Literature Review

Pediatric Palliative Care is essential to person-centered quality care for children with serious illnessAAHPM Spring Quarterly; by Larry Beresford; 6/27/24It has often been said that children are not little adults and should not be treated as little adults when it comes to their medical care or to the roles played in that care by palliative care and hospice teams. But what should that truism convey to members of AAHPM? How do hospice and palliative medicine (HPM) professionals ensure that children with serious, incurable, or life-threatening illnesses are managed with due consideration of their differences and distinct needs? What do adult palliative care professionals need to know—and contribute to ensuring that these children get the age-appropriate support they need for the duration of their illness?Publisher's Note: Membership may be required to access this article, or perhaps waiting until it is archived.

Silverstone Health expands care continuum beyond hospice, sees skyrocketing census growth Hospice News; by Jim Parker; 6/19/24 Dallas-based Silverstone Health has expanded its continuum of home-based services while growing its total daily census from 17 patients to 2,000. Silverstone came on the scene in 2020 as a standalone hospice after CEO Alfonso Montiel’s purchase and rebranding of Comfort Care Hospice in the Dallas-Fort Worth region. Since then, the company has built a palliative care service and is developing a personal care business. In the interim, Silverstone also acquired two small home health agencies for undisclosed amounts, as well as a physician group, according to Montiel. 

Getting muddy for Center for Hospice Care LaporteCounty.life; by Center for Hospice Care, Valpraiso, IN; 6/24/24The Sunday of Memorial Day weekend the South Bend Sod Busters hosted their annual mud bog. For years a portion of the proceeds from this event have benefitted Center for Hospice Care. One of the first times Red Fisher attended the event as the events manager for Hospice Foundation, he told the organizers, "When you go over $100,000 total for this event, I will go down the bog in a white tuxedo!" A couple of years ago, they surpassed that mark – and this year Red kept his word. Thanks to our friends at Louie's Tux Shop, Red got into one of the vehicles and went down the bog – not once, but twice – while wearing a stylish white tux!Editor's Note: Calling all leaders, what fun, fundraising challenges might you offer?

Rendever and Lenovo collaborate to bring virtual reality experiences to Carolina Caring seniors Fox 8, Boston, MA; by Rendever; 6/19/24 Rendever, the Boston-based company pioneering the future of aging through virtual reality (VR), announces the deployment of its virtual reality platform with Lenovo to Carolina Caring patients. The rollout allows clinicians and caregivers to bring expansive, once-in-a-lifetime VR experiences to older patients whose worlds have become limited. Over the last year, Rendever and Lenovo combined their products into a joint solution that senior living providers can easily adopt to improve the quality of life for older adults through positive shared experiences. Rendever’s award-winning virtual reality solution delivered on Lenovo’s ThinkReality VRX headset provides an all-in-one standalone solution that meets the evolving needs of enterprises with modern virtual reality with six degrees of freedom, full color, and high-resolution experiences. Rendever is deployed in over 700 communities nationwide and looks to further expand with the addition of Carolina Caring in collaboration with Lenovo. 

Dementia decisions: Making tough choices about hospice, palliative care Being Patient; by Katy Koop; 6/25/24 In the later stages of Alzheimer's, palliative and hospice care can be necessary. But how do you find a facility designed for dementia patients? ... Dr. Maribeth Gallagher, director of Arizona’s Hospice of the Valley dementia program, joins Being Patient video reporter Mark Niu to discuss how to make these difficult decisions and what makes a palliative or hospice care program “dementia-capable.” Gallagher’s work directing the Hospice of the Valley’s dementia program has received national and international awards for its innovative approaches. Her focus on dementia care was initially inspired by her personal experiences as a family caregiver, sharing the journey with her loved one from diagnosis to death. [Click on the title's link for the full conversation, in both audio and text.]

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!If you enjoy this newsletter, please share it with colleagues - they can subscribe (for free) here!If interested in becoming a sponsor, please contact us here!

Life can only be understood backwards, but it must be lived forwards. ~Soren Kierkegaard

Coping and end-of-life decision-making in ALS: A qualitative interview study PLoS One, University of Auckland, New Zealand; by Olga Wenzel, Anke Erdmann, Gerald Neitzke, and Irene Hirschberg; 6/26/24 How do people with amyotrophic lateral sclerosis (PALS) deal with their diagnosis and engage in end-of-life decision-making? What informational or supportive needs do they have for counselling about life-sustaining treatment and end-of-life care? Which correlating conditions and influences relate to these needs and how do they connect to the wish to die or wish to live? ... We identified the coping strategies ‘avoid thinking about end-of-life’ and its counterpart, ‘planning ahead to be well-prepared,’ and differentiated the latter into the patterns ‘withdrawing from life and taking precautions against life-prolongation’ and ‘searching for a new meaning in life and preparing for life-sustaining treatment’.  ... These strategies may vary over time, resulting in different support needs. Our findings signify that deep insight is needed into PALS‘ coping processes to understand their decision-making about life-sustaining treatment. Healthcare professionals should be sensitive to illness experiences beyond medical aspects and foster coping as a biographical process to better support people with ALS.Editor's Note: Click on the title to access the full text of this insightful, relevant research. Hospice and palliative educators, use this to strengthen your disease-specific resources and training about care for persons with ALS.

A palliative care curriculum may promote resident self-reflection and address moral injury The Journal of Surgical Research; by Shruti Koti, Lyudmyla Demyan, Danielle Deperalta, Sophia Tam, Gary Deutsch; 6/22/24 online ahead of print Introduction: There is a lack of formal palliative care education for surgical trainees, and the demanding nature of surgical training and exposure to challenging clinical scenarios can contribute to moral injury. We developed a palliative care curriculum to promote self-reflection, aiming to address moral injury in residents.Conclusions: The described palliative care curriculum accomplishes several goals as follows: it educates residents on palliative care topics, teaches communication tools, encourages self-reflection, and provides space for building peer relationships. The ease of implementation makes this curriculum applicable across various types of institutions, offering the potential to positively impact surgical training on a national scale.

Chronic loneliness and the risk of incident stroke in middle and late adulthood: a longitudinal cohort study of U.S. older adults eClinical Medicine, Part of THE LANCET Discovery Science; by Yenee Soh, Ichiro Kawachi, Laura D. Kubzansky, Lisa F. Berkman, and Henning Tiemeier; 6/24/24 Loneliness has been implicated as a stroke risk factor, yet studies have examined loneliness at only one time point. The association of loneliness changes and risk of incident stroke remains understudied. Our aim was to examine the association of loneliness with incident stroke, particularly the role of loneliness chronicity. Chronic loneliness was associated with higher stroke risk independent of depressive symptoms or social isolation. Addressing loneliness may have an important role in stroke prevention, and repeated assessments of loneliness over time may help identify those particularly at risk.Editor's Note: This is the source research for an article we posted yesterday, 6/28/24, titled 

California hospice ownership changes from 2018-2020: A spatial analysis and case illustrationAmerican Journal of Hospice and Palliative Care; by Heather A. Davis, PhD, Christy Torkildson, PhD, RN, PHN, FPCN, HEC-C, Lisa C. Lindley, PhD, RN, FPCN, FAAN; 6/24Hospices in California have undergone significant and complicated ownership changes in recent years. ... Our findings showed that ownership changes were significant and complicated. An influx of for-profit organizations into the California market was primarily responsible for these changes. Additionally, lack of corporate financial public disclosure and voluntary hospice accreditation, certification, and reporting result in a lack of free, publicly available, definitive comprehensive data on for-profit hospice ownership. This hinders information gathering on and provider/familial choice-making regarding hospices. Our study provides critical insight into the impact of ownership changes and lack of definitive, free, publicly available information on adult hospices in California caring for children and has important clinical, research, and policy implications.

Experiencing and enduring patient distress: the distress of palliative care patients and its emotional impact on physicians in trainingBMC Medical Education; by Andréa Tarot, Maxence Pithon, Ashley Ridley, Virginie Guastella, Virginie Guastella, Morgane Plancon, Régis Aubry, Helène Vaillant Roussel, and Axelle Maneval; 6/26/24The extreme vulnerability experienced by patients in palliative care may result in significant distress. These patients require appropriate care while not pathologizing their natural distress. ... [The] aim of this study was to explore how professionals in training feel when confronted with the distress of patients undergoing palliative care. ... The interviews revealed the following five themes:

Saturday newsletters focus on headlines and research - enjoy!