Literature Review

Great things in business are never done by one person; they’re done by a team of people. – Steve Jobs

Myotonic dystrophy type 1: palliative care guidelinesBMJ Supportive & Palliative Care, by Derek Willis, Tracey Willis, Claire Bassie, Gail Eglon, Emma-Jayne Ashley, and Chris Turner; 1/22/24Palliative care for adults with neuromuscular conditions is an emerging field. Previous guidelines regarding myotonic dystrophy and palliative care have only mentioned end-of-life care and little else. The following guidelines have been written using national experts as a description of best practice as part of the Dystrophia Myotonica National Care Guidelines Consortium.Requires subscription or purchase

The challenges facing male caregiversNext Avenue, by Sophie Okolo; 1/23/24When business owner Mark Horst (not his real name) of Pompton Plains, New Jersey, first found out his wife of 37 years was diagnosed with Alzheimer's, he didn't know what the journey would entail. Of all caregivers in the United States, 16 million, or 40%, are men. Of these men, 63% identified as primary caregivers. 

Norwell hospice honors Weymouth nurse, 99, with a Nightingale pin. "I felt so proud!" The Patriot Ledger, by Sue Scheible; 1/23/24Retired nurse Betty Beecher of Weymouth, nearing 100, describes receiving a Nightingale pin from the NVNA and Hospice, where she now is a patient.

Fortifying the workforce: Employers' guide to critical illness preparednessiCrowdNewswire; 1/22/24In today’s ever-changing and uncertain world, employers are faced with the daunting task of ensuring the well-being and productivity of their workforce. One aspect often overlooked is the preparedness for critical illnesses, which can profoundly impact employees and the organisation.

Cutting hair, growing care: Stylists volunteer for hospice patients Montrose Press, by Katharhynn Heidelberg; 1/22/24... [Kathy] King is among several stylists who volunteer to cut hospice patients’ hair — just a way, they said, of giving back by making others feel good. ... “Contributing is probably the highest gift you can give,” said King. “As far as HopeWest goes, I lose the word sometimes as to what they do, and what they do for the community. I’m just so proud to (volunteer) for them.”

The Long Decline: Health care access grows difficult in shrinking rural communitiesAlabama Reflector, by Alanda Rocha; 1/18/24The lack of health care providers in rural Alabama is stark. Most of Alabama’s rural counties have significantly more people per primary care physician than urban counties. Butler County ... has just one primary care physician per 4,900 residents ... As rural Alabama continues a decades-long population collapse, residents who remain — many of them older people — face increasing barriers to health care, a trend seen around the nation.

Pressing questions about rural telehealth access and investments put innovation in dangerMcKnights Long-Term Care News, by Kimberly Marselas; 1/22/24Proven healthcare technologies can help improve patient care and boost staff confidence, but in many rural areas, one major impediment remains: lack of high-speed internet.

Number of Georgians dropped from Medicaid nears 500,000 The Atlanta-Journal Constitution, by Ariel Hart; 1/22/24Georgia has dropped at least 488,000 from Medicaid, the government health insurance for the poor, as part of a federally mandated project to ensure those covered by the program qualify to remain on it.

Riding off with a legacyNext Avenue, by Kate St. Vincent Vogl; 1/22/24A story about women breaking barriers was bigger than my dying friend and me. I promised to see it through. ...  And in the fall of 2019, from her hospice bed, my friend handed over her whole manuscript. ... Turned out the founder of the Women's International Motorcycle Association (WIMA) also encouraged her followers to say yes — to motorcycle riding. And the thrill of independence. [Her dying wish is published: Iron Horse Cowgirls - Louise Scherbyn and the Women Motorcyclists of the 1930s and 1940s.]

Lions' Amon-Ra St. Brown sends signed jersey to fan in hospice who dyed his hair blueNFL, by Erin Walsh; 1/20/24Larry Benjamin, a Detroit Lions fan receiving hospice care who dyed his hair blue for the team's playoff run, received a very special gift from star wide receiver Amon-Ra St. Brown this weekend. St. Brown sent Benjamin, a lifelong Lions fan, an autographed jersey after hearing about his gesture of support for the team. Editor's Note: Follow-up to the story we posted on 

January 2024 MedPAC and MACPAC Data Book: Beneficiaries Dually Eligible for Medicare and MedicaidMedPAC; 1/22/24View and download the Data Book