Literature Review

Keys to addressing ethical, moral distress in pediatric hospice Hospice News; by Holly Vossel; 5/6/24 Hospices may be under-prepared to navigate the complexities in end-of-life decisions among terminally ill children, as the ethical and moral considerations related to patient autonomy are vastly different for pediatric populations compared to adults. Ethical principles of autonomy vary in pediatric populations due to a number of factors, including a child’s age, developmental stage, cognitive capacity and their spiritual background and beliefs, according to Christy Torkildson, director at the Children’s Hospice and Palliative Care Coalition of California. 

Home-based pediatric hospice and palliative care provider visits: Effects on healthcare utilization The Journal of Pediatrics; by Steven M. Smith, MD; Daniel H. Grossoehme, DMin; Kate Cicozi, MD; Audrey Hiltunen, MD; Catherine Roth, MPH, CCRP; Gwendolyn Richner, BA; Stephani S. Kim, PhD, MPH; Nguyen K. Tram, PhD; Sarah Friebert, MD; May 2024 journal issue Objective: This hypothesis-generating study sought to assess the impact of home-based hospice and palliative care (HBHPC) provider home visits (HV) on healthcare use.  Conclusion: HBHPC provider HVs were associated with fewer inpatient admissions, hospital days, and intensive care unit days, and increased clinically relevant phone calls and phone calls before emergency department visit. These findings indicate that HBHPC HV may contribute to decreased inpatient use and increased use of the HBHPC team.

Chesapeake Life Center offers monthly LGBTQIA+ drop-in grief support group Southern Maryland News Net; 5/6/24 Chesapeake Life Center will host a monthly drop-in grief support group for members of the LGBTQIA+ community. ... Grief is a hard and vulnerable time, and it is important to have safe spaces to process what we are going through. This group is intended for adult members of the LGBTQIA+ community who are grieving a past or approaching death. The group will be facilitated by a licensed queer therapist but will be loosely structured to offer an opportunity for participants to share their feelings and grieve with community.Editor's Note: Hospice & Palliative Care Today does not post upcoming, local hospice events, grief support groups, volunteer trainings, etc. However, we're posting this LGBTQIA+ grief support due to its unique need, with opportunities for replication in other hospices. 

HHS finalizes disability access rule for healthcare providers Modern Healthcare, by Kara Hartnett; 3/2/24 The Health and Human Services Department finalized a rule that broadens nondiscrimination protections for individuals with disabilities in healthcare environments. ... When the rule takes effect July 1, healthcare organizations will be required to modify facilities and medical equipment to cater to patients' physical and sensory needs. Facilities will have to update features such as elevators and ramps to ensure they are functional and meet federal standards. In addition, healthcare organizations must ensure websites, mobile apps and virtual care programs are user-friendly for people with disabilities and remove disability status as a factor in clinical support tools.

Patients, caregivers more willing to spend extra for home-based care, study finds McKnights Home Care; by Adam Healy; 4/30/24 [According to a new study published in JAMA Network Open:] ... On average, respondents were willing to spend an extra $51.81 for care that takes place in the home, compared to facility-based care such such as that in a skilled nursing facility. They were also more willing to pay more for care that can reduce their recovery time or reduce caregivers’ burden. Caregivers, meanwhile, also prioritized higher-quality care, even if it came with a heftier price tag. 

New federal rule meant to strengthen nondiscrimination protections, advance civil rights in healthcare McKnights Senior Living; by Kathleen Steele Gaivin; 4/30/24 The Department of Health and Human Services on Friday released a final rule aiming to protect individuals from discrimination in healthcare, including members of the LBGTQ+ community. ... The rule “reverses a Trump-era regulation and restores gender identity and sexual orientation discrimination protections under Section 1557 of the Affordable Care Act,” Bloomberg Law reported. Section 1557 prohibits discrimination on the basis of race, color, national origin, sex, age or disability by entities that primarily provide healthcare and receive federal funding. It is enforced by the HHS Office for Civil Rights.

Hospice care scam has FBI issuing warning after 'huge increase in complaints'ABC TV 13, Houston, TX; by Samica Knight; 4/29/24The Federal Bureau of Investigations is warning about a scam in which crooks sign people up for hospice care without their knowledge. The FBI has received numerous reports from victims in the Houston area about this costly scam. "It's a little bit more egregious and distasteful than some of the other Medicare frauds we typically deal with," FBI Supervisory Special Agent Shannon Brady said. "We've had a huge increase in complaints." Fraudsters are actually signing mostly elderly victims up for end-of-life hospice care when they don't need it and without the victim even knowing about it.

Why health systems should embrace advanced in-home care models McKnights Home Care; by Marcy Carty, MD, MPH; 4/25/24Over the next two decades, the adult demographic over 50 years of age will increase by 25 million, and with over 75% expressing a strong desire to age in place, it’s imperative to champion care models that support safe, high-quality care within the home. Despite proactive care models to support aging in the home, acute needs still arise. Health systems stand to gain manifold by embracing the paradigm shift to care in the home. By moving more advanced care delivery into peoples’ homes, systems can effectively curb acute healthcare utilization, decreasing hospital-acquired conditions and drastically improving patient and family experience.

WHIAANHPI and SmithsonianAPA unveil joint theme for 2024 Asian American, Native Hawaiian, and Pacific Islander Heritage Month: ‘Bridging Histories, Shaping Our Future’ U.S. Department of Health and Human Services; by HHS Press Office; 4/24/24Today, the White House Initiative on Asian Americans, Native Hawaiians, and Pacific Islanders (WHIAANHPI) and the Smithsonian Asian Pacific American Center are proud to present our joint 2024 theme for Asian American, Native Hawaiian, and Pacific Islander (AA and NHPI) Heritage Month: “Bridging Histories, Shaping Our Future.” The 2024 theme is an homage to our ancestors and invites all Americans to delve into the legacies, triumphs, and challenges that have shaped AA and NHPI communities. It embodies the spirit of our collective journey – one rooted in resilience and hope – and encourages us to forge intergenerational connections to honor our past and pave a durable path forward.

Harmony House of Western Massachusetts unveils new home for terminally ill WWLP TV 22 News; by Kayleigh Thomas; posted 4/26/24, updated 4/27/24 [Chicopee, MA] After a long hiatus, the Harmony House of Western Massachusetts unveiled its new home for the terminally ill. It comes after the original home closed in 2019 before Covid-19 hit. Once the pandemic began, plans to renovate the new home were put on hold. Now, they’re completely renovated with a fully staffed team to offer companionship, meals, laundry services, and personal and spiritual care.

How Avow Hospice used triage to boost quality, reduce turnoverHospice News; by Jim Parker; 4/26/24Avow Hospice has implemented a triage system that has resulted in improved quality scores and reduced turnover. The Florida-based provider uses an acuity system that draws data from its electronic medical record (EMR) system to help stratify patients based on their most likely immediate needs. To complement these efforts, Avow also revamped its approach to night time and weekend visits, Rebecca Gatian, COO of Avow Hospice, said at the National Hospice and Palliative Care Organization’s Virtual Interdisciplinary Conference. 

Terror and LGBTQIA+ identity: Thoughts on Dr. Candrian’s Newsweek reflection Anschutz Medical School (Univ of Colorado); by Melissa C Palmer, JD LCSW ACHP-SW APHSW-C; 4/23/24 ... When reflecting on the intersection of LGBTQIA+ culture, being a woman, and the medical community, I have experienced gaslighting and marginalization because of my own identity. Things have changed a little in the past years, particularly in younger generations where sexuality and gender identity are more fluid and accepted. But in healthcare, unconscious bias due to the indoctrination by our elders can cause patients identifying as LGBTQIA+ to receive disparate care. ... Editor's Note: 

Missoula's first end-of-life center taking shape amid fundraising MissoulaCurrent., by Martin Kidston; 4/24/24 ... Missoula's first dedicated hospice center broke ground last June and is well on its way to opening early next year. The 15,000 square-foot facility has been planned down to the finest detail, from the play of lighting and sound in each room to a reflection center, with end-of-life literature and bereavement support for families. “Missoula has one of the fastest aging and oldest populations in the country. Not only that, we have a vast expanse of area to cover,” said Amanda Melro [Executive Director, Partners of Hope Foundation] . “People live in rural areas and they also live alone. Having a place like this where a family knows they'll be well-taken care of is a huge asset for them. We expect there will be a large demand for the beds.”