Literature Review

2 years after its rebrand, CenterWell Home Health is set on tackling big goals Home Health Care News; by Andrew Donlan; 9/24/24 Kirk Allen, the president of home solutions at Humana Inc., is living a home health veteran’s dream. Right now, he is heads down on helping create a value-based home health model within CenterWell, Humana’s provider services arm. Home health leaders have always touted the extraordinary health and monetary value that can be derived from their services. Not many have had the opportunity to prove that out, however. Allen does. Humana owns CenterWell Home Health, which is one of the largest providers in the country. CenterWell also includes CenterWell Pharmacy and CenterWell Primary Care. Eventually, CenterWell Home Health wants to have 80,000 home health patients under its value-based model. ... After Humana fully acquired Kindred at Home, it divested the home care and hospice assets. With the large and remaining home health footprint, Humana created CenterWell Home Health.

HopeHealth CMO: Hospice rules for ‘unrelated care’ getting stricter Hospice News; by Jim Parker; 9/25/24 Dr. Ed Martin began working in hospice in 1987 after hearing families talk about their experiences with those services. Today, he is chief medical officer of Rhode Island-based HopeHealth. The more than 50-year-old nonprofit organization also serves parts of Massachusetts. Martin recently spoke about the complicated issue of care that is deemed “unrelated” to a patient’s terminal diagnosis at the National Hospice and Palliative Care Organization’s Annual Leadership Conference in Denver. Hospice News sat down with Martin at the conference to discuss how he and his organization are addressing the matter of unrelated care, as well as the efficacy of requirements for an addendum to the election statement. [Click on the title's link to continue reading this interview.]

James City County couple who started pediatric hospice nonprofit glad for its expansion Daily Press; James City, VA; by Alison Johnson; 9/25/24 Every year on July 3, Allen and Joan Hogge take out old photo albums to look at pictures of a little boy who barely reached age 8. The James City County couple remembers happy moments on the birthday of their only son, Marcus, who died of a progressive neurological disease. ... They think about how he loved sneaking up on people, giving them a gentle pinch and running off giggling as a toddler. ... Marc’s short life with his parents and two younger sisters led the Hogges to found a pediatric home health and hospice nonprofit, Edmarc, that has grown steadily over the past 46 years to provide free services to families across Hampton Roads. Recently, the nonprofit opened a new Williamsburg office to reach residents of the city and surrounding counties, including James City, Gloucester, Mathews, Charles City and New Kent.  ... “This expansion means so much to us,” Allen Hogge said. “We understand all too well how lonely and difficult and exhausting it can be to have a child with a serious illness." ... Named for Marc and the late Rev. Edward “Ed” Page, the pastor at the Hogges’ former church in Suffolk, Edmarc in 1978 became the nation’s first hospice and palliative care program designed for children. 

Fairhope Hospice and Palliative Care announces Grand Opening of Advanced Illness Management (AIM) Clinic Fairhope Hospice & Palliative Care; by Julie Theado; 9/24/24Fairhope Hospice & Palliative Care celebrated the grand opening of their Advanced Illness Management (AIM) Clinic through a ribbon-cutting ceremony on Sept. 23, hosted by the Lancaster-Fairfield County Chamber of Commerce alongside community leaders. The AIM clinic ... is designed to meet the growing needs of the community by providing a convenient setting where patients can receive care from nurse practitioners for routine visits and urgent, non-emergency care. Physician support will also be available to help patients better manage symptoms and stress associated with their conditions, ultimately aiming to reduce frequent hospitalizations. ... Kristin Glasure, President and CEO of Fairhope Hospice and Palliative Care, shared her thoughts on this expansion: “... By offering more specialized services in a dedicated setting, we’re ensuring that patients with advanced illnesses receive the best possible care while staying close to home."

Telehealth bill for Medicare approved by House Panel Retirement Daily; by Retirement Daily; 9/21/24 House Ways and Means Committee on Sept. 18, 2024, passed the Preserving Telehealth, Hospital, and Ambulance Access Act by a vote of 41-0 after lawmakers raised concerns about the need for more guardrails and hospice recertification. The move sets up the legislation for passage by the full House later this year. The markup included objections by Democrats and Republicans to the high cost durable medical equipment and clinical diagnostics guardrails proposed in the bill, saying the provisions merely restate existing authorities of the Center for Medicare and Medicaid Services. The bill requires reports on DME and clinical diagnostics fraud which some lawmakers think have already been established and don’t need further study. Many lawmakers likewise expressed concern about the extension of hospice recertification via telehealth. Some lawmakers raised concern about fraud in the hospice program, which they say the telehealth requirement could let fester.

Bereaved mum shares 'what not to say' in new book BBC News; by Roger Johnson and Jonny Humphries; 9/24/24 A bereaved mother has written a book exploring the sensitive topic of how to speak to a parent struck by the loss of a child. Singer and entertainer Kiki Deville, from Earby, said she felt as if she would "never experience joy again" after losing her four-week-old son Dexter in 2007. Dexter died from the rare genetic condition Zellweger Syndrome and spent his last days in Chorley children's hospice Derian House, of which Ms. Deville is now a patron.  Her work there, including countless conversations with other parents, informed her book 'What Not To Say: A Practical Guide to Supporting Bereaved Parents'. Ms. Deville said 17 years after the loss of Dexter, she still remembers the first time someone made the well-meaning but painful comment: "At least he was just a baby." "Now that infers were he older, his death would have mattered more," she told the BBC.  From speaking to other mothers, Ms. Deville also gave examples such as "at least you have other children" and "they're in a better place" as things not to say. She said: "It's really important to recognise that nobody says anything out of malice, I don't think anybody sets out to hurt."Editor's note, calling all non-clinical hospice and palliative care leaders: Your interactions with bereaved parents speak volumes. Do you convey cheap platitudes or wise empathy? Incorporate these human vulnerabilities into your leadership skills. Open yourself to the pain of experiencing the pain and joys of your organization's palliative/hospice pediatric families. Invest a day of shadowing with a pediatric interdisciplinary team member. Be willing to go there. Be willing to be there: physically, mentally,  emotionally, and spiritually (without imposing your own onto others).

The evolving landscape of Amyotrophic Lateral Sclerosis: A fatal disease!  Delveinsight; 9/24/24 Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disease characterized by the progressive degeneration of motor neurons, leading to muscle weakness, paralysis, and ultimately, death. ... Despite ALS being relatively rare, affecting 2-5 per 100,000 people worldwide, the question Is ALS on the rise? is gaining attention. While global prevalence has not significantly increased, improved diagnostic techniques, earlier detection, and greater awareness have led to a more accurate identification of ALS cases. Many researchers believe that enhanced surveillance and better tools for genetic testing are uncovering more cases than previously recognized, rather than a true rise in the disease’s incidence. However, with an aging global population, the burden of ALS may grow, as age is a major risk factor. Editor's note: Do you provide disease-specific training for your staff? ALS patients' and families' needs are unique. A significant disease comparison is between ALZ (Alzheimer's) and ALS. With ALZ (Alzheimer's), the brain decreases its abilities to function while the body can remain strong; the person is mobile with cognitive limitations. In contrast, with ALS, the body decreases its abilities to function while the brain/mind/emotions can remain strong. The person is immobile with cognitive awareness, but extreme physical limitations in communicating one's thoughts, emotions, and needs. ALS-specific communication tools provide crucial help for all. For more information in your location, visit The ALS Association's USA map.

Twenty years of yachts and care The Montecito Journal; by Sigrid Toye; 9/24/24 ... The Santa Barbara Yacht Club (SBYC) members once again gathered to host their annual Charity Regatta benefiting VNA Health and its mission of caring with compassion. Although always a huge event in the Santa Barbara community, this year’s Charity Regatta marks its 20th anniversary! For two decades this annual benefit has raised over $2.5 million in support of VNA Health and its services for our families, friends and neighbors. Dependent on the generosity of our community, VNA Health is an organization that provides a safe harbor for those in need regardless of resources or insurance. ... VNA is the only medically-certified nonprofit provider of home-health care, palliative care, and hospice care in Santa Barbara. The organization also owns and operates Serenity House, the largest nonprofit inpatient hospice facility in California known as a place to transition at the end of life with dignity and comfort. Editor's note: A photo shows that this event raised $220,387.

FTC sues big 3 Pharmacy Benefit Managers PlanSponsor; by Remy Samuels; 9/20/24 The Federal Trade Commission filed a lawsuit against the largest PBMs, following its July report exposing the ‘opaque’ business practices of the ‘powerful middlemen.’ ... The Federal Trade Commission filed an administrative lawsuit Friday against the three largest pharmacy benefit managers—Caremark Rx, Express Scripts and Optum Rx—and their affiliated group purchasing organizations. The regulator argued the firms are responsible for inflating the cost of prescription drugs, such as insulin, and preventing patients’ access to lower-cost products. The FTC’s complaint, filed under its administrative process, not a federal court, alleges that the big three PBMs, which the FTC stated administer about 80% of all prescriptions in the U.S., have “abused their economic power by rigging pharmaceutical supply chain competition in their favor, forcing patients to pay more for life-saving medication.” 

Why hospital-at-home, other providers are pressing worker safety Modern Healthcare; by Diane Eastabrook; 9/24/24 At-home care providers are testing strategies to better protect workers who are raising the alarm on workplace safety. A new survey of more than 400 home healthcare workers found more than half said they experienced or witnessed at least one act of violence or harassment in the workplace, according to Transcend Strategy Group, which conducted the poll on behalf of home care providers. The report, which echoes similar findings from a National Nurses United survey, comes as hospital-at-home programs expand and more care moves to where patients live. ... Home-based care providers are trying to address the issue because concerns about personal safety could make it harder to recruit and retain workers in a competitive job market. The concerns are also coming up in contract negotiations between unions and providers.

Wednesday is like a speed bump in the middle of the workweek – slow down, take a breath, and then accelerate into the weekend. ~ Unknown

That message from your doctor? It may have been drafted by A.I. DNYUZ; 9/24/24 Every day, patients send hundreds of thousands of messages to their doctors through MyChart, a communications platform that is nearly ubiquitous in U.S. hospitals. They describe their pain and divulge their symptoms — the texture of their rashes, the color of their stool — trusting the doctor on the other end to advise them. But increasingly, the responses to those messages are not written by the doctor — at least, not entirely. About 15,000 doctors and assistants at more than 150 health systems are using a new artificial intelligence feature in MyChart to draft replies to such messages. Many patients receiving those replies have no idea that they were written with the help of artificial intelligence. In interviews, officials at several health systems using MyChart’s tool acknowledged that they do not disclose that the messages contain A.I.-generated content. The trend troubles some experts who worry that doctors may not be vigilant enough to catch potentially dangerous errors in medically significant messages drafted by A.I. 

National PACE Association to Congress: End the PACE Part D Penalty before this session concludes PR Newswire; by National PACE Association; 9/23/24 The National PACE Association (NPA) is calling on Congress to end the costly financial penalty incurred by the Program of All-Inclusive Care for the Elderly (PACE) participants eligible for Medicare who must enroll in the PACE Medicare Part D drug benefit. Every other original Medicare enrollee may comparison shop for an affordable Part D plan from among numerous options in their county. Medicare-enrolled PACE program participants face exponentially higher premiums for prescription drugs—22 times higher, on average—than other people enrolled in Medicare Part D who may select from numerous Part D plans available in their county. The PACE Part D penalty, which can total $11,000 annually, prevents people enrolled in Medicare with complex care needs from participating in the PACE program, which provides affordable, high-quality, highly coordinated services to people directly in their homes and communities.