Literature Review

World Hospice & Palliative Care Day 2025 Achieving the Promise: Universal access to palliative care ehospice; by Stephen Connor; 7/7/25 This year we celebrate the 20th anniversary of World Hospice & Palliative Care Day (World Day). ... World Day is organised by the Worldwide Hospice Palliative Care Alliance each second Saturday in October, this year on 11 October 2025, on behalf of the global palliative care community, including international, national, and regional palliative care organisations such as the IAHPC, ICPCN, PallCHASE, APCA, EAPC, ALCP, APHN, and including national organisations such as the IAPC. ... This year’s theme, Achieving the Promise: Universal Access to Palliative Care, builds on last year’s to explore what is needed in the coming 5-10 years to build toward universal access to palliative care, especially as part of universal health coverage. The subthemes this year are:

The grave outlook for hospice family caregivers Hospice News; by Holly Vossel; 7/10/25 The state of family caregiving in the United States has reached a critical tipping point amid rising demand for end-of-life care and insufficient resources. Many family caregivers are ill-equipped to navigate the complexities of supporting a loved one with a terminal illness, according to Dr. Arul Thangavel, CEO of the advance care planning company WiserCare. Thangavel is also an attending physician at the University of California, San Francisco (UCSF). Among the issues is that conversations about the end of life and goals of care are often brought up far too late in a disease trajectory, Thangavel said. This trend leaves families grappling with uncertainty, moral distress, guilt and compounded grief in the decision-making process, he stated. 

HPCC strengthens commitment to DEIB across credentialing programs Hospice & Palliative Nurses Association / Foundation / Credentialing Center (HPNA/HPNF/HPCC); Press Release; 7/10/25 In 2025, the Hospice and Palliative Credentialing Center (HPCC) has continued its implementation of strategic initiatives that advance diversity, equity, inclusion, and belonging (DEIB) across its credentialing programs. From in-depth exam item reviews to national outreach and inclusive resource development, HPCC remains committed to ensuring fairness and inclusivity in all certification processes. The following strategic initiatives reflect the progress HPCC has made and showcase the future direction of its DEIB efforts. ... This work is part of HPCC’s broader goal to strengthen the inclusivity of its credentialing programs. As HPCC explores the expansion of DIF analyses across additional certification exams, the organization remains rooted in its mission.

Pallitus Health Partners receives CHAP Accreditation for Adult Palliative Care and Pediatric Care Certification for Kourageous Kids Pallitus Health Partners, Louisville, KY; Press Release; 7/8/25 Community Health Accreditation Partner, Inc. (CHAP) has awarded Care Guide Partners, Inc. (dba Pallitus Health Partners) CHAP Accreditation under the CHAP Palliative Care Standards of Excellence. The nonprofit also received certification for its Kourageous Kids (KKids) palliative care program. CHAP Accreditation demonstrates that Pallitus Health Partners meets the industry’s highest nationally recognized standards. The rigorous evaluation by CHAP focuses on structure and function, quality of services and products, human and financial resources, and long-term viability. Simply stated, adherence to CHAP’s standards leads to better quality care. ... Pallitus Health Partners, an affiliate of Hosparus Health, offers comprehensive palliative care for serious illnesses in Kentucky and Indiana. Editor's Note: Congratulations to Pallitus Health Partners and Hosparus Health! This accreditation marks yet another milestone of excellence this organization—originally founded as Hospice of Louisville—which pioneered one of the nation’s first pediatric hospice teams in 1980. I had the privilege of serving on the Pediatric Team of Hospice & Palliative Care of Louisville from 1997 to 2001. Profound experiences with these children, their parents, siblings, grandparents, our dedicated team members, and community partners are forever embedded in me. They continue to shape my perspective and purpose in my role as editor in chief of this newsletter.

Hospice programs shutter amid financial strains Hospice News; by Holly Vossel; 7/3/25 Financial and staffing headwinds are chipping away at hospices’ sustainability, with some providers recently pausing or closing their programs. Concerns have also mounted amid federal Medicaid cuts.

Center for Acute Hospice Care to close in August 29 News, Charlottesville, VA; by Jacob Phillips; 7/1/25 After nearly a decade of offering around-the-clock end-of-life care, Hospice of the Piedmont is closing their Center for Acute Hospice Care (CAHC) on Ivy Road in Charlottesville in August. “It gives us an opportunity to concentrate more on where patients want to be, which is home, and those services will still be provided,” Hospice of the Piedmont President and CEO Nancy Littlefield said. “[CAHC] is a 10-bed unit that we lease...and it’s for patients who might be having needs of a higher level of hospice care.” Littlefield says the main reason for closing the center is the lease is coming to an end and with uncertainty surrounding federal budget cuts of hospice care, continuing in this location is not sustainable. “Our hospice, as well as all hospices across the state, are having to be very cautious about what Medicaid and other reimbursement changes may occur under the current administration,” Littlefield said, “and I think the worst thing we can do for families and patients is to not be prepared.”

Trump administration to end 988 suicide prevention specialized service for LGBTQ+ youth in JulyCNN; by Jacqueline Howard; 6/18/25The 988 Suicide & Crisis Lifeline’s specialized services for LGBTQ+ youth will no longer be in operation starting July 17, according to a statement from the US Department of Health and Human Services’ Substance Abuse and Mental Health Services Administration (SAMHSA). ... According to the latest data from SAMHSA, more than 14.5 million people have called, texted or sent chats to the 988 Lifeline and have been transferred to a crisis contact center since July 2022. Nearly 1.3 million of those were routed to the LGBTQ+ specialized service.Editor's Note: This 988 LGBTQ+ specialized option was piloted in September 2020, expanded on March 6, 2025, and rolled out fully nationwide in July 2023. This data translates to approximately 1,250 LGBTQ calls per day; 52 calls per hour; 1 call per minute. Who--in your world of family and friends--might this ultimately affect? Research, data, and personal stories (sure to be in each of our circles of family and friends) tell us why this matters. A resource for you to use is The Handbook of LGBTQIA-inclusive Hospice and Palliative Care, 2nd edition by Kimberly D. Acquaviva. This handbook is the first place winner, 2024 American Journal of Nursing Book of the Year Award in Palliative Care and Hospice.

St. Joseph’s Center of Trumbull to permanently close Aug. 9 Westfair Business Journal, Trumbaull, CT; by Gary Larkin; 6/30/25The Town of Trumbull and the state Department of Labor (DOL) have reported they are trying to help the 179 employees laid off by St. Joseph’s Center after its parent company [Genesis Healthcare] announced it was closing the nursing home on Aug. 9. ... St. Joseph’s Center has been serving Trumbull for more than 50 years with an array of services such as: independent living, short-term rehabilitation, long-term care, and hospice services. 

Wisconsin author discusses her mother’s aging, dying in the American health care system: The long-term care system failed both her and her mother, she writes Wisconsin Public Radio; by Colleen Leahy; 6/27/25At age 99, Judy Karofsky’s mother was kicked out of her Wisconsin hospice facility. Within 48 hours of that decision, Karofsky became her mother’s default nurse. “I had to find a wheelchair for her. I had to keep track of her meds. I had to buy all the bandages and supplies that she would [need],” Karofsky told WPR’s “Wisconsin Today.” Karofsky is the author of “Diselderly Conduct: The Flawed Business of Assisted Living and Hospice.” In it, she chronicles nightmare scenarios as her mother aged and died in the American healthcare system: making her way through independent living, six different assisted living facilities, memory care, skilled nursing and hospice.  

Strategies to prepare hospice providers to interact with adolescents with a parent in hospicePalliative & Supportive Care; William Grayson, Denice Kopchak Sheehan, Pamela S Stephenson, Kristen DeBois, Caitlin Sheehan; 5/25The sample included 18 young adults (18-28 years old) whose parents died in hospice or palliative care while they were adolescents (12-18 years old). Semi-structured interviews were conducted virtually via Microsoft Teams. The participants described a variety of skills that are important for hospice providers to know. They provided specific suggestions for hospice providers who seek to help adolescents navigate this critical time when their parents are dying or have recently died. These results can also be used to inform the development of interventions that assist hospice providers with strategies tailored to an adolescent's specific needs.

Yocha Dehe provides $1 million grant to YoloCares for new hospice shelter The Davis Enterprise, Davis, CA; 6/18/25The Yocha Dehe Wintun Nation is proud to announce a $1 million grant for YoloCares to expand its adult day care program in Davis and operate a new hospice shelter in Sacramento that will address the complex needs of unhoused terminally ill patients. The first of its kind on the West Coast, Joshua’s House was dedicated on Wednesday and will feature six separate homes that will welcome up to 15 people at a time. YoloCares’ commitment to support and serve the rural and Indigenous communities in its six-county service area means that Joshua’s House will prioritize service to unhoused rural and Indigenous community members in need of care. The professionally staffed home will provide shelter, food, and clothing to people from Sacramento, Yolo, Placer, Solano, Sutter, and Colusa Counties to hospice-eligible patients referred by the major health systems. Licensed professionals will provide hospice care to patients staying at Joshua’s House. 

Winning with whiskers: A new approach to salesTeleios Collaborative Network (TCN); podcast by Chris Comeaux with Dawn Landry; 6/18/25In this engaging conversation, Chris Comeaux and Dawn F. Landry explore the intricacies of leadership, emphasizing the importance of curiosity, self-awareness, and empathy.  Dawn shares her journey in business development and her unique approach to understanding personality traits through her book, Winning with Whiskers [A Business Fable About Overcoming Obstacles by Knowing Yourself & Others]. Their discussion highlights the significance of building strong relationships and navigating friction in professional settings, ultimately advocating for a more authentic and empathetic leadership style.  Dawn discusses the importance of self-awareness, understanding personal strengths, and the dynamics of building effective relationships in both personal and professional settings.

Navigating the ‘Long Goodbye’ Help for caregivers of those with Alzheimer’s Dementia The Journal; by Renee Bledsoe, LPN, CHPLN, Hospice of the Panhandle; 6/16/25 ...  [Important statistics:] ... Right now, there are more than 38,000 individuals over the age of 65 in West Virginia with Alzheimer’s Dementia and about 65,000 caregivers. The estimated total lifetime cost of care for someone with Dementia is more than $400,000 and about 70 percent of that cost is borne by family caregivers in the form of unpaid caregiving and out-of-pocket costs. Sixty-six percent of caregivers live with the person for whom they are caring. More than half provide care to a parent or in-law, and about a quarter of those are also caring for at least one child. It comes as no surprise that 59 percent of dementia caregivers report high emotional stress, and 38 percent report high physical stress, according to the 2025 Alzheimer’s Disease Facts and Figures report. ... Hospice of the Panhandle is no stranger to the emotional, physical and financial challenges that the caregivers of those with Alzheimer’s Dementia in our area face every day. ...