Literature Review

Hospice patient enjoys fishing adventureHickory Daily Record; 12/30/23Carolina Caring’s compassionate hospice and palliative care empowers patients to make the most of each day as they navigate serious illness. One patient, Barbara, has been under hospice care with Carolina Caring and has shared ... with her nurse, Kelly Avery, and social worker, Megan Elmore ... that her fondest memories were of fishing with her family on Lake Hickory. After being diagnosed with chronic obstructive pulmonary disease and chronic heart failure, Barbara’s symptoms were getting increasingly harder to manage. She went from fishing once a week to once a month, to not having fished in over two years. ... Thanks to multiple visits a week from her Carolina Caring care team, Barbara was able to build the confidence to once again cast her line and enjoy the great outdoors. ... Kelly and Megan coordinated with the Carolina Caring Volunteer and Foundation Departments to secure fishing licenses and gather together a spread of Barbara’s favorite foods at Dallas Park & Recreation ponds. For just the second time in the past year, Barbara left the house.

Rosalynn Carter’s impact on caregiversKevin MD Blog, by R. Lynn Barnett; 12/25/23... As caregivers, we are the voice for others, but we also need to be a voice for ourselves. ... I wasn’t prepared, as many people aren’t, for the fiscal and physical aspects of caregiving. ... The toll that caregiving can take is often underrated, understated, and under-appreciated. ... Rosalynn Carter was known as a “Steel Magnolia,” showing the same inner fortitude and mettle, combined with grace, of the main characters in the film of the same name. I think all of us caregivers become steel magnolias. It’s not that we deserve a medal for our actions; we just deserve a little peace.[Editor's Note, Joy Berger for Hospice and Palliative Care Today: Rosalynn Carter founded the Institute for Caregiving 35 years ago, preparing for the surge of Baby Boomers' aging and caregiving needs. Her memorable quote lives on: "There are only four kinds of people in the world--those who have been caregivers, those who are currently caregivers, those who will be caregivers, and those who will need caregivers." Visit www.rosalynncarter.org for more information.]

Live and let live.Editor's note: I recently listened to an exegetical analysis of this phrase - i.e., consider the meaning of each word individually, then the first two words together, etc., until considering the entire phrase. Give it a shot...

Decision-making for hospitalized incarcerated patients lacking decisional capacityJAMA Network, by Sarah Batbold, BS; Jennifer D. Duke, MD; Kirsten A. Riggan, MA, MS; Erin S. DeMartino, MD; 12/23How does decision-making occur for hospitalized incarcerated persons lacking decisional capacity? In this qualitative study of documentation for 43 hospitalized incarcerated persons without decisional capacity, prison employees appeared to have been involved in decisions for half of the admissions, including participating in family meetings and being asked to authorize invasive procedures.

The ethics of refusing lifesaving treatment following a failed suicide attemptJ Clin Ethics, by Megan K Applewhite, Jacob Mago, Wayne Shelton; Fall 2023Injuries from failed suicide attempts account for a large number of patients cared for in the emergency and trauma setting. While a fundamental underpinning of clinical ethics is that patients have a right to refuse treatment, individuals presenting with life-threating injuries resulting from suicide attempts are almost universally treated in this acute care setting. Here we discuss the limitations on physician ability to determine capacity in this setting and the challenges these pose in carrying out patient wishes.Editor's note: An interesting ethical analysis of care following a suicide attempt that hospice professionals may find helpful.

Place of death before and during the COVID-19 pandemicJAMA Network, by Ben Teasdale, MPhil; Aditya Narayan, BS; Stephanie Harman, MD; Kevin A. Schulman, MD; 1/8/24As recently as 2015, dying at home became more common than dying in a hospital. The COVID-19 pandemic interrupted these trends, as the acute clinical course of severe infection shifted deaths back inside hospitals. Beyond the direct consequence of pandemic-related mortality, indirect associations of factors, such as workforce and resource limitations, disrupted the provision of end-of-life care more broadly, even for patients who were not directly infected with COVID-19. Three years after the start of the pandemic, we investigate the national and ongoing impact of the COVID-19 pandemic and place of death among individuals in the US.

What's in This For You? What's in This For Me?: A Win-Win Perspective of Involving Study Advisory Committee Members in Palliative Care ResearchJ Patient Exp., by Juanita Booker-Vaughns, Dawn Rosini, Romilla Batra, Garrett K Chan, Patrick Dunn, Robert Galvin, Ernest Hopkins 3rd, Eric Isaacs, Constance L Kizzie-Gillett, Margaret Maguire, Martha Navarro, Neha Reddy Pidatala, William Vaughan, Sally Welsh, Pluscedia Williams, Angela Young-Brinn, Kaitlyn Van Allen, Allison M Cuthel, Rebecca Liddicoat Yamarik, Mara Flannery, Keith S Goldfeld, Corita R Grudzen; 1/24Study advisory committees (SACs) provide critical value to clinical trials by providing unique perspectives that pull from personal and professional experiences related to the trial's healthcare topic. The Emergency Medicine Palliative Care Access (EMPallA) study had the privilege of convening a 16-person SAC from the project's inception to completion. The study team wanted to understand the impact this project had on the SAC members. In this narrative, we use reflective dialogue to share SAC members' lived experiences and the impact the EMPallA study has had on members both personally and professionally. We detail the (1) benefits SAC members, specifically patients, and caregivers, have had through working on this project. (2) The importance of recruiting diverse SAC members with different lived experiences and leveraging their feedback in clinical research. (3) Value of community capacity building to ensure the common vision of the clinical trial is promoted.

Saturday NewslettersResearch literature is the focus of Saturday newsletters - enjoy!

Sara McKay named Chief Executive OfficerHospice of Washington County press release; 1/11/24Hagerstown, Md., and Chambersburg, Penn.  – Sara McKay has been named Chief Executive Officer of Hospice of Washington County, Hagerstown, Md., and Franklin Hospice, Chambersburg, Penn., effective January 4, 2024. She succeeds Ernesto Lopez, who was named President of The Denver Hospice in Colorado in August 2023. McKay had been serving as Acting CEO of Hospice of Washington County and Franklin Hospice since last August.

New Hosparus care center for elderly nearing final approvalThe News-Enterprise, by Gina Clear; 1/11/24Known for hospice care for 45 years, Hosparus Health is expanding its mission with a new level of care at its Care Guide Partners PACE center in Elizabethtown (KY). Not yet open — the agency still is seeking approval from Medicare — the program is meant to offer services to elderly family members who need extra assistance, but might not want or be ready for full-time nursing care, Hosparus Health President and CEO David W. Cook said.

Executive personnel changes

Rural hospitals are caught in an aging-infrastructure conundrumFortune, by Markian Hawryluk and KFF Health News; 1/11/24Kevin Stansbury, the CEO of Lincoln Community Hospital in the 800-person town of Hugo, Colorado, is facing a classic Catch-22: He could boost his rural hospital’s revenues by offering hip replacements and shoulder surgeries, but the 64-year-old hospital needs more money to be able to expand its operating room to do those procedures.