Literature Review
Senior living providers can tap into $25 million grant to develop dementia-specific respite services
02/18/24 at 03:30 AMSenior living providers can tap into $25 million grant to develop dementia-specific respite servicesMcKnights Senior Living, by Kimberly Bonvissuto; 2/7/24Senior living operators who provide, or are considering providing, respite services for family caregivers of people living with dementia can apply for a piece of $20 million in grant funding. The Alzheimer’s Association will use a $25 million, five-year grant award from the US Department of Health and Human Services’ Administration for Community Living to establish a new Center for Dementia Respite Innovation tasked with making respite services and service providers more dementia-capable.
New paths could allow medical aid in dying for people with dementia
02/18/24 at 03:25 AMNew paths could allow medical aid in dying for people with dementia McKnight's Long-Term Care News, by Kristen Fischer; 2/7/24A lot of people who have dementia want to use medical aid in dying (MAID) to end their lives before they lose their decision-making capacity and other abilities. This hasn’t been allowed up until now but that could soon change, which could have implications for physicians, according to a new report.
Hospice providers must be better regulated
02/18/24 at 03:20 AMHospice providers must be better regulatedScientific American, 2/1/24 (updated from last week's publication)Too many hospice providers in the U.S. are run by private equity and for-profit corporations. A lack of regulation allows them to provide abysmal end-of-life care.
Part 2, Latest updates from CMS Office of Minority Health: Advancing health equity in rural, tribal, and geographically isolated communities FY2023 year in review
02/18/24 at 03:15 AMPart 2, Latest updates from CMS Office of Minority Health: Advancing health equity in rural, tribal, and geographically isolated communities FY2023 year in reviewCMS Office of Minority Health (CMS OMH); released 2/7/24 The Advancing Health Equity in Rural, Tribal, and Geographically Isolated Communities FY2023 Year in Review report, which outlined the FY 2023 CMS actions and initiatives aimed to enhance health care access and quality for rural, tribal, and geographically isolated communities, including the CMS Health Equity Framework and CMS Framework for Advancing Health Care in Rural, Tribal, and Geographically Isolated Communities.
Hospice Benefit Policy Manual updates related to the addition of Marriage and Family Therapists or Mental Health Counselors to the Hospice Interdisciplinary Team
02/18/24 at 03:10 AMHospice Benefit Policy Manual updates related to the addition of Marriage and Family Therapists or Mental Health Counselors to the Hospice Interdisciplinary TeamCMS; 1/22/24Change Request 13437 (PDF) purpose is to manualize changes to the hospice interdisciplinary group (IDG) to include Marriage and Family Therapists (MFTs) or Mental Health Counselors (MHCs). Publisher's note: Also see CMS Hospice Open Door Forum (November 29, 2023) Q&A.
Sunday Newsletters
02/18/24 at 03:00 AMSunday NewslettersTop read stories of the last week (in order) is the focus of Sunday newsletters - enjoy!
Today's Encouragement - from Dr. Mae Jemison
02/18/24 at 03:00 AMNever be limited by other people’s limited imaginations. — Dr. Mae Jemison
How good are we at reporting the socioeconomic position, ethnicity, race, religion and main language of research participants? A review of the quality of reporting in palliative care intervention studies
02/17/24 at 03:50 AMHow good are we at reporting the socioeconomic position, ethnicity, race, religion and main language of research participants? A review of the quality of reporting in palliative care intervention studiesPalliative Medicine, by Keerthika Selvakumaran, Katherine E Sleeman, Joanna M Davies; 2/24[UK] In 2018, a review of 18 clinical trials on the integration of palliative care into oncology, found that one-third did not report the race or ethnicity of participants, and a further one-third provided only broad categorisations such as ‘white’ versus ‘other’. The aim of this pragmatic review is to describe the quality of reporting in palliative and end-of-life care intervention studies, for social characteristics including socioeconomic position, ethnicity or race, religion and the main language of participants.
Individual socioeconomic factors have a greater impact on end-of-life care outcomes than regional factors
02/17/24 at 03:45 AMIndividual socioeconomic factors have a greater impact on end-of-life care outcomes than regional factorsJournal of Palliative Medicine, by William H. Gansa, Hannah Kleijwegt, Melissa Aldridge, Claire Ankuda; 2/24High quality of care at the end of life may be more associated with individual socioeconomic factors than regional indicators, including degrees of rurality. Clinicians should strive to recognize the interplay of individual characteristics and regional indicators to provide more personalized care.Publisher's note: Also see https://www.liebertpub.com/doi/10.1089/jpm.2023.0163.
Palliative sedation: ethics in clinical practice guidelines - systematic review
02/17/24 at 03:40 AMPalliative sedation: ethics in clinical practice guidelines - systematic reviewBJM Supportive & Palliative Care, by Martyna Tomczyk, Cécile Jaques, Ralf J Jox; 8/23Effective cooperation between palliative care clinicians and ethicists should be encouraged, in order to integrate in particular the crucial ethical issues of continuous deep sedation until death when developing or updating clinical practice guidelines on palliative sedation.
The administrative burden on palliative academic physicians
02/17/24 at 03:35 AMThe administrative burden on palliative academic physiciansJournal of Pain and Symptom Management, by Rida Khan, Michael Tang, Ahsan Azhar, Eduardo Bruera; 1/24Every faculty member spends annually an approximate average of 5,300 minutes on administrative activities (approximately the equivalent of 29 consults plus 133 follow-ups). Using the department net average per encounter, the approximate value of these encounters is $36, 936 for each faculty member (about 11 clinical days)... We recommend that regulatory agencies and institutions work together to better regulate this list of tasks and their frequency.
Perspectives on transfusions for hospice patients with blood cancers: A survey of hospice providers
02/17/24 at 03:30 AMPerspectives on transfusions for hospice patients with blood cancers: A survey of hospice providersJournal of Pain and Symptom Management, by Helen P Knight, Caitlin Brennan, Susan Lysaght Hurley, Anna J Tidswell, Melissa D Aldridge, Kimberly S Johnson, Edo Banach, James A Tulsky, Gregory A Abel, Oreofe O Odejide; 1/24We received 113 completed surveys (response rate = 23.5%). Of the cohort, 2.7% reported that their agency always offers transfusions, 40.7% reported sometimes offering transfusions, and 54.9% reported never offering transfusions... Most respondents (76.6%) identified lack of transfusion access in hospice as a barrier to hospice enrollment for blood cancer patients. The top intervention considered as "very helpful" for increasing enrollment was additional reimbursement for transfusions (72.1%).
Health care costs associated with hospice use for people with dementia in the US
02/17/24 at 03:25 AMHealth care costs associated with hospice use for people with dementia in the USHealth Affairs, by Melissa D Aldridge, Lauren J Hunt, Krista L Harrison, Karen McKendrick, Lihua Li, R Sean Morrison; 9/23Policy makers in the US are increasingly concerned that greater use of the Medicare hospice benefit by people with dementia is driving up costs... For community-dwelling people with dementia, Medicare costs were lower for those who used hospice than for those who did not, whether hospice enrollment was in the last three days ($2,200) or last three months ($7,200) of life, primarily through lower inpatient care costs in the last days of life...
Alzheimer's Disease and Related Dementias: Caregiver perspectives on hospice re-enrollment following a hospice live discharge
02/17/24 at 03:20 AMAlzheimer's Disease and Related Dementias: Caregiver perspectives on hospice re-enrollment following a hospice live dischargeJournal of Palliative Medicine, by Stephanie P Wladkowski, Susan Enguídanos; 10/23Three-quarters of participants (n = 16) would consider re-enrolling their loved one in hospice. However, some believed they would have to wait for a medical crisis (n = 6) to re-enroll, while others (n = 10) questioned the appropriateness of hospice for patients with Alzheimer's disease and related dementias if they cannot remain in hospice care until death.
Hidden disparities: How language influences patients' access to cancer care
02/17/24 at 03:15 AMHidden disparities: How language influences patients' access to cancer careNational Comprehensive Cancer Network, by Debbie W Chen, Mousumi Banerjee, Xin He, Lesley Miranda, Maya Watanabe, Christine M Veenstra, Megan R Haymart; 9/23Linguistic disparities exist in access to cancer care for non-English-speaking patients, emphasizing the need for focused interventions to mitigate systems-level communication barriers.
Patient Focus: When should people with heart failure who were admitted to the hospital think about palliative or hospice care?
02/17/24 at 03:10 AMPatient Focus: When Should People With Heart Failure Who Were Admitted to the Hospital Think About Palliative or Hospice Care? An Explanation of “Factors Associated with Mortality and Hospice Use Among Medicare Beneficiaries With Heart Failure Who Received Home Health Services”Journal of Cardiac Failure, by Spencer Carter, MD; Jennifer T. Thibodeau, MD, MSCS; 12/23Hospital stays for patients with heart failure are serious events that mean that the heart may be sicker. Some people with heart failure who are in the hospital are at higher risk of dying within 6 months after their hospital stay. This study describes differing characteristics of people who might be at higher risk of death and who may benefit from palliative or hospice care to better support them.Publisher's note: Also see https://onlinejcf.com/article/S1071-9164(23)00922-3/abstract.
Dr. Hillary Lum appointed Editor-in-Chief of Palliative Medicine Reports
02/17/24 at 03:05 AMDr. Hillary Lum appointed Editor-in-Chief of Palliative Medicine ReportsPress release / email; 2/12/24We are pleased to announce that Hillary Lum, MD, PhD has been appointed incoming Editor-in-Chief of Palliative Medicine Reports, published by Mary Ann Liebert, Inc. We warmly thank Dr. Christopher Jones for his tenure of leadership and dedication to the publication and the field. Dr. Lum serves as Associate Professor at University of Colorado and completed the MD-PhD program at the University of Wisconsin. Previously, Dr. Lum served as an Associate Editor on Journal of Palliative Medicine and is incredibly active in the community, serving as a member of the American Geriatrics Society and the American Academy of Hospice and Palliative Medicine.
Saturday Newsletters
02/17/24 at 03:00 AMSaturday NewslettersResearch literature is the focus of Saturday newsletters - enjoy!
Today's Encouragment - from Booker T. Washington
02/17/24 at 03:00 AMCharacter is power. – Booker T. Washington
Other Business Headlines of Interest, updated 2/15/24 per nasdaq.com
02/16/24 at 03:45 AMOther Business Headlines of Interest, updated 2/15/24 per nasdaq.com
9 recent hospital, health system CEO moves
02/16/24 at 03:00 AM7 recent hospital, health system CEO moves - updated Feb. 14Becker's Hospital Review, by Alexis Kayser; 2/14/24[Click on the title above for] ... hospital and health system CEO moves recently reported by Becker's.
Palliative care’s psychedelic future
02/16/24 at 03:00 AMPalliative care’s psychedelic futuretruthdig, by Jane C. Hu; 2/14/24In Oregon, hospice doctors are expanding the menu of treatments for end-of-life anxiety and depression.
Mayo steps up to plug care gaps as HSHS exits Wisconsin
02/16/24 at 03:00 AMMayo steps up to plug care gaps as HSHS exits WisconsinBecker's Hospital CFO Report, by Alan Condon; 2/12/24Mayo Clinic is striving to help close a significant gap in patient care in Western Wisconsin, where two hospitals and almost 20 clinics are expected to close in the coming months. The move comes as Springfield, Ill.-based Hospital Sisters Health System, currently a 15-hospital system, announced plans to abruptly exit the Wisconsin market.
The state of caregiving for 2024
02/16/24 at 03:00 AMThe state of caregiving for 2024McKnights Home Care, by Lance A. Slatton; 2/13/24A significant discrepancy has formed over the past decade between the number of people needing care and the number of professional caregivers available. This was significantly exacerbated in 2023, with caregivers becoming more exhausted than ever. Whether due to financial constraints or the struggling economy, almost 1 in 5 Americans who were providing care in 2023 were going unpaid.
Chapters CEO Andrew Molosky: Building an ecosystem of care around the seriously ill
02/16/24 at 03:00 AMChapters CEO Andrew Molosky: Building an ecosystem of care around the seriously illHospice News, by Jim Parker; 2/13/24Going forward, hospice and other post-acute providers are preparing to operate within a value-based ecosystem, and Florida-based nonprofit Chapters Health System is no exception. ... The organization has been hard at work in recent years to position itself for risk-based relationships and build out a continuum of care for chronically and terminally ill patients, while maintaining positive employee engagement.