Literature Review

Swiss couple walk 1,000 miles to Perranporth in Cornwall to support children's hospices Voice; by Andrew Townsend; 6/29/24 A couple have walked 1,000 miles from Switzerland to Cornwall to raise money for children’s hospices. Retired Swiss professor Rainer Zust, 65, and his partner Stephanie, and their two dogs Leo and Nettie covered the distance in 69 days, finishing the trek in Perranporth. Whilst walking in the UK, the couple raised around £1,000 for Children’s Hospice South West (CHSW). And while in Cornwall they visited the Little Harbour Children’s Hospice at St Austell.  

Palliative care nurses see us in our final hours — these are the life lessons they've learnt ABC News; by Iskhandar Razak; 6/29/24 Anne Myers was once confused and shaken by death. After more than a decade as a nurse, including in hospital ICUs, her mother died. "I'd seen a lot of deaths in my nursing life, but it was the closest human to me that had died," she said. "It kind of sent me down a 'oh my god, I don't know what's happening to me', this grief I'm experiencing." Soon afterwards, she became a palliative care nurse. "I ended up just going down the path of 'what is death, what is death and dying all about?'" she recalled. More than 15 years later, here's what she and other palliative care nurses have discovered on how to die well and live well.

Monroe Clinic & Hospital Foundation celebrates record-breaking mini golf event The Monroe Times, Monroe, WI; 6/30/24 The Monroe Clinic & Hospital Foundation’s “Little Golf” and Grill event, held on June 11, was an afternoon of mini golf that led into a night full of generous giving for a great cause. ... The event raised a record-breaking more than $79,600 from countless heartfelt donations provided by community members and businesses. This brought the total raised over the event’s 32 years to over $1,005,000. “Three decades of commitment from our healthcare team and the community to support and grow local hospice care is an incredible achievement,” shared Jane Sybers, Executive Director of Monroe Clinic & Hospital Foundation, a member of SSM Health. “I have the privilege to share gratitude stories with donors whose loved ones walked through hospice with us. To surpass one-million-dollars is such an incredible milestone and shows how much our community values this meaningful service.” The evening program walked attendees through the hospice patient journey. During the program, different staff members shared their role in patient care and the impact their patients have on them. 

Opposing views shared on assisted dying proposals BBC News, Isle of Man; by Rebecca Brahde; 7/1/24 Protesters both for and against proposed assisted dying laws on the Isle of Man have shared their views, ahead of an extra sitting of the House of Keys. Politicians will continue to debate legislation on Monday that would allow terminally-ill people the right to die. Millie Blenkinsop-French, from Douglas, said: "I think it is time now for us to have that choice." But Karen Owen said "one person's choice impinges on another's" and would lead to families having to have "terrifying" conversations as the end of life approaches. If the legislation is approved, there will be strict eligibility criteria: People who request an assisted death will have to be over 18, have lived on the island for at least five years and have been told by doctors they have less than 12 months to live. ... Public opinion was narrowly divided on the issue in a consultation held in April 2023 where more than 3,000 people shared their views.Editor's Note: The Isle of Man is a self-governing British Crown Dependency in the Irish Sea, between Great Britain and Ireland. We post this international article as a sample of the international scope of this extremely controversial issue, paired with similarities in different beliefs and opinions.

Why nurses are protesting AIHealthcare Brew; by Tom McKay; 6/26/24Continuous data collection and analysis is hardly a replacement for knowledge, nursing unions say, and sometimes gets in the way of care. The largest nursing union in the US, National Nurses United (NNU), is sounding the alarm about the use of AI in healthcare. In April, the union’s affiliate California Nurses Association (CNA) protested an AI conference helmed by managed care consortium Kaiser Permanente. Like workers in other sectors who are worried about AI encroachment, the nurses fear that the tech is contributing to the devaluation of their skills amid what they say is already a “chronic” understaffing crisis, nurses reported in an NNU survey of 2,300 registered nurses and members in early 2024. But the NNU, which represents approximately 225,000 nurses across the country, also claims healthcare operators are using AI hype as a pretext to rush half-baked and potentially harmful technologies into service, says Michelle Mahon, NNU’s assistant director of nursing practice.

Midland Care Connection and VNA KC form innovative partnershipPress release; 7/1/24Topeka, KS - Effective July 1, 2024, the Visiting Nurse Association Kansas City (VNA KC), one of the oldest home health agencies in the nation, will affiliate with Midland Care Connection. This partnership aims to create a more robust regional continuum of care.

A little help from your friends... Jennifer Hale, MSN, RN, CHPN, CPHQA little help from your friends is a memorial fund set up for Jennifer Hale's family. If interested, you can read more about it and donate here. Donations accepted 6/30/24 - 7/15/24. ... We recently announced Jennifer Hale unexpectedly died Friday, 6/21/24. Vice President of Quality and Standards at Compassus, former Vice President Clinical Services at Optum Palliative Care and Hospice, and former Executive Director of the Georgia Hospice & Palliative Care Organization, Jennifer was widely known, respected, and loved in the hospice community. We share our condolences with her family, friends, and colleagues. Her obituary is posted here.

Families, volunteers share stories of finding peace through hospice Salina Post; by Cristina Janney, Hays Post; 6/29/24 This is a two-part series on hospice care in northwest Kansas. Dalene Juenemann and her father, Dean, had to make the difficult decision to enter hospice care after he was diagnosed with bladder cancer. “He was just such a social guy and someone was in a couple times a week,” she said. “They were checking in on him and it was that security blanket he had.” ... He didn’t want to go through aggressive chemo and he didn’t qualify for a bladder removal because of his age. “He chose quality of life,” she said. "It was that final decision that we are done with everyone wanting a piece of me. I'm just going to enjoy life," she said. Dalene's father, Dean Shearer, was a patient of NWKareS, Hospice of Northwest Kansas, which serves 16 counties from Interstate 70 to the Nebraska border and Trego County to the Colorado border. ... She said the extra care hospice offered allowed her to just be a daughter to her father as he was dying. [Click on the title's link to continue reading stories from families and volunteers at NWKAreS.]

NAHC re-files lawsuit against HHS, CMS over home health cuts Home Health Care News; by Joyce Famakinwa; 6/28/24 The National Association for Home Care & Hospice (NAHC) hasn’t given up on efforts to push back on Medicare home health payment calculations. NAHC has re-filled its lawsuit against the U.S. Department of Health and Human Services (HHS). The lawsuit focuses on the home health PDGM budget neutrality adjustment, which imposed both permanent and temporary calculations with a methodology that NAHC believes is noncompliant with the law. The original lawsuit was filed last summer, and in April the case was dismissed by a federal court in Washington D.C. The case was dismissed on the basis that NAHC did not fully exhaust administrative appeal remedies. ... There are a number of factors that made NAHC decide to re-file the lawsuit, according to [NAHC President, William A.] Dombi. “No. 1, it will be faster,” he said. “No. 2, we are highly likely to get the same judge, as there’s a related litigation standard in an assignment of cases,” he said. One of the biggest factors that heavily contributed to NAHC’s decision was the Supreme Court ruling, which upended the Chevron Doctrine.

NPHI Statement: Hospital notifications to patients of hospice referral optionsNPHI press release; 6/17/24Many hospitals are providing discharged patients with a list of all Medicare-certified hospices in the geographic area in which the patient resides, in the mistaken belief that this is a requirement under the Medicare Conditions of Participation (COPs). Hospitals may be understandably confused by existing hospital CoPs that require such lists to be provided for HH, SNF, IRF and LTCHs. Section 482.43(c)(2) clearly states these provider types and excludes hospices. There is no such requirement in the hospice regulations or law that requires a hospital to provide patients with a list of all hospices in a particular geographic area. [See statement for additional information.]

[American Heart Association] Palliative care beneficial to manage symptoms, improve quality of life for people with CVD [cardiovascular disease] American Heart Association; by NewMediaWire; 7/1/24 Implementing patient-centered palliative care therapies, including prescribing, adjusting or discontinuing medications as needed, may help control symptoms and improve quality of life for people with heart disease, according to “Palliative Pharmacotherapy for Cardiovascular Disease,” a new scientific statement from the American Heart Association, published today in the Association’s journal, Circulation: Cardiovascular Quality and Outcomes. The new scientific statement reviews current evidence on the benefits and risks of cardiovascular and essential palliative medications. The statement provides guidance for health care professionals to incorporate palliative methods as part of holistic medication management at all stages of a patient’s health conditions, emphasizing the importance of shared decision-making and goal-oriented care.

Community Hospice & Palliative Care, a subsidiary of Alivia Care, Inc., becomes last remaining not-for-profit hospice provider [in North Florida] PR.com - Alivia Care, Inc. Press Releases, Gainesville, FL; 6/29/24 With recent changes in end-of-life care, North Florida residents may notice a shift as Haven, a long-standing provider in the region, transitions due to acquisition by a for-profit health care company, BrightSpring Health Services. As this transition takes place, Community Hospice & Palliative Care, a subsidiary of Alivia Care, Inc., wishes to express its continued dedication to providing compassionate, community-based care to individuals and families in the community. "We understand that transitions in healthcare can be challenging for our community," said Phillip Ward, President, and CEO of Community Hospice & Palliative Care. "However, we want to reassure everyone that our dedication to serving our neighbors with compassion, dignity, and unwavering commitment remains as strong as ever."

How the Supreme Court’s Chevron Decision could help stop home health cuts Home Health Care News; by Andrew Donlan; 6/28/24 On Friday, the U.S. Supreme Court upended the Chevron doctrine precedent. For home health industry purposes, that means a potentially weakened Centers for Medicare & Medicaid Services (CMS) moving forward. The news comes just two days after the home health proposed payment rule was released, which included significant cuts for the third straight year. Broadly, moving away from the Chevron precedent – usually known as the Chevron doctrine – will mean less regulatory power for government agencies. Government agencies often take their own interpretations of certain laws and statutes, and then act upon those interpretations. ... The National Association for Home Care & Hospice (NAHC) already filed a lawsuit against the U.S. Department of Health & Human Services (HHS) and CMS over rate cuts in 2023. “In our own analysis, we believe that providers of home health have been underpaid as it relates to budget neutrality,” NAHC President William A. Dombi said when the lawsuit was filed. “At minimum, we would expect to see the rate cuts from 2023, that were permanent readjustments to the base rate, and the one proposed for 2024, along with the temporary adjustments … to go away. The end product of that is that we would have a stable system to deliver home health services to Medicare beneficiaries.”