Literature Review

Breaking the silence: The mounting need for trauma-informed hospice care Hospice News; by Holly Vossel; 5/3/24Traumatized and abused hospice patients and providers often experience an array of lingering physical, emotional and psychological effects that can fall into a silent abyss of unmet needs. ... Many seniors have experienced some form of trauma or abuse in their lifetime. ... More data has become available in recent years around the prevalence of different types of abuse and trauma. Roughly 10% of seniors 65 and older nationwide are victims of some type of abuse each year, the U.S. Department of Justice (DOJ) reported. Caregiver neglect represents 5.1% of these cases, with psychological and physical abuse impacting 4.6% and 1.6% of seniors, respectively. ...Editor's Note: This article highights interviews with Dr. Ashwin Kotwal, assistant professor at the University California San Francisco; Carole Fisher, president, National Partnership for Healthcare and Hospice Innovation (NPHI); Dr. Cameron Muir, chief innovation officer, NPHI; Andrea Devoti, executive vice president at the National Association for Home Care & Hospice (NAHC); Lindsey Owen, executive director of Disability Rights Vermont.

Social Model Hospice: Providing hospice and palliative care for a homeless population in Salt Lake City, UtahJournal of Hospice & Palliative Nursing; by Francine Bench Jensen, PhD, RN; Deborah Thorpe, PhD, APRN; 4/24Abstract:  Health care for the homeless population is a complex challenge and represents a significant gap in care, particularly for those at the end of life. Hospice care may be desired but is rarely an option for people without residences, social support, and payment sources. Social model hospice is a unique paradigm of care delivery that offers a viable solution to make hospice and palliative care possible for this population. ... Recommendations for establishing social model hospices are made: key strategies include identifying stakeholders dedicated to alleviating end-of-life homelessness needs, doing a formal needs assessment to identify community resource deficits, and forming mentoring relationships with established programs.

NHPCO's 2024 Pediatric Palliative and Hospice Care Needs Assessment NHPCO; via email; 5/1/24 The 2024 Pediatric Palliative and Hospice Care Needs Assessment is a product of the National Hospice and Palliative Care Organization’s (NHPCO) Pediatric Advisory Council. The goal of the needs assessment is to gain a better understanding of the organizations and providers caring for pediatric patients with serious illnesses throughout the United States. The needs assessment helps create resources and support advocacy. The survey should only be completed once by each organization so please coordinate with your team to complete the survey. For help gathering information, we have created a PDF version of the survey but you will need to input the information into this survey for the information to be used.

20 states with most rural hospital closures Hospital CFO Report; by Molly Gamble; 4/29/24 Since 2005, 192 hospitals in rural America have shut down, and the COVID-19 pandemic only accelerated rural hospitals' risk of closure. Eight rural hospitals closed in 2023, as many as in 2022 and 2021 combined, according to the report. This followed a landmark 18 rural hospital closures in 2020, more than any year in the previous decade. [Click on the title's link for] 

HHS issues new rule to strengthen nondiscrimination protections and advance Civil Rights in health careHHS Press Office; 4/26/24Today, the U.S. Department of Health and Human Services (HHS) Office for Civil Rights (OCR) and the Centers for Medicare & Medicaid Services (CMS) issued a final rule under Section 1557 of the Affordable Care Act (ACA) advancing protections against discrimination in health care. By taking bold action to strengthen protections against discrimination on the basis of race, color, national origin, sex, age, and disability, this rule reduces language access barriers, expands physical and digital accessibility, tackles bias in health technology, and much more.

The value of hospice-emergency department collaboration Hospice News; by Jim Parker; 4/29/24 Fostering greater collaboration between hospices and hospice emergency departments can help reduce health care costs, generate revenue and improve patient outcomes. Reducing hospitalizations and emergency department (ED) visits are key goals for many health care stakeholders, particularly those that operate within a value-based environment. ... Nearly 40 million seniors visit the ED annually, according to the Institute for Healthcare Policy and Innovation at the University of Michigan. For patients, however, the ED may not always be the best option, Rebeka Malloy, director of clinical engagement for Compassion and Choices, said at the National Hospice and Palliative Care Organization’s (NHPCO) Virtual Interdisciplinary Conference. ...

OSF launches new tools to help make end-of-life planning easier News25, Peoria, IL; by Liz Lape; 4/26/24 OSF Healthcare reports that thousands of patients are dying in medical facilities without end-of-life care plans. ... Sarah Overton, Chief Officer of Nursing, describes that studies show that over 70% of patients would prefer a setting other than a hospital to spend their last moments, like at home hospice or palliative care. OSF has launched self-service resources such as an Advanced Careplanning page and Patient Questionnaire on their app MyChart. Overton says the goal is to make end-of-life care planning more available to the public.

'Why we need to talk about dying': Thames Hospice and the reality of palliative careMaidenhead Advertiser; by Sam Leech; 4/27/24What is your understanding of what a hospice does?Many would suggest it is a place where people go to die – but there is much, much more to the journey of patients and loved ones at Thames Hospice [United Kingdom]. ... Catherine McLaughlin, the hospice’s chief executive, said: “This is a place where – yes, death is a big part – but it’s about how do you make memories? How do you give hope at a time when there might not be much of that? Those final days in somebody’s life is a very important time and the lasting memories are important to those who are left behind.”Editor's Note: Too often--in order to make hospice palatable to another's "sign-on-the-dotted-line-so-we-can-admit-you"--marketing professionals overtly deny that hospice is about "dying," "death," or "grief." Take note from this CEO who sensitively weaves in death, dying and bereavement for not only hospice, but also for "palliative care" with gentle, authentic conversation and questions to the public.

Living well to the end: Singapore ramps up palliative and hospice care capacityThe Straits Times; by Joy Teo; 4/26/24 Singapore is increasing its palliative care and hospice capacity to allow more people with life-threatening illnesses to live well till the very end, and die with dignity and comfort. By 2025, there will be 300 inpatient palliative care beds, 140 day hospice places and capacity for palliative home care for 3,600 patients. In Singapore, the term palliative care is often used interchangeably with hospice care, though there are subtle differences.

Hospice groups, AOs speak out on proposed Accreditor Oversight Rule Hospice News; by Jim Parker; 4/22/24Some accreditation organizations (AOs) have balked at the U.S. Centers for Medicare and Medicaid Services’ (CMS) proposed rule designed to strengthen oversight of those institutions. ... Three such organizations currently have deeming authority for hospices, The Joint Commission, the Accreditation Commission for Health Care (ACHC) and Community Health Accreditation Partner (CHAP). These accreditors have joined a host of other stakeholders in making public comments on the proposed rule, with some requesting clarifications and others outright denying that CMS has the authority to establish such requirements.

End-of-life care facility for people experiencing homelessness opens on Monona Drive [Wisconsin] Isthmus, Madison, WI, by Linda Falkenstein; 4/23/24It started as an idea from palliative care physician Dr. Ann Catlett. Catlett had experienced having to discharge terminally ill patients who had no housing onto the streets. And she had seen a model home where patients without a home could live out their days in peace, receive hospice services and other daily palliative care. ... Thus was born Solace Friends, a Madison-area nonprofit with the goal of opening a care facility for people with terminal illnesses who are unhoused or experiencing housing insecurity. ... The opening of the adult family home was celebrated Tuesday with a press conference and tour of the facility.

30 systems sign on to new effort to advance age-friendly care Becker's Clinical Leadership, by Erica Carbajal; 4/17/24Thirty health systems are participating in a new collaborative through the Institute for Healthcare Improvement that aims to accelerate the adoption of age-friendly care for older adults. The Age-Friendly System-Wide Spread Collaborative is billed as a learning and action community through which systems will focus on embedding four evidence-based elements of high-quality care for older adults: what matters, medication, mentation and mobility, known as the 4Ms. Participants — which include Los Angeles-based Cedars Sinai, New York City-based Mount Sinai Health System and Atlanta-based Grady Health — will share data and collaborate to advance their own improvements in scaling age-friendly care across their sites of care. Participants also have the opportunity to be among the first to achieve a new IHI recognition for systemwide adoption of the 4Ms.