Literature Review
Breaks for caregivers: Atlanta nonprofit helps parents of medically fragile children
10/15/24 at 03:00 AMBreaks for caregivers: Atlanta nonprofit helps parents of medically fragile children GPB PBS - NPR, Atlanta, GA; by Ambria Burton; 10/14/24 ... The Georgia Division of Family & Children Services (DFCS) defines medically fragile children as children with "medical status that can rapidly deteriorate, resulting in permanent injury or death; one that requires medical care and/or technology to maintain health; and/or a condition that requires extraordinary supervision and observation." The Georgia-based Fragile Kids Foundation reports that there are about 13,000 medically fragile children in Georgia, and the Georgia Pediatric Program (GAPP) requires a waiver to provide services to medically fragile children with multiple system diagnoses, including nursing and personal care support services at homes and communities. The National Center for Pediatric Palliative Care Homes (NCPPCH) aims to provide a pediatric respite home in every state, and Life House Atlanta is a nonprofit public charity aiming to open the first pediatric palliative care home in Atlanta — the first in the Southeast overall.
Today's Encouragement: If you love the work you are doing, ...
10/15/24 at 03:00 AMIf you love the work you are doing, then you will love Tuesday! ~ Catherine Pulsifer
7 reasons leadership soft skills are imperative for growth
10/15/24 at 03:00 AM7 reasons leadership soft skills are imperative for growth Forbes; by Brent Gleeson; 10/11/24 In high-performance organizations, leaders often prioritize technical know-how and measurable metrics. But dismissing soft skills as unimportant is a critical mistake that can lead to team breakdowns, missed opportunities, and poor results. According to a 2023 Harvard Business report, 76% of respondents identified empathy, communication, and the ability to manage conflict as essential leadership skills for driving team effectiveness, especially in diverse and remote work environments. Leaders who lack these soft skills may struggle to build trust and create psychologically safe workplaces, which are essential for team cohesion and innovation in high-performance settings. But organizations must adopt a deliberate, strategic, and deeply integrated approach to developing soft skills in order to maximize ROI, ensuring that these efforts are aligned with the company’s culture, core values, and business objectives. ... [Click on the title's link for its list.]
Pa. nonprofit to close; more than 100 people to be laid off
10/15/24 at 03:00 AMPa. nonprofit to close; more than 100 people to be laid off Penn Live Patriot News; by Daniel Urie; 10/14/24More than 100 people will be laid off at a Philadelphia nonprofit. The Visiting Nurse Association of Greater Philadelphia has filed a Worker Adjustment and Retraining Notification notice with the Pennsylvania Department of Labor & Industry informing the state it will close, and that 114 people will be laid off at 4601 Market St. The nonprofit is expected to close on Oct. 28 but is subject to change based on client needs and operational issues. The Visiting Nurses Association of Greater Philadelphia is closing after 138 years, according to WHYY. The VNA’s home health care program had about 239 patients as of last month, and another 54 patients were being cared for in hospice and palliative care, the WHYY report said. The following employees will be laid off: [Click on the title's link for the list of roles and number of employees.]
A Life: James Heffernan ‘made a life out of appreciating and loving literature’
10/15/24 at 03:00 AMA Life: James Heffernan ‘made a life out of appreciating and loving literature’ Valley News, Hanover, NH; by Elle Muller; 10/12/24 As a Dartmouth professor, writer, and father, James Heffernan inspired those around him with his love of literature and passion for life. Heffernan’s children, Virginia and Andrew, affectionately called their father’s lust for life, “Heffervessence.” “His life was shaped by what he loved,” Heffernan’s son, Andrew, said. “He found literature early on and he was deeply passionate about it.” Demonstrating the vivacity and enthusiasm that had long characterized him, Heffernan, who died in July at age 85 of metastatic prostate cancer, wrote 100,000 words of his memoir in the first few months of hospice care.
A new Hope(West CEO): HopeWest CEO resigns, assures smooth transition
10/15/24 at 03:00 AMA new Hope(West CEO): HopeWest CEO resigns, assures smooth transition The Daily Sentinel, Grand Junction, CO; by Jace Dicola; 10/13/24 HopeWest is on the search for a new Chief Executive Officer.According to current HopeWest CEO Cassie Mitchell, her departure is bittersweet, but the 30-year-old or ganization couldn’t be in better shape for a smooth transition. Mitchell will remain CEO until the end of this year after her successor is selected. HopeWest is a nonprofit provider of the county’s Program of All-Inclusive Care for the Elderly and regional hospice, palliative and grief services. “It’s been a good two and a half years,” Mitchell said. “The organization is in a really strong place: quality is good, sustainability is good and we’re still 100% committed to our nonprofit, community-based mission.” The departure from HopeWest — to return to her home state of Kentucky — stems from a job opportunity in Mitchell’s old stomping grounds that will allow her to help with her faraway family’s “pressing” needs. She will serve as COO for another serious-illness health care provider currently amid a merger between two nonprofits.
A compassionate guide to caring for someone with dementia: 5 essential tips
10/15/24 at 03:00 AMA compassionate guide to caring for someone with dementia: 5 essential tips NBC-4 Washington, DC; 10/14/24 According to the World Health Organization, more than 55 million people worldwide are living with dementia, with over 10 million new cases each year. Dementia encompasses a range of brain conditions that lead to a decline in cognitive function, affecting a person's ability to manage everyday tasks. While the disease can present unique challenges for both medical professionals and caregivers, there is hope in the growing understanding of how to best support those affected. ...
Kaiser Health Care: Navigating Aging: Older men’s connections often wither when they’re on their own
10/15/24 at 03:00 AMKaiser Health Care: Navigating Aging: Older men’s connections often wither when they’re on their own Tahlequah Daily Press; by Judith Graham; 10/12/24 At age 66, South Carolina physician Paul Rousseau decided to retire after tending for decades to the suffering of people who were seriously ill or dying. It was a difficult and emotionally fraught transition. … Seeking a change of venue, Rousseau moved to the mountains. … Soon, a sense of emptiness enveloped him. … His work as a doctor had been all-consuming. Former colleagues didn’t get in touch, nor did he reach out. His wife had passed away after a painful illness, … His isolation mounted as his three dogs, his most reliable companions, died. Rousseau was completely alone — without friends, family, or a professional identity — and overcome by a sense of loss. “I was a somewhat distinguished physician with a 60-page resume,” Rousseau, now 73, wrote in the Journal of the American Geriatrics Society in May. “Now, I’m ‘no one,’ a retired, forgotten old man who dithers away the days.” In some ways, older men living alone are disadvantaged compared with older women in similar circumstances. Research shows that men tend to have fewer friends than women and be less inclined to make new friends. Often, they’re reluctant to ask for help.
Hospice in a hurricane: How Empath Health responded to back-to-back disasters
10/15/24 at 02:00 AMHospice in a hurricane: How Empath Health responded to back-to-back disasters Hospice News; by Jim Parker; 10/11/24 Hospice providers in the southeastern United States are reeling from the impacts of two massive hurricanes that have occurred during the past two weeks. ... The Florida-based hospice and senior services provider Empath Health saw the majority of its service region affected by [Hurricane Milton], which caused substantial damage to infrastructure in many communities. Empath reported no major injuries among its employees, according to CEO Jonathan Fleece. However, some employees did lose entire homes or experienced significant damage, as well as cars and other essentials. ... “We do our best through pre-storm planning to come up with our communication plans with our patients and their families, ...” Fleece told Hospice News. “When we can’t reach people by phone, once we have any kind of access to roads, we will do our very best to do some sort of a check in.” These efforts are coordinated through an emergency management team, led by commander Matt Chaloux, that engages in disaster planning and response, Fleece said. Building on lessons learned from Hurricane Ian in 2022, Empath also established a mobile response unit — a vehicle designed to provide clinical, communications and logistical support during catastrophic events. The unit is modeled after similar vehicles used by the Federal Emergency Management Agency. Empath Health has set up a fund to aid employees who were affected by the hurricanes, helping to provide them with housing, transportation, child care and other needs, according to a statement posted by Fleece on LinkedIn. The organization's board of trustees has pledged to mathc donations dollar-for-dollar up to $500,000.Editor's note: Click here to donate to Empath Helath's fund to aid employees.
Palliative care use low in patients with heart failure in the United States
10/14/24 at 03:15 AMPalliative care use low in patients with heart failure in the United States Cardiology Advisor; by Ron Goldberg; 10/10/24 Palliative care (PC) use for end-of-life care in heart failure (HF) in the United States is low, with geographic and racial variations in access and application, and PC is becoming necessary for younger, healthier patients seeking a better quality of life, according to study findings published in the Journal of the American Heart Association. ... "PC for HF remains low in the United States. Racial and geographic variations in access and use of PC exist for patients with HF,” the investigators concluded. “These findings suggest that palliative care is not only an end-of-life care for older patients with HF but can be necessary for younger, healthier patients with needs for advanced therapies and for better quality of life.”
Deals: Tracking mergers, acquisitions, partnerships in healthcare
10/14/24 at 03:00 AMDeals: Tracking mergers, acquisitions, partnerships in healthcareModern Heathcare; by Modern Healthcare staff; 10/10/24, 10:40am ET
Women’s Club donates to local hospice care workers
10/14/24 at 03:00 AMWomen’s Club donates to local hospice care workers The Point/Plover Metro Wire, Portage County, WI; by Metro Wire Staff; 10/11/24 The GFWC-Stevens Point Women’s Club donated more than 60 caregiver baskets to Heartland Hospice in Stevens Point during its Oct. 10 meeting. The baskets were assembled by members to show gratitude for the care hospice workers provide to their patients. The GFWC-Stevens Point Women’s Club, founded in 1895, is part of the General Federation of Women’s Clubs (GFWC), an international organization established in 1890 that focuses on community improvement through volunteer service.Editor's note: November's Hospice & Palliative Care Month is near. What community groups might want to provide simple, meaningful thank-you's to your hospice staff?
Clinical scenario: Patient care through POLST
10/14/24 at 03:00 AMClinical scenario: Patient care through POLST The Hospitalist; by Mihir Patel, MD, MPH, FACP, CLHM, SFHM; 10/10/24 Physician orders for life-sustaining treatment (POLST) forms are crucial tools in ensuring that patient treatment preferences are respected and followed, particularly during medical emergencies. As hospitalists, integrating POLST into patient care can significantly enhance decision-making processes, aligning treatments with the patient’s wishes. Here, we present a clinical scenario demonstrating the application of POLST in a hospital setting, emphasizing the importance of electronic documentation in the patient’s medical record. ... [Click on the title's link for this Case Study, which includes the Case, Hospitalist Actions,Outcome, and Conclusion.]
Why recent outages are a wake-up call for healthcare and regulators
10/14/24 at 03:00 AMWhy recent outages are a wake-up call for healthcare and regulators Forbes; by Chris Bowen; 10/11/24 When the CrowdStrike outage first started to show itself in the early hours of that hazy July morning, it was hard to believe that this wasn’t a hack or cyberattack. I was driving in my car that morning and looked up to see a digital billboard glitch into the "blue screen of death" before my eyes. Flights were grounded, travel was delayed, and nearly every Windows machine in the world was unusable. It was total mayhem. Clearly, this was an outage of major proportions, as millions of Windows systems worldwide essentially cratered. Caused by a faulty misconfiguration, we saw firsthand how the very digital advancements that have helped transform and modernize our world also expose us to more vulnerabilities than ever. ... In healthcare, this event laid bare the vulnerabilities we cannot overlook—the gaps that directly threaten patient care and safety. It’s a clear reminder of our industry’s utmost responsibility to patient privacy and well-being. ...
Top questions people ask about hospice
10/14/24 at 03:00 AMTop questions people ask about hospiceThe Star News, Medford, WI; 10/9/24
Integration of palliative care in the management of multiple chronic conditions: An expert consensus paper with policy implications
10/14/24 at 03:00 AMIntegration of palliative care in the management of multiple chronic conditions: An expert consensus paper with policy implications George Washington University; by Kim Kuebler, DNP, ANP-BC, FAAN, Todd Monroe, PhD, RN, FAAN, Richard Ricciardi, PhD, CRNP, FAAN, Cheryl Westlake, PhD, ACNS-BC, FAAN, Matthew Sorenson, PhD, ANP-C, FAAN, Jane Pederson, MD, MS, Michael Neft, PhD, CRNA, FAAN, Sandra A. Mitchell, PhD, CRNP, FAAN, Kathryn Daniel, PhD, AGNP, FAAN, Susan De Santo-Madeya, PhD, APRN-CNS, FAAN, Susan Renda, DNP, ANP-BC, FAAN, Elizabeth Henneman, PhD, RN, FAAN, Eduardo Bruera, MD; 10/10/24 This paper was jointly developed from members of the American Academy of Nursing Expert Panels on Palliative and End of Life Care, Primary Care, Aging, Acute and Critical Care, and two expert physicians. Purpose: The overarching goal is to promote the integration of palliative care as symptom management into the primary care setting to transform care for patients living with multiple chronic conditions. ... Discussion: Earlier palliative interventions reduce disease exacerbation, prevent hospitalization, maintain physical functioning, and support health-related quality of life. Conclusion: This is a needed paradigm shift as the nation’s aging population escalates, Americans are living longer, and the healthcare costs for the nation are unprecedented. [Click on the title's link for this full description; then scroll down to "Download PDF" for the actual paper.]
Today's Encouragement: The best preparation for good work tomorrow is ...
10/14/24 at 03:00 AMThe best preparation for good work tomorrow is to do good work today. ~ Elbert Hubbard
Home health providers, CMS raise red flags over delayed access
10/14/24 at 03:00 AMHome health providers, CMS raise red flags over delayed access Modern Healthcare; by Diane Eastabrook; 10/11/24 Delayed home health access for Medicare beneficiaries is increasingly raising alarms from the Centers for Medicare and Medicaid Services and the home health industry as providers place blame on staff shortages and the program's reimbursement rates. More than a third of Medicare fee-for-service beneficiaries referred to home health following hospitalizations did not receive services within seven days of discharge, according to an analysis of 2023 Medicare claims from healthcare analytics company CareJourney. The report echoes a similar study published by the Commonwealth Fund in July, as well as concerns CMS raised about access in its proposed 2025 home health pay rule. ... Years of low Medicare reimbursements are taking a toll on the home health companies trade groups represent, said William Dombi, president emeritus of the National Association of Home Care and Hospice, which is part of the National Alliance for Care at Home, and Cunningham.
14 president, CEO job openings at large health systems
10/14/24 at 03:00 AM14 president, CEO job openings at large health systems Becker's Hospital Review; by Kelly Gooch; 10/10/24 Large health systems are seeking leaders for roles at the top of their hospitals across the U.S. Below are job listings active on the job boards of St. Louis-based Ascension, Franklin, Tenn.-based Community Health Systems, Chicago-based CommonSpirit Health and King of Prussia, Pa.-based Universal Health Services as of Oct. 10 for president and CEO positions with their hospitals or subsidiaries, organized by role.
National Health Investors announces $121.3 million acquisition, largest deal since 2020; pipeline at $305 million
10/14/24 at 03:00 AMNational Health Investors announces $121.3 million acquisition, largest deal since 2020; pipeline at $305 million McKnights Senior Living; by Lois A. Bowers; 10/10/24 National Health Investors is acquiring a portfolio of 10 assisted living and memory care communities in North Carolina for $121.3 million in what the real estate investment trust says is its largest deal since 2020, the year the COVID-19 pandemic started. The Murfreesboro, TN, REIT announced the transaction Thursday morning in a business update. The properties, which have a combined 522 units, will continue to be managed by Spring Arbor. NHI says that the portfolio bears “no material impact” from Hurricane Helene.
How poor health literacy can diminish access to palliative care
10/14/24 at 03:00 AMHow poor health literacy can diminish access to palliative care Hospice News; by Jim Parker; 10/11/24 Low health literacy among seriously ill patients can impede access to palliative care and complicate efforts to improve health equity. Health literacy is the degree to which individuals can obtain, process and understand basic health information and services needed to make appropriate health decisions, according to the Institute of Medicine. A health illiterate patient may have a strong overall ability to read or have an advanced education but have a limited understanding of information specific to health care. ... The issue deepens when it comes to palliative care. An estimated 71% of adults in the United States are unaware that palliative care exists, studies have shown, even though nearly 80% of consumers who received background information on palliative care say they would choose it for themselves or their loved ones.
Hurricane Milton challenges home-based care's adaptability
10/14/24 at 03:00 AMHurricane Milton challenges home-based care's adaptability Modern Healthcare; by Diane Eastabrook; 10/9/24 [Note, posted just prior to landfall, Wed. Oct. 9.] Hurricane Milton is set to test the resilience of home-based care providers along the west coast of Florida. While hundreds of healthcare sites reported evacuations ahead of the hurricane, some companies that provide care to patients where they live, including CenterWell and Medically Home, continued to send staff into patients’ homes in the hours before the storm hit. Many home-based care companies are ready to activate contingency plans to keep providing care to patients during and after the hurricane. ... Here is how some home-based care providers prepared for Hurricane Milton. ...
Janey Godley says it's important to 'talk about death' in hospice update
10/14/24 at 03:00 AMJaney Godley says it's important to 'talk about death' in hospice update STV News; 10/8/24 Janey Godley has said it is important to “talk about death” as she shared an update on her condition from her hospice.The Scottish comedian is currently receiving end-of-life care after receiving the news that her cancer had spread, after initially being diagnosed with ovarian cancer in 2021. She shared the “devastating news” in September after cancelling her upcoming autumn tour, adding that her “chemo ran out of options” and she couldn’t take anymore. In a video from the hospice, Godley thanked everybody as she confirmed she has had some issues with sickness – and said it is “hard” to speak about death but these are conversations we “all have to have.”
5 cornerstones of hospitals' hurricane emergency planning
10/14/24 at 02:00 AM5 cornerstones of hospitals' hurricane emergency planning Becker's Hospital Review; by Stefanie Asin; 10/9/24 As the number of natural disasters grows in the U.S. and in the world, so must the readiness of hospitals and other healthcare facilities. In 2023, the U.S. saw 28 billion-dollar natural disasters, surpassing the 2020 total. Worldwide, there was a fivefold increase in the number of weather-related disasters in the last 50 years. Healthcare facilities must be diligent and prepared as the incidents of natural disasters are not expected to slow down. In fact, they are predicted to get worse. Recent events have underscored this necessity. ... [Click on the title's link to continue reading.]
Caring for the family caregivers made ill by their work
10/14/24 at 02:00 AMCaring for the family caregivers made ill by their work Penn LDI; by Hoag Levins; 10/11/24 A randomized controlled trial (RCT) led by LDI Senior Fellow Barbara Riegel, PhD, RN, of the University of Pennsylvania School of Nursing has identified a virtual health coaching intervention that helped lessen stress for unpaid family caregivers who often neglect their own care. Published in Circulation: Heart Failure, the study focused on unpaid family caregivers providing care to adults with chronic heart failure (HF)—a condition that occurs when the heart can’t pump enough blood for the body’s minimal needs. Because the disease has a variety of symptoms and manifestations that limit palliative care and respite services, it places a heavy burden on home caregivers who are “are commonly overwhelmed and face emotional, psychosocial, and financial risks that result in a decline in their own health and wellness.”Editor's note: Family Support Through Serious Illness is an online video library of 30 brief, state-of-the-art videos for family caregivers, used upstream in the trajectory of serious illness and through palliative/hospice care. These pair with a staff video training, "Empathy for Hospice Professionals." These are designed and provided by Composing Life Out of Loss, a sponsor for this newsletter.