Literature Review



Chesapeake Life Center offers monthly LGBTQIA+ drop-in grief support group

05/12/24 at 03:40 AM

Chesapeake Life Center offers monthly LGBTQIA+ drop-in grief support group Southern Maryland News Net; 5/6/24 Chesapeake Life Center will host a monthly drop-in grief support group for members of the LGBTQIA+ community. ... Grief is a hard and vulnerable time, and it is important to have safe spaces to process what we are going through. This group is intended for adult members of the LGBTQIA+ community who are grieving a past or approaching death. The group will be facilitated by a licensed queer therapist but will be loosely structured to offer an opportunity for participants to share their feelings and grieve with community.Editor's Note: Hospice & Palliative Care Today does not post upcoming, local hospice events, grief support groups, volunteer trainings, etc. However, we're posting this LGBTQIA+ grief support ("past or approaching death") due to its profound need and support, with opportunities for replication by other hospices. Pair this support with the article we posted on 4/21/24: LGBTQ+ individuals have higher rates of cancer because of disparities in modifiable risk factors, ACS says. 

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Shocked at end-of-life: An educational video for hospice workers about Implantable Cardioverter-Defibrillators

05/12/24 at 03:35 AM

Shocked at end-of-life: An educational video for hospice workers about Implantable Cardioverter-Defibrillators Journal of Pain and Symptom Management; by Sarah Godfrey, MD, MPH; Christine L. Chen, MD; Melanie S. Sulistio, MD; Sharika Kumar, MD; and Kelley Newcomer, MD; 2/24 Introduction: Hundreds of thousands of patients with implantable cardioverter-defibrillators (ICDs) die yearly. Though ICD shocks can be lifesaving, they can also be severely painful. One third of ICD patients are shocked in the last day of life irrespective of DNR status. Over 97% of hospice programs admit patients with ICDs, yet only 10% have deactivation policies and less than 50% of hospice patients have their ICD deactivated. ...  Conclusion: Hospice personnel have limited knowledge about ICDs, prohibiting best care of patients with these devices at EOL. A short educational video increased knowledge and may serve as a helpful tool. Improving ICD knowledge amongst hospice personnel is essential to ensuring the unique needs of hospice patients with ICDs are met.

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Patients, caregivers more willing to spend extra for home-based care, study finds

05/12/24 at 03:30 AM

Patients, caregivers more willing to spend extra for home-based care, study finds McKnights Home Care; by Adam Healy; 4/30/24 [According to a new study published in JAMA Network Open:] ... On average, respondents were willing to spend an extra $51.81 for care that takes place in the home, compared to facility-based care such such as that in a skilled nursing facility. They were also more willing to pay more for care that can reduce their recovery time or reduce caregivers’ burden. Caregivers, meanwhile, also prioritized higher-quality care, even if it came with a heftier price tag. 

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The power of art in palliative care

05/12/24 at 03:25 AM

The power of art in palliative care InSight+, Melbourne, Australia; by Caitlin Wright; 5/6/24 ... Melbourne artist Jeffrey Kelson is known for his thought-provoking portraits, several of which have been exhibited at the Melbourne Holocaust Museum. He believes a portrait is a window into a subject’s heart and mind. However, after being diagnosed with late-stage pancreatic cancer, it wasn’t this style of art that Mr. Kelson was drawn to. As soon as he felt well enough to return to his studio, he started work on a series of colourful collages. “At one point, my wife came into the room and commented on how bright they were and how full of life force. She was surprised that I could create pieces that were so energetic when I felt so ill. I hadn’t really thought about it. I just needed to work,” he told InSight+. ... Palliative care specialist Dr Eric Fairbank was one of Mr Kelson’s art students for several years before Mr. Kelson’s diagnosis. He said Mr Kelson’s approach to his diagnosis has confirmed his belief that the best outcomes of cancer treatment are achieved when they’re complemented by the patient’s own resources of mind, will and spirit. [Click on the title's link to view several of his paintings.]

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Updated guidance on workplace harassment covers misgendering pronouns, bias over bathroom use, more

05/12/24 at 03:20 AM

Updated guidance on workplace harassment covers misgendering pronouns, bias over bathroom use, more McKnights Senior Living; by Kathleen Steele Gaivin; 5/2/24 Final guidance published last week by the Equal Opportunity Employment Commission aims to clarify for employers, employees and others their obligations related to harassment in the workplace. ... This is the first update to the guidance in 25 years, aimed at enforcing more recent changes in federal law. EEOC clarified that harassment by any person — including employers, coworkers, customers and clients — can violate federal law. ... According to the EEOC, the new guidance “updates, consolidates and replaces the agency’s five guidance documents issued between 1987 and 1999 and serves as a single, unified agency resource on EEOC-enforced workplace harassment law.” Among other guidance, the EEOC calls out asking intrusive questions about a person’s sexual orientation, gender identity, gender transition or intimate body parts as forms of harassment.

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Elara Caring, cited in death of visiting nurse Joyce Grayson, vows to contest violation

05/12/24 at 03:15 AM

Elara Caring, cited in death of visiting nurse Joyce Grayson, vows to contest violation McKnights Home Care; by Adam Healy; 5/3/24 The Department of Labor’s Occupational Safety and Health Administration (OSHA) has cited home health, hospice and personal care provider Elara Caring for failing to provide adequate safeguards to protect visiting nurse Joyce Grayson from workplace violence. Grayson, a licensed practical nurse, was killed last Oct. 28 while providing a home health visit for a client living in a halfway house in Willimantic, CT.  The DOL disclosed this week that its OSHA division cited New England Home Care, where Grayson worked, and Jordan Health Care Inc., which both do business as Elara Caring, with a “Willful-Serious” citation. Elara Caring faces up to $163,627 in penalties resulting from the citation. ...

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[Australia] Palliative patients can die peacefully at home with paramedic support, claims proposed framework

05/12/24 at 03:10 AM

[Australia] Palliative patients can die peacefully at home with paramedic support, claims proposed frameworkRiotack - Australia; by James Day; 5/6/24A proposed national framework suggests paramedics could help ease pressure on emergency departments by supporting palliative care patients who wish to die at home. Published in the leading international peer reviewed journal Palliative Medicine, the framework seeks to embed palliative care into paramedics’ core business and reduce needless transports to hospital. ... Lead author and trained paramedic Dr. Madeleine Juhrmann developed the framework in consultation with paramedics, palliative care doctors, GPs, carers with lived experience and others. The expert group – representing six countries and all the states of Australia – agreed on the framework’s 32 service changes to standardise best practice for paramedics delivering palliative care in community-based settings.Editor's Note: Pair this solution with related articles in today's newsletter, "Stranded in the ER, seniors await hospital care and suffer avoidable harm" and "How Mass General Brigham provides emergency care at home" (both are in our "Post-Acute" section). 

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Maddy Baloy had only 1 year to live after cancer diagnosis — and chose joy: 'Didn’t let anything defy her’

05/12/24 at 03:05 AM

Maddy Baloy had only 1 year to live after cancer diagnosis — and chose joy: 'Didn’t let anything defy her’ People; by Lizzie Hyman; 5/8/24 Even surrounded by loved ones in hospice care at her Florida home, Maddy Baloy craved adventure. “She kept saying, ‘I want to go outside and go swimming,’ ” her fiancé Louis Risher tells PEOPLE in this week’s issue. It was how Baloy had approached each day from the time she was diagnosed with terminal cancer in February 2023, to the end of her life on May 2, 2024. In just over one year, the 26 year old gained the admiration and support of millions who followed her journey on TikTok as she worked her way through a 19-item bucket list of skills to learn, people to meet and places to go. “Maddy did not let anything defy her,” Risher, 27, says. “She was always just about love.”

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How to become a great boss

05/12/24 at 03:00 AM

How to become a great bossBy Jeffrey J. Fox; 2002The Great Boss Simple Success Formula:

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Sunday newsletters

05/12/24 at 03:00 AM

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

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TCN News Stories of the Month, April 2024

05/12/24 at 03:00 AM

TCN News Stories of the Month, April 2024TCN Talks; by Chris Comeaux and Mark Cohen; 5/1/24In this podcast Chris and Mark discuss our newsletter's top news stories for the month of April as reported in Hospice and Palliative Care Today. You can subscribe for free here: https://www.hospicepalliativecaretoday.com/registration.

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Today's Encouragement

05/12/24 at 03:00 AM

Happy Mother's Day!

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Retraumatization when an adult child cares for the parent who harmed them through serious illness or the end of life

05/11/24 at 03:00 AM

Retraumatization when an adult child cares for the parent who harmed them through serious illness or the end of lifeJournal of Pain and Symptom Management; by Jaime Goldberg, Jooyoung Kong; 5/24Adult children caring for a parent who harmed them through the parent's serious illness or the end of life are at high risk for experiencing retraumatization. This session will offer trauma-informed, culturally responsive, person-centered tools and techniques hospice and palliative care professionals can use to effectively identify, assess, and intervene with this often-overlooked population of caregivers.Publisher's note: This current article summary is for an upcoming AAHPM conference workshop. The study was previously published in JPSM 5/24 here.

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Associations between Certificate of Need policies and hospice quality outcomes

05/11/24 at 03:00 AM

Associations between Certificate of Need policies and hospice quality outcomesAmerican Journal of Hospice & Palliative Medicine; by Arlen G. Gaines, John G. Cagle; 5/24Approximately 86% of hospices are in states without a hospice CON provision. The unadjusted mean HIS scores for all measures were higher in CON states (M range 94.40-99.59) than Non-CON (M range 90.50-99.53) with significant differences in all except treatment preferences. ... The study suggests that CON regulations may have a modest, but beneficial impact on hospice-reported quality outcomes, particularly for small and medium-sized hospices.

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The value of screening for a history of incarceration in the palliative care setting

05/11/24 at 03:00 AM

The value of screening for a history of incarceration in the palliative care settingAmerican Journal of Hospice and Palliative Medicine; by Joseph Michael Schnitter, Joshua Hauser; 5/24In this article, we explore existing literature that highlights the unique physical, cognitive, and psychosocial challenges that formerly incarcerated patients face. We proceed to argue that palliative care providers should screen for a history of incarceration to identify and address the needs of this patient population. We also offer strategies to create a safe, welcoming environment to discuss past traumas related to these patients’ time in prison.

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End-of-life ethics content in the ten residencies offering Hospice and Palliative Medicine Fellowship

05/11/24 at 03:00 AM

End-of-life ethics content in the ten residencies offering Hospice and Palliative Medicine FellowshipJournal of Pain and Symptom Management; by Sara W. Youssef, Lauren E. Berninger, Danielle J. Doberman; 5/24Ethics training is essential to hospice and palliative medicine (HPM) training. Ten residencies feed into HPM fellowship, but clinical ethics tested on board certification exams vary in content and weight across specialties. Given this variance, standardizing end of life ethics training for HPM fellowship programs presents an opportunity for educational improvement.

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The role of mindfulness and resilience in Navy SEAL training

05/11/24 at 03:00 AM

The role of mindfulness and resilience in Navy SEAL trainingMilitary Psychology; by Andrew Ledford, Celeste Raver Luning, Deirdre P. Dixon, Patti Miles, Scott M. Lynch; 5/24Mindfulness and resilience are thought to be essential qualities of the military’s special operations community. Both are tested daily in Special Operations Forces (SOF) assessment and selection efforts to prepare candidates to persist through grueling training and complex combat situations; but these qualities are rarely measured. While military leadership places value on the concepts of mindfulness and resilience, there is minimal empirical research examining the role that they play in the completion of training. This longitudinal study followed three classes of SEAL candidates at Basic Underwater Demolition/SEAL (BUD/S) training over their six-month selection program. We estimated logit models predicting successful completion of BUD/S and specific types of failure in that training environment with indexes of mindfulness and resilience at the start of the program as predictors of completion. The results indicate that mindfulness is generally unrelated to completion, while resilience generally predicts completion.Publisher's note: A leadership-oriented article from another field (the military) that can be applied to healthcare.

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Today's Encouragement

05/11/24 at 03:00 AM

Success is stumbling from failure to failure with no loss of enthusiasm. ~Winston Churchill

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Reflective learning: A new leadership development framework driving engineering innovation

05/11/24 at 03:00 AM

Reflective learning: A new leadership development framework driving engineering innovationReflective Practice; by Jeremy Wei; 2/18/24Innovation is an organizational learning process that demands a reflexive perspective to take on uncertainties and question deeply held assumptions, propelling leadership and organizational structures forward. ... A reflexive-learning-based leadership development program is a set of collective actions comprising four fundamental steps: acknowledging problems, reassessing assumptions, thinking of alternatives, and developing new perspectives. This study demonstrates its effectiveness in developing collective reflexivity within an engineering organization by repurposing the After-Action Review (AAR) as reflexive learning training.Publisher's note: A leadership model applied in the engineering field that could be translated to healthcare.

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Saturday newsletters

05/11/24 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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Inpatient palliative care and healthcare utilization among older patients with Alzheimer's Disease and Related Dementia (ADRD) and high risk of mortality in U.S. hospitals

05/11/24 at 03:00 AM

Inpatient palliative care and healthcare utilization among older patients with Alzheimer's Disease and Related Dementia (ADRD) and high risk of mortality in U.S. hospitalsAmerican Journal of Hospice and Palliative Care; by Zhigang Xie, Guanming Chen, Oluwadamilola T Oladeru, Hanadi Y Hamadi, Lucinda Montgomery, Maisha T Robinson, Young-Rock Hong; 5/24PC substantially reduced hospital expenditures for older patients with ADRD-HRM, but the prevalence remained low at 14.6% in the study period. Future studies should explore the unmet needs of patients with lower sociodemographic status and those in rural hospitals to further increase their PC consultation utilization.

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In praise of hospice

05/11/24 at 03:00 AM

In praise of hospiceJAMA; by James R. Nicholas, MD; 4/24... Joan did what she wanted to do: she, with the help of hospice, made her dying as easy as possible for me and our children. I have the same wish for myself. I doubt if I will achieve it as well as did Joan, but I will have her as a guide. And I hope I will have the kind of hospice team that Joan had.

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Oregon Death with Dignity Act access: 25 year analysis

05/11/24 at 03:00 AM

Oregon Death with Dignity Act access: 25 year analysisBMJ Supportive & Palliative Care; by Claud Regnard, Ana Worthington, Ilora Finlay; 5/24[UK] The number of assisted deaths in Oregon increased from 16 in 1998 to 278 in 2022. Over this time, patients’ health funding status changed from predominantly private (65%) to predominantly government support (79.5%), and there was an increase in patients feeling a burden and describing financial concerns as reasons for choosing an assisted death. There has been a reduction in the length of the physician–patient relationship from 18 weeks in 2010 to 5 weeks in 2022, and the proportion referred for psychiatric assessment remains low (1%). Data are frequently missing, particularly around complications.

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Does assisted living provide assistance and promote living?

05/11/24 at 03:00 AM

Does assisted living provide assistance and promote living?Health Affairs; by Sheryl Zimmerman, Robyn Stone, Paula Carder, Kali Thomas; 5/24Assisted living has promised assistance and quality of living to older adults for more than eighty years. ... As assisted living has evolved, the needs of residents have become more challenging; staffing shortages have worsened; regulations have become complex; the need for consumer support, education, and advocacy has grown; and financing and accessibility have become insufficient. Together, these factors have limited the extent to which today’s assisted living adequately provides assistance and promotes living, with negative consequences for aging in place and well-being. This Commentary provides recommendations in four areas to help assisted living meet its promise: workforce; regulations and government; consumer needs and roles; and financing and accessibility. Policies that may be helpful include those that would increase staffing and boost wages and training; establish staffing standards with appropriate skill mix; promulgate state regulations that enable greater use of third-party services; encourage uniform data reporting; provide funds supporting family involvement; make community disclosure statements more accessible; and offer owners and operators incentives to facilitate access for consumers with fewer resources. Attention to these and other recommendations may help assisted living live up to its name.Publisher's note: Many of these ALF recommendations may be helpful in hospice, too...

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[Honoring Nurses Week] Too many nurses are being assaulted. Some say they are being blamed for the attacks.

05/10/24 at 03:05 AM

[Honoring Nurses Week] Too many nurses are being assaulted. Some say they are being blamed for the attacks. Chief Healthcare Executive; by Ron Southwick; 5/9/24 With disturbing regularity, nurses in hospitals and other healthcare settings are being physically assaulted and verbally harassed. More than half of emergency nurses say they’ve been assaulted or threatened within the past 30 days, according to the Emergency Nurses Association. In a separate study, researchers found that healthcare workers faced at least one violent or aggressive incident for every 40 hours worked, according to findings published by The Joint Commission Journal on Quality and Patient Safety. With the observance of National Nursing Week, the increased violence in healthcare can’t be ignored. Nursing leaders say the regular exposure to violence or threatening behavior is one factor adding to stress and burnout of nurses and, in some cases, spurring them to seek new jobs.

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