Literature Review

Palliative video consultation and symptom distress among rural inpatients-A randomized clinical trialCritical Care Medicine; Marie A. Bakitas, DNSc, RN; Shena Gazaway, PhD, RN; Felicia Underwood, MSW, MPS, LICSW-S; Christiana Ekelem, BS; Vantrice T. Heard, PhD; Richard Kennedy, MD, PhD; Andres Azuero, PhD; Rodney Tucker, MD, MMM; Susan McCammon, MD, PhD; Joshua M. Hauser, MD; Lucas McElwain, MD; Ronit Elk, PhD; 7/25The triple threat of rural geography, racial inequities, and older age has hindered access to high-quality palliative care for many people in the US. Only 70% of the deep South vs 85% to 94% of the rest of the US has palliative care despite the deep South having the greatest needs due to suboptimal health care access and elevated morbidity and mortality. In this RCT [randomized clinical trial] among Black or African American and White chronically ill hospitalized adults, culturally based specialist palliative care video consultation was not associated with statistically significant reduced symptom distress compared with usual care, but there was a clinically meaningful difference ... between groups. Contrary to our hypotheses, intervention participants’ QOL [quality of life] and resource use (secondary outcomes) also were not improved. Assistant Editor's note: This study reminds us that palliative care delivered virtually, as opposed to in-person, may not be of benefit to some individuals. It also reminds us that palliative care, at its best, is delivered on an ongoing basis by a known, trusted professional, as opposed to a one-time session with a consultant. 

Collective leadership in home-based palliative care: Advancing APRN roles to enhance successHome Health Care Management & Practice; Nicole DePace, MS, APRN, GNP-BC, ACHPN; Rebecca Souza, DNP, ANP-BC, ACHPN; Therese Rochon, MA, MS, FNP-C; Paula Rego, DNP, AGPCNP-BC; Constance Dahlin, MSN, ANP-BC, ACHPN, FPCN, FAAN; 6/25Palliative advanced practice registered nurses are instrumental in responding to the opportunities and challenges in home-based palliative care through advocacy, practice, education, program development, and leading interprofessional teams. Collective leadership is proposed as a framework to address these tensions in home-based palliative care. Two cases are presented to compare and contrast collective and traditional leadership models, illustrate the role of the palliative advanced practice registered nurse leader, demonstrate how to avoid the pitfalls of a traditional leadership model, and build sustainable success through collective leadership principles. Finally, strategies to engage advanced practice registered nurses in leadership roles and address the tensions of the policy gaps in home-based palliative care are provided.

End-of-life symptoms in persons dying with advanced dementia in the community setting: Findings from IN-PEACEJournal of Pain and Symptom Management; by Kurt Kroenke, Sujuan Gao, Susan E. Hickman, Alexia M. Torke, Nina M. Johnson, Amy Pemberton, Andrea Vrobel, Minmin Pan, Laura R. Holtz, Greg A. Sachs; 8/25This article characterizes symptom burden in persons with advanced dementia dying in the community who were enrolled in a 2-year trial of home-based palliative care. Symptoms did not generally worsen from enrollment to time of death and symptom severity was similar to persons with dementia dying in a nursing home.

Saturday newsletters focus on headlines and research - enjoy!

Charlie’s Angels Quilting Group donates 2,000th quilt to hospice MIdland Daily News, Midland, MI; by Jhyrah DeLapp; 7/17/25 Charlie’s Angels Quilting Group has donated its 2,000th handmade quilt to United Hospice Service of Aspire Rural Health System. Since 2007, every quilt made by the group has been uniquely designed, featuring a wide variety of colors, patterns and textures. Each quilt bears a thoughtful label that reads: “May this blanket bring you peace and comfort.” ... The group is made up of dedicated men and women from Huron, Sanilac and Tuscola counties. It was founded 18 years ago by Brenda Miller of Bad Axe in memory of her brother, Charlie Kiehl, who received care at the Hospice Residence in Marlette. After Charlie’s passing in 2007, Brenda and her family were deeply touched to receive a handmade quilt from the hospice team. Inspired by that act of kindness, she began gathering friends and family to create quilts for future patients, launching what would become Charlie’s Angels Quilting Group.

Understanding the influence of culture on end-of-life, palliative, and hospice care: A narrative review Cureus; by Veena Hira, Sainamitha R. Palnati, and Saajan Bhakta; 7/15/25 ... This narrative review included 25 relevant publications related to influence of culture and patient demographics on end-of-life care, hospice, and palliative care. As each culture has its own unique views on death and dying, it is crucial to note these cultural differences when assisting with end-of-life care to best align with patients’ beliefs and values. Themes such as cultural barriers, communication preferences and family roles emerged from the publications. ... This narrative review offered a snapshot of how culture influences end-of-life decisions worldwide, specifically in East Asia, South Asia, the Middle East, Europe, and North America, while highlighting themes of 1) truth disclosure and communication preferences, 2) patient autonomy and family involvement, and 3) perception of illness and death. ... Central to providing effective end-of-life care is open, culturally tailored communication that respects patients’ and families’ values, facilitated through shared decision-making discussions. ... Ultimately, integrating cultural understandings of death and dying into end-of-life care planning is not simply a matter of sensitivity, but it is a matter of quality and equity. Health systems must not only provide choices but ensure those choices are intelligible, meaningful, and respectful within the patient’s worldview.Editor's Note: Pair this today's post, My health and my politics walk into a doctor’s office …

Silver tsunami brings new challenges for end-of-life care NPR Network, KANW New Mexico Public Radio; by Jenny Kinsey; 7/16/25 ... Inhora isn’t a hospice but it describes itself as a social model hospice house that provides a place to be. The nonprofit opened in April and contracts with several local hospice providers to provide end of life support. ... Inhora gets its support through donations and volunteer help which enables their guests to stay for free. That’s the idea behind Inhora, said Miles Gloetzner, RN, Inhora’s founder and Executive Director. ... Investigating the idea led him to the Omega Home Network, a national network of comfort care homes, and other communities with the same mission bringing comfort and caring to those at the end of life . That’s when he realized his dream was not his alone. A comfort care home or social model hospice house provides free room and board for patient/guests and a family member or friend while they receive hospice care. ... Comfort homes like Inhora are found across Mountain West states, including Colorado, Nevada, Utah, Idaho, and Wyoming. The idea isn’t new. For instance, the Omega Home Network was founded in 2003 in Tulsa, Oklahoma. It is a national organization of 50 comfort care homes – and growing rapidly with 79 in development.

Medicare telehealth trends: Information on telehealth use by Medicare Fee-for-Service beneficiaries Data.CMS.gov; Centers for Medicaree & Medicaid Services; 7/16/25 Data update frequency: Quarterly Latest data available: Q4 2025The Medicare Telehealth Trends dataset provides information about people with Medicare who used telehealth services between January 1, 2020 and December 31, 2024. The data were used to generate the Medicare Telehealth Trends Report.

Agrace opens western Wisconsin office in La Crosse WisBusiness, La Crosse, WI; Press Release; 7/16/25 Agrace continues its rapid growth across the state of Wisconsin with the opening of a new office in La Crosse, a western-Wisconsin city of 52,000 located along the Mississippi River. Since its founding in Madison, Wis., in 1978, Agrace has provided exceptional care for the state’s residents who are in the final months of life. The new Agrace location gives residents of La Crosse County greater choice for high-quality, in-home hospice care. County residents can enroll with Wisconsin’s largest nonprofit hospice to receive hospice care that comes to them where they live—in private homes, long-term care facilities or any other place they call home.

Leading after your predecessor fails Harvard Business Review; by Jordan Stark and Darcy Eikenberg; 7/16/25 ... Being promoted to lead after your predecessor fails is often anything but a victory lap. In fact, a 10-year longitudinal research project on executive transitions by consulting firm Navalent found that more than 50% of executives who “inherit a mess” fail within their first 18 months on the job. ...  Succeeding after your predecessor fails demands an entirely different leadership approach. 

I will never forget the moment your heart stopped and mine kept beating. ~ Angela Miller

Hospice of the Ozarks: 2026 Pet Peace of Mind Calendar  KTLO.com, Mountain Home, AR; by Hospice of the Ozarks; 7/16/25 Hospice of the Ozarks is excited to continue our Pet Peace of Mind Pet Calendar. This tradition of an annual pet calendar continues to support the Hospice of the Ozarks Pet Peace of Mind Program. From July 10th to July 24th pet lovers will have the opportunity to upload a digital photo of their beloved companion to enter the contest for the 2026 wall calendar. Voting will be held between August 1st to August 15th. ... All funds raised will help support our Pet Peace of Mind Program. The Pet Peace of Mind’s mission is to enrich the quality of life and well-being of hospice patients and their families by caring for the pets they love.Editor's Note: What a creative, fun way to raise funds to support this extra program! Pet Peace of Mind is a registered trademark for Pet Peace of Mind, Inc. "the only national program providing a care model for the pets of seriously ill patients, including helping orphaned pets find a loving new home when necessary." Click here for its locations in 43 states (plus Washington DC) and the over 250 organizations they serve.

With new facility, Mourning Dove Grief Care expands help for survivors of loss Oil City News, Casper, WY; by Dan Cepe; 7/16/25 Death can be natural, or it can be cruel and unexpected. It is, however, an inevitable part of the human experience that can affect survivors in countless ways possibly for the remainder of their lives. ... Mourning Dove Grief Care, a service by Central Wyoming Hospice & Transitions, aims to provide that help to members of the community.  ... The [new] facility will allow anyone in the community suffering from loss to walk in and schedule appointments or join a support group, whether they’ve gone through Hospice or not. The program itself started when Hospice noted the need for grief care in the community, particularly for people suffering from sudden losses. “Interestingly enough, we found that even therapists and counselors were referring to us when they had clients dealing with loss,” she said.