Literature Review

I’m a hospice physician. There’s one thing I dread telling my patients. Slate; by Charlotte Grinberg; 4/22/25 Tom was dying, and managing his condition at home was increasingly difficult. ... His wife Sue was in survival mode. A few sleepless nights turned into weeks without rest, during which she was constantly trying to manage Tom’s symptoms and take care of his basic needs. I’m a hospice physician, and it’s at junctures like this that I can offer a life vest that completely changes the end-of-life experience. ... I told Sue that I thought Tom should transfer to our inpatient hospice facility. “You have done everything possible for Tom at home, it’s too much to ask of you or anybody,” I said. “He needs a higher level of care.” ... Getting a devoted spouse to agree to move their dying partner out of the home isn’t always easy. But a few days after Tom arrived at the inpatient hospice facility, Sue cried tears of appreciation describing the daily baths the caretakers there gave him. 

7-year-old Clayton girl battling stage 4 cancer enters hospice care at her home CBS-17 News, Raleigh/Clayton, NC; by Matthew Sockol, Maggie Newland, Greg Funderburg; 4/18/25 A seven-year-old girl battling an aggressive cancer has returned to her home in Clayton, her family said Friday. Noelle Franklin was diagnosed with stage four osteosarcoma less than a year ago and received treatment at UNC Children’s Hospital. In a video post on the Noelle Strong Facebook page, her mother Toni said Noelle is entering hospice care at their home. “The staff of UNC went above and beyond,” Toni Franklin said in a statement. “The care Noelle had was more than we could ask for. “Noelle has touched so many people, not just in our community, but in the hospital too,” she continued in her statement. “Seeing how many people came to celebrate Noelle breaking out overwhelmed me with joy. We paraded three different floors, wouldn’t expect anything less for Noelle. “We are home. We are at peace.”

Demystifying the End: Hospice care impact on the Black community Defender; by Laura Onyeneho; 4/22/25 Monica James has seen firsthand the confusion and emotional strain families face when end-of-life care isn’t discussed early enough. She works for the non-profit organization Houston Hospice as the Community Engagement Coordinator, serving 13 counties across Southeast Texas. ... According to data collected by the National Hospice and Palliative Care Organization, Black Americans on Medicare seek hospice and palliative treatment 13% less than their white counterparts. For African American, Afro-Caribbean and African immigrant families, generational trauma and a lack of trust in the healthcare system often lead to delayed decisions about hospice care. “There’s been a historical gap in access and trust,” said James. “Our goal is to show up consistently, to listen and to let these communities know they have options and that they’re not alone.”

Special team at Norton Children's Hospital focused on giving the gift of life CBS WLKY-32, Louisville, KY; by Jennifer Baileys; 4/21/25 Caring for sick and dying children is a tough and heartbreaking job. One special group at Norton Children's Hospital is focused on helping these children and their families. ... "She's missing the left side of her heart," Kindra Edwards, patient mother, said. ... Edwards said there was one consistent source of strength and encouragement the Norton Pediatric Support Team. "They're always there. You know, coming in, checking on us when in our multiple stays at the hospital," Edwards said. The team is made up of pediatric and palliative care specialists, nurses, social services, therapist and pastoral care. ... [Through two decades,] pediatric palliative care has evolved. At Norton Children's Hospital it has grown into a team of almost a dozen people, specializing in not just treating, but caring for the sickest patients and their families.

American Oncology Network achieves success in first performance period of CMMI’s enhancing oncology model Stock Titan, Globe Newswire, Fort Myers, FL; 4/22/25 American Oncology Network (AON), one of the nation’s fastest-growing community oncology networks, today announced strong results from the first performance period in the Centers for Medicare & Medicaid Innovation’s (CMMI) Enhancing Oncology Model (EOM). AON practices participating in the program—in collaboration with value-based cancer care enabler Thyme Care—achieved nearly $6M in cost savings for the Centers for Medicare & Medicaid Services (CMS). AON also earned a performance-based payment while improving patient experience and outcomes.

Closing the hospice care coverage gap in Florida Naples Daily News, Naples, FL; by Nichole Goble; 4/20/25 For too many Floridians living with serious illness, accessing high-quality hospice care remains a challenge. Families are left struggling to find the support they need, and patients are forced to navigate complex medical decisions without adequate guidance. In Florida, this gap is especially pronounced, leaving thousands without the specialized care that could improve their quality of life. Caregiver Action Network (CAN) is dedicated to advocating for caregivers and their loved ones. ... Living in a rural area, bringing in hospice support to the home ensured that family could more easily be with him on a continuous basis. ... This year, CAN has engaged over 65,000 caregivers across the state of Florida to better understand their priorities when it comes to hospice care and the benefits of integrated health systems, with over 28,000 of those being in Hendry, Lee, Pinellas, Glades, and connected counties.

Coming Soon: Vitas Healthcare in Marion County South Florida Hospital News and Healthcare Report, Ocala, FL; by cfelixcpa; 4/20/25 Florida is home to one of the country’s largest aging populations, with adults 65 and older making up 22 percent of its residents. As demand for hospice services rises statewide, VITAS Healthcare ... is expanding into Marion County. Beginning May 15, VITAS will accept patient referrals in the new service area. ... “Expanding into Marion County reflects VITAS’ ongoing commitment to improving access to high-quality hospice services for more Florida families,” said Angela Hamrick, vice president of operations.

Portugal: Government signs contracts for 3,000 palliative care beds MacauBusiness.com; by LUSA; 4/18/25 The government on Thursday [4/17/25] signed 90 financing contracts worth €88 million with the private and social sectors to create 3,300 places in the National Network for Integrated Continuing Care (RNCCI). ... The government on Thursday signed 90 financing contracts worth €88 million with the private and social sectors to create 3,300 places in the National Network for Integrated Continuing Care (RNCCI). ... The minister added that “the government’s determination is not to slow down the pace of implementation of the RRP”, emphasising that another 800 contracts will be signed in the coming weeks, in different areas.

Death matters: Is there really no place like home when it comes to dying? Sequim Gazette, Sequim, WA; by Jeanette Stehr-Green Volunteer Hospice of Clallam County; 4/16/25 While not everyone has the chance to decide where they will die, most Americans say that given the choice, they would prefer to die at home. For most people, home is familiar and comfortable. It is more private than a room in a hospital or nursing facility, and more likely to allow intimate gatherings with family and friends. In the home, the dying person and their caregivers are more in control, deciding when to have visitors, eat, drink, or take medications. ... Planning, realistic expectations, and adequate support are key to keeping a dying person at home. Consider the following steps: ... Home might not be best ...

Palliative care and advanced cardiovascular disease in adults: Not just end-of-life care: A scientific statement from the American Heart Association AHAIASA Journals - American Heart Association; by Lucinda J. Graven, PhD, APRN, FAHA, Lisa Kitko, PhD, RN, FAHA, Martha Abshire Saylor, PhD, MSN, BA, RN, Larry Allen, MD, MHS, FAHA, Angela Durante, PhD, RN, Lorraine S. Evangelista, PhD, RN, CNS, WAN, FAHA, Amy Fiedler, MD, James Kirkpatrick, MD, Lakeisha Mixon, MSW, and Rachel Wells, PhD, MSN, BA on behalf of the American Heart Association Complex Cardiovascular Nursing Care Science Committee of the Council on Cardiovascular and Stroke Nursing; and Council on Cardiovascular Surgery and Anesthesia; 4/17/25  ... This scientific statement (1) discusses the application of effective communication, shared decision-making, age-friendly care, and advance care planning in advanced cardiovascular disease palliative care; (2) provides a summary of recent evidence related to palliative care and symptom management, quality of life, spiritual and psychological support, and bereavement support in individuals with advanced cardiovascular disease and their care partners; (3) discusses issues involving diversity, equity, and inclusion in cardiovascular disease palliative care; (4) highlights the ethical and legal concerns surrounding palliative care and implanted cardiac devices; and (5) provides strategies for palliative care engagement in adults with advanced cardiovascular disease for the care team.

Join Rebecca Ramsey and Chris Comeaux in exploring the future of home care Teleios Collaborative Network (TCN); podcast by Chris Comeaux with Rebecca Ramsey; 4/16/25 In this episode of TCNtalks, host Chris Comeaux interviews Rebecca Ramsay, CEO of Housecall Providers.  Rebecca shares her unique journey in healthcare and emphasizes the importance of nonprofit organizations in delivering quality care. Rebecca discusses the evolution of Housecall Providers, the significance of home-based primary care, and the interdisciplinary approach required to meet the needs of patients with complex conditions. She also advocates for Hospice organizations to expand into home-based primary care, highlighting the growing demand and the gaps in current services.  Chris and Rebecca explore the challenges of maintaining a stable workforce, the complexities of payment structures, and the importance of a steady referral stream for viable home-based primary care.  

CMS clarifies physician referral authority, tightens attestation requirements in proposed hospice ruleInside Health Policy; by Jalen Brown; 4/11/25... The proposed rule would explicitly allow the physician member of the hospice interdisciplinary group (IDG) to recommend patients for hospice care, addressing a gap in current regulations over which physicians have that authority. While CMS already lets IDG physicians certify that a patient is terminally ill and eligible for hospice, the existing admission rules only name the hospice medical director or physician designee as authorized to recommend admission. CMS also wants to strengthen documentation requirements for hospice recertification, ... Starting at day 180 and every 60 days thereafter, Medicare requires a hospice physician or nurse practitioner (NP) to conduct a face-to-face visit with the patient before recertifying eligibility. After the visit, the clinician must provide a written attestation confirming that the visit occurred and was used to assess whether the patient still qualifies for hospice care. Under CMS' proposal, that attestation would also need to include the clinician's signature and the date signed, submitted as a clearly labeled section or addendum to the recertification form.