Literature Review
Sunday newsletters
02/02/25 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Executive Personnel Changes - 1/24/25
02/02/25 at 03:00 AMExecutive Personnel Changes - 1/24/25
Today's Encouragement
02/02/25 at 03:00 AMThe challenge of leadership is to be strong, but not rude; be kind, but not weak; be bold, but not a bully; be thoughtful, but not lazy; be humble, but not timid; be proud, but not arrogant; have humor but without folly. ~Jim Rohn
Today's Encouragement
02/01/25 at 03:55 AMLife is like a box of chocolates. You never know what you’re gonna get. ~Forrest Gump (movie character)
[China] Truth-telling, and ethical considerations in terminal care: an Eastern perspective
02/01/25 at 03:55 AMTruth-telling, and ethical considerations in terminal care: an Eastern perspectiveNursing Ethics; Qing Ma; Yi Wu; Ronghua Fang; 1/25 Truth-telling for terminally ill patients is a challenging ethical and social issue for Chinese health care professionals. However, despite the existence of ethical and moral standards for nurses, they frequently encounter moral dilemmas when making decisions about truth-telling to patients with end-stage diseases in China. This article focuses on nursing morality, ethics, norms, and philosophy in health care and discusses countermeasures taken by nurses in truth-telling decision-making in combination with Chinese Confucian culture. The analysis identifies key ethical strategies tailored to Chinese nurses’ practices, emphasizing individual autonomy, cultural sensitivity, and family dynamics in truth-telling decisions.
[UK] Identifying challenges related to the management of comorbidities in people with dementia in residential care: Expert delphi consensus exercise
02/01/25 at 03:55 AM[UK] Identifying challenges related to the management of comorbidities in people with dementia in residential care: Expert delphi consensus exerciseJournal of Applied Gerontology; Serena Sabatini, Frances Hawes, Kelechi Eluigwe, Eugene Y. H. Tang; 1/25Improving early detection, management, and treatment of comorbid conditions to dementia in residential care could slow down cognitive and functional decline, and increase residents’ quality of life. ... Mental illnesses, delirium, and sensory impairments were identified as the most difficult comorbidities to dementia to deal with. Medication management, symptom management, shortage of staff, lack of training among staff, and limited resources from the broader healthcare system were identified as the most difficult issues when dealing with dementia comorbidities. To address disparities between different residential care homes there is the need of mandatory standards of care across UK residential care homes, and of clear guidelines on topics such as pathways of care for residents’ medical problems, staff to resident ratios, and minimum wages.
Well-being and choosing the best job for you
02/01/25 at 03:45 AMWell-being and choosing the best job for youJAMA Internal Medicine; Jamile A. Ashmore, PhD; J. Michael DiMaio, MD; 1/25Well-being is emerging as the catch-all term describing the field dedicated to understanding and addressing the way in which the health care system, work environment, and individual interact to influence the fulfillment and meaning that health care workers derive from their work. Clinician well-being is often led by a chief wellness officer (CWO) or other executive leader who is compensated to focus on well-being. In addition to strategic planning and oversight, the CWO’s role is to ensure that well-being is considered in administrative and operational decisions including in those related to governance, rewards systems, and culture. Health care systems’ moving from the triple to the quadruple aim are signaling that they are committed to taking care of those that care for the patients. Indeed, health care systems cannot have optimal patient care without a healthy and fulfilled workforce.
Use of digital health technologies by older US adults
02/01/25 at 03:40 AMUse of digital health technologies by older US adultsJAMA Network Open; Cornelius A. James, MD; Tanima Basu, MS, MA; Brahmajee K. Nallamothu, MD, MPH; Jeffery T. Kullgren, MD, MPH, MS; 1/25Older adults use various types of DHT [digital health technologies], and they use patient portals most often. Although some older adults have unique physical and cognitive needs that can affect the utility and usability of DHTs, in aggregate they share some predictors of DHT use with younger adults. Additionally, our study showed a statistically significant association between non-Hispanic Black race and ethnicity and DHT use. Various factors may contribute to this finding, including medical mistrust among Black patients leading to decreased engagement with the health system and increased reliance on DHTs. This study highlights the need to carefully consider the unique characteristics of older adults when developing and deploying DHTs to avoid worsening the digital divide.
Digital meditation to target employee stress-A randomized clinical trial
02/01/25 at 03:35 AMDigital meditation to target employee stress-A randomized clinical trialJAMA Network Open; Rachel M. Radin, PhD; Julie Vacarro, MA; Elena Fromer, BA; Sarah E. Ahmadi, BA; Joanna Y. Guan, BA; Sarah M. Fisher, MS; Sarah D. Pressman, PhD; John F. Hunter, PhD; Kate Sweeny, PhD; A. Janet Tomiyama, PhD; Lauren Tiongco Hofschneider, PhD; Matthew J. Zawadzki, PhD; Larisa Gavrilova, PhD; Elissa S. Epel, PhD; Aric A. Prather, PhD; 1/25Mental health is at an historic low in the US, and work stress may be a primary contributor. Work stress is associated with poorer emotional and physical well-being, as well as high absenteeism and low presenteeism. Participants were randomized 1:1 to a digital meditation program or the waiting list control condition. Participants in the intervention group were instructed to complete 10 minutes of meditation per day for 8 weeks. The findings suggest that participating in a brief digital mindfulness-based program is an effective method for reducing general and work-related stress in employees.
Hospice care in the Emergency Department: An evolving landscape
02/01/25 at 03:30 AMHospice care in the Emergency Department: An evolving landscapeJournal of Palliative Medicine; by Eliot Hill, Ky Stoltzfus, Joanna Brooks; 1/25Despite the increasing focus on goal-concordant care in the emergency department (ED), there is limited data about patients who receive a new hospice referral and the care paths of patients on hospice who present there. [In this study,] six patients received a new hospice referral. Of these, four had a primary diagnosis of cancer, three received a palliative care consult, and three were discharged to an inpatient hospice facility (hospice house). No patients had repeat health care encounters at our hospital. 42% (31/74) of patients enrolled in hospice required admission. Conclusion: New hospice referrals in the ED are possible but rare. Further research should investigate possible missed opportunities to provide goal-concordant care.
Nurses' perspectives on end-of-life care for Black/African American patients
02/01/25 at 03:25 AMNurses' perspectives on end-of-life care for Black/African American patientsJournal of Hospice & Palliative Nursing; Aaron, Siobhan P. PhD, RN, FNP-BC; Supiano, Katherine PhD, LCSW, FT, FGSA, APHSW-C; DeSimio, Samantha BS; 2/25In this qualitative examination of health care disparities based on race and ethnicity, the accounts of Black/African American nurses shed light on a range of critical issues within the health care system. These issues encompass stereotyping, bias, and a notable absence of cultural competence among health care providers, which often result in unequitable treatment for patients of color. Socioeconomic factors, including insurance and income disparities, further exacerbate these inequalities. Discrimination, whether implicit or explicit, continues to affect diagnosis and treatment, with a particular focus on disparities in pain management. Furthermore, the cultural perspectives and historical context surrounding treatment preferences were explored, emphasizing the profound impact of health care literacy, cultural viewpoints, and historical mistrust, especially within the Black/African American community.
Experts are debating whether some cancers shouldn’t be called that
02/01/25 at 03:20 AMExperts are debating whether some cancers shouldn’t be called thatJAMA; Rita Rubin, MA; 1/25Back in 2012, the National Cancer Institute (NCI) convened a conference to discuss the overdiagnosis and overtreatment of indolent tumors—asymptomatic lesions unlikely to progress for years—that are detected by mammography, prostate-specific antigen (PSA) testing, and other screening tools. “I don’t think the name is that important,” acknowledged Hwang, who participated in the 2012 NCI conference about overdiagnosis and overtreatment. “It’s how we react to the diagnosis and how we convey risk to the patients.” In other words, stop calling low-risk tumors cancer, but make sure patients understand that such lesions are risk factors for cancer and, therefore, require diligent monitoring. Or keep calling the tumors cancer, but make sure patients understand that these lesions are unlikely to cause problems, so active surveillance, not immediate treatment, is appropriate.
Defining spine cancer pain syndromes: A systematic review and proposed terminology
02/01/25 at 03:15 AMDefining spine cancer pain syndromes: A systematic review and proposed terminologyGlobal Spine Journal; Markian Pahuta, MD, PhD, FRCSC; Ilya Laufer, MD; Sheng-fu Larry Lo, MD; Stefano Boriani, MD; Charles Fisher, MD, MHSC, FRCSC; Nicolas Dea, MD, MSc, FRCSC; Michael H. Weber, MD, MSc, PhD, FRCSC; Dean Chou, MD; Arjun Sahgal, MD, FRCPC; Laurence Rhines, MD; Jeremy Reynolds, MB.ChB, BSc (Hons), FRCS; Aron Lazary, MD, PhD; Alessandro Gasbarrinni, MD; Jorrit-Jan Verlaan, MD, PhD; Ziya Gokaslan, MD, FACS; Chetan Bettegowda, MD, PhD; Mohamed Sarraj, MD; Ori Barzilai, MD; AO Spine Knowledge Forum Tumor; 1/25The spine is the most common site of osseous metastasis, and over one-third of patients with carcinoma or hematological malignancy will develop spinal metastases. Vertebral metastases have a negative impact on patient function and heath related quality of life (HRQoL). We consolidate the terminology used in the literature and consolidated into clinically relevant nomenclature of biologic tumor pain, mechanical pain, radicular pain, neuropathic pain, and treatment related pain. This review helps standardize terminology for cancer-related pain which may help clinicians identify pain generators.
Overcoming barriers to make patient-reported outcome collection the standard of care in oncology
02/01/25 at 03:10 AMOvercoming barriers to make patient-reported outcome collection the standard of care in oncologyJAMA Oncology; James A. Colbert, MD, MBA; Louis Potters, MD; 1/25Multiple studies have demonstrated the clear benefits of collecting patient-reported outcomes (PROs) in oncology care. These benefits include measurable effects on patient symptom burden, toxicity, emergency department (ED) use, and even cancer survival. Despite these well-recorded advantages, adoption of PRO collection beyond research studies and clinical trials remains low. Barriers to more widespread adoption in oncology care include clinician skepticism, historical technological limitations, and the challenges related to change management. We owe it to patients to make PRO collection standard practice. Achieving this will require additional education, the embrace of new technologies, and a willingness among clinicians to follow the data and adopt new routines that will necessitate changing established patient care models.
Outpatient palliative care and end-of-life care intensity: Linking Massachusetts Cancer Registry with all-payer claims
02/01/25 at 03:05 AMOutpatient palliative care and end-of-life care intensity: Linking Massachusetts Cancer Registry with all-payer claimsJNCI Cancer Spectrum; Nancy L Keating, Joel S Weissman, Alexi A Wright, Robert Wolf, Susan Gershman, Richard Knowlton, John Z Ayanian; 1/25Early palliative care is associated with better outcomes for patients with advanced-stage cancers. Using a novel data linkage, we assessed outpatient palliative care use before death and its association with end-of-life care intensity and variation across eight provider networks. End-of-life care intensity varied across provider networks. Patients with palliative care visits had lower adjusted odds of receiving intensive end-of-life care ...
Saturday newsletters
02/01/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
Special Series: Betty Ferrell
02/01/25 at 02:00 AMSpecial Series: Betty FerrellJournal of Pain and Symptom Management; 1/25[A wonderful collection of articles honoring Betty Ferrell, including:]
Today's Encouragement: January, the month where "new year, new me" turned into ...
01/31/25 at 03:00 AMJanuary: The month where "new year, new me" turned into "new year, new Netflix series to binge-watch." So long! ~ Anonymous
Opioid painkillers less available to people of color
01/31/25 at 03:00 AMOpioid painkillers less available to people of color HealthDay News / Coastal Breeze News, Marco Island, FL; 1/30/25 People of color now have less access to prescription opioid painkillers than white patients, an unintended consequence of efforts to stem America’s opioid epidemic. Communities of color have a 40% to 45% lower distribution of commonly prescribed opioids, compared to majority white communities, researchers reported in a study published Jan. 23 in the journal Pain. This could prevent opioid painkillers from reaching those in true need of them, like cancer patients, researchers said.
Polsinelli attorney: Expand access to capital for hospice, health care providers
01/31/25 at 03:00 AMPolsinelli attorney: Expand access to capital for hospice, health care providersHospice News - Executive Perspectives; by Jim Parker; 1/28/25 Private equity in health care has come under fire in recent years, but the regulatory environment leaves few other options for raising capital. This is according to Bobby Guy, an M&A attorney and shareholder in the law firm Polsinelli. Guy posits that regulation of publicly traded markets have pushed business owners towards private equity and reduced transparency when it comes to corporate funding. ... The question should not be whether PE is good or bad for health care. The question should be, “How are we going to fund health care?” That’s the real question.Editor's note: This is an "Executive Perspective." Adding another perspective, I invite you to apply this proposed "real question" across the board to all potential payment sources. Are fraud and abuse payments ok, as long as they pay the bills? When you are dying--whether in hospice or not--will the quality of health care you receive matter? If the hospice patient is your child, your spouse, your parent, does the "good or bad" of the health care provided matter? I do not determine the answers for you. I re-ask the question, inviting readers to examine (1) the core purposes and values of hospice care and (2) its expansive body of clinical research data.
Maine communities struggle with nurse practitioner shortage
01/31/25 at 03:00 AMMaine communities struggle with nurse practitioner shortage NBC News Center Maine; by Brianna Bush; 1/29/25 According to U.S. News & World Report, nurse practitioner is the No.1 ranked job for 2025. The study says that's because of work-life balance, high pay, and job growth potential. Despite this, communities in Maine are lacking enough nurse practioners to support patients. ... According to the Maine Nurse Practitioner Association, there are more than 3,100 nurse practitioners in Maine.
The human edge: How AI can assist but never replace
01/31/25 at 03:00 AMThe human edge: How AI can assist but never replace JD Supra; by Ralph Losey; 1/29/25 The rise of artificial intelligence has evoked both awe and apprehension. he list of its potential contributions seems endless. Yet, whispers of fear persist in our conversations: What if AI surpasses us? What if it replaces us entirely? These fears, while understandable, stem from a fundamental misunderstanding of what AI is—and what it is not. While AI may outperform humans in specific analytical domains, .. it can never replicate the full spectrum of what it means to be human. Far from being a threat to humanity, AI—when governed responsibly—offers a transformative tool to amplify our potential, not a rival to our existence. [Click on the title's link to continue reading.]
Reflection on the Potomac River Crash
01/31/25 at 03:00 AMReflection on the Potomac River Crash Hospice & Palliative Care Today; by Joy Berger, Editor in Chief; 1/30/25We are absorbing unfolding news about Thursday night’s tragic plane and helicopter crash at the Potomac River. As with many of you, I’m flooded with memories of flying in and out of this same airport: gazing out the plane’s window to delight in DC’s historic sites; delighting in the diversity of my fellow travelers and whatever their stories might be. Many of these Washington DC trips were to be with our hospice and palliative colleagues at the (then) NHPCO Conferences or other related meetings. Today, I’m grateful for our safe journeys then. Today, I hope for renewed connections: the joy of each person’s unique life-journey; the relationships we’ve developed in moments at meetings, meals, and follow-up communications; the sacredness of this profound work we are privileged to share. And—with these current Potomac River tragic deaths—we are reminded of icy currents of own traumatic losses. For me, I’m struck with the pains of a beloved family in my childhood’s home church, whose adult son was killed in the 1982 Potomac River plane crash; with the heart-wrenching death of my grandfather when he was killed by a drunk driver; and more. For you? As news continues to unfold, may we treasure anew the unknown measure of our time on this earth. Of our connections with each other—whatever our differences—profit or nonprofit, political, and more. May we sensitively tune into the life-altering traumas carried within those we serve—and the healing compassion we can give. Humbly, Joy
Strike-throughs in 1/29 issue
01/31/25 at 03:00 AMStrike-throughs in 1/29 issueGreetings Readers, we regret that the emailed version of our Wednesday, January 29th issue had numerous strike-throughs throughout, while our web version did not. Thank you for letting us know! We have fixed this and provide for you both (1) a link to the page and (2) a downloadable PDF for your files. Ongoing, freely let us know any challenges or ways we can improve your newsletter experience. Joy Berger, Editor in Chief
The Handbook of LGBTQIA-inclusive Hospice and Palliative Care, 2nd edition
01/31/25 at 03:00 AMThe Handbook of LGBTQIA-inclusive Hospice and Palliative Care, 2nd edition Review in Ageing & Society, published online by Cambridge University Press; book authored by Kimberly D. Acquavia, review authored by Luis Stoisser; 1/23/25 The Handbook of LGBTQIA-inclusive Hospice and Palliative Care is a comprehensive guide to providing inclusive palliative and hospice care to everyone, regardless of their self-identification. Following the author's belief that LGBTQIA+ hospice and palliative care requires change at three levels - individual, institutional and systemic - the book extends state-of-the-art palliative and hospice practices (US focused) by including LGBTQIA+ perspectives. Such a rethinking educates hospice and palliative care practitioners on how to provide person-centered care, how to be self-reflexive on a daily basis and how to handle their own stereotypes and stigmas. [This book is available via Columbia University Press and Amazon.]