby, not knowing she'd lose him just weeks later. Wunmi Babalola from the West Midlands in the UK, shared photos on TikTok looking at her baby in his hospital crib. In the same carousel on TikTok, Babalola also included the last photo the two of them would have together, just six and a half weeks later. ...  

Disproportionate impact: Supreme Court narrows disproportionate share hospital reimbursement to Supplemental Security Income cash recipients The National Law Review; by Vinay Kohli, Matthew J. Westbrook, D. Austin Rettew; 5/23/25 The U.S. Supreme Court has issued a significant ruling affecting hospitals that serve low-income Medicare beneficiaries, narrowing the interpretation of the Disproportionate Share Hospital (“DSH”) payment formula. In Advocate Christ Medical Center v. Kennedy, the Court determined that only Medicare patients who were eligible to receive a cash Supplemental Security Income (“SSI”) payment during the month of their hospitalization may be included in the calculation for additional DSH reimbursement. This decision represents a setback for more than 200 hospitals that had advocated for a broader, more inclusive definition of SSI entitlement, potentially reducing the financial support available for treating Medicare’s poorest patients. 

UAB resident leaders complete Chief Residents Leadership Development Workshop UAB Medicine - The University of Alabama at Birmingham; by Katherine Gaither; 5/19/25 Fourteen UAB chief residents recently completed the Chief Residents Leadership Development Workshop. The program, presented by the UAB Medicine Leadership Development Office, was held on May 9, 2025. The Chief Residents Leadership Development Workshop is focused on helping chief residents from core residency programs build their leadership competencies. The sessions include small-group breakout sessions that provide chief residents with the tools, skills, and learning opportunities to enhance their understanding of interpersonal communication and group dynamics, which are critical to success and satisfaction as clinical leaders.

Tell us more: The Palliative Care Oral History Project Journal of Palliative Medicine; by Richard E. Leiter, Yilong Peng, and William E. Rosa; 5/19/25 As palliative specialists, we have a unique appreciation for the power of oral tradition—the stories of healing and suffering, challenge and accomplishment, and meaning and purpose that can be honored between us in safe and inclusive spaces. To this end, we take great pride in launching a new Journal of Palliative Medicine (JPM) podcast series, “Tell Us More: The Palliative Care Oral History Project.” Each month, we will sit down with a pivotal leader from Hospice and Palliative Care (HAPC) and do what our field does best—ask questions, listen, and reflect. Through our podcast, we’ll seek to understand the complexities and nuance behind our established practices and processes. Our interviews will be with pioneers from across HAPC’s professions and around the world.