Literature Review

Inclusive hospice care: Gilchrist’s efforts to ensure equal end-of-life care accessAfro News - The Black Media Authority; 2/16/24Despite concerted efforts to address disparities, Black Americans continue to be underrepresented in hospice and palliative care services, a trend Gilchrist, a leading provider of end-of-life care for 30 years, is actively working to change. “We’re creating a paradigm shift around how hospitals communicate with communities of color. We’re going into communities and humbly asking what we can do to better serve their needs,” Wayman Scott, Associate Director of DEI and Community Relations, said.

'A blessing': Sarasota family shares importance of hospice care after losing 5-year-old to cancerCBS News 10 Tampa Bay, by Jenny Dean; 2/16/24While the average time in hospice is 70-80 days, some people defy the odds. And that's largely due to the changes in hospice care over the years. A Sarasota family knows how difficult that decision can be. They lost their 5-year-old daughter to cancer and now say hospice care is something they wish they would have gotten sooner.

Umatilla County resident finds comfort in hospice care amid disparity studyBNN, by Muhammad Jawad; 2/14/24 In the heart of Umatilla County [Oregon], Lila Transue, an 86-year-old Pendleton resident, has found solace in the care provided by Vange John Memorial Hospice. A recent study highlights the underutilization of hospice care, particularly for minority groups and patients with certain types of cancer, but Transue's experience offers a glimmer of hope.

How to support adolescents and young adults with cancer at the end of lifeThe Oncology Nursing Society Voice, by Kimberly Rivera DNP, RN-BC, OCN®, NPD-BC; 2/12/24... [Cancer] is the fourth leading cause of death in adolescents and young adults (AYAs), following accidents, suicide, and homicide. ... Appropriately defining the difference between palliative and end-of-life care can improve AYAs’ engagement with services such as advance care planning—a specific step that increases AYAs’ likelihood of receiving early palliative care. However, many palliative and hospice care services are geared toward pediatric or adult populations and may not meet AYAs’ unique needs, impeding effective care planning.

Patients with cancer underuse hospice care, often because of disparitiesOncology Nursing Society Voice, by Elisa Becze BA, ELS, Editor; 2/13/24Most patients who die from cancer do not use hospice at the time of their death, ONS member and oncology nurse researcher Dena D. Shore, PhD, RN, OCN®, CNE, reported in an article published in ... the Clinical Journal of Oncology Nursing (CJON). ... Shore conducted an extensive literature search for studies of hospice use in U.S. patients with cancer published from 2017–2023. ... According to her literature review, cancer-related, ethnic and racial, and geographic disparities are frequently involved in delayed or nonuse of hospice care.

Part 2, Latest updates from CMS Office of Minority Health: Advancing health equity in rural, tribal, and geographically isolated communities FY2023 year in review

Alzheimer's: Watch for signs it's time to start hospice careThe Advocate, by Dana Territo; 2/5/24When is someone with dementia ready for hospice care? ... Some of the characteristics the affected individual may be exhibiting include the lack of ability to ambulate without assistance, incontinence of bowel and bladder, inability to dress and bathe properly, and speech limited to approximately a half dozen or fewer intelligible and different words. There are also intercurrent illnesses associated with advanced dementia in which hospice services would be a benefit. 

Rural hospitals caught in aging-facility dilemma Lexington Herald Leader, by Markian Hawryluk; 2/6/24... Rural hospital closures dropped during the pandemic, from a record-high 18 in 2020 to eight in 2021 and 2022 combined, according to the University of North Carolina–Chapel Hill, as emergency relief funds kept them open. But that life support has ended.

Dying mother wins $10m from WA after cancer became terminal in prisonNewsFinale; 2/2/24Washington State has paid just shy of $10 million to settle a lawsuit with a mother-of-two whose cervical cancer became terminal while she was in prison after doctors there failed to diagnose and treat the disease. Paula Gardner, 42, was serving time for drug and burglary offences and did not receive adequate medical care for over two years despite tests showing possible signs of cancer in that time before a scan revealed a growth inside her uterus, according to the lawsuit.

How hospices are diversifying their services in 2024Hospice News, by Holly Vossel; 1/31/24Palliative care, pediatric end-of-life care and end-of-life doula (EOLD) services are top of mind for hospices that are diversifying their services in 2024.Fewer than half of 143 respondents to Hospice News’ 2024 Outlook Survey, conducted with Homecare Homebase, reported that their hospice organizations would pursue new care types this year. But the aim of their service diversification efforts may indicate future trends. Service diversification trends in hospice could ramp up as value-based care models incentivize this path, according to Tony Kudner, chief strategy officer of the home-based care consulting company Transcend Strategy Group. 

Hospitals serving Black & Hispanic populations lack cancer resourcesOncology Times, by Sarah DiGiulio; 2/1/24Hospitals across the U.S. that treat the highest number of Black and Hispanic patients have significantly lower odds of offering key cancer services, such as PET/CT scanning, robotic surgery, and palliative care, than other hospitals. That was the top finding from recent research published in JAMA Oncology.

Why hospice utilization rates have fallenHospice News, by Jim Parker; 1/25/24National hospice utilization rates have fallen since 2020, though the total number of patients served remains consistent. ... Mathematically, the percentage declined in part because of continually changing demographics.Publisher's note: This article quotes a decline in Medicare hospice utilization rates through 2021, which is true. However, we are seeing a rebound / increase in 2022 and 2023 information.