Literature Review

Advance care planning reaches underserved across U.S. recruitment continues for National Institutes of Health (NIH) ResearchHospice Foundation of America; 1/18/24Community outreach leaders and liaisons are urged to apply to serve as hosts for the Project Talk Trial, a national, 5-year research project funded by National Institutes of Health that seeks to evaluate the effectiveness of advance care planning conversations and whether those discussions result in advance care planning actions. ... The project is specifically focused on underserved communities of people who historically have the poorest access to healthcare services and the lowest engagement in advance care planning, which include racial and ethnic minorities, low-income individuals, and rural populations.

Nothing can dim the light which shines from within. ~Maya Angelou

The importance of emotional support services in mental healthYonkers Times, 1/8/24... ROLE IN HOSPCE CARE: In hospice settings, emotional support is crucial for helping both patients and their families manage the complex emotions associated with terminal illness. This support includes providing a safe space for expressing feelings like fear, grief, and anxiety and offering coping strategies. It aims to ease the emotional burden and improve the quality of life ..., recognizing the profound impact that a terminal diagnosis can have on both patients and their loved ones.

Provider partnerships driving palliative care growthHospice News, by Holly Vossel; 1/8/24An increasingly diverse base of health care providers have taken an interest in the palliative care space, a trend that could be indicative of how strategic growth is taking shape in the field. ... A range of palliative care joint ventures, care collaborations and partnerships have evolved in recent years as more health care providers work to address the needs of a swelling aging population.

Federal scientists conclude there is credible evidence for certain medical uses of marijuanaPolitico, by Natalie Fertig; 1/12/24The Department of Health and Human Services concluded that marijuana is less harmful than other dangerous drugs and that there is some evidence of its medical benefits in recommending loosening federal restrictions on the drug. For the last 60-plus years, cannabis has been classified as a Schedule I drug — the same as heroin — under the Controlled Substances Act, which means it’s a substance of high abuse potential and no accepted medical use. Bloomberg first reported in August that HHS had recommended marijuana be moved to Schedule III, and the release of these documents on Friday confirms that.Publisher note: The full FDA report can be found here.

CDC map shows dramatic increase in illness nationwide: See where it’s worstNexstar Media Wire News / The Hill, by Alix Martichoux; 1/5/24What a difference a week can make. New data released by the Centers for Disease Control and Prevention Friday shows an 18% jump in people testing positive for influenza last week. The number of people going to the doctor with symptoms of respiratory illness — whether it be the flu, COVID, RSV, or none of the above — also continues to trend upward. Now, according to the CDC, 21 states and New York City are experiencing “very high” levels of sickness.

Journal of Aid-in-Dying MedicineAmerican Clinicians Academy on Medical Aid in Dying has begun a new journal; 12/23.The Journal of Aid-in-Dying Medicine is an independent, peer-reviewed journal focused on the clinical aspects of aid-in-dying care in the United States. Articles published in the Journal cover a wide range - from academically-detailed investigations to editorials and review articles, from poetry to photography/art. Authors will include clinicians ranging from doctors to doulas, pharmacists to chaplains, nurses to trained end-of-life volunteers.

Live discharge of hospice patients with Alzheimer’s Disease and related dementias: A systematic reviewAm J Hosp Palliat Care, by Stephanie P Wladkowski, Cara L Wallace, Kathryn Coccia, Rebecca C Hyde, Leslie Hinyard, Karla T Washington; 2/24Hospice is intended to promote the comfort and quality of life of dying patients and their families. When patients are discharged from hospice prior to death (ie, experience a "live discharge"), care continuity is disrupted. This systematic review summarizes the growing body of evidence on live discharge among hospice patients with Alzheimer's Disease and related dementias (ADRD), a clinical subpopulation that disproportionately experiences this often burdensome care transition.

Medical marijuana for pain management in hospice care as a complementary approach to scheduled opioids: A single arm studyAm J Hosp Palliat Care, by Theodore Zanker, Joseph Sacco, James Prota, Michelle Palma, Kyoung A Viola Lee, Ruixiao Rachel Wang, Yixuan Liang, James Cunningham, Mona Mackary, Polina Ovchinnikova; 12/23Combination medical cannabis/opioid therapy showed statistically significant pain relief and may have the potential for reducing opioid dose and mitigating opioid toxicity, offering a safe pain management alternative to opioids alone for patients in end-of-life care settings, and warrants further investigation in larger controlled trials.

Nurse and social worker palliative telecare team and quality of life in patients with COPD, heart failure, or interstitial lung disease: The ADAPT randomized clinical trialJAMA Network, by David B. Bekelman, MD, MPH; William Feser, MS; Brianne Morgan, BSN; Carolyn H. Welsh, MD; Elizabeth C. Parsons, MD; Grady Paden, MD; Anna Baron, PhD; Brack Hattler, MD; Connor McBryde, MD; Andrew Cheng, MD; Allison V. Lange, MD; David H. Au, MD, MS; 1/16/24Can a nurse and social worker palliative telecare team improve quality of life in outpatients with chronic obstructive pulmonary disease (COPD), heart failure (HF), and interstitial lung disease (ILD)? For adults with COPD, HF, or ILD at high risk of hospitalization and death and poor quality of life, a nurse and social worker palliative telecare team demonstrated clinically meaningful improvements in quality of life at 6 months.Publisher note: JAMA Network published two palliative care clinical trials in this issue (1: Default palliative care consultation for seriously ill hospitalized patients: A pragmatic cluster randomized trial, and 2: Nurse and social worker palliative telecare team and quality of life in patients with COPD, heart failure, or interstitial lung disease: The ADAPT randomized clinical trial). There is also an editorial on both of these articles: A tale of 2 palliative care trials: Developing sustainable and transferable models by Ashwin A. Kotwal, MD, MS; Lauren J. Hunt, RN, PhD; Alexander K. Smith, MD, MS, MPH, and an audio interview with Alexander K. Smith, MD, MS, MPH, Patient-centered palliative care.

Processes and lessons learned in establishing the Palliative Care Research Cooperative's Qualitative Data Repository in Serious Illness and Palliative CareOSF Preprints, by Salimah H. Meghani, Kim Mooney-Doyle, Amber Barnato, Kathryn Colborn, Riley Gillette, Krista Harrison, Pam Hinds, Dessi Kirilova, Kathleen Knafl, Dena Schulman-Green, Kathryn Pollak, Christine S. Ritchie, Jean Kutner, and Sebastian Karcher; 12/23Data sharing is increasingly an expectation in health research since implementation of the National In-stitutes of Health Data Management and Sharing Policy. Qualitative studies are not exempt from this data sharing requirement. Recognizing this trend, the Palliative Care Research Cooperative Group (PCRC) re-alized the value of creating a de-identified qualitative data repository to complement its existing de-identified quantitative data repository.

Substance use disorder in aging and serious illnessGeriPal podcast with Eric Widera, Alex Smith, Katie Fitzgerald Jones, Jessica Merlin, Devon Check; 1/18/24The CDC’s Guideline for Prescribing Opioids for Chronic Pain excludes those undergoing cancer treatment, palliative care, and end-of-life care. In doing so, it seems to give the impression that pain seen in cancer is inherently different than pain seen in other conditions and that those with cancer may not have the same risk for opioid use disorder as compared to other conditions.

St. Jude Home Care is first U.S. pediatric home health agency to earn new category of industry certificationPress release; 1/18/24St. Jude Children’s Research Hospital Home Care LLC earns dual certfication in pediatrics and home health from Community Health Accreditation Partners (CHAP), an independent, non-profit, accrediting body for home and community-based healthcare organizations. St. Jude Home Care LLC is the nation’s first agency to achieve that distinction. CHAP is the only organization in the U.S. that grants a discrete pediatric certification to home health agencies.