Literature Review

NGHS breaks ground on philanthropy-funded hospice house Access WDUN, Gainesville, GA; by Caleb Hutchins; 9/9/25 Northeast Georgia Health System held a groundbreaking ceremony Tuesday morning for a philanthropy-funded hospice house near Gainesville. ... The project, which is expected to open in fall of 2026, is the first philanthropy-funded facility in NGHS’ history. Christopher Bray, chief philanthropy officer of the Northeast Georgia Health System Foundation, called the Stephens’ more-than $5 million donation, which kick-started the project, game-changing for the foundation and the health system at large.

Keepers of the quiet goodbye: Meet the people who pulled off a hospice miracle by overcoming society’s fear of homelessness and death itself The Oberserver, Sacramento, CA; by Scott Thomas Anderson; 9/3/25 Inside the decade-long struggle to make Joshua’s House a reality in Sacramento: Craig Dresang has lived in the shadow of death since he was 8 years old. Dresang was in third grade when his mother, Joyce, was diagnosed with stage 3 cancer. At almost the same moment, his mom’s best friend was also given a devastating cancer diagnosis. She was gone six months later — an outcome that kept flashing in Dresang’s young mind. ...  ... [Scroll ahead in time.] The child who could never run from death became the professional willing to confront it. ...  [Working with YoloCares in Davis, CA, Dresang met] Marlene von Friedrichs-Fitzwater, a woman on a mission to create the first hospice shelter for unhoused people on the West Coast.

The hidden crisis in serious illness care and how we fix itMedCityNews; by Dr. Mihir Kamdar; 9/7/25 Every year, millions of Americans with serious illnesses find themselves caught in a dangerous limbo: not sick enough to qualify for hospice, but far too ill to be served by our traditional healthcare system. The result is care that’s expensive, fragmented, and often traumatic. These patients are shuffled between a revolving door of emergency rooms and ICUs, enduring a cascade of aggressive interventions that don’t match their goals or improve their quality of life. This approach not only undermines quality, it drives healthcare spending through the roof, particularly in the last year of life. This is the hidden crisis in serious illness care. And it’s getting worse. At the root of the problem is what many in the field call the “hospice cliff.” ...

Training and practice gaps in nursing home palliative care: A cross-sectional study Journal of the American Geriatrics Society (AGS); by Manali Saraiya, Molly A. Nowels, Rose L. Carlson, Jerad H. Moxley, Catherine A. Riffin, Evan Plys, M. Carrington Reid, Isabella Hastings, Taimur Mirza, Ronald D. Adelman, Daniel Shalev; 9/7/25 We conducted a cross-sectional survey of clinical employees (N = 398) at seven NHs within a single integrated health system in New York State to (1) gauge attitudes toward and knowledge about palliative care, (2) estimate the extent of engagement with advance care planning, and (3) elicit perceptions of the most valuable components of palliative care for NH residents. ... Despite support for palliative care, gaps in knowledge and clinical engagement persist and vary by discipline. Discipline-tailored training and program design may improve palliative care delivery in NHs and help ensure more consistent, value-aligned care for residents with serious illness.

Palliative care use and end-of-life care quality in HR+/HER2- metastatic breast cancerBreast Cancer Research and Treatment; by Julia G Cohn, Susan C Locke, Kris W Herring, Susan F Dent, Thomas W LeBlanc; 8/25Metastatic breast cancer (MBC) is incurable, despite therapeutic advances, especially in hormone receptor positive (HR+) and human epidermal growth factor-2 negative (HER2-) disease. Of 102 patients, 85 died during the study period, and over half (55%) received aggressive EoL [end of life] care. Half had some form of SPC [specialist palliative care], and rates of aggressive EoL care were comparable between those who engaged with SPC and those who did not. The most common indicators of aggressive EoL care included multiple ED visits (28%) and hospital admissions (23%) in the last 30 days of life as well as in-hospital location of death (24%). Although 72% enrolled in hospice care, 9% of patients were on hospice for ≤ 3 days. This real-world study demonstrates that many patients with HR + /HER2- MBC [metastatic breast cancer] receive aggressive EoL care despite some engaging with SPC and many enrolling in hospice. 

Golden Age Manor’s new hospice suite aims to give families comfort in final days Amery Free Press, Amery, WI; by Justin Runberg; 8/28/25 With a ribbon cutting set for Sept. 4, Golden Age Manor’s newly completed hospice suite will soon open its doors, offering families a more home-like space to spend time with loved ones during end-of-life care. In partnership with Adoray Home Health & Hospice, the project has been completed, and an open house will be held for the community to view the new addition. 

Hospices nationwide pursue organic growth with new sites Hospice News; by Holly Vossel; 8/28/25 Hospices from across the country have sought organic growth with the recent launches of new facilities.

Trends in hospice and palliative care consults initiated in the emergency department: An eight-year utilization analysisThe American Journal of Emergency Medicine; by Satheesh Gunaga, Abe Al-Hage, Alyssa Buchheister, Harish Neelam, Jessica Corcoran, Michael Welchans, Kirby Swan, Mahmoud Awada, Joseph Miller, Fabrice Mowbray; 8/25Emergency departments (EDs) play a central role in end-of-life care, yet the early integration of hospice and palliative care (HPC) is often underutilized. A total of 8,055 HPC consults were ordered for 6,370 unique patients. The average age was 78.1 years, with 56.4 % female and 75.0 % White. Of the cohort, 91.7 % were admitted, 5.3 % discharged home, and 53.2 % died in-hospital. HPC consults increased from 369 in 2016 to 1,355 in 2023 (367 % increase ... ). The ratio of hospice to palliative care consults reversed from 1.5:1 in 2016 to 1:1.9 in 2023.

Letter to the Editor: Hospice needs the state’s support Mid Hudson News, Hudson Valley / Catskill Region, NY; by Mid-Hudson News Staff; 8/19/25 Dear Editor: Hospice care can greatly enhance life for patients and families during an incredibly difficult time, but it is, unfortunately, underfunded and underutilized in New York State. As the leader of a hospice program serving Rockland and Orange Counties for 38 years, I have seen firsthand the undeniable, positive impact hospice can have.  ... Understandably, New Yorkers struggle to understand the benefits of hospice because hospice providers themselves have faced decades of underfunding and limited government support. ... The consequences of this cannot be understated. ... Cara Pace, Chief Executive Officer of United Hospice

IL law calls for annual report on prison hospice, palliative care WAND News, Springfield, IL; by Mike Miletich; 8/15/25 Gov. JB Pritzker signed a bill into law Friday to require the Illinois Department of Corrections report data on hospice care available for prisoners. More than 1,000 Illinois prisoners are 65 or older, and a growing number of those people are in need of end-of-life care and support services. The Department of Corrections does not have a formal hospice program, as end-of-life care is provided on a prison by prison basis. 

Caregiver-reported barriers and facilitators to hospice enrollment for persons with dementia: A systematic review of qualitative evidencePalliative Medicine; by Oonjee Oh, Connie M Ulrich, Lauren Massimo, George Demiris; 7/25Despite the increasing prevalence of dementia, persons with dementia often receive suboptimal care near the end of life. Dementia caregivers experience intrapersonal, interpersonal, emotional, logistical, and physical challenges in ensuring quality end-of-life support for their loved one (e.g. limited understanding of end-stage dementia, gatekeeping providers, and family conflicts). The unique needs of caregivers caring for a seriously ill family member with dementia are not being fully addressed by the current available services and policies.

[United Kingdom] Rethinking palliative care for people affected by homelessness Nursing in Practice; by Karita Razzell; 8/5/25 Well-timed palliative intervention can be a game-changer for people affected by homelessness facing advanced ill health, says Karita Razzell, palliative care manager at the charity St Mungo’s. ... There are various reasons behind the stark health disparities faced by people experiencing homelessness. ... Many individuals are living with serious mental health conditions, substance use issues, undiagnosed neurodiversity, and chronic physical illnesses – all of which can make clinical environments like hospitals particularly challenging for them. ... There are also digital hurdles: appointment systems and prescription services are increasingly online, yet many people without stable housing lack access to mobile phones or the internet. ... As a result, treatable conditions in people affected by homelessness often go undiagnosed until they reach an advanced stage.Editor's Note: People experiencing homelessness in the U.S. face similar challenges. Organizations such as The Hildegard House in Louisville, KY, and others in the national Omega Home Network of “comfort care homes” quietly provide palliative and hospice care for them. Click here to see a national map of these homes.

The state of pediatric concurrent hospice care in the United States American Academy of Pediatrics; by Meaghann S. Weaver, MD, PhD, MPH, HEC-CCorresponding Author; Steven M. Smith, MD; Christy Torkildson, PhD, RN, PHN; Deborah Fisher, PhD, RN, PPCNP; Betsy Hawley, MA; Alix Ware, JD, MPH; Holly Davis, MS, APRN; Conrad S. P. Williams, MD; Lisa C. Lindley, PhD, RN, FPCN, FAAN; 8/1/25 The Patient Protection and Affordable Care Act (ACA) required all state Medicaid programs to pay for both curative and hospice services for children and adolescents. The purpose of this Special Article report is to quantify and describe the use of concurrent care for children, including a depiction of the barriers and benefits according to community-based hospice organizations in the United States. A total of 295 hospice organizations from 50 states and Washington, DC responded to the National Alliance for Care at Home call for engagement.