Literature Review

Our hospice system subverts the very point of hospice care The New York Times; Opinion | Guest Essay by Sandeep Jauhar; 3/2/26 When my siblings and I decided to put our father in hospice care at his home in the spring of 2021, his Alzheimer’s was near end-stage. He could barely get out of bed or dress or feed himself. Hospice care seemed to be the best way for him to end his life with dignity. ... We soon encountered a harsh reality, however. Dying at home isn’t easy, even with hospice care. ... The main problem was funding. In 2024, the average per-patient Medicare payment to hospice agencies was about $200 a day, with an annual cap of $33,500. That outlay would barely pay for a part-time aide, yet it is also needed to cover medications, medical equipment and nurse visits.

Husch Blackwell’s Meg Pekarske: Hospices facing ‘huge pendulum shift' Hospice News; by Holly Vossel; 2/27/26 The hospice space has seen waves of regulatory changes in recent years that are affecting sustainable access, according to Meg Pekarske, partner at the law firm Husch Blackwell. Ensuring program integrity and quality will take an overhaul of hospice regulation. Pekarske, a hospice and health care attorney, is retiring with more than 25 years of legal experience, effective March 31. She recently sat down with Hospice News to reflect on the most significant regulatory changes impacting the future scope of hospice care delivery. Greater consideration is needed around a potential revamp of the Medicare Hospice Benefit, Pekarske said.

The Alliance and the Research Institute for Home Care release 2025 Hospice Chartbook National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 2/19/26 The National Alliance for Care at Home (the Alliance) and The Research Institute for Home Care (the Institute) are excited to announce the release of the 2025 Hospice Chartbook. Highlighting the vital role that hospice plays in caring for an aging demographic, the Chartbook provides a look at the patients being served in hospice, who they are demographically and clinically, and more.  Now in its second year, the 2025 Hospice Chartbook, co-sponsored by the Alliance, provides an overview of national patient and workforce data with an emphasis on state-specific information and trends, including key data on hospice patients and providers, Medicare spending on hospice, and more. 

Hospice spending, care quality scores by state Becker's Hospital Review; by Elizabeth Gregerson; 2/18/26 California and Nevada hospice providers had the lowest care-quality scores despite spending the most per beneficiary to provide care between Jan. 1, 2023, and Dec. 31, 2024, according to CMS data released Feb. 18. Rhode Island and West Virginia had the highest hospice care quality scores during the data collection period. CMS’ Hospice Quality Reporting Program includes data submitted directly by hospice providers, from Medicare hospice claims, and from the Hospice Consumer Assessment of Healthcare Providers and Systems survey. Here are the hospice care quality scores and per-beneficiary spending amounts by state between Jan. 1, 2023, and Dec. 31, 2024, according to CMS: ...

[England] Almost one in three people in England die without the basic care they need Medical Xpress; by King's College London, edited by Lisa Lock; 2/16/26 About 170,000 people in England every year spend their final days in pain, distress or without vital support that should be available to everyone at the end of life. These are the findings of the first major study in more than a decade to estimate unmet palliative care needs among people at the end of life. The paper was led by researchers at King's College London and Hull York Medical School, University of Hull, with contributions from the University of Edinburgh and was published in the Journal of Health Services Research & Policy.

Labor & employment lawyers, at Blumenthal Nordrehaug Bhowmik De Blouw LLP, file suit against Sutter Visiting Nurse Association and Hospice, for underpayment of employees' wages Benzinga, Sacramento, CA; by PRNewswire; 2/12/26 The Sacramento employment law attorneys, at Blumenthal Nordrehaug Bhowmik De Blouw LLP, filed a class action complaint alleging that Sutter Visiting Nurse Association and Hospice violated the California Labor Code. The Sutter Visiting Nurse Association and Hospice, a class action lawsuit, Case No. 25CV029700, is currently pending in the Sacramento County Superior Court of the State of California. A copy of the Complaint can be read here.

The Parmenter Foundation expands compassionate care, bereavement community with 2026 grants Transcendental Meditation News Today, Wayland, MA; Press Release; 2/3/26 ... The Parmenter Foundation, based in Wayland, Mass., will provide $400,000 to nearly two dozen innovative and compassionate programs in four areas of support: children’s bereavement, caregiver support, family bereavement, and hospice care. “We are honored to provide funding to such deserving organizations in 2026,” said Executive Director Angela Crocker. ... Among this year’s grantees is long-term partner Good Shepherd Community Care’s Miriam Boyd Parlin Hospice Residence, ... and Empower Grieving Children, ... [Click here for the full list.]

Sanofi Collective - Foundation S stands behind transformative children's palliative care project in Kenya Global Treehouse Foundation; Press Release; 1/27/26 A significant grant from the Foundation S - the Sanofi Collective will enable a transformative three-year project delivering comprehensive grief and bereavement care to families affected by childhood cancer in Kenya. This is about more than funding: it’s about ensuring families are seen, supported and not left to navigate their most challenging moments alone. Foundation S’s investment is a significant milestone in integrating grief and social-emotional support into healthcare systems - an area too often overlooked, yet essential to the dignity and well-being of children and those who love them.

Rehab staff concerned by Enloe’s partnership with Lifepoint Chico Enterprise-Record, Chico, CA; Press Release; 1/24/26 In a move that is concerning some staff members, Enloe Health is partnering with private company Lifepoint Health to manage its rehabilitation center. ... This is the second time in roughly five months Enloe outsourced or transitioned services away from in-house management. In August 2025, Enloe ended its in-house Home Health and Hospice program, with hospice services now referred to Butte Home Health and Hospice. Enloe Health and Butte Home Health and Hospice are nonprofits, while Lifepoint is a for-profit company. 

Christmas tree recycling raises £100k for hospice BBC News; Press Release; 1/16/26 A hospice has raised more than £100,000 through its annual Christmas tree recycling scheme, declaring it the most successful year yet. St. Giles Hospice, Lichfield, said 5,425 real trees were collected from people's doorsteps between 10 and13 January as part of its TreeCycle service. Volunteers, hospice staff and local businesses braved the winter weather to pick up trees across Staffordshire, north Birmingham and surrounding areas, stated the charity. The Christmas trees, which lined up would measure nearly seven miles, were being turned into compost by a Lichfield company for agricultural purposes, it added.

US health expenditures rapidly accelerating Hospice News; by Jim Parker; 1/14/26 ... Rising health care utilization is the most significant driver of the spending increases, according to CMS. One key factor is that utilization is bouncing back from declines that occurred during the COVID-19 pandemic, according to Micah Hartman, a statistician in the National Health Statistics Group with the Office of the Actuary at CMS. Population growth was also a factor. ... By payer type, private health insurance saw the largest rate of spending growth at 8.8%, followed by Medicare at 7.8% and Medicaid at 6.6%. Out-of-pocket spending rose by 5.9%. ... Hospice care saves Medicare roughly $3.5 billion for patients in their last year of life, according to a joint report from the National Hospice and Palliative Care Organization (NHPCO), the National Association for Home Care & Hospice (NAHC) and NORC at the University of Chicago.

CMS, hospice groups mull Wage Index reform Hospice News; by Jim Parker; 1/13/26 Some stakeholders in the hospice space are seeking reforms to the hospice wage index. ... CMS has given indications that it would mull changes to the hospice wage index. In 2025, the agency convened a technical expert panel to consider the issue. One point of discussion is the application of new data sources, including potential changes to hospice cost reports. ... One proposal discussed within the panel would be to revise the hospice cost report to collect accurate information about costs related to full-time employees, ... To implement a new wage index methodology, CMS would also have to go through a proposed rulemaking process, including public notice and a comment period. With any wage index changes, some hospices would “win” and others would “lose.” Some providers may see higher payments as a result, whereas others may see their rates go down. ...

What to expect in US healthcare in 2026 and beyond McKinsey & Company; by Neha Patel and Shubham Singhal with Ankit Jain; 1/12/26The healthcare industry faces successive waves of challenging trends, with glimmers of opportunity in select segments. US healthcare system continues to face considerable financial strain, although there are pockets of opportunity. ... Payers and providers have borne the brunt of the decline to date and will continue to feel financial pressure in the immediate future. ... Meanwhile, providers could experience an increase in uncompensated care and loss of reimbursement. ... Post-acute care is positioned for stronger performance over the next several years, with continued growth in home health and hospice but stagnation in skilled nursing facilities. ...