Literature Review

Spread some love to seniors this Valentines Day WKBN Youngstown, OH; by Dave Sess; 1/21/25 As you’re making Valentine’s Day plans, consider spreading some love to local seniors. You can make special cards or buy a thoughtful card and share the love. Home Instead is organizing the collection again this year. It has three schools already committed to making cards as it hopes to double last year’s total of 1,000. Each of the Valentine’s Day cards will carry a heartfelt message to seniors in nursing homes and assisted living communities that they’re loved, appreciated and remembered. ... The seniors will also receive flowers from Harmony Hospice. “These seniors appreciate anything from a simple smile to a card or a flower and just a simple hello,” said Sara Stevens with Harmony Hospice.Editor's note: Calling community outreach professionals--what a simple, meaningful way to engage your community for meaningful, intergenerational engagement and support. Now's the time! What can you do?

Community invited to see Edina Thespians' one-act play, 'Wit' Sun Current, Coon Rapids, MN; by Alex Kautzman; 1/20/25Edina High School Thespians are ... looking forward to showing off their hard work to the community in two performances at the Edina Performing Arts Center. ... "Wit" centers on Vivian Bearing, a brilliant poetry professor, as she undergoes an experimental and extremely aggressive chemotherapy treatment. As Vivian undergoes treatment at the hands of impersonal doctors, she discovers that human compassion may be more important than intellectual wit.Editor's note: This Wit telepay is based on the 1999 Pulitzer Prize-winning play by Margaret Edson. Its 2001 television drama film was directed by Mike Nichols, written by and starring Emma Thompson. Wit has been used extensively for community and clinical education, fostering conversations about ethics, palliative care/hospice, advance directives, quality of life, and more. Click here for more information. Wit can be streamed via Max and the Max Prime Video Channel.

For 27 years, I had minimal contact with my abusive mother. Then she moved in with me. HuffPost; by Carole Brodsky; 1/20/25 ... Living with my mom was the last thing I ever thought I’d be doing as an adult. Perhaps I accepted her back into my life because there were no other options available. Perhaps it was because I was the daughter of someone who in today’s vernacular would be called a “tiger mom,” and I’d been taught caring for an aging parent was what “good daughters” did.  ... As a child, my mother was abusive.  ... [Now, as] Mom’s verbal skills declined, we had to use our eyes, guts and hearts to discern the needs of a person whose tether to this world was fraying before our eyes. ... My partner has a saying: I always forgive, but I never forget. I have unequivocally forgiven my mother for everything. I have tried, with varying degrees of success, to let the vestiges of her abuse die with her and not invade the lives of my children, grandchildren and now, great-grandchildren. The work on forgiving myself will continue for the rest of my life.

Home … where we all want to be The Journal; Dr. Sarah Phillips, Medical Director Hospice of the Panhandle; 1/12/25 Two days before Christmas, I arrived at the home of a patient who had been recently admitted to Hospice services. ... [Story of the patient being on a ventilator in a hospital.] This courageous and self-determined woman expressed the desire to be free from pain, suffering, and the complications and progression of her disease. Knowing that the ventilator was life-sustaining and essentially breathing for her, she made the decision to stop it. To ensure her comfort during discontinuation of the ventilator, the hospice team was present before, during, and after the procedure. Medications were used to ease shortness of breath, pain, and anxiety. ... “It’s a Wonderful Life” was playing on the TV, the Christmas tree was lit. I looked over and see the daughter wiping away her mother’s tears. Each reassured the other that everything will be OK and that they are at peace with this decision. As the medications took effect, the patient drifted off to sleep. The ventilator was stopped. Next, something happens that I will never forget. The daughter leans in and whispers to the patient, “Mom, the ventilator is off now, you are back in total control. This was profound to me on many levels. It certainly spoke to the power and importance of autonomy, the ability to make independent decisions that are aligned with one’s values and goals. ... Despite working in end-of-life care for over a decade, I still have these moments of being overwhelmed by the human spirit.

Bestselling author: I asked 26,000 people around the world their biggest regrets—these were the top 4 NBC News NECN Channel 4, Boston, MA; by Aston Jackson, CNBC; 1/11/25 Living life without regrets is impossible, says bestselling author Daniel Pink. "Everybody has regrets. It's one of the most common emotions that human beings have," said Pink, in a podcast episode that published last month. "And yet, we've been sold such a bill of goods about positivity and being positive all the time that when we feel regret, we think we're the only one." Pink combed through decades of research and surveyed more than 26,000 people from 130 countries about their biggest regrets for his 2022 book, "The Power of Regret," according to his website. Most of those people struggled with four core regrets:

Global healthspan-Lifespan gaps among 183 World Health Organization member statesJAMA Network Open; Armin Garmany, BS; Andre Terzic, MD, PhD; 12/24Gains in life expectancy across global populations are recognized as a societal achievement, ... but increased lifespan, ...  does not necessarily mean a longer healthy life. An estimate of healthspan is the health-adjusted life expectancy whereby years of life are weighted by health status. Notably, gains in life expectancy have not been matched by an equivalent rise in health-adjusted life expectancy. The resulting healthspan-lifespan gap reflects the extent of lifespan burdened by disease. Against the backdrop of the greatest noncommunicable disease burden, the US recorded the largest healthspan-lifespan gap ... , with a gap 24% larger than projected from the country’s life expectancy. Specifically, in the US the mean healthspan-lifespan gap increased from 10.9 to 12.4 years over the past 2 decades ... , resulting in a 29% higher gap than the global mean. Women exhibited a 2.6-year higher healthspan-lifespan gap than men, increasing from 12.2 to 13.7 years or 32% beyond the global mean for women.

As a hospice nurse, Jaffrey's Nancy Folsom helps make the journey easier The Keene Sentinel, Keene, NH; by Elijah de Castro; 12/28/24 Nancy Folsom has been working around death since she was a teenager in her family’s funeral home, where she was an embalmer apprentice. From there, she took a step back, pursuing a career as a home hospice nurse in the Monadnock Region, where she helps those who are dying confront death. “Death is never easy, at any age or any time,” Folsom said. “We want to make it as human as possible. I’ve always been comfortable with death.” ... Folsom, 62, of Jaffrey, “has never had a boring day” on the job. When she’s not out in the community working, she’s in the Peterborough office of Home Healthcare, Hospice and Community Services, a local nonprofit provider of home health services that also has offices in Keene and Charlestown. ... Over the years, Folsom has gained experience in how to best read a situation when she gets a new patient. Building trust between a hospice nurse and a patient, Folsom said, takes time, something many of her patients don’t have. Folsom resolves this dilemma by first making sure she is comfortable herself and cultivating a calm, abiding presence. ...

Hospice study reveals contrasting views on managing dementia behaviors McKnights Long-Term Care News; by Donna Shryer; 12/20/24 A new study finds that healthcare providers and family caregivers often disagree on how best to manage dementia behaviors during end-of-life care. The research, published in the Journal of the American Geriatrics Society, involved interviews with 23 hospice clinicians and 20 family caregivers. With dementia affecting 33% of adults over age 85 and now ranking as the primary diagnosis for Medicare hospice services, understanding these differing perspectives about managing dementia behaviors has become increasingly important. The study found that while both groups identified agitation as the most concerning behavioral symptom, they approached it from different angles. Clinicians primarily worried about physical safety risks, while family caregivers were more distressed by personality changes in their loved ones.

The Denver Hospice delivers holiday meals to 347 Coloradans; initiative ensured Coloradans facing hardship can celebrate with a holiday meal GlobeNewswire, Denver, CO; by The Denver Hospice; 12/20/24 The Denver Hospice, in collaboration with dedicated staff, provided 76 meals to patients and their families facing hardship during the holiday season. Over 347 people will enjoy a festive dinner as a result of the nonprofit’s healthcare organization’s holiday initiative. “At this time of the year, it can be especially hard for people to admit that they need help,” stated Susan Finke, director of clinical services at The Denver Hospice. “I want to thank everyone who helped deliver dinners today as we are caring for more people than just our patients. Hundreds will now have the opportunity to gather next week and enjoy being with their loved ones.” ... This is an annual event held by The Denver Hospice in support of their hospice and palliative care patients. Working in tandem with social workers, clinical and administrative staff, the nonprofit identifies and supports vulnerable patients across the Denver metropolitan area. The holiday season can be an especially difficult time of year for those facing life-limiting illnesses. 

December challenge: Gift ideas part two ActiveRain; by Kat Palmiotti; 12/17/24 ... My mother dealt with cancer the last four years of her life with an upbeat attitude, ...  So what did she do with the time she had left? The same as always. It was late November 2011 at this point. So what she decided to do was to make a point of purchasing us all our last Christmas present. ... So for me, she purchased me a coffee cup with a lid which is pictured in the feature photo. ... But my mom didn't stop there. She also wrote each of her family members a handwritten letter. Her letter to me talked about me being her first born, and about what I was like during my childhood, and how she felt about my life as an adult. It was a beautiful letter that makes me smile and cry every time I read it. I treasure it. ... So why am I sharing this? Because when I think back on all the gifts I've ever received, it's not jewelry or clothing or anything else that pops into my mind first. It's a $5 cup and a piece of paper with writing on it. And both of those were my mom giving me love. So, when giving gifts to those you care about, give them love. Perhaps grab a piece of paper and a pen and let them know how much you care about them. Or buy them a small carefully selected item that they might use on a daily basis, smiling because it's from you. Because really, it truly is the thought that counts. Let that thought be love.

Characteristics of patients enrolled in hospice presenting to the emergency department American Journal of Emergency Medicine; by Kayla P Carpenter, Fernanda Bellolio, Cory Ingram, Aaron B Klassen, Sarayna S McGuire, Alisha A Morgan, Aidan F Mullan, Alexander D Ginsburg; 12/9/24, online ahead of print Emergency Departments (EDs) frequently care for patients with life-limiting illnesses, with nearly 1 in 5 patients enrolled in hospice presenting to an ED during their hospice enrollment. This study investigates the reasons patients enrolled in hospice seek care in the ED, the interventions they receive, and their outcomes. ... Patients enrolled in hospice most frequently presented to the ED for trauma [36%; with 15% for pain, 12% for catheter/tube malfunction]. Most received laboratory studies and imaging. Nearly half of patients were admitted to the hospital and short-term mortality was high, particularly for patients enrolled in hospice for needs for ED care? Ie.,

Embracing life when nearing death The Aspen Times - Snowmass Sun; Aspen, CO; by Allison Daily; 12/13/24 Receiving a terminal diagnosis is one of life’s most profoundly difficult moments — a collision of disbelief, fear, and uncertainty. With some diseases, there’s a glimmer of hope for a miracle; with others, the focus shifts to navigating the process ahead. When Rita Hunter first asked to meet with me, I had no idea she had been diagnosed with Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s Disease. As we settled into my office, she got straight to the point: “I want you to help me with this last part of my life.” I left our first session rattled, but we established a clear understanding over time. She needed someone with whom she could be brutally honest — someone to discuss, without judgment, what she was willing and unwilling to endure. ... In her final days, her body let her know when it was time, and she showed extraordinary grace. She was a gift to this community, and she was a gift to me. She taught me more than I could ever give to her. Rita had become a model of how to live fully, even in the face of an unchangeable reality. Editor's note: Click on the title's link to read this inspirational story, and to learn this clinician's "treehouse" imagery intervention.

Watch: ‘Going It Alone’ — A conversation about growing old in AmericaKFF Health News; by Judith Graham; 12/11/24 KFF Health News’ “Navigating Aging” columnist, Judith Graham, spent six months this year talking to older adults who live alone by choice or by circumstance — most commonly, a spouse’s death. They shared their hopes and fears, challenges, and strategies for aging solo. Graham moderated a live event on Dec. 11, hosted by KFF Health News and The John A. Hartford Foundation. She invited five seniors ranging in age from 71 to 102 and from across the country — from Seattle; Chicago; Asheville, North Carolina; New York City; and rural Maine — to talk candidly about the ways they are thriving at this stage of life.