Literature Review

How to manage financial caregiving for an aging parent AOL.com; by Kerry Hannon; 10/25/25Steering end-of-life financial decisions for an aging parent is not a job many of us would choose. But we do — and feel our way through the messy emotions as best we can. ...[From an interview:] "[Your mom] was rejected for hospice care, which is covered by Medicare. Can you elaborate on that?""That was just such a slap in the face because it's a hard decision to go to hospice. ... My mom made that decision for herself, but my brother, the doctors, and me had to be on board with it in order for her to do it. The only reason they rejected her is because they thought she would be too costly. They do a cost-benefit analysis of how long that person is going to last— how much [in] resources is she going to consume? They decided that her diagnosis was too murky to justify putting her on hospice at that point. I finally found another hospice company to accept her. And she died in two weeks."

Hospice social worker and nurse perceptions of the usability of a hospice live discharge protocol (LDP)American Journal of Hospice & Palliative Medicine; by Stephanie P. Wladkowski, Susan Enguídanos, Tracy A. Schroepfer; 9/25Live discharges from hospice are often distressing for patients, caregivers, and hospice providers alike, disrupting care continuity and leading to emotional and logistical challenges. Despite Medicare’s discharge planning requirement, no standardized process currently exists for hospice-initiated discharges, resulting in variable quality of care transitions.  An explicit Live Discharge Protocol has strong potential to enhance the quality and consistency of a live discharge from hospice care. The LDP provides a framework to help smooth the transition from hospice care and provides patients and families with post-discharge support. Feedback from hospice professionals affirmed the relevance and usability of each step within the LDP, while also identifying opportunities for refinement for future implementation.

Should an AI copy of you help decide if you live or die? Doctors share top concerns of AI surrogates aiding life-or-death decisions. Ars Technica; by Ashley Belanger; 10/20/25 For more than a decade, researchers have wondered whether artificial intelligence could help predict what incapacitated patients might want when doctors must make life-or-death decisions on their behalf. It remains one of the most high-stakes questions in health care AI today. But as AI improves, some experts increasingly see it as inevitable that digital “clones” of patients could one day aid family members, doctors, and ethics boards in making end-of-life decisions that are aligned with a patient’s values and goals.

Bay County hospice facility Brian’s House temporarily closes its doors mlive.com, Hampton TWP, MI; by Joey Oliver; 10/17/25 Brian’s House Community Group, an end-of-life care facility, has announced its temporary closure after eight years of serving terminally ill patients and their families. The facility at 664 W. Nebobish Road has served more than 1,000 families since opening its doors in June 2017, according to a statement from the board officers and members. The organization cited financial challenges as the primary reason for the closure. ... The facility operated on a sliding scale fee structure that was significantly lower than assisted living residences and often provided free care to families with low or no income.

Pulse check: Status update on pediatric palliative and hospice community-based coverageJournal of Palliative Medicine; by Meaghann S Weaver, Alix Ware, Deborah Fisher, Betsy Hawley, Holly Davis, Lisa C Lindley, Steven M Smith, Conrad S P Williams, Tej Chana, Christy Torkildson; 9/25Half (49%) of [the country's surveyed hospice and palliative] organizations reported increasing the number of pediatric patients accepted into their care over the past five years. Programs are less likely to include perinatal (61%) patients compared to infants through young adults (94%). Trauma increased as a reason for pediatric enrollment. Nonmetro geographies are less likely to provide services for children. The pediatric palliative average annual census was 271, and the pediatric hospice average annual census was 74. The pediatric patient's average length of stay for palliative care was 154 days and for hospice was 96 days, [with] Medicaid (47%) [being] ... the most common form of reimbursement. Lack of trained personnel, low referrals, and funding were depicted as the most common barriers.

Palliative care at the cutting edge: Recent updates in surgical palliative careJournal of Pain and Symptom Management; by Antoinette R Esce, T J Douglas, Elizabeth Gorman, Sophia Tam, Christopher D Woodrell, Ana Berlin; 9/25Surgical patients with serious illness often experience unique clinical trajectories, systems of care, and relationships with providers. In order to meet the needs of this patient population and their care teams, hospice and palliative medicine professionals should be familiar with evolving best practices in surgical palliative care. We present the case of a geriatric trauma patient with a new diagnosis of advanced cancer cared for in a surgical intensive care unit. This example highlights important new developments in defining and supporting the geriatric trauma population, improving and expanding surgical palliative care education, and identifying which seriously ill surgical patients benefit most from palliative care interventions.

Impact of the Affordable Care Act on palliative and hospice care utilization among patients with gastrointestinal cancers: An interrupted time series analysisJournal of Palliative Medicine; by Eshetu Worku, Selamawit Woldesenbet, Mujtaba Khalil, Timothy M Pawlik; 9/25The Affordable Care Act (ACA) aimed to expand insurance coverage, improve health outcomes, and reduce costs. We assessed the impact of the ACA on hospice or palliative care utilization among [Medicare] patients with stage IV gastrointestinal (GI) cancer. Patients from minority racial groups ... and those in moderate ... and high ... Social Vulnerability Index (SVI) counties were less likely to use palliative care in both pre- and post-ACA eras. Palliative care use was associated with $2,633 lower total expenditure. Conclusion: ACA implementation did not improve palliative care utilization for racial minorities and high SVI groups.

Center provides hospice care options The Laker / Lutz News, New Port Richey, FL; Press Release; 10/15/25 Gulfside Healthcare Services celebrated the opening of its newest inpatient care facility Sept. 19 in New Port Richey. Guests not only toured patient rooms and family areas but also applauded the announcement of a gift by Dr. Jay Weil. The new care center will be called the Dr. Jay Weil Center for Hospice Care in honor of his generosity. Gulfside Healthcare Services celebrated the opening of its newest inpatient care facility Sept. 19 in New Port Richey. Guests not only toured patient rooms and family areas but also applauded the announcement of a gift by Dr. Jay Weil. The new care center will be called the Dr. Jay Weil Center for Hospice Care in honor of his generosity.

The Center to Advance Palliative Care and the National Kidney Foundation make the case for the integration of palliative care into kidney disease management PR Newswire, New York; by The Center to Advance Palliative Care; 10/8/25 Despite facing high rates of distressing symptoms—including fatigue, pruritus, and pain—people living with advanced kidney disease are far less likely than those with cancer to receive appropriate pain and symptom management. And fewer than 10% of older adults receiving dialysis report having had conversations about their goals of care. These are two of the many important statistics highlighted in The Case for Palliative Care in Kidney Care, a new publication from the Center to Advance Palliative Care (CAPC) and the National Kidney Foundation (NKF), which emphasizes the critical need to integrate palliative care services into the treatment of patients with advanced kidney disease. 

LGBTQ+ history project: The need to preserve LGBTQ+ histories of rural America Watermark Out News; by Lauren Rowello; 10/14/25 ... Resources importantly emerged as people formally organized — bringing critical health care and hospice networks during the HIV/AIDS crisis, for instance, and launching LGBTQ+ voices into expansive advocacy careers. Across the US, some of the most impactful voices for change have come from rural regions. ... Editor's Note: For more on this interface with the birth of hospice care in the US, examine "The AIDS Epidemic’s Lasting Impact on Hospice Care for LGBTQ+ Populations," by Holly Vossel, Hospice News, 6/28/24. Pair these with today's post, "Inside the hospice that feels like home: How Omega House catches those who fall through the cracks." 

Inside the hospice that feels like home: How Omega House catches those who fall through the cracks ABC KTRK-13, Houston, TX; by Brittaney Wilmore; 10/13/25 Retired teacher Eleanor Munger opened Omega House in 1986 in Montrose, pioneering care for dying HIV/AIDs patients. ... Sonny and Neil, and perhaps the laughter they bring, are all part of the key ingredients that make up Omega House, a mainstay in Montrose complete with a living room and garden that you might not immediately realize is a hospice. ... But making it feel like home means it's functioning just as founder Eleanor Munger intended it. "She was a retired Montessori school teacher, so she had no medical background whatsoever. She was 74 years old, and she just felt like this was something that people need - a really loving, caring environment," said Omega House director Sandy Stacy.

[Global] Top designs revealed in buildner’s Fourth Annual Hospice – Home for the Terminally Ill competition ArchDaily; 10/13/25 Buildner has announced the results of its fourth annual Hospice - Home for the Terminally Ill international architecture ideas competition. This global call for ideas continues to explore how architecture can support end-of-life care with empathy, dignity, and contextual sensitivity. The competition invited architects and designers to move beyond clinical requirements and envision spaces that offer emotional warmth, social connection, and a profound sense of place. ... An international jury reviewed the submissions for their design clarity, emotional resonance, and architectural depth. 

Seasons Hospice hosts commemoration as it closes hospice house, forges ahead with in-home care KTTC, Rochester, MN; by Caitlin Alexander; 10/10/25 Local nonprofit organization Seasons Hospice hosted a somber but significant moment on Friday as it commemorated its hospice house. After more than 25 years, Seasons Hospice is closing the doors of the hospice house, as it now shifts its focus to serving patients and families with in-home hospice care. “I had a hard time at first accepting that and getting beyond it, but I did,” one of the founders, Sarah Oehlke, said. “I’m very grateful that you have sustained our quality-of-care standards for all of the years.” “We have together provided comfort, dignity and compassion to countless families during life’s most poignant moments,” Board President Dawn Beck said. ... Seasons Hospice previously spoke about a declining census at the hospice house, especially in recent years, noting the shift toward people wishing to spend their final days in their homes with loved ones.Editor's Note: This Seasons Hospice is in Rochester, Minnesota; not to be confused with other hospice organizations throughout the nation with "seasons" in its name. They gave their hospice house both a "good life" and "a good death." We draw attention to the shift they described "toward people wishing to spend their final days in their homes with loved ones," and will continue to be on the lookout for similar trends. To quote from an ancient poet, "To everything there is a season ..." We wish Seasons Hospice well through its continued transitions.