Literature Review
All posts tagged with “Research News | Journal Article.”
[Netherlands] Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practice
01/30/26 at 03:00 AM[Netherlands] Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practice BMC Palliative Care; by Sophie Tooten, Rosella P.M.G. Hermens, Manel Verhoeven, Ellen M. Vierhoven, Fatima Boulakhrif, Jana M. Reintjes, Michel A.A.P. Willemsen, Judith L. Aris-Meijer, Jurrianne C. Fahner, Marijanne Engel, Marijke C. Kars, Inge M.L. Ahout & Esther Deuning-Smit; 1/29/26 Pediatric advance care planning (pACP) aims to align future care and treatment of children with life-limiting conditions (LLCs) with children’s and their families’ values, goals and preferences. Documenting and sharing pACP elements with healthcare professionals (HCPs) is essential for goal-concordant care. This study evaluates how pACP elements are documented in electronic health records of children with LLCs and shared with other HCPs.
Improving timeliness of palliative care referrals within the ICU: A quality improvement project
01/26/26 at 03:00 AMImproving timeliness of palliative care referrals within the ICU: A quality improvement project Dimensions of Critical Care Nursing (DCCN); by Stephanie Fiore, Simone O'Donovan, Kerry A Milner; 1/23/26 ... Using the Model for Improvement, this quality improvement project was conducted over 7 months, including a 4-month baseline phase and a 3-month implementation phase. ICU nurses used a PC screening tool to evaluate patients within 48 hours of admission. The project aimed to increase PC screenings to 75% and ensure PC referrals within 48 hours. ... The implementation phase saw a significant increase in PC screenings, with compliance reaching 90.9% after process adjustments.
"The lack of preparation compounds provider grief": Results from a needs assessment on grief training delivered to pediatric residents
01/24/26 at 03:55 AM"The lack of preparation compounds provider grief": Results from a needs assessment on grief training delivered to pediatric residentsClinical Pediatrics; by Erin Hickey, Erica L Jamro; 12/25Educational interventions to prepare pediatric residents to care for grieving people are rare. Pediatric residents completed a survey conducted from March to April 2022 that assessed their experience, attitudes, skills, and knowledge of organizational support related to caring for grieving patients and families. Despite improvements in competence with delivering difficult news with years in residency ... , only 35.7% felt competent by PGY3/4 [post-graduate year 3]. Only 19.5% of residents overall believe adequate grief support exists within their training program. Opportunities for residents to receive formal grief training are inadequate.
Taking care of themselves: Cannabis use among informal care partners of older adults
01/24/26 at 03:55 AMPalliative care in pediatric phase I oncology trials: A scoping review
01/24/26 at 03:45 AMPalliative care in pediatric phase I oncology trials: A scoping reviewPediatric Blood & Cancer; by Andrea Cuviello, Harisankeerth Mummareddy, Alanis N. Gomez Martinez, Holly Spraker-Perlman, Allison Uber, Jordan Wrigley, Erica C. Kaye; 12/25Clinical trials, particularly Phase I trials that test drug safety and feasibility, are imperative to advance outcomes for children with cancer. These trials, however, pose risks for increased symptom burden and suffering. Early integration of palliative care (PC) during Phase I trial enrollment offers a potential reduction in suffering and improvement in quality of life. PC integration was associated with earlier hospice enrollment, increased home and hospice deaths, decreased hospitalizations and intensive care unit utilization, improved care coordination, and better symptom management.
[Italy] End of life with psylocibin: Research, data and experience
01/24/26 at 03:35 AM[Italy] End of life with psylocibin: Research, data and experienceEmerging Trends in Drugs, Addictions, and Health; by T. Re, A. Metastasio; 12/25Throughout history, mushrooms have served as a bridge for ancient populations, guiding human beings from earthly life to the "Beyond" and allowing them to "taste" this passage during their lifetime, thereby alleviating the fear of death. Recent scientific research has revealed that these ancient practices are supported by research done by leading world universities showing the effectiveness of psilocybin mushrooms in addressing fear of death, anxiety, and existential stress. The experience of guiding a person across the bridge between life and death raises intriguing questions about the nature of consciousness, the potential for communication in "non-ordinary states of consciousness" between different realms of nature, and the possibility of transcending space and time, thereby creating a new experience and continuity between life and death. Although we advocate for a wider and more accessible of use of psylocibin in the end of life we believe that more studies are necessary to identify the subjects that would benefit the most from this practice.
Palliative care staff attitudes toward music therapy for hospitalized adult patients
01/24/26 at 03:20 AMPalliative care staff attitudes toward music therapy for hospitalized adult patientsAmerican Journal of Hospice & Palliative Medicine; by Katherine A. Carney, Rachel M. Wiste, Susanne M. Cutshall, Christina Wood, Rachel C. Gentes, Brianna E. Larsen, Nana A. Tiwaa, Amelia E. Tetlie, Regina M. Mackey; 12/25There is emerging evidence that music therapy (MT) is an effective tool within palliative care to manage patients’ complex needs. This performance improvement project aimed to assess palliative care staff members’ attitudes toward the current utilization of MT within the institution’s hospital-based interdisciplinary practices. Top reasons for MT referral were psychosocial support, pain and symptom management, and coping. The most common symptom-focused indications were anxiety, mood, and existential distress. In this single-institution performance improvement project, staff attitudes were highly favorable toward MT for palliative care patients. MT is utilized for a variety of reasons, can be highly effective for improving patients’ quality of life, and may also be of direct benefit to staff.
GITalk: Communication skills training for gastroenterology fellows improves self-assessed preparedness for serious illness conversations
01/24/26 at 03:15 AMImplementation and evaluation of high-yield clinical skills session to improve medical students' confidence in palliative care skills
01/24/26 at 03:10 AMIntegrating compassion and policy: Highlights from IAHPC Advocacy, 2025
01/24/26 at 03:10 AMIntegrating compassion and policy: Highlights from IAHPC Advocacy, 2025Palliative Medicine in Practice: by Katherine Irene PettusIn 2025, the International Association for Hospice and Palliative Care (IAHPC) advanced advocacy for palliative care as an ethical, clinical, and human rights imperative. As a non-state actor in official relations with the World Health Organization (WHO), the association worked across policy, faith, and professional domains to integrate palliative care into universal health coverage frameworks. This report summarizes IAHPC’s global activities from February to November 2025, including engagement at the 78th World Health Assembly (WHA), collaboration with WHO and the International Narcotics Control Board (INCB), the launch of the Leadership and Advocacy Development (LEAD2) program, and new interfaith and educational initiatives.Assistant Editor's note: As I peruse peer reviewed journals to bring you relevant and current summaries of research, I am amazed at the large number of articles published now about palliative care. It wasn't this way just a few years ago. As a long-time hospice and palliative care nurse, I am delighted to see the ground swell of interest in the principles, the need, the value, and the effectiveness of palliative care. I feel like 'We Have Arrived' (finally!). Kudos to all of you who have worked tirelessly over many years to educate professionals and the public at large, about palliative care and its virtues. I know we are not done; there is more to do. But we've come a long way baby!
Limited English proficiency and its association with quality of care and bereavement at the end of life
01/24/26 at 03:05 AMLimited English proficiency and its association with quality of care and bereavement at the end of lifeAmerican Journal of Hospice & Palliative Medicine; by Maxwell D. Chen, Joan M. Teno; 12/25Of 17.1 million deaths, 5.4% occurred in Hispanic decedents, compared to 3.0% among non-Hispanics ... The strongest disparity was a 12.9-point lower adjusted quality-of-care rating for Hispanic decedents with LEP [limited English proficiency] ... Respondents of Hispanic decedents with LEP reported trends of higher unmet needs for dyspnea palliation and receipt of goal concordant care. Conclusion: LEP is prevalent in Hispanic decedents, with those with LEP reporting lower ratings of the quality of care compared to non-Hispanics without LEP.
Video conversation aids to assist in goals-of-care discussions with older adults in a medical setting: A systematic review
01/24/26 at 03:05 AMVideo conversation aids to assist in goals-of-care discussions with older adults in a medical setting: A systematic reviewAmerican Journal of Hospice & Palliative Care; Ashna S Karpe, Mokunfayo O Fajemisin, Stephanie Martinez Ugarte, Lara Ouellette, Martin L Blakely, Gina H Khraish, Shreyans V Sanghvi, Min J Kwak, Jessica L Lee, Lillian S Kao, Thaddeus J Puzio; 12/25Goals-of-care (GOC) discussions align medical treatment with older adults' preferences, yet are hindered by communication barriers, provider discomfort, and misinformation. Video-based decision aids improve understanding and reduce decision conflict, though data on their use in older populations remain limited. Video variability and differences in measured outcomes limited comparisons and generalizability. Video-based decision aids show promise for improving knowledge and aligning treatment preferences. Further studies are needed to investigate the impact of video-based decision aids on GOC conversations in older adults in acute care settings.
Expanding the boundaries of palliative care: Diseases of the nervous system and survival prognosis in home-based programs
01/24/26 at 03:00 AMExpanding the boundaries of palliative care: Diseases of the nervous system and survival prognosis in home-based programsAmerican Journal of Hospice & Palliative Medicine; by Mônica Isaura Corrêa, Igor de Oliveira Claber Siqueira, Sonia Souza, Eduardo Bruera, Ana Paula Drummond-Lage; 12/25Home-based palliative care (HBPC) is increasingly recognized as an essential strategy for managing patients with non-oncologic and life-limiting conditions. However, prognostic factors influencing survival in this population remain underexplored. Diseases of the nervous system (DNS) were the most frequent referral diagnoses [in this study] (32.3%). Patients with Alzheimer’s disease and related dementias demonstrated longer survival than those with other DNS or no DNS diagnoses ... While PPS [Palliative Performance Scale] remains a useful tool, its discriminatory capacity was modest, underscoring the need for refined prognostic models in non-oncologic palliative care.
Patients' perceptions of autonomy in palliative care: Two patient interview exemplars
01/23/26 at 03:00 AMPatients' perceptions of autonomy in palliative care: Two patient interview exemplars Palliative Care and Social Practice; by Kristen Tulloch, Julia Acordi Steffen, John P Rosenberg; 1/19/26 Results: Four themes were identified: (a) my involvement in healthcare decisions, (b) change to my autonomy during illness progression, (c) self-assessing my abilities to exercise autonomy and (d) my coping mechanisms for loss of autonomy. Palliative care patients perceived and managed their autonomy amidst their illnesses, revealing a sense of loss of autonomy extending beyond healthcare into many daily activities. Participants wished to exercise autonomy in nuanced ways, varying in intensity across many aspects of their lives, underscoring the importance of recognising and respecting individuals' wishes for autonomy.Editor's Note: The authors’ focus on coping with loss of autonomy is essential. As illness progresses, autonomy can erode not only in medical decisions but across daily life, identity, and meaning—losses that are too often overlooked in clinical care. The frequently misapplied “Five Stages of Grief” can further blur this reality, reducing complex, personal experiences to linear expectations not supported by contemporary grief research. Understanding how patients adapt to loss of autonomy is foundational to truly person-centered palliative care.
Advance care planning in patients nearing the end of life: A pre-intervention study of racial disparities and provider factors
01/22/26 at 03:00 AMAdvance care planning in patients nearing the end of life: A pre-intervention study of racial disparities and provider factors Journal of General Internal Medicine | Springer; by Vedha Penmetcha BA, Mia Marcotte BA, Yashaswani Chauhan MD, Malathi Srinivasan MD, Adrian M. Bacong PhD, Amelia Sattler MD; 1/19/26 The pre-intervention study of Advance Care Planning (ACP) in patients nearing the end of life highlighted significant racial disparities and the impact of provider factors on ACP documentation. The study found that Asian patients were least likely to have ACP documentation in their charts, and minorities who had ACP conversations were less likely to have documentation. This suggests that ACP conversations are often not documented in the electronic health records of these patients, indicating a need for targeted interventions to improve ACP documentation rates. The study also revealed that providers may struggle to identify who and when to engage in ACP conversations, which can be a barrier to effective ACP.
Trends in pediatric palliative care
01/21/26 at 03:00 AMTrends in pediatric palliative care - A newsletter Trends; by the Siden Research Team; 1/20/26 In 2024 TRENDS published it’s 100th issue and enrolled its 1000th newsletter subscriber, the newsletters growth shows no signs of stopping. The Siden Research Team continues to center ways to foster the pediatric palliative care community and ultimately improve care for our patients. ... ith no journal dedicated to pediatric palliative care, finding relevant articles required scouring pediatric journals for palliative literature and palliative journals for paediatric literature – clearly there was a gap in effective dissemination of relevant articles. ... The Siden Research Team took initiative to bridge this gap. In June 2016 the first search and resulting citation list was compiled.
New voices, shared vision: How emerging research scholars are supporting HPNA's research priorities
01/17/26 at 03:55 AMNew voices, shared vision: How emerging research scholars are supporting HPNA's research prioritiesJournal of Hospice & Palliative Nursing; by Jyotsana Parajuli, Kristin Levoy, Avery C Bechthold, Lyndsay Degroot, C Robert Bennett, Shena Gazaway, Heather Coats; 12/25Evidence-based practice is critical to providing high-quality hospice and palliative nursing care. Professional organizations, such as the Hospice and Palliative Nurses Association (HPNA), play a critical role in shaping the future of the hospice and palliative nursing field by identifying gaps in the science and fostering collaborative research efforts to inform evidence-based practices. One such driver is the tri-annual HPNA Research Agenda, which outlines key research priorities in hospice and palliative nursing, ultimately aiming to accelerate translation of research into practice and practice improvements. In this article, 6 emerging research scholars in the field and present and former co-chairs of the HPNA Emerging Research Scholar Special Interest Group reflect on the experiences that led them to pursue research careers in hospice and palliative nursing. Through a process of collective self-assessment, these scholars articulated their shared progress toward addressing the research priorities outlined in the 2023-2026 HPNA Research Agenda as a means of generating insights to direct future research efforts in the field.
Existential communication with patients and families: A qualitative exploration of multidisciplinary oncology clinicians’ experiences
01/17/26 at 03:50 AMExistential communication with patients and families: A qualitative exploration of multidisciplinary oncology clinicians’ experiencesAmerican Journal of Hospice & Palliative Medicine; by Megan Miller, William E. Rosa, Haley Buller, Meghan McDarby, Alix Youngblood, Betty R. Ferrell; 12/25Existential concerns are inherent in serious illness and at the end of life, yet communication to address such concerns can be challenging. Themes across clinicians’ experiences of existential communication with patients and families included existential questions, guilt/regret, fears about the future, grief, preparing for death, values and goals of care, spiritual concerns, and letting go. Meaningful experiences included bearing witness; providing emotional support and information; easing suffering; learning and growing; and the honor of accompanying patients and families through the end of life. Challenges included discomfort when talking about death; facing denial; being unable to “fix it”; resistance to palliative care among oncology team members, patients, and families; fear of saying the wrong thing; navigating conflicting values; responding to spiritual concerns; barriers to inclusive, high-quality care; and struggling with emotions.
Neuropalliative care in movement disorders
01/17/26 at 03:45 AMNeuropalliative care in movement disordersContinuum: Lifelong Learning in Neurology; by Benzi M Kluger; 12/25Over the past decade, significant progress has been made to advance palliative care approaches for patients with Parkinson disease and other movement disorders. This population has significant palliative care needs that are poorly met under traditional models of care, including nonmotor symptom management, advance care planning, psychosocial support, spiritual and existential support, care partner support, and timely referrals for specialist and end-of-life palliative care (hospice). Clinical trials demonstrate that specialist palliative care can improve many patient and family outcomes. Neurologists can use the five-pillars framework (nonmotor symptoms, advance care planning, psychosocial and spiritual support, care partner support, and timely involvement of specialist palliative care) to systematically address common sources of suffering that are poorly recognized in traditional models of care. This framework can be integrated into previsit screening forms and note templates to improve the detection of palliative issues.
Improving palliative care knowledge and intentions among Great Plains American Indians: Efficacy results from a randomized clinical trial testing a culture-centric palliative care message
01/17/26 at 03:40 AMRural-urban differences in the prevalence of chronic pain among adult cancer survivors
01/17/26 at 03:35 AMAll hands on deck: A case report of an interdisciplinary team preventing elder financial abuse at a skilled nursing facility
01/17/26 at 03:30 AMAll hands on deck: A case report of an interdisciplinary team preventing elder financial abuse at a skilled nursing facilityCureus; by Grace Yi, Nicholas S. Cho, Karen Galvez-Maquindang, Christine Sun, Navid Darouian; 12/25Elder financial abuse (EFA) is a common but under-reported form of maltreatment among elderly individuals. This case describes an 84-year-old woman with cognitive deficits residing in a skilled nursing facility (SNF), who was exploited by a purported friend who took funds, important documents, and attempted to designate herself as the patient’s power of attorney. The situation was quickly identified by the multidisciplinary care team at the SNF and mitigated through early action and collaboration. The case emphasizes the importance of multidisciplinary efforts to identify at-risk patients and the establishment of protocols surrounding abuse identification and reporting to protect elderly patients from financialexploitation and preserve their autonomy, dignity, and quality of life.
A peer support intervention for Black family caregivers of persons living with dementia: A feasibility study
01/17/26 at 03:25 AMA peer support intervention for Black family caregivers of persons living with dementia: A feasibility studyJournal of the American Geriatrics Society; by Karen O Moss, Alai Tan, Abraham A Brody, Karen Bullock, Kathy D Wright, Kimberly Johnson, Mary Beth Happ; 12/25Black family caregivers of older adults living with dementia are at high risk for physical, spiritual, and psychosocial challenges. Culturally responsive interventions are needed to address disparities in this population. The purpose of this National Institute on Aging Stage Model 1A study was to test the feasibility, acceptability, and fidelity of the Peer Support for Black Family Caregivers of Persons Living with Dementia (Pair 2 Care) intervention. Pair 2 Care is a culturally responsive, non-judgmental, flexible, co-designed virtual peer support intervention in which former caregivers are paired as peer mentors with current caregivers for 6 months. On average, participants rated their overall Pair 2 Care satisfaction as very high (4.6/5).
