Literature Review



Assessing pediatric resident needs in grief and bereavement education

07/20/24 at 03:35 AM

Assessing pediatric resident needs in grief and bereavement educationJournal of Pain and Symptom Management; Hannah Reuman, Scott H Maurer, Kelly Harris, Amanda W Brown; July 2024Pediatric [medical] residents care for dying children during training. Few educational efforts focus on helping trainees better understand their own grief process and the supports available to them and their patients' families. This work aims to assess pediatric residents' needs and preferences for content included in a curriculum on grief and bereavement. Conclusion: Pediatric residents indicate a strong desire for structured curricula on grief and bereavement focusing on resources that exist for families, approaches to grieving as a healthcare professional, and better understanding the experiences of bereaved families. These data may inform educators on priorities in training and support of pediatric residents on grief and bereavement.

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Bridge the gap: Addressing rural end-of-life care disparities and access to hospice services

07/20/24 at 03:30 AM

Bridge the gap: Addressing rural end-of-life care disparities and access to hospice services Journal of Pain and Symptom Management; by Asif Anwar, Muhammad Kashif Amin, Sherezaad Anwar, Moazzam Shahzad; 7/11/24 online ahead of print Rural hospices face many obstacles in delivering palliative and end-of-life care in the United States. We aimed to identify these barriers and their potential solutions. ...  We propose several potential solutions to overcome these hurdles and improve access. ... Advanced practice providers should be considered to serve as physician heads in rural hospices, which would expand resources in areas with physician shortages. A single per diem payment model should be implemented for rural hospices, regardless of the level of care provided, to help offset the higher cost of care. he Critical Access Hospital program and offering cost-based reimbursement for swing-bed stays could improve access to post-acute care, including hospice services. Telehealth can improve the timeliness of care and reduce travel costs for patients and providers.  [Continue reading for more solutions.]

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Everyday ethics or deference to expertise: experiences of pediatric palliative care teams with ethics consultancy

07/20/24 at 03:25 AM

Everyday ethics or deference to expertise: experiences of pediatric palliative care teams with ethics consultancyJournal of Palliative Medicine; Anessa M Foxwell, Connie M Ulrich, Jennifer K Walter, Meaghann S Weaver; 7/24Little is known about the extent to which pediatric palliative care (PPC) clinicians are engaged in ethics consults or how they perceive interactions with ethics consultants. Online survey distributed to members of the American Academy of Pediatrics and American Academy of Hospice and Palliative Care pediatric and ethics section and special interest groups in the United States. Eighty-six responses were obtained (response rate 45%) from PPC teams in 70 different children's hospitals located in 34 states. Almost all (97%) reported a functional ethics consult service such that PPC is not expected to meet the ethics need of the institution. A person involved on the PPC team also performed ethics consults in half (49%) of the settings, predominantly the PPC physician. Most respondents who perceive PPC teams engage in ethics-relevant work as part of their everyday PPC work. Formal ethics training was lacking among PPC members involved in ethics consults with few ethics degrees (15%), certifications (6%), or fellowships (2%). Discord (67%), conflict (49%), limitations to treatment (48%), and distress (41%) were cited as the most frequent reasons for which PPC teams consult ethics. PPC respondents identified role clarity, coordinated engagement, timely presence, and open communication as strong PHCE consultant practices. Conclusions: PPC team members performing ethics consults may benefit from additional ethics education and training.

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Ethical challenges in the treatment of patients with severe anorexia nervosa

07/20/24 at 03:20 AM

Ethical challenges in the treatment of patients with severe anorexia nervosa Psychiatry Online; by Patricia Westmoreland, MD; Jole Yager, MD; Jonathan Treem, MD; and Philip S. Mehler, MD; 7/15/24 Ethical principles assist us in determining the best course of action with regard to patients with [anorexia nervosa] AN. The vast majority of patients with AN should be offered high-quality, restorative-informed care. But for a minority of patients (e.g., those with SE-AN) other treatment options need to be considered. Clinicians are obliged to realistically assess each patient’s potential for recovery or ability to engage in harm reduction and palliative care approaches, and be cognizant of the wishes of the patient, family, and treatment team. In addition, the burden on caregivers and stewardship in the expenditure of health care resources should also be considered when deciding whether involuntary treatment, harm reduction, palliative care, or end-of-life care be recommended for a particular patient.

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Top ten tips palliative care clinicians should know before their patient undergoes surgery?

07/20/24 at 03:15 AM

Top ten tips palliative care clinicians should know before their patient undergoes surgery? Journal of Palliative Medicine; by Rachel Hadler, Lara India, Angela M Bader, Orly N Farber, Melanie L Fritz, Fabian M Johnston, Nader N Massarweh, Ravi Pathak, Sandra H Sacks, Margaret L Schwarze, Jocelyn Streid, William E Rosa, Rebecca A Aslakson; 7/15/24 online ahead of print Many seriously ill patients undergo surgical interventions. Palliative care clinicians may not be familiar with the nuances involved in perioperative care, however they can play a valuable role in enabling the delivery of patient-centered and goal-concordant perioperative care. ... This article, written by a team of surgeons and anesthesiologists, many with subspecialty training in palliative medicine and/or ethics, offers ten tips to support palliative care clinicians and facilitate comprehensive discussion as they engage with patients and clinicians considering surgical interventions.

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Utility of do-not-resuscitate orders for critically ill infants in the NICU

07/20/24 at 03:10 AM

Utility of do-not-resuscitate orders for critically ill infants in the NICU Pediatric Research - the American Pediatric Society, the European Society for Paediatric Research, and the Society for Pediatric Research; by Shannon Y. Adams, Katherine Redford, Randall Li, Ana Malfa, Richard Tucker and Beatrice E. Lechner; 7/5/24 To better understand the value of DNR orders for critically ill infants in the NICU, a prospective mixed-methods approach was utilized including chart review of infants who died in a regional NICU over a twenty-six-month period and surveys of their neonatologists, neonatal fellows, and nurses. Impact:

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Tools for tomorrow: a scoping review of patient-facing tools for advance care planning

07/20/24 at 03:05 AM

Tools for tomorrow: a scoping review of patient-facing tools for advance care planning Palliative Care and Social Practice; by Sean R. Riley, Christiane Voisin, Erin E. Stevens, Seuli Bose-Brill, Karen O. Moss; 6/24/24 first published online Our scoping review reveals an evolving landscape of ACP tools [Advanced Care Planning], marked by increasing diversity in delivery methods and a trend toward personalized, adaptable resources. The integration of technology and patient- and family-centered approaches signifies promising progress in end-of-life care, offering new paths for engagement with patients and families. Critics questioning the utility of ACP may need to revisit their perspectives in light of these innovative developments. Our findings highlight the need for further research on the effective implementation and integration of these tools as well as other unique approaches into healthcare systems and community-based settings. Ultimately, the continual advancement of these tools may reshape health services research, leading to more patient- and family-centered care and improving end-of-life decision-making processes outcomes for all people thereby promoting health equity.

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It starts with a story: A four-step narrative-based framework for serious illness conversations

07/20/24 at 03:00 AM

It starts with a story: A four-step narrative-based framework for serious illness conversations Journal of Palliative Medicine; by Natalie Lanocha, Sara Taub, Jason N Webb, Mary Wood, Tyler Tate; 7/5/24 online ahead of print An original and innovative identity-centered conceptual framework for serious illness conversations was developed. The framework consists of a four-step, reproducible approach: (1) attend to patient narrative identity, (2) identify values, (3) cocreate goals, and (4) actively promote choices. In short: attend, identify, create, and promote (AICP). ... By using this conceptual framework and four-step approach, clinicians can accomplish goal-concordant serious illness care and build rich clinical relationships that foster trust and goodwill. 

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Saturday newsletters

07/20/24 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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Today's Encouragement

07/20/24 at 03:00 AM

The difference between a successful person and others is not lack of strength, not a lack of knowledge, but rather a lack of will. ~Vince Lombardi

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Hospice enrollment and central nervous system–active medication prescribing to Medicare decedents with dementia

07/20/24 at 02:00 AM

Hospice enrollment and central nervous system–active medication prescribing to Medicare decedents with dementia JAMA Psychiatry; by Lauren B. Gerlach, DO, MS; Lan Zhang, PhD; Joan Teno, MD, MS; Donovan T. Maust, MD, MS; 7/17/24  Central nervous system (CNS)–active medications, including benzodiazepines and antipsychotics, are commonly prescribed in hospice for behavioral and physical symptom management.1 Such medications are not without risks, especially among patients living with Alzheimer disease and related dementias (ADRD), where potential harms may outweigh benefits for some patients.2 We explored the extent to which hospice enrollment is associated with CNS–active medication exposure among Medicare decedents with ADRD.

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Waverly nursing home put on probation, nurse suspended in connection to death of a resident, documents show

07/19/24 at 03:15 AM

Waverly nursing home put on probation, nurse suspended in connection to death of a resident, documents show ABC KETV-7, Omaha, NE; by Jake Anderson and Aaron Hegarty; 7/17/24 A nursing facility has been placed on probation by the Nebraska Department of Health and Human Services in connection to the death of a resident. Constance Glantz, 74, was mistakenly declared dead at The Mulberry at Waverly, a nursing home, in June. Glantz was then taken to a funeral home in Lincoln, which realized that she was still breathing. The 74-year-old, who was in hospice care, was declared dead hours later at a Lincoln hospital. A public records request by KETV Investigates shows that a state investigation into the facility in Waverly found the registered nurse on duty failed to take Glantz's blood pressure after it was believed she had died. That nurse was suspended, according to the state investigation. Documents show that the state also found a second case where a patient was not evaluated correctly. ... [Nebraska AARP Director Todd Stubbendieck] points to Medicare.gov's tool, which rates nursing homes, as a resource. He also points to a similar tool from ProPublica.

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Executive Personnel Changes - 7/19/24

07/19/24 at 03:00 AM

Executive Personnel Changes - 7/19/24

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Why CommonSpirit Health is investing in the home

07/19/24 at 03:00 AM

Why CommonSpirit Health is investing in the home Becker's Helath IT; by Giles Bruce; 7/18/24 Chicago-based CommonSpirit Health has grown into the country’s largest Catholic provider of care at home. ... Becker's recently sat down with Trisha Crissman, interim executive director of CommonSpirit Health at Home, to discuss the metamorphosis of at-home care. ... [In 2010] ... we established hospice as another service line for the organization. ... And that brings us to where we find ourselves today — as the largest Catholic care-at-home provider in the country, with 84 locations and soon to be about 15 states, serving about 15,000 patients daily, with skilled home healthcare, hospice, palliative care, home infusion. We have many solution models, including "hospital at home," SNF [skilled nursing facility] at home, and ED [emergency department] diversion solutions.

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Today's Encouragement: If you don't like the road you're walking ...

07/19/24 at 03:00 AM

If you don't like the road you're walking, start paving another one. ~ Dolly Parton

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Mount Pleasant Correctional Facility makes donations to regional hospice and animal shelter

07/19/24 at 03:00 AM

Mount Pleasant Correctional Facility makes donations to regional hospice and animal shelter Fort Madison Daily Democrat; by Brad Vidmar; 7/18/24 Staff at the Mount Pleasant Correctional Facility (MPCF) presented two big checks to two worthy causes on Monday. During a presentation at the prison, a check for $5,000 was presented to All God’s Creatures and a check for $10,000 was presented to Southeast Iowa Regional Hospice. ... The $10,000 provided by MPCF for their donation to Southeast Iowa Regional Hospice came from a car washing and detailing program that incarcerated individuals at the prison perform for MPCF staff. Stroud explained that the prison still has a hospice room but said its lack of use in recent years persuaded staff to look consider donating money elsewhere.

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Is your organization truly clinically integrated?

07/19/24 at 03:00 AM

Is your organization truly clinically integrated? TCNtalks podcast; host Chris Comeaux; 7/17/24 In this conversation, Chris Comeaux and Dr. Will Faber discuss the importance of clinically integrated networks (CINs) in the Hospice and Palliative Care industry.  They explore the challenges and benefits of creating a CIN, including reducing costs, improving quality of care, and competing with larger organizations. Dr. Faber explains that CINs are legal entities that allow independent providers to come together for group effectiveness, enabling them to negotiate with payers and improve quality while reducing healthcare costs.  They also touch on the concept of the triple aim and the evolving concept of the quintuple aim in healthcare. CINs are attractive to hospice and palliative care organizations because they provide a way to stay independent while being part of something larger. 

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Risky business: Home sweet home or nursing home?

07/19/24 at 03:00 AM

Risky business: Home sweet home or nursing home? American Nurse - Perspectives; by Christopher Hirschler, PhD, MCHES; 7/18/24 In 2018, “Nursing homes: Good intentions, sad realities” chronicled Rita Hirschler’s experience in a nursing home after decades of being a private care nurse. In response to the ideas espoused in the article, namely that a person has a right to live and die in their home and risks are unavoidable whether one lives at home or in a nursing home, a commentator asked, “What is the solution?” ... According to the Center for Medicare Advocacy and Lu and Lu, ownership and sponsorship type have been shown to significantly impact the quality of care in nursing homes, with for-profits generally having lower staffing levels and poorer patient outcomes. The Centers for Disease Control and Prevention, Meyer, and KFF Health News say for-profit nursing homes now account for approximately 72% of the more than 15,000 U.S. nursing homes, and they provide varying levels of care to 1.3 million residents. 

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Kindred and related entities agree to pay $19.428M to settle federal and state false claims act lawsuits alleging ineligible claims for hospice patients

07/19/24 at 03:00 AM

Kindred and related entities agree to pay $19.428M to settle federal and state false claims act lawsuits alleging ineligible claims for hospice patients U.S. Department of Justice - Office of Public Affairs; Press Release; 7/17/24 Gentiva, successor to Kindred at Home, has agreed to pay $19.428 million to resolve allegations that Kindred at Home and related entities (Kindred) knowingly submitted false claims and knowingly retained overpayments for hospice services provided to patients who were ineligible to receive hospice benefits under various federal health care programs. Gentiva’s hospice operations, headquartered in Atlanta, include entities that previously operated Kindred at Home hospice locations under the names Avalon, Kindred, SouthernCare and SouthernCare New Beacon. [Click on the title's link to continue reading.]

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How to advocate for an older loved one in the ER or hospital

07/19/24 at 03:00 AM

How to advocate for an older loved one in the ER or hospital US News & World Report - Health; by Christine Comizio; 7/17/24 Picture your 80-year-old father in the intensive care unit needing dialysis or your 76-year-old mother with severe dementia facing emergency surgery. These scenarios are becoming increasingly common as 1 in 6 adults in the U.S. are now over 65, a number steadily rising with the aging baby boomer generation. And as our population ages, the likelihood of an older family member becoming hospitalized grows. Many of us will inevitably confront the challenges of hospitalization – oftentimes due to a medical emergency when we least expect it. The critical question is: Are you prepared? ... Editor's Note: For hospice and palliative care professionals who have not yet experienced the serious illness needs of an "older loved one in the ER or hospital," know that personally dealing with needs requires different roles, skill sets, presence, actions, and advocacy than those in your professional role. Be true to your relationship and role with the person needing care. This practical article can be a great resource for your organization's employees, volunteers, and community education. 

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NAHC-NHPCO Alliance announces Town Hall

07/19/24 at 03:00 AM

NAHC-NHPCO Alliance announces Town Hall HomeCare; 7/17/24 The NAHC-NHPCO Alliance (the Alliance) is continuing the process of integrating the two organizations into a single, cohesive champion for the care-at-home community. The Alliance said the member voice is critical to the success of this endeavor. As such, all members of legacy NAHC and legacy NHPCO are invited to a virtual Town Hall on Wednesday, July 31, 2024 to learn more about new leadership, progress on integration, how members can stay involved in the Alliance and more. Any questions are welcome and will be answered by Alliance leadership. The Town Hall will take place on Wednesday, July 31, 2024, from 4-5:30 p.m. ET. [Click on the title's link for additional information.] ... The Alliance has created information pages on each of the respective websites, which are accessible to all regardless of membership status.

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Senior living and care on track to set mergers and acquisitions record

07/19/24 at 03:00 AM

Senior living and care on track to set mergers and acquisitions record McKnights Senior Living; by Kathleen Steele Gaivin; 7/18/24 Mergers and acquisitions involving senior living communities and skilled nursing facilities set a new quarterly record of 183 publicly announced transactions in the second quarter, and when annualized, the sector is on track to set a new yearly record as well. That’s according to data released this week by LevinPro LTC. The number of mergers and transactions in the second quarter was 21% higher than the 151 transactions recorded in the first quarter and 49% higher than the 123 deals in the second quarter of 2023. 

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Hospice patient takes 'one last ride' as hospice wish

07/19/24 at 03:00 AM

Hospice patient takes 'one last ride' as hospice wish NBC WREX TV-13, Rockford, IL; by Derek Bayne; 7/16/24 Michael Rickert is ready to ride. "Let's hit the pavement," he said. As Rickert gets in the sidecar of Tom Dean's motorcycle, supporters can't help but get emotional. As the engine revs, Rickert, who is in hospice care, remembers why he started riding motorcycles 25 years ago. "It's like my adrenaline is so up," Rickert said. He asked for one last ride, with the Northern Illinois Hospice Foundation setting up this special moment. ... And getting his wish granted means a lot, especially going out to ride on a beautiful day. "If I wouldn't have made it two more days or a day, at least I could say one thing," Rickert said. "I got my wish." 

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Hospice gets huge response as it finds Tad a new home

07/19/24 at 03:00 AM

Hospice gets huge response as it finds Tad a new home Beatrice Daily Sun; by Christina Lyons; 7/17/24 When the Cottonwood Hospice team wrote a Facebook post about a patient’s dog that needed to be rehomed, they were not expecting the overwhelming response they received. Owner Anni Paulmeyer said Katie Genrich, a hospice nurse, had come to her with concern for a patient who needed to rehome a dog because of declining health. ... Genrich said her patient had found the white Swiss shepherd when he was a year to 2 years of age. He named him Tad because he always said “the dog was a tad much when he was younger.” The patient cared for Tad for about nine years, but due to declining health and the need to move to a nursing facility, wanted to rehome Tad. Paulmeyer wrote a Facebook post and asked people to share the post. “A day or so later the post had been shared 2,800 times. ..."

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Fallen nurses are honored by ‘guards’ in white uniforms, capes and caps

07/19/24 at 03:00 AM

Fallen nurses are honored by ‘guards’ in white uniforms, capes and caps Radio Iowa; by Radio Iowa Contributor; 7/17/24 A hospital in southwestern Iowa is joining a national volunteer organization that pays tribute to nurses who have died or who are in hospice care. Registered nurse Sara Beth Jones spearheaded the effort to launch a local chapter of the Nurses Honor Guard at Cass Health in Atlantic. Jones says part of their uniform is to wear a cape that’s black on one side and red on the other, much like those worn by nurses who tended to soldiers in the 1800s. ... The Nurses Honor Guard is a comprised of current and former nurses. In addition to the funerals of nurses, they attend parades, honor walks and living tributes. Besides the cape, Jones says Honor Guard participants don the traditional white uniform and cap. 

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