Literature Review

The ‘perfect way to die’ in North Dakota CBS KX News, Bismarck, ND; by Brendan Rodenberg; 10/27/24 Death is not something people tend to look forward to at the end of their lives, but it is important to discuss nonetheless — and while many have ideas of how they would like to pass away, these vary immensely across America. This begs the question: How would North Dakotans like to spend their last moments?  ... [An insurance poll that surveyed 3,000 people from across the nation indicated]  that the perfect death for a North Dakotan would be to pass while hiking White Butte, the state’s highest point. ... The survey also delved deeply into other aspects of one’s last moments, including those surrounding them and what occurs after the moment of death. Below is a list of the most prevalent takeaways from this part of the study.

Advance Directives: How to make sure your end-of-life decisions are followed Bottom Line Inc; by Mathew D. Pauley, JD; 10/24/24 Nearly 40% of older Americans have some form of advance directives, such as a living will to communicate wishes about life-saving treatment…or a medical power of attorney appointing a loved one as proxy if they’re incapacitated.  Problem: Your wishes may not always be followed in real-world situations. Examples: Emergency paramedics typically provide CPR to restart a patient’s heart even if that patient’s living will says otherwise. And complex medical circumstances at the end of life often arise that force your loved ones to make judgment calls about what you really want. Bottom Line Personal spoke to clinical ethicist Mathew Pauley about how to make sure hospitals, medical providers and family members follow your medical wishes.

Everyday moments of grace: Hospice patient’s art brings joy PeaceHealth; 10/22/24 A hospice patient’s room becomes an art studio to create expressions of her life she loves to share with others. A stay at hospice did not stop Sherry McCalden from doing what she loves - creating art and sharing it with others. ... McCalden is a lifelong artist. Her love of painting started in high school. She's been creating works of art ever since. From landscapes to animals to flowers, she paints what inspires her and what she loves. Not much stops her from painting, including Parkinson's disease. For a few months, she was at the PeaceHealth Richard Nau Hospice House in Longview, Washington before her health stabilized and she was relocated to another facility. She transformed her room at Hospice House into an art studio filled with her paintings. A visit brought joy to both visitors and staff.

Nonprofit endeavors to facilitate food justice Towne Post Network; by Julie Yate; 10/17/24 Bringing Justice Home [in Louisville, KY] is a nonprofit organization committed to alleviating hunger caused by food insecurity for those facing disabilities and chronic or serious illnesses. Now in its fourth year, the completely volunteer-run initiative seeks to facilitate food justice by delivering groceries and household supplies to health-compromised families and individuals who fall below the poverty line. Equally important is the relationship building that occurs as resources are shared and volunteers open their hearts to bringing justice closer to home. ... “Bringing Justice Home is a new kind of neighborhood that goes beyond zip codes, race, disabilities, health labels or status,” says Constance Merritt, who co-founded the organization along with her wife, Maria Accardi. Merritt is a published writer and a licensed social worker with a master’s degree from the University of Louisville. She has worked with older adults in low-income senior housing, patients and families in hospital palliative care, and individuals receiving HIV and AIDS services. 

Family and friends deliver early Christmas cheer to woman in final days of her life  CBS News, Antioch, IL; by Dana Kozlov and Tracy O'Brien; 10/16/24 Driving by a home in the far northwest suburbs, you might wonder what happened to Halloween, as each day more Christmas decorations keep showing up. The answer is a touching tribute to a loving mom, wife and friend; with a special message for everyone. Voices of holiday cheer rang outside a home on a warm fall day in Antioch during a festive gathering for Jamie Haley, a woman loved by many, watching from the front window. "It couldn't be better. I could not be happier," Jamie said. Hearing those words, you wouldn't realize Haley is in the final stages of her life, with hospice coming daily. Known for her lifelong love of Christmas, her family is bringing the joy of the season to her in a big way. "Everybody is showing up and strangers are showing up," said her daughter, Anna. "It's Christmas for as long as it can be. We just love her so much.  … We are going to love her until we have to miss her." ... [Click on the title's link to continue reading this beautiful story.]

A Life: James Heffernan ‘made a life out of appreciating and loving literature’ Valley News, Hanover, NH; by Elle Muller; 10/12/24 As a Dartmouth professor, writer, and father, James Heffernan inspired those around him with his love of literature and passion for life. Heffernan’s children, Virginia and Andrew, affectionately called their father’s lust for life, “Heffervessence.” “His life was shaped by what he loved,” Heffernan’s son, Andrew, said. “He found literature early on and he was deeply passionate about it.” Demonstrating the vivacity and enthusiasm that had long characterized him, Heffernan, who died in July at age 85 of metastatic prostate cancer, wrote 100,000 words of his memoir in the first few months of hospice care.

Hoping to reach 100? You’re not going to like these new life expectancy projections New York Post; by Tracy Swartz; 10/7/24 Let’s keep it 100 — your chances of becoming a centenarian are slim. Medical breakthroughs, public health achievements and better diets led to steep increases in global life expectancy in the 1800s and 1900s. But startling new research finds this momentum has slowed and the biggest boosts to longevity may be in the rearview mirror. “Most people alive today at older ages are living on time that was manufactured by medicine,” said lead study author S. Jay Olshansky, a professor of epidemiology and biostatistics at the University of Illinois at Chicago. “But these medical Band-Aids are producing fewer years of life even though they’re occurring at an accelerated pace, implying that the period of rapid increases in life expectancy is now documented to be over,” Olshansky added. The analysis, conducted with researchers from the University of Hawaii, Harvard and UCLA, includes data from eight countries with the longest-living populations (Australia, France, Italy, Japan, South Korea, Spain, Sweden and Switzerland), Hong Kong and the US from 1990 to 2019.

Improv for Caregivers receives a grant from the New Hampshire State Council on the Arts EINPressWire; by A. A. Cristi; 9/23/24 The New London Barn Playhouse received an arts in health grant from the New Hampshire State Council on the Arts to continue and expand their Improv for Caregivers program through a larger umbrella program titled “Improv for a Cause.” “Improv for a Cause” will encompass two communication programs that use a similar process to reach different communities. The first, Improv for Caregivers, in partnership with Lake Sunapee Region VNA & Hospice, is an ongoing communication workshop series for those who care for loved ones with dementia and Alzheimer's. ... Each improv workshop session combines insight from healthcare professionals with improvisational theatre techniques, with a goal of developing new communication skills, strategies to cope with stress, flexibility in relationships, and an understanding of loved ones' changing perspectives. With guidance from the VNA and caregivers in the community, the team of actors prepare short scenarios that portray situations caregivers commonly face, such as sundowning, taking away car keys, collaborating with care staff, and hallucinations. ...

Former M&S chairman: ‘Planning for my wife’s death with her made it easier to cope’ The Telegraph; by Leah Hardy; 9/17/24 When Patricia Swannell was diagnosed with incurable breast cancer, she planned both how she wanted to die and her legacy beyond the grave. On the first anniversary of her death, Patricia’s husband Robert speaks about her “beautiful” death, how she achieved it, and how it has helped the family in their grief. [Robert Swanell tells their story with the following key themes.]

Central Coast lavender farm helping cancer and hospice patients in Monterey County KSBW-8 News, Monterey County, CA; by Zoe Hunt; 9/9/24  Lavender Creek Co. has turned its family farm into a source of comfort for cancer and hospice patients in Monterey County. Ryan and Myriah Hopkins are the husband-and-wife duo behind the lavender farm on Carmel Valley Road. They’re using their home-grown lavender to donate products like hand towels and eye pillows designed to soothe and relax, a much-needed comfort for hospital patients. ... "We are donating our lavender that [the Monterey Quilters Guild sews]into eye pillows and then donate it to our hospital or nonprofits," Hopkins said. "Then those go to patients undergoing cancer treatment and hospice care."

Hospice patient’s final life wish comes true at Colts game WISHTV.com-8, Indianapolis, IN; by Kyla Russell; 9/8/24 Indianapolis hospice patient Calvin Simmons is terminally ill and had one final life wish: to attend a Colts game. “It was one of those things that you say, ‘I gotta do this, I gotta do this,’” Simmons said Saturday morning. “My dad used to tell a story about me being about three years old, running back and forth in the house wearing a Colts helmet.” The Marine veteran lives at the Abbie Hunt Bryce Home on the northeast side of the city. The home is run by nonprofit Morning Light, Inc. and offers end of life care for free to those in need. The lifelong Colts fan started his day out in his decked out Colts hospice room. Soon enough, his dream came true when he traveled to Lucas Oil Stadium to see the Colts face the Texans for their season opener. 

Flourishing at the end of life Public Discourse - The Journal of the Witherspoon Institute; by Xavier Symons, John Rhee and Tyler VanderWeele; 9/5/24 Dying is part of life, but most people dread their final days. The end of life, which often takes the form of protracted terminal illness, can involve significant pain and suffering as well as functional limits in day-to-day living. Is it still possible for human beings to flourish at the end of life? ... While dying may be a time when agency and quality of life are limited, the end of life also presents unique possibilities for the realization of human goods. Some dying patients discover meaning by reflecting on the events of their lives and come to a deeper appreciation of their own life legacy. Terminal illness also presents opportunities for a deepening of close social relationships and the fulfillment of relationship commitments. Paradoxically, the end of life can be a catalyst for gratitude and self-transcendence. It is worth asking, then: can we flourish even as we approach death? And how can we help our loved ones flourish in their final days? Editor's note: Take your time with this excellent essay, as it gets to our collective, core hospice mission, as described by Dame Cicely Saunders: "You matter because you are you, and you matter to the end of your life. We will do all we can not only to help you die peacefully but also to live until you die." 

World Alzheimer's Month: September 2024 Alzheimer's Disease International, London, UK and Lincolnshire, IL, USA; retrieved from the internet 8/26/24Each September, people unite from all corners of the world to raise awareness and to challenge the stigma that persists around Alzheimer's disease and all types of dementia.  ... The 2024 World Alzheimer's Month will centre around the taglines 'Time to act on dementia, Time to act on Alzheimer's.' ...  Editor's Note: Click here for Alzheimer's Disease Internationals' 2024 campaign theme materials. Click here for the Alzheimer's Association in your USA location.