Literature Review

How to choose the right hospice care - Brain & Life Magazine Brain & Life; by Hallie Levine; June/July 2024 Hospice care is designed to help patients die with dignity and provide support to their families. These tips can help ensure it does. ... [Case study examples follow.] In hospice, “the focus shifts from treating the disease to managing symptoms and maintaining quality of life,” says James Gordon, MD, FAAN, a neurologist and retired hospice and palliative care expert at the University of Washington in Seattle. “Patients and their families often get to a point where they ask themselves if the cure is causing more suffering than it's worth,” Dr. Gordon says. “If they are close to the end of life, it's often time for hospice.”Editor's Note: We chose this article because its source, Brain & Life Magazine. This can be an excellent disease-specific resource for your serious illness, palliative, hospice, and bereavement team members. "Brain & Life is powered by more than 40,000 neurologists worldwide who are committed to keeping you and your family better informed." Visit its "Disorders A-Z: Neurologic Disorders Resource Center (brainandlife.org)." 

Governor on hand for PACE openingNews-ExpressKy, Pikeville, KY; by Terry L. May; 6/7/24Mountain View PACE (Program of All-Inclusive Care for the Elderly) was created to help adults 55 years old and older with complex care needs to avoid nursing homes and to receive care and services necessary to help them be safe, comfortable, and healthy while maintaining a more independent lifestyle, Mountain View PACE Medical Director Dr. James Rummel Jr. said. ... “For those of us who have aging parents, we see this cycle of people who are having a hard time living well at home so they tend to do this circle of home to the ER to the hospital to the nursing home for rehab then back home and it keeps repeating.” ... “We are not trying to replace anybody,” Rummel said. “We are trying to augment the system to fill the gaps. We are a niche type of healthcare system.” ... “What a great day in Pikeville and Pike County,” Governor Beshear said. “How we treat our seniors says something about us and our values as a people." 

Design, creation, and 13-month performance of a novel, web-based activity for education in primary cardiology palliative care Journal of Pain and Symptom Management; by Jill M Steiner, Caroline L Doherty, Jill A Patton, Jadry Gruen, Sarah Godfrey, John Mulrow, Richard A Josephson, Sarah J Goodlin; 6/5/24 online ahead of print Cardiovascular disease (CVD) clinicians who care for seriously ill patients frequently report that they do not feel confident nor adequately prepared to manage patients' palliative care (PC) needs. With the goal, therefore, of increasing PC knowledge and skills amongst interprofessional clinicians providing CVD care, the ACC's PC Workgroup designed, developed, and implemented a comprehensive PC online educational activity. This paper describes the process and 13-month performance of this free, online activity for clinicians across disciplines and levels of training, "Palliative Care for the Cardiovascular Clinician" (PCCVC).Editor's Note: Reiterating, this "free, online activity [is] for clinicians across disciplines and levels of training." The trajectories for cardiovascular diseases can elicit enormous anxiety--due to their roller-coaster changes that can result in sudden death--in contrast to the more predictable trajectories for cancer. Whether you use this resource or another, educate your interdisciplinary clinical managers and team members to the all-important disease and care factors for cardiology palliative care, relevant to the scope of professionals' different roles. 

Rural pharmacy owners say it's getting harder to stay open Times West Virginian; by Devi Shastri; 6/5/24 Rural pharmacies can be a touchstone for their communities. The staff knows everyone’s names and drugs, answers questions about residents’ mail-order prescriptions or can spot the signs of serious illness. But their business models face unrelenting pressures to the point that sometimes they have to close. An AP analysis of data from 49 states and the National Council for Prescription Drug Programs shows that several largely rural states have some of the lowest number of pharmacies per ZIP code. Editor's Note: This trend for closures in rural areas is rampant for hospitals, emergency departments, physicians, and more. Click here for a letter from NHPCO and numerous hospice providers to Congress, Jan. 5, 2024: Protect rural and frontier American's access to hospice and palliative care.

They sacrificed to care for family and ended up on the street Wisconsin Public Radio; by Kat McGowan; 5/29/24 ... A son or sibling or niece gives up their own apartment or full-time job to look after a relative who needs help. They share expenses, maybe living off of a benefits check. But when that family member passes away or moves to a nursing home, the social security or housing subsidy stops coming. The caregiver is in mourning, out of a job and out of a place to live. “These were folks who had left behind something to go care for mom, and then the bottom falls out,” says Margot Kushel, a homelessness researcher and professor of medicine at University of California, San Francisco. Her team documented this pattern in their intensive surveys and in-depth interviews of older homeless Californians. ... Kushel envisions one brighter possibility. Given the extreme shortage of capable home caregivers, both in California and nationwide, people who have played that role for family could be recruited to do the same job for others, helping to build this essential workforce. “If you’re caregiving for 15 months for your mom, for instance you probably have transferrable skills,” she says.Editor's Note: Pair this with recent articles we posted on 5/30/24, "The real cost of cancer: 49% of patients carry $5K+ in medical debt" and "56 percent willing to dip into retirement savings to be family caregiver: survey."

New study finds underutilization of early palliative care for patients with advanced cancer mostly attributable to provider and organizational characteristics American Cancer Society; 5/28/24 A new study led by researchers at the American Cancer Society (ACS) shows despite considerable growth in early palliative care (PC) use, utilization among patients with advanced cancer remained low from 2010 to 2019. ... Early integration of palliative care is recommended for advanced-stage cancers, but evidence of its use and the role of provider and organizational characteristics in its uptake is limited. ... Early PC was defined as receipt of PC within 90 days post-diagnosis and before hospice admission, if any. ... Study authors stress the large variation between providers and organizations suggest important modifiable provider behaviors and organizational characteristics in early PC receipt, ...

Stoneridge Hospice expands services with launch of palliative care branch in Scottsdale, Arizona KNWA Fox24; by EIN Presswire; 5/26/24Stoneridge Hospice ... is proud to announce the establishment of its newest branch offering palliative care services in Scottsdale, Arizona. ... This new agency will offer a range of palliative care services, including pain and symptom management, emotional and spiritual support, coordination of care, and assistance with advanced care planning.

Experts urge Legislature to pass bill preventing for-profit and private equity hospice in New York Spectrum News 1; by Susan Arbetter; 5/21/24The FBI has issued public warnings about hospice fraud in four states — Texas, Arizona, Nevada and California. The bureau is alerting consumers to a wide-spread scam in which patients are enrolled in hospice without their knowledge by recruiters who “sell” hospice care to people who aren’t actually eligible. ...  One reason fraudsters have yet to gain a foothold in New York is that new hospices here go through a “Certificate of Need” process (CON) which reviews applications, provides for public comment and ensures that hospice operators don’t have a history of fraud or abuse. But according to Jeanne Chirico, president and CEO of the Hospice & Palliative Care Association of NYS (HPCANYS), and Kara Travis, president and CEO of Mountain Valley Hospice & Palliative Care, and a trustee of HPCANYS, there’s more that New York can do to protect consumers. They are urging lawmakers to pass a bill carried by state Sen. Liz Krueger and Assemblymember Amy Paulin that would prohibit the establishment of new for-profit hospices in the state (A6032 - Paulin / S6460 – Krueger).

Tuesday Health launches revolutionary Supportive Care solution with $60 million of strategic investment from healthcare leadersInvestors Observier; by PR Newswire; 5/21/24Tuesday Health, a pioneer in value-based care dedicated to transforming serious illness, has launched its innovative supportive care solution in partnership with Valtruis, Blue Venture Fund, Mass General Brigham Ventures , and CareSource. This alliance brings a $60 million strategic investment to Tuesday Health, fueling its mission to redefine supportive care for patients and caregivers facing serious illnesses. "Leveraging clinical expertise, advanced data solutions, and cutting-edge technology, while partnering with Ohio's largest Medicaid plan, its largest hospice provider and the unmatched palliative care experience of Mass General, Tuesday Health is dedicated to tackling one of healthcare's biggest challenges-providing support and care in the right setting, at the right time, for those facing serious illness", said Jim Wieland, CEO of Tuesday Health.Editor's Note: What is the difference between supportive care and palliative care? Click here for a description from ASCO, the American Society of Clinical Oncology. 

End-of-life talks, planning benefit all racial groups, study finds McKnights Long-Term Care News; by Kristen Fischer ... Having formal advanced care planning (ACP) in place was linked to higher odds of receiving care that aligned with individuals’ goals, the researchers found. The study evaluated how ACP and goal-concordant care (GCC) — an approach that aims to meet the patient’s goal and includes ACP and conversations about care goals —  affected people of different races. The report was published on May 18 in the Journal of the American Geriatrics Society.  The framework is especially important for people in racial or ethnic minority populations who have a greater risk of poor end-of-life outcomes and don’t receive GCC. ... Older adults are more likely to receive hospice care at the end of life compared to previous decades, but a lot of people still report care that didn’t meet their preferences, the authors noted.

In good hands: VA medical center introduces new inpatient hospice room and dialysis suites Salisbury Post; by Brad Dountz; 5/21/24The W.B. (Bill) Hefner Salisbury Department of Veterans Affairs Medical Center ... held a ribbon cutting ceremony for the new inpatient hospice room, dialysis suites and six patient care rooms earlier this month. The amenities will allow veterans to get the treatment they need. Construction began during the days of COVID, but thanks to the work of the VA employees who built it, veterans can finally reap the benefits.  “We come together to honor those who have selflessly served our country and now require specialized care. Some of them are in their final moments,” said Dr. Kamran Lateef, chief of hospital medicine. “In this sanctuary of compassion and solace, every detail has been meticulously crafted to offer the highest quality of care tailored to the unique needs of our beloved veterans.”

End of life outcomes following Comfort Care Orders: A single center experience The American Journal of Hospice & Palliative Care; by Matthew Tucker, Dayna Hovern, John Liantonion, Elizabeth Collins, Adam F Binder; 5/13/24 Conclusions: The majority of patients placed on comfort care died during their hospitalization demonstrating a real need for comprehensive end of life care and immediate hospice services. For those discharged with hospice services, they spent an excessive amount of time in the hospital waiting for services to be arranged.