Literature Review

Sasha McAllum Pilkington on grace and storytelling at the end of life Psychotherapy.net; by Lawrence Rubin; 7/22/24 Narrative Clinician, Sasha McAllum Pilkington [of New Zealand],  shares poignant stories she co-created with hospice clients which honor and celebrate their lives. [This interview includes: ...]

End-of-life care is a profound and essential aspect of medical practice Market.US Media, New York; by Samruddhi Yardi; 7/19/24 According to End-of-Life Care Statistics, End-of-life care, also known as palliative care, refers to the comprehensive medical, emotional, and psychological support provided to individuals who are nearing the end of their lives, often due to terminal illnesses or conditions. [This article includes data on the following:]

Bridge the gap: Addressing rural end-of-life care disparities and access to hospice services Journal of Pain and Symptom Management; by Asif Anwar, Muhammad Kashif Amin, Sherezaad Anwar, Moazzam Shahzad; 7/11/24 online ahead of print Rural hospices face many obstacles in delivering palliative and end-of-life care in the United States. We aimed to identify these barriers and their potential solutions. ...  We propose several potential solutions to overcome these hurdles and improve access. ... Advanced practice providers should be considered to serve as physician heads in rural hospices, which would expand resources in areas with physician shortages. A single per diem payment model should be implemented for rural hospices, regardless of the level of care provided, to help offset the higher cost of care. he Critical Access Hospital program and offering cost-based reimbursement for swing-bed stays could improve access to post-acute care, including hospice services. Telehealth can improve the timeliness of care and reduce travel costs for patients and providers.  [Continue reading for more solutions.]

Why CommonSpirit Health is investing in the home Becker's Helath IT; by Giles Bruce; 7/18/24 Chicago-based CommonSpirit Health has grown into the country’s largest Catholic provider of care at home. ... Becker's recently sat down with Trisha Crissman, interim executive director of CommonSpirit Health at Home, to discuss the metamorphosis of at-home care. ... [In 2010] ... we established hospice as another service line for the organization. ... And that brings us to where we find ourselves today — as the largest Catholic care-at-home provider in the country, with 84 locations and soon to be about 15 states, serving about 15,000 patients daily, with skilled home healthcare, hospice, palliative care, home infusion. We have many solution models, including "hospital at home," SNF [skilled nursing facility] at home, and ED [emergency department] diversion solutions.

In response to ‘Garnet lays off 26 people citing cost saving Warwick Advertiser, Letters to the Editor; by Ethel Hemsi; 7/15/24 For the past seven years I have been a volunteer with the Palliative Care team at Garnet Health Hospital. The whole team has been laid off to save costs. The article says it can be replaced by the hospitalist team of internal medicine providers. In my opinion this team can in no way be replaced by other doctors. Palliative care is a very complex and respectable practice in itself with specially trained doctors and nurses. It does much more than manage a patient’s pain. The palliative care providers are focused on helping patients and their families understand the patient’s condition and come together to make important decisions that patients with serious illnesses face. This includes weighing the pros and cons of various medical treatments as they pertain a patient’s quality of life. ... 

Rural hospitals built during Baby Boom now face Baby Bust KFF Health News; by Tony Leys; 7/15/24 ... Many of the U.S. hospitals that are now dropping obstetrics units were built or expanded in the mid-1900s, when America went on a rural-hospital building spree, thanks to federal funding from the Hill-Burton Act. “It was an amazing program,” said Brock Slabach, chief operations officer for the National Rural Health Association. “Basically, if you were a county that wanted a hospital, they gave you the money.”Editor's Note: Mark Cohen has discussed the Hilburton Act with Chris Comeaux in their monthly TCN podcasts. Closures of rural hospital services continue to increase, impacting end-of-life care awareness, referrals, and utilization throughout our nation's rural areas. 

Hospice CARES Act would update medical reviews, seek to reduce audits Hospice News; by Jim Parker; 7/12/24 The forthcoming Hospice Care Accountability, Reform and Enforcement (Hospice CARE) Act from U.S. Rep. Earl Blumenaur (D-Oregon), if enacted, would implement a number of changes to medical review processes. ... Though the bill language is still in development, it will likely contain proposed updates to payment mechanisms for high-acuity palliative services, changes to the per-diem payment process and actions to improve quality and combat fraud. The bill would also implement a temporary, national moratorium on the enrollment of new hospices into Medicare, to help stem the tide of fraudulent activities among recently established providers concentrated primarily in California, Arizona, Texas and Nevada. ... Among the anticipated provisions of the bill would be an item requiring the U.S. Centers for Medicare & Medicaid Services (CMS) to use documentation in a patient’s medical record as supporting material. The documentation would include the reasons that an attending physician certified a patient for hospice and establish a six-month terminal prognosis.

Palliative care training initiative launches to improve quality among incarcerated populations Hospice News; by Holly Vossel; 7/12/24 The California Department of Corrections & Rehabilitation’s Medical Facility (CMF) has launched a new palliative spiritual care training program aimed at improving services for incarcerated individuals. The new two-week spiritual training program was recently provided to palliative care service workers and volunteers to assist CMF’s clinical and nursing staff caring for patients at the facility’s hospice, correctional treatment center and memory care units. A dozen trainees recently completed the program, with CMF planning to provide an annual refresher course to all of its palliative care service workers, according to California Correctional Health Care Services CEO Joseph Garland. 

Amorem receives $100,000 grant from The Cannon Foundation Ashe Post & Times, Boone, North Carolina; by Staff Reporter; 7/12/24 Amorem received a $100,000 grant from The Cannon Foundation for its Quality. Compassion. Support: A Patient Care Unit for the High Country campaign. The Cannon Foundation has joined Amorem’s vision to provide more quality, more compassion and more support to residents of the High Country with a $100k grant to assist with the purchase of non-medical equipment needed to operate the patient care unit and meet the needs of patients and their families while in Amorem’s care. “Amorem is honored that The Cannon Foundation has joined our vision,” says Director of Development, Ashley Edwards. “Through this partnership, Amorem is empowered to create a homelike environment for our patients who are facing the end of life and their families at the High Country patient care unit.” 

Program of all inclusive care for the elderly expanding in the Triad Spectrum News 1, Greensboro, NC; by Kaye Paddyfote; 7/12/24 Program of all inclusive care for the elderly, or PACE, is expanding in North Carolina. PACE provides all inclusive care to those who are 55 and older, and a new facility will serve Forsyth, Surry and Stokes counties. ...  PACE’S medical director, Dr. Tiffany Reed, says the new facility will provide those in rural North Carolina the care and socialization that’s necessary. “We have transportation services as part of PACE, we're able to pick them up and bring them to the center so they can come to appointments and receive therapy and their medical care on site,” Reed said. “So that would could make a big difference out there.”

Characterizing disparities in receipt of palliative care for Asian Americans, Native Hawaiians, and Pacific Islanders with metastatic cancer in the United States Supportive Care in Cancer: Official journal of the Multinational Association of Supportive Care in Cancer; by Khushi Kohli, Mahi Kohli, Bhav Jain, Nishwant Swami, Sruthi Ranganathan, Fumiko Chino, Puneeth Iyengar, Divya Yerramilli, Edward Christopher Dee; 7/9/24 Palliative care plays essential roles in cancer care. However, differences in receipt among individuals identifying as Asian American, Native Hawaiian, and Other Pacific Islanders (AA&NHPI) with cancer are not well-characterized, especially when these diverse groups are disaggregated. We characterized disparities in receipt of palliative care among AA&NHPI patients with AJCC Stage IV prostate, breast, or lung cancer. Conclusions and relevance: Our findings demonstrate disparities in receipt of palliative care upon disaggregation of diverse AA&NHPI groups, the need for disaggregated research and targeted interventions that address the unique cultural, socioeconomic, and healthcare system barriers to palliative care receipt.

Prognoses associated with Palliative Performance Scale scores in modern palliative care practiceJAMA Network Open; by Kara E Bischoff, Kanan Patel, W John Boscardin, David L O'Riordan, Steven Z Pantilat, Alexander K Smith; 7/1/24The Palliative Performance Scale (PPS) is one of the most widely used prognostic tools for patients with serious illness. However, current prognostic estimates associated with PPS scores are based on data that are over a decade old. ... Conclusions and relevance: In this prognostic study, prognostic estimates associated with PPS scores were substantially longer than previous estimates commonly used by clinicians. Based on these findings, an online calculator was updated to assist clinicians in reaching prognostic estimates that are more consistent with modern palliative care practice and specific to the patient's setting and diagnosis group.

CMS: GUIDE Model Participants and Infographic CMS.gov and various press releases; retrieved from the internet 7/10/24 The Guiding an Improved Dementia Experience (GUIDE) Model is a voluntary nationwide model test that aims to support people with dementia and their unpaid caregivers. The model began on July 1, 2024, and will run for eight years. Editor's Note: Multiple press releases are populating across the internet. We share this list of links to information, participants, and sample press releases from well-known participants.