Literature Review



Today's Encouragement

09/22/24 at 03:00 AM

A fool is known by his speech; and a wise man by silence. ~Pythagoras [Greek philosopher and yes, the Pythagorean theorem guy!]

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As families searched, a Texas medical school cut up their loved ones

09/22/24 at 03:00 AM

As families searched, a Texas medical school cut up their loved ones NBC News, Dallas, TX; by Mike Hixenbaugh, John Schuppe, Susan Carroll, Catherine Allen, Bryan Gallion, Liz Kreutz and Nigel Chiwaya; 9/16/24 ... In the name of scientific advancement, clinical education and fiscal expediency, the bodies of the destitute in the Dallas-Fort Worth region have been routinely collected from hospital beds, nursing homes and homeless encampments and used for training or research without their consent — and often without the approval of any survivors, an NBC News investigation found. ... For months as NBC News reported this article, Health Science Center officials defended their practices, arguing that using unclaimed bodies was essential for training future doctors. But on Friday, after reporters shared detailed findings of this investigation, the center announced it was immediately suspending its body donation program and firing the officials who led it. The center said it was also hiring a consulting firm to investigate the program’s operations.Publisher's note: And a "dishonorable mention" story we ran this week and that has been featured on national news. This story provoked me to explore more about what happens after a person dies - particularly the "unbefriended", those without family or friends. How does your hospice ensure the honorable and respectful care for people after they die when there are no family or friends to take such responsibility?

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The 9 college majors that lead to the most fulfilling careers ... [Music therapy]

09/22/24 at 03:00 AM

The 9 college majors that lead to the most fulfilling careers ... [Music therapy]NBC 7 San Diego, CA; by Kamaron McNair; 9/14/24 If you want your degree to help you land a fulfilling job, consider studying music therapy. The medical and therapeutic fields are among the college majors helping graduates get jobs that make the world a better place, according to graduates surveyed in a recent Payscale report.24/7 San Diego news stream: Watch NBC 7 free wherever you are Alumni with bachelor's degrees in music therapy are most likely to do this kind of fulfilling work, with 95% of degree-holders saying their work makes the world a better place, Payscale finds. Music therapy programs cover coursework in music, music therapy, science and psychology, according to the American Music Therapy Association. ... Music therapists may work in traditional settings, offering services to clients working through physical disabilities or mental health issues. People in hospice care, substance abuse programs and cancer treatment centers have also benefited from music therapist visits, according to the AMTA.Editor's note: Click here for facts and descriptions about "Music Therapy in Hospice Care," by the American Music Therapy Association (AMTA). To recruit a certified music therapist for hospice (or other setting), visit AMTA's Job Hotline.  

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Today's Encouragement

09/21/24 at 03:55 AM

You cannot do a kindness too soon, for you never know how soon it will be too late. ~Ralph Waldo Emerson

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Using AI and social media to understand health disparities for transgender cancer care

09/21/24 at 03:40 AM

Using AI and social media to understand health disparities for transgender cancer careJAMA Network Open; Augustine Annan, PhD; Yeran Li, PhD; Jingcheng Du, PhD; Yezhou Sun, MS; A. I. Asante-Facey, MD; Xiaoyan Wang, PhD; Matthew Monberg, PhD; 8/24Transgender individuals experience lower health care use and higher health care discrimination rates. This qualitative study revealed 3 barriers in transgender cancer care: lack of awareness, access issues, and clinical challenges. The consistent reporting of clinical challenges indicates the need for tailored medical guidelines and gender-affirming support systems. Addressing these disparities requires enhanced clinician education, evidence-based guidelines, policy reforms, and inclusive health coverage. Despite potential biases and limitations in the representativeness of social media data, this study may offer valuable insights to guide future initiatives toward achieving equitable health care for transgender individuals.

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Hidden From sight - From the closet to the paywall: A rapid evaluation of restricted and monetized access to LGBTQ+ inclusive palliative, end-of-life, and bereavement care research

09/21/24 at 03:35 AM

Hidden From sight - From the closet to the paywall: A rapid evaluation of restricted and monetized access to LGBTQ+ inclusive palliative, end-of-life, and bereavement care researchJournal of Pain and Symptom Management; by William E Rosa, Donna Wakefield, Hannah M Scott, Debbie Braybrook, Richard Harding, Katherine Bristowe; 9/24Health and social care professionals and policy makers rely on access to high quality evidence to inform their work. Failing to make articles related to the needs of LGBTQ+ people and populations OA risks further marginalisation and worsened inequities. Innovative journal policies and funding are needed to enable access, particularly for research that foregrounds the needs of marginalised communities. Where articles are currently behind paywalls, there is a need for accessible summaries or policy briefs to inform inclusive policy and practice.

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Racial differences in palliative care and hospice among adults with chronic obstructive pulmonary disease

09/21/24 at 03:30 AM

Racial differences in palliative care and hospice among adults with chronic obstructive pulmonary diseaseRespiratory Medicine; by Natalia Smirnova, Sarah H Cross, Amanda Light, Dio Kavalieratos; 9/24Individuals with COPD often experience frequent hospitalizations and high-intensity care at the end-of-life (EOL). Although people with COPD experience a higher symptom burden and worse functional status than patients with other serious illness such as cancer, people with COPD are less likely to receive specialty palliative care (PC) or hospice and more likely to die in the hospital or the intensive care unit (ICU). Furthermore, evidence of inequities within COPD exist. For example, Black individuals and those with lower socioeconomic status are likelier to experience COPD exacerbations and have worse quality of life than White individuals and those with higher socioeconomic status.

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Racial disparities in palliative care at end-of-life in children with advanced heart disease in the South

09/21/24 at 03:25 AM

Racial disparities in palliative care at end-of-life in children with advanced heart disease in the SouthJournal of Pediatrics; by Harrison Turner, Elizabeth S Davis, Isaac Martinez, Shambihavi Anshumani, Santiago Boresino, Susan Buckingham, Caroline Caudill, Chen Dai, Erika Mendoza, Katie M Moynihan, Lucas A Puttock, Raba Tefera, Smita Bhatia, Emily E Johnston; 8/24We performed a retrospective study from electronic health records of children (≤21 years at death) who died with advanced heart disease at a single institution between 2012 and 2019 (n=128). The main outcome was specialty pediatric palliative care (SPPC) consult; we assessed clinical and sociodemographic factors associated with SPPC. The median age at death was 6 months (IQR=1-25 months) with 80 (63%) ≤1 year... Twenty-nine children (22%) received SPPC. Children ≤1 year at time of death and Black children were less likely to receive SPPC. SPPC was associated with death while receiving comfort-focused care, do not resuscitate orders, and hospice enrollment (no children without SPPC care were enrolled in hospice) but not medically intense EOL care (ICU admission, mechanical ventilation, hemodialysis, or CPR) or death outside the ICU. Children dying with advanced heart disease in Alabama did not have routine SPPC involvement; infants and Black children had lower odds of SPPC. SPPC was associated with more comfort-focused care.

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Racial disparities in cancer stage at diagnosis and survival for adolescents and young adults

09/21/24 at 03:20 AM

Racial disparities in cancer stage at diagnosis and survival for adolescents and young adultsJAMA Network Open; Kekoa Taparra, MD, PhD; Kaeo Kekumano, BS; Ryan Benavente, BS; Luke Roberto, BS; Megan Gimmen, BS; Ryan Shontell, PhD; Henrietta Cakobau; Neha Deo, MD; Connor J. Kinslow, MD; Allison Betof Warner, MD, PhD; Curtiland Deville, MD; Jaimie Z. Shing, PhD, MPH; Jacqueline B. Vo, PhD, MPH, RN; Manali I. Patel, MD, MPH; Erqi Pollom, MD, MS; 8/24This cohort study of AYA [adolescent and young adult] patients suggests that stage at diagnosis and survival varied across races for the 10 deadliest AYA cancers. ... the risk of late-stage diagnosis was significantly higher for Asian, Black, and Native Hawaiian or Other Pacific Islander patients compared with White patients. However, compared with White patients, the risk of death was significantly higher for American Indian or Alaska Native, Black, and Native Hawaiian or Other Pacific Islander patients but lower for Asian patients. These results support the need for tailored interventions and informed public policy to achieve cancer care equity for all races.

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Research involving the recently deceased: ethics questions that must be answered

09/21/24 at 03:15 AM

Research involving the recently deceased: ethics questions that must be answeredJournal of Medical Ethics; by Brendan Parent, Olivia S Kates, Wadih Arap, Arthur Caplan, Brian Childs, Neal W Dickert, Mary Homan, Kathy Kinlaw, Ayannah Lang, Stephen Latham, Macey L Levan, Robert D Truog, Adam Webb, Paul Root Wolpe, Rebecca D Pentz; 8/24Research involving recently deceased humans that are physiologically maintained following declaration of death by neurologic criteria-or 'research involving the recently deceased'-can fill a translational research gap while reducing harm to animals and living human subjects. It also creates new challenges for honouring the donor's legacy, respecting the rights of donor loved ones, resource allocation and public health. As this research model gains traction, new empirical ethics questions must be answered to preserve public trust in all forms of tissue donation and in the practice of medicine while respecting the legacy of the deceased and the rights of donor loved ones. This article suggests several topics for immediate investigation to understand the attitudes and experiences of researchers, clinical collaborators, donor loved ones and the public to ensure research involving the recently deceased advances ethically.

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Caregiver and employee experience among big hospices - ranking of the largest US hospices by three quality indicators

09/21/24 at 03:10 AM

Caregiver and employee experience among big hospices-ranking of the largest US hospices by three quality indicatorsAmerican Journal of Hospice & Palliative Care; by Jason Hotchkiss, Emily Ridderman, Brendan Hotchkiss; 9/24Caregiver and employees had better experiences with non-profits than for-profits. Anger and frustration was expressed toward large, for-profit providers more focused on admissions, profiteering, and paying dividends than actual care. The CAHPS appears to draw more satisfied caregivers. Whereas, online reviewing provides open-ended, real-time voicing of care quality concerns. Even with distinct methods, CAHPS survey and review sentiment analysis converge on caregiver satisfaction, yet CAHPS paints a much rosier picture of hospice quality than online reviews.

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[Africa] Cancer care terminology in African languages

09/21/24 at 03:05 AM

[Africa] Cancer care terminology in African languagesJAMA Network Open; Hannah Simba, PhD; Miriam Mutebi, MD; Moses Galukande, MD; Yahya Mahamat-Saleh, PhD; Elom Aglago, PhD; Adamu Addissie, PhD; Lidya Genene Abebe, MS; Justina Onwuka, PhD; Grace Akinyi Odongo, PhD; Felix M. Onyije, PhD; Bernadette Chimera, MS; Melitah Motlhale, PhD; Neimar de Paula Silva, PhD; Desiree Malope, MS; Clement T. Narh, PhD; Elizabeth F. Msoka, MS; Joachim Schüz, PhD; Efua Prah, PhD; Valerie McCormack, PhD; 8/24This survey study of 107 health care workers and cancer researchers revealed diverse cancer terminology in 44 African languages across 32 countries in Africa. Translations of key terms including cancer, malignant, chronic, and radiotherapy commonly conveyed elements of fear and tragedy. In this survey study of cancer communication and the translation of oncology terminology in African languages, the findings suggest that the terminology may contribute to fear, health disparities, and barriers to care and pose communication difficulties for health professionals. The results reinforce the need for culturally sensitive cancer terminology for improving cancer awareness and communication.

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"Life… Gets Turned Upside-Down…" Opportunities to improve palliative care for high-grade glioma

09/21/24 at 03:05 AM

"Life… Gets Turned Upside-Down…" Opportunities to improve palliative care for high-grade gliomaJournal of Pain and Symptom Management; by Rita C Crooms, Jeannys F Nnemnbeng, Jennie W Taylor, Nathan E Goldstein, Barbara G Vickrey, Ksenia Gorbenko; 9/24Early palliative care referral is recommended broadly in oncology. Yet, few patients with high-grade gliomas (HGG) - highly aggressive brain tumors - receive specialty palliative care consultation. The palliative care needs of HGG relative to other cancers across palliative care domains are distinguished by poor prognosis, physical and cognitive deficits, and neuropsychiatric symptoms. Themes on indications for palliative care referral differed between neuro-oncologists and palliative physicians. Neuro-oncologists favored selective referral for clinical indications such as high non-neurologic symptom burden requiring time-intensive management. Palliative physicians favored early referral of most HGG patients, to allow for maximal benefit across HGG trajectory.

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Trends in mortality after incident hospitalization for heart failure among Medicare beneficiaries

09/21/24 at 03:00 AM

Trends in mortality after incident hospitalization for heart failure among Medicare beneficiariesJAMA Network Open; Adam S. Vohra, MD, MBA; Ali Moghtaderi, PhD; Qian Luo, PhD; David J. Magid, MD, MPH; Bernard Black, JD, MA; Frederick A. Masoudi, MD, MSPH; Vinay Kini, MD, MSHP; 8/24In this study of Medicare fee-for-service beneficiaries, there was a substantial decrease in in-hospital mortality for patients hospitalized with incident HF [heart failure] from 2008 to 2018, but little to no reduction in mortality for subsequent periods up to 3 years after hospitalization. These results suggest opportunities to improve longitudinal outpatient care for patients with HF after hospital discharge.

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[Canada] Cognitive symptoms across diverse cancers

09/21/24 at 03:00 AM

[Canada] Cognitive symptoms across diverse cancersJAMA Network Open; Samantha J. Mayo, RN, PhD; Kim Edelstein, PhD; Eshetu G. Atenafu, MSc, PStat; Rand Ajaj, HBSc; Madeline Li, MD, PhD; Lori J. Bernstein, PhD; 8/24In this cross-sectional study of 5078 survey respondents with cancer seeking psychosocial support, over half of these patients reported having cognitive symptoms of any severity. A third of these patients reported moderate to severe cognitive symptoms, which were associated with disease, treatment, and other symptoms. Findings of this study suggest that higher severity of cognitive symptoms was consistently associated with higher symptom burden; these findings could be used to inform decision-making regarding access to cognitive screening, assessment, and supportive care in outpatient oncology clinics.

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Saturday newsletters

09/21/24 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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Lake Erie views from every room mark plans for new Hospice of the Western Reserve building

09/20/24 at 03:20 AM

Lake Erie views from every room mark plans for new Hospice of the Western Reserve building Ideastream Public Media; by Stephen Langel; 9/18/24The Hospice of the Western Reserve broke ground Wednesday on a new 32-bed facility in Cleveland's North Collinwood neighborhood.The new, $25 million building will replace a 30-year-old facility located adjacent to it on East 185th Street and will have a different look and feel than the old site, said Laura Rayburn, president of the Hospice of the Western Reserve Foundation."It doesn't smell like a hospital, look like a hospital or sound like a hospital," Rayburn said. ... The new facility will provide patients and family members with suites that ensure quiet settings and privacy, she said. Each suite will also face Lake Erie with patio access for residents. "We have this beautiful asset of the lake, and we know the importance of water and how it can relieve stress, how it can reduce anxiety," Rayburn said. The facility also keeps medical equipment hidden from view to reduce stress and anxiety while providing the acute care patients need, she said. This can include having the ports for equipment to help with breathing located behind a picture above a bed's headboard, so it's out of sight when not needed, Rayburn said. The old facility, for which there are no current reuse plans, is being replaced due to rising maintenance and repair costs.

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A record-breaking Hospice Cup Regatta

09/20/24 at 03:10 AM

A record-breaking Hospice Cup Regatta Sail Editors; 9/18/24 Annapolis sailors turned out in force last weekend for the annual Hospice Cup regatta, getting in some great racing while helping raise record funding for the area’s nonprofit hospice organizations. Nearly 90 boats competed, together with sponsors raising more than $200,000, says Hospice Cup Board President Molly Wilmer. It was the most successful event in more than 25 years, with the amount donated and the number of donors at a record high.  ... This year’s event stood out for other reasons. As a registered clean regatta, Hospice Cup also boasted status as zero-waste for the first time in its history. Sailing instructions encouraged use of reusable drink containers and collection of any trash found in local waters. ... For more than 40 years, Hospice Cup has supported local care programs for under and uninsured patients with advanced and terminal illness. Partnering with Montgomery & Prince George’s Hospice, Talbot Hospice, Capital Caring, and the Luminis Health Gilchrist Lifecare Institute at Anne Arundel Medical Center, Hospice Cup has raised more than $30 million since the start of the race in 1982.

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The catalyst for a 25% drop in sepsis mortality at Jefferson Health

09/20/24 at 03:10 AM

The catalyst for a 25% drop in sepsis mortality at Jefferson Health Becker's Clinical Leadership; by Erica Carbajal; 9/19/24 In the healthcare quality space, clinicians must track a plethora of metrics and measures, creating an environment where it can be easy to lose focus of ongoing priorities. To help center focus and ensure alignment of clinical priorities, Philadelphia-based Jefferson Health developed a quality and safety management system called OnPoint, which is now in place across all of its 17 hospitals. ... The platform is central to strides Jefferson Health has made in managing sepsis in recent years, ... Since 2021, the system has achieved a 25% reduction in average annual sepsis mortality, which is estimated to have saved the lives of nearly 700 patients and $30 million in costs.

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Executive Personnel Changes - 9/20/24

09/20/24 at 03:00 AM

Executive Personnel Changes - 9/20/24 

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How healthcare leaders view Gen Z in the workforce

09/20/24 at 03:00 AM

How healthcare leaders view Gen Z in the workforce Becker's Hospital Review; by Kristin Kuchno; 9/18/24As more members of Generation Z move into the workforce, some have clashed with management or disagree with how their employees view them. The group, born between 1997 and 2012, has been described as both tech-savvy and overly reliant on technology. Some human resources professionals have said they lack work ethic and time management skills. The early-career employees themselves have said they find enjoyment in full-time work and value career growth and planning. Here are three healthcare leaders' perceptions of Gen Z in the workforce.

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How Gen Z is being courted by post-acute providers

09/20/24 at 03:00 AM

How Gen Z is being courted by post-acute providers Modern Healthcare; by Diane Eastabrook; 9/18/24 Some post-acute care companies are revamping their recruitment playbooks to attract Generation Z workers as they battle for talent with other healthcare companies. Providers such as Good Samaritan Society, Bayada Home Health Care and Right at Home are developing strategies to recruit the demographic, which ranges in age from 12 to 27 and makes up a quarter of the U.S. population. Those organizations want to hire Gen Z because they are purpose-driven and adept at using technology, according to a 2023 study by financial services company Mercer. 

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Today's Encouragement: There is a time in late September ...

09/20/24 at 03:00 AM

There is a time in late September when the leaves are still green and the days are still warm, but somehow you know that it is all about to end, as if summer was holding its breath, and when it let it out again, it would be autumn. ~ Sharyn McCrumb

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What are the Medicare respite care guidelines?

09/20/24 at 03:00 AM

What are the Medicare respite care guidelines? Medical News Today; by Amy McLean; 9/18/24 Medicare Part A and Medicare Advantage may cover respite care as part of hospice care coverage. A person will usually need to pay 5% of the Medicare-approved amount for respite care. Respite care allows the carer to take a short amount of time off from caring for an individual. If the Medicare beneficiary spends this time in a medical facility, Medicare will likely cover the cost of the stay. [Click on the title's link to read on] ... to learn more about Medicare coverage for respite care, including what it means and what costs may be involved.

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Hiring manager fired for refusing to post 'ghost jobs' is now sharing how to recognize them

09/20/24 at 03:00 AM

Hiring manager fired for refusing to post 'ghost jobs' is now sharing how to recognize them Upworthy; by Jacalyn Wetzel; 9/18/24 There doesn't seem to be a shortage in job openings but there does seem to be an abundance of people looking for work for months without finding gainful employment. According to Ceros Whaley, a former hiring manager at an unnamed company, the problem is that unsuspecting hopeful employees are unknowingly applying for "ghost jobs." Whaley shares that part of his job as a hiring manager was to create "ghost jobs," which are simply fake job listings. He explains that these job listings were not created to find more qualified people to fill positions but to "encourage" current employees to improve their performance. Whaley says that he got into a little bit of a kerfuffle with his higher manager over the company continuing the ghost job ruse. By the time the man reached his tolerance level for posting fake jobs, he had already posted over 300 ghost jobs on sites like Indeed, Monster and other hiring sites. But Whaley shares that he found his morals and just couldn't continue the practice. ... [The] frustrated former employee … did a follow up video sharing how to spot ghost jobs and how to avoid them while you're job hunting. [Click on the title’s link to view.] 

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