Literature Review

$1.6M grant to focus on nursing home units to reduce racial disparities in dementia care McKnights Long-Term Care News; by Jessica R. Towhey; 10/3/24 Emory University will use a $1.6 million, federal grant to investigate the role Alzheimer’s special care units play in reducing racial and ethnic disparities in dementia care within nursing homes. The research team will be led by Huiwen Xu, PhD, an associate professor in the university’s Nell Hodgson Woodruff School of Nursing, who specializes in gerontology and elder health. The four-year grant from the National Institute on Aging will analyze quality of life and improved health outcomes in the specialized care units, which the school’s press release said are available in only 14% of nursing homes nationwide. Xu’s team will examine the underlying causes of racial disparities for Black and Hispanic residents, who have limited access to the memory care units, the release said. 

Vitas Healthcare introduces premier hospice care in Bakersfield and Fresno GlobeNewswire; by Vitas Healthcare; 10/1/24 To meet the growing need for quality end-of-life care in California’s Central Valley, Vitas Healthcare hospice services are now available for residents of Bakersfield and Fresno. With local interdisciplinary teams based in each city, Vitas now offers expert clinical, emotional and spiritual care for seriously ill patients in their homes, nursing homes, assisted living communities and inpatient care settings. 

Comfort home in Scottsville reopens after four-year hiatus NBC News 10, Rochester, NY; by Eriketa Cost; 9/27/24 A local hospice home in Scottsville re-opened, after four years of rebuilding from the inside out. You may recall how much of an effect COVID-19 had on these services. The home, Patrick Place, was unable to hold fundraisers. Dozens of volunteers stepped down out of fear for the virus, and it took time to bring them back. The emails and phone calls didn’t stop during the downtime, though, said Cissy Leblanc, secretary on the board for Patrick Place. Organizers were eager to open again, but it took hard work. Along the way, the team built a new deck and furnished the basement, adding a conference room and special area for training volunteers. These, are all projects that couldn’t have happened with someone living there, said chairman Patrick Hanley. The home opened in early September with 55 volunteers. The goal is to reach 75. ...

Hispanic Americans and Alzheimer'sAlzheimer's Association; Resources; ongoing webpage, retrieved from the internet 9/25/24 Approximately 13% of Hispanics who are 65 or older have Alzheimer's or another dementia. Learn what the Alzheimer's Association is doing to address health disparities and provide support for Hispanic community members living with Alzheimer's or another dementia. Quick Facts: ...

The evolving landscape of Amyotrophic Lateral Sclerosis: A fatal disease!  Delveinsight; 9/24/24 Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disease characterized by the progressive degeneration of motor neurons, leading to muscle weakness, paralysis, and ultimately, death. ... Despite ALS being relatively rare, affecting 2-5 per 100,000 people worldwide, the question Is ALS on the rise? is gaining attention. While global prevalence has not significantly increased, improved diagnostic techniques, earlier detection, and greater awareness have led to a more accurate identification of ALS cases. Many researchers believe that enhanced surveillance and better tools for genetic testing are uncovering more cases than previously recognized, rather than a true rise in the disease’s incidence. However, with an aging global population, the burden of ALS may grow, as age is a major risk factor. Editor's note: Do you provide disease-specific training for your staff? ALS patients' and families' needs are unique. A significant disease comparison is between ALZ (Alzheimer's) and ALS. With ALZ (Alzheimer's), the brain decreases its abilities to function while the body can remain strong; the person is mobile with cognitive limitations. In contrast, with ALS, the body decreases its abilities to function while the brain/mind/emotions can remain strong. The person is immobile with cognitive awareness, but extreme physical limitations in communicating one's thoughts, emotions, and needs. ALS-specific communication tools provide crucial help for all. For more information in your location, visit The ALS Association's USA map.

Honoring National Hispanic Heritage Month CMS.gov - CMS Office of Minority Health Menu; for 9/15-10/15 September 15 through October 15 is National Hispanic Heritage Month, a time to honor the 63.7 million Hispanic people living in the United States. This month, the Centers for Medicare & Medicaid Services Office of Minority Health (CMS OMH) would like to raise awareness of the health disparities that impact Hispanic Americans and highlight efforts to reduce gaps in health care. Hispanic Americans are at greater risk of various health conditions due to a lack of preventive care and health insurance, as well as language barriers. In 2022, almost 28% of Hispanic adults didn’t have health insurance compared to Black (13.3%), White (7.4%), and Asian (7.1%) adults. Resources:

Historic numbers of Americans live by themselves as they age California Healthline, originally published by KFF and ran in The Washington Post; by Judith Graham; 9/17/24Gerri Norington, 78, never wanted to be on her own as she grew old. ...  Norington is part of a large but often overlooked group: the more than 16 million Americans living alone while growing old. Surprisingly little is known about their experiences. This slice of the older population has significant health issues: Nearly 4 in 10 seniors living alone have vision or hearing loss, difficulty caring for themselves and living independently, problems with cognition, or other disabilities, according to a KFF analysis of 2022 census data. ... Multiple studies find that seniors on their own are at higher risk of becoming isolated, depressed, and inactive, having accidents, and neglecting to care for themselves. As a result, they tend to be hospitalized more often and suffer earlier-than-expected deaths. ... The most reliable, up-to-date data about older adults who live alone comes from the U.S. Census Bureau. According to its 2023 Current Population Survey, about 28% of people 65 and older live by themselves, including slightly fewer than 6 million men and slightly more than 10 million women. (The figure doesn’t include seniors living in institutions, primarily assisted living and nursing homes.) By contrast, 1 in 10 older Americans lived on their own in 1950. ... [Click on the title's link for the full article. Includes information to republish for free.]

As families searched, a Texas medical school cut up their loved ones NBC News, Dallas, TX; by Mike Hixenbaugh, John Schuppe, Susan Carroll, Catherine Allen, Bryan Gallion, Liz Kreutz and Nigel Chiwaya; 9/16/24 ... In the name of scientific advancement, clinical education and fiscal expediency, the bodies of the destitute in the Dallas-Fort Worth region have been routinely collected from hospital beds, nursing homes and homeless encampments and used for training or research without their consent — and often without the approval of any survivors, an NBC News investigation found. ... For months as NBC News reported this article, Health Science Center officials defended their practices, arguing that using unclaimed bodies was essential for training future doctors. But on Friday, after reporters shared detailed findings of this investigation, the center announced it was immediately suspending its body donation program and firing the officials who led it. The center said it was also hiring a consulting firm to investigate the program’s operations.

Ribbon cutting for Tapestry Hospice & Palliative Care FetchYourNews.com; by Ellie Trammell; 9/12/24 Happy ribbon cutting day to Tapestry Hospice & Palliative Care at their new office in Blue Ridge, Georgia, serving patients in Fannin, Union, Gilmer and Pickens counties. 

CMS to expand ‘enhanced oversight’ to combat hospice fraud in 4 states Hospice News; by Jim Parker; 9/10/24 The U.S. Centers for Medicare & Medicaid Services (CMS) is expanding its enhanced oversight for new hospices in fraud-ridden states, including California, Nevada, Arizona and Texas. The agency in July 2023 first announced a “provisional period of enhanced oversight” for new hospices in those states. A key component of the enhanced oversight includes a medical review of claims before a Medicare Administrative Contractor (MAC) will pay them. “To combat fraud, waste, and abuse under the hospice benefit, CMS will expand prepayment medical review this September in Arizona, California, Nevada and Texas,” the agency indicated in a statement. “To help reduce burden on compliant providers, initial review volumes will be low and adjusted based on results. If you’re noncompliant, we may implement extended review or take additional administrative actions.” 

2024 NHPCO Facts and Figures Report now available National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 9/10/242022 Data Show First Increase in Hospice Utilization Rates Since COVID The National Alliance for Care at Home (the Alliance) published the 2024 edition of National Hospice and Palliative Care Organization (NHPCO) Facts and Figures, an annual report on key data points related to the delivery of hospice care, including information on patient characteristics, location and level of care, Medicare hospice spending, and hospice providers. Facts and Figures – the leading resource for hospice providers and others interested in understanding the work of the community – has been published annually for over two decades by NHPCO. ... The findings in this report reflect patients who received care in Calendar Year (CY) 2022, or Fiscal Year (FY) 2022, provided by hospices certified by the Centers for Medicare and Medicaid Services (CMS) and reimbursed under the Medicare Hospice Benefit. This year COVID-19 continued to impact patient care as COVID-19 waivers were still in place through May 2023. These waivers included increased telehealth services. With 49.1% of all Medicare decedents in 2022 choosing hospice care, utilization of hospice increased in 2022 for the first time since 2019. The increase hints at a normalization of the utilization rates back to pre-COVID data. Hospice utilization rates increased across all race and ethnicity groups, with the largest increase among Hispanic Medicare beneficiaries seeing. The total number of beneficiaries enrolled in hospice care in 2022 was 1.72 million. Due to the unique impact of COVID-19 on 2020 data, those data are not included in many of the charts this year.

Rita and Alex Hillman Foundation announces $500,000 in funding for nine projects to improve serious illness and end of life care Globe Newswire; by Rita & Alex Hillman Foundation; 9/10/24 The Rita and Alex Hillman Foundation ... announced nine grants to support innovative, early-stage interventions that address the serious illness and end of life needs of marginalized populations. The $500,000 in funding, part of a collaborative effort with The Arthur Vining Davis Foundations, will advance nursing-driven initiatives that improve care for diverse populations and expand access to high-quality end of life services. ... This year’s grants demonstrate a commitment to the design, development, and delivery of better and more equitable care. The 2024 HSEI grant recipients are:

Anthony House advocates for comfort care homes and hospice care in the community Oswego County Today, Oswego, NY; by Step One Creative; 9/6/24 Anthony House of Wellhouse Ministries ... is advocating for the importance of comfort care and homes allowing for the care to hospice patients. Anthony House, an Oswego-based non-profit, who is finalizing construction plans for their new hospice care facility in Hannibal, New York, aims to raise awareness about the critical need for these specialized care settings... Kateri Spinella, Executive Director of Anthony House of Wellhouse Ministries, emphasized the significance of comfort care homes in the community, stating, “At Anthony House, we believe that every individual deserves to experience end-of-life care with dignity, respect, and compassion. Our new facility will provide a nurturing environment where patients and families can find solace, support, and comfort during their journey.”