Literature Review

Big Bend Hospice opens new resale boutique benefiting local families Apalachicola The Times; by Bill Wertman; 1/15/25 At Big Bend Hospice (BBH), every decision we make is guided by our commitment to serving families across North Florida with compassion and care. For more than 40 years, we have been a cornerstone of support for patients with advanced illnesses and their loved ones. Today, I am proud to share an exciting new chapter in our story: the opening of Oak Tree Treasures, a resale shop located at 3260 Mahan Drive in Tallahassee. ...  Oak Tree Treasures embodies our mission of ensuring every family has access to the highest quality hospice care, regardless of financial barriers. All proceeds directly support our hospice services and therapeutic programs, bringing comfort and dignity to families during life’s most challenging moments.

University of Rochester Medical Center plans hospital-at-home program Becker's Health IT; by Giles Bruce; 1/21/25 Rochester, N.Y.-based UR Medicine plans to launch a hospital-at-home program in summer 2025. CMS approved the health system's flagship Strong Memorial Hospital in Rochester for acute hospital care at home in June 2024. The six-hospital system has since taken a "pragmatic and deliberate approach" to building the initiative, said Justin Hopkin, MD, chief of hospital medicine at University of Rochester Medical Center. "We are listening closely to what community members want and need, while observing how other health systems overcome challenges as they scale up their hospital-at-home programs," Dr. Hopkin told Becker's.

Sovereign Hospice empowering young adults to understand hospice Fox-40; Press Release by Sovereing Hospice; 1/20/25 Sovereign Hospice ... in Aubrey, Texas, is shedding light on the essential role young adults play in understanding and supporting hospice and palliative care services. Through their latest blog, “Spreading Insight: What Young Adults Should Know About Hospice & Palliative Care,” the organization aims to debunk myths, explain key differences between hospice and palliative care, and emphasize why early awareness is critical for families navigating complex health journeys. Many young adults assume caregiving responsibilities earlier than expected, often balancing personal and professional commitments. Studies show that nearly 1 in 4 adults aged 18–34 provide care for a loved one, underscoring the need for awareness about hospice and palliative care. 

Michigan hospice's training empowers African Americans to dialogue Catholic Health world; by Lisa Eisenhauer; 1/16/25 Rev. Diane Smith knows the hospice education program she leads for predominantly Black churches resonates with those who enroll. ... Rev. Smith directs The African American Church Empowerment Project at Livonia, Michigan-based Angela Hospice and gives certificates those who complete the training. She is also the hospice's director of ministry engagement and chief diversity officer. The Empowerment Project isn't about promoting Angela Hospice's services, Rev. Smith explains, but rather about educating the community on hospice care and listening to concerns about end-of-life issues. Rev. Smith sees another primary reason for the disconnect between Black Americans and hospice providers. She says many people of color have a distrust of the medical community that is rooted in historically being both denied care and exploited ...

CMS Health Equity Data Book U.S. Centers for Medicare and Medicaid Services - Office of Minority Health; by CMS Office of Minority Health; published December 2024, email notifications 1/15/25 One of the six pillars of the Centers for Medicare & Medicaid Services (CMS) 2023 Strategic Plan is to, “Advance health equity by addressing the health disparities that underlie our health system.” The CMS Office of Minority Health (OMH) aims to advance health equity by providing broader access to data about the state of health equity across CMS’ programs. This Data Book presents summary information on disparities within CMS programs as demonstrated by data related to prevalence. ... This Data Book is intended for use as a readily-available information source on health disparities within the Medicare, Medicaid, and the Health Insurance Marketplace populations. This Data Book is organized into five key sections – CMS at a Glance, Demographics, Chronic Conditions, Behavioral Health, and Social Determinants of Health – so that Data Book users can jump to the section most relevant to their data needs. Within each section, data are presented by each population type.

CMS Call for Nominations: 2025 CMS Health Equity Award U.S. Centers for Medicare and Medicaid Services; by CMS Health Equity; via CMS email 1/13/25Nominations for the 2025 CMS Health Equity Award are now open to organizations working to advance health equity, showing others how to reduce disparities in health care access, quality, and outcomes. Nominations are due February 18 at 11:59 pm PT.  ... Health equity is defined by CMS as the attainment of the highest level of health for all people, where everyone has a fair and just opportunity to attain their optimal health regardless of race, ethnicity, disability, sexual orientation, gender identity, socioeconomic status, geography, preferred language, and other factors that affect access to care and health outcomes. 

Guidelines for evaluating, diagnosing, and disclosing dementia published by Alzheimer’s Association Practical Neurology; 1/14/25 The Diagnostic Evaluation, Testing, Counseling, and Disclosure Clinical Practice Guideline (DETeCD-ADRD CPG) Workgroup, convened and funded by the Alzheimer’s Association, has developed new recommendations for clinicians to use when evaluating patients with possible Alzheimer disease (AD) or AD and related dementias (ADRD). An executive summary of the recommendations for use in primary care and other practice settings was published in Alzheimer’s & Dementia, along with a companion article summarizing specific guidance for specialists. The Workgroup included representatives from  primary, specialty, subspecialty, long-term, and palliative care disciplines as well as the fields of health economics and bioethics.  Editor's note: Click for open access to the Alzheimer's Association clinical practice guideline ..., executive summary of recommendations for primary care. 

Agrace expands hospice services into Milwaukee County Agrace.org; Press Release; 1/14/25 Residents of Milwaukee County who are in the final months of life have a new choice for high-quality, in-home hospice care. Agrace, the largest Wisconsin-based nonprofit hospice, has announced it is expanding its services into the county. For more than 45 years, Agrace Hospice Care has offered end-of-life care to people of all ages across southern Wisconsin. Milwaukee County residents can now enroll with Agrace to receive hospice care that comes to them where they live—in private homes, long-term care facilities or any other place they call home. In addition to a new regional office ... in Wauwatosa, Agrace has offices in Oconomowoc, Janesville, Dodgeville and Baraboo, and a hospice inpatient unit and residence in Madison. The Wauwatosa office is home base for an interdisciplinary care team that includes local hospice physician Andre Cernasov.

ECHO report exposes deadly toll of homelessness in Austin CBS Austin, TX; by Abigail Velez; 1/10/25 A report released this week by Austin's Ending Community Homelessness Coalition (Austin ECHO) revealed the human cost of the city's growing homelessness crisis. The report, analyzing six years of data, found that a staggering 1,010 unhoused individuals died in Austin between 2018 and 2023. Their average age of death: is just 50 years old, a full 20 years younger than their housed counterparts. ... The report offered a number of concrete recommendations, including: ... Develop a medical triage team to connect vulnerable individuals with appropriate care, including respite care, long-term care, substance use treatment, and hospice.

Iowa Finance Authority okays more than $500,000 for North Iowa homeless assistance [$66k to Cedar Valley Hospice] KIMT3 News, Des Moines, IO; by Mike Bunge; 1/9/24 Over $500,000 in grants from the Iowa Finance Authority is going to homeless assistance programs that cover North Iowa. $18,189 will go to Community Kitchen of North Iowa, Inc. in Cerro Gordo County.  Cedar Valley Hospice covering Allamakee, Black Hawk, Bremer, Buchanan, Butler, Chickasaw, Fayette, Floyd, Grundy, Howard, Mitchell, and Winneshiek counties will receive $66,565.  $474,108 will go to Primary Health Care covering [28 counties] ...

The Alliance celebrates the Dole Act becoming law, protecting burial benefits for veteransNational Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 1/7/25 The National Alliance for Care at Home (the Alliance) issued the following statement in response to President Biden signing S. 141, the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act, into law on Thursday, January 2. This landmark legislation includes Section 301, Gerald’s Law, which addresses a critical gap in benefits for Veterans. Gerald’s Law ensures that families of terminally-ill Veterans receiving Veterans Affairs (VA)-furnished hospice care—whether at home, in a nursing home, or in another non-VA setting—retain access to their full VA burial allowance. “We are deeply grateful for the bipartisan support of Gerald’s Law and its inclusion in the Dole Act,” said Dr. Steve Landers, CEO for the Alliance. “This legislation ensures that Veterans and their families can choose hospice care in the setting that best meets their needs without risking the loss of crucial burial benefits. We thank Senators Moran, Tester, and Hassan, Representatives Ciscomani, Bost, Brownley, and Takano, and many others for their leadership, as well as President Biden for signing this important bill into law.”

Family advocates for hospice care, says it doesn't always mean end-of-life: Highlights case of the late Former President Jimmy Carter who spent nearly 2 years in hospice CBS WTKR 3, Hampton Roads | Northeast NC; by Jay Greene; 12/20/24 Dana Romano's mom, Marilyn, headed home from the Dozoretz Hospice House of Hampton Roads in Virginia Beach on Monday evening after spending a few days in respite care while her family was out of town. "The whole reason not to have my mom in a facility is we want her with us. But when you're doing long periods of time, every once in a while, you need a break, so having a place where you know they're going to take care of her and treat her like, almost like family," Dana said. "We kind of look at this more like a resort than a hospice." ... When at home Marilyn receives hospice care, but it's not because she needs care, the Romano's said. It's because she needs supervision. ... The family told News 3's Jay Greene this is a case where hospice does not mean end-of-life. It actually helped alleviate some stress. ... The Romano's told News 3's Jay Greene hospice ["has no time limit"] is all about extending life as comfortably as possible, citing Former President Jimmy Carter who died at the age of 100 this weekend.Editor's note: These misunderstandings by the family about hospice care is both alarming and expected. Throughout Jimmy Carter's extended hospice Length Of Stay (LOS), far too many hospice organizations misused messaging for its marketing purposes. We have addressed this discrepancy in a dozen posts throughout the year. Click here for the CMS "Face-to-Face Requirement Affecting Hospice Recertification." Disclaimer: We do not specifics about what this hospice communicated with this family. We simply refer readers to this as publicly reported news story.