Literature Review

HSPN Staffing Summit: Leveraging technology for person-centered care Hospice News; by Sophie Knoelke; 12/9/24 This article is sponsored by CareXM. This article is based on a virtual discussion with Kathleen Benton, President and CEO of Hospice Savannah. ... Dr. Benton has a master’s degree in medical ethics and a doctorate in public health. She has offered and reviewed many publications relevant to the topics of palliative care, ethics, hospice, and communication. [Dr. Benton:] I was schooled in clinical ethics and really mediating ethical dilemmas in health care. Looking at, is this in the best interest of the patient? Are we truly following the patient’s wishes? Many of the dilemmas, I would say a good 90%, occur at the end of life. ... [At] the root of [really trending] cases was one missing element. That element was the lacking area of communication. What do I mean by that? I believe that health care does the worst job of probably all other areas of communicating with folks. We have really taken what it is to be human out of what it is to treat a patient and a person. [Click on the title's link to continue reading this insightful discussion.]

Embracing well-being at the end of life Phaneuf Funeral Homes & Crematorium; by Phaneuf; 12/5/24At the 29th Annual Fall Hospice & Palliative Care Conference, Dr. Ira Byock delivered a thought-provoking keynote challenging the misconceptions surrounding hospice and palliative care and illuminating a brighter path forward for individuals, families, and caregivers. ... Far too often, hospice and palliative care services are seen as a last resort or equated with “giving up.” Dr. Byock pushed back against this notion, emphasizing that hospice and palliative care are not about death but about life. “Hospice and palliative care are about living as fully and as well as possible through the end of human life,” Dr. Byock said. Rather than signifying the end of healthcare options, palliative care provides comfort, dignity, and even joy for individuals facing life-limiting conditions. Dr. Byock shared that families often express relief and gratitude after beginning hospice care, lamenting that they hadn’t learned about it sooner. These experiences highlight a common issue: Hospice care is often introduced too late, preventing families and patients from reaping its full benefits. 

Dallas’ Analog Informatics emerges from stealth to modernize patient engagement in over 150 languages Dallas Innovates, Dallas, TX; by Lance Murray; 12/4/24 AIC aims to "bridge the communication gap" between healthcare providers and patients worldwide by leveraging secure AI and modern communication tools. CEO Philip Lieberman created the platform based on his experiences in caring for his hospitalized mother-in-law during the COVID pandemic. ... Shocked that he knew “more about his Amazon packages” than the state of his loved one, Lieberman vowed to use the experience and resources he’d gained from the previous multinational companies he created “to bring compassionate yet automated continuous communication to every patient and their families.” ... AIC aims to "bridge the communication gap" between healthcare providers and patients worldwide by leveraging secure AI and modern communication tools.  ... AIC said its platform “bridges the communication gap” between healthcare providers and patients, offering continuous automated logistical support in more than 150 languages. 

Health care workers rally at Kaiser Permanente headquarters in Pasadena as strike enters fifth week Pasadena Now, Pasadena, CA; by Eddie Rivera; 11/22/24 More than 300 Kaiser Permanente mental health workers and their supporters marched Thursday, November 21 around the healthcare giant’s regional headquarters on Walnut Street in Pasadena, marking the fifth week of a statewide strike over working conditions and patient care concerns. The Pasadena demonstration, coordinated with a similar rally in Oakland, highlighted tensions between Kaiser Permanente and its mental health professionals represented by the National Union of Healthcare Workers. ... “We’re tired of the working conditions that Kaiser’s providing for us,” said Marisela Calvillo, a licensed clinical social worker who led the demonstration. ... Calvillo said she was seeing patients every 30 minutes without breaks while struggling to complete required documentation during lunch periods. She said therapists are given approximately two minutes per patient for administrative tasks, affecting her caseload of 86 patients. 

Is your doctor using ‘never words’ that make you feel worse? Everyday Health; by Lisa Rapaport; 11/19/24 Words matter — especially when it comes to how doctors speak to patients and families facing a scary medical diagnosis. That’s because the exact words doctors use to explain complex health situations can make or break whether people feel heard and respected during appointments — and influence whether they follow doctors’ orders afterwards, according to a new survey published in Mayo Clinic Proceedings. Key Takeaways:

There aren't enough dementia providers in Arizona. This unique campus offers training KJZZ Phoenix, AZ; by Kathy Ritchie; 11/15/24 Arizona has the fastest growth rate of Alzheimer’s disease in the country. Yet there are not enough paid caregivers or even geriatricians — only 92 in the entire state — for this population. So how do you educate, even inspire, health care students to care about dementia? As the saying goes, if you build it, they will come. Judy Ward is chatting with three nursing students from Creighton University when a group of preschoolers toddle on by. ... The children attend a care center located at Hospice of the Valley’s Dementia Care and Education Campus in Arcadia. That’s also where Judy’s adult day club for people living with dementia is situated, along with a 12-bed assisted living community and a hospice unit. ...

A doctor’s life-changing realization about empathy after becoming a patient [podcast] MedPage Today's KevinMD.com; podcast by KevinMD; 11/10/24 Join us for a conversation with Fazlur Rahman, a hematology-oncology physician and author of Our Connected Lives. In this episode, we explore how Fazlur’s journey from physician to patient transformed his understanding of empathy. He reflects on the importance of personal connection in medicine, the impact of a lack of empathy on both doctors and patients, and the need for medical education to include the humanities to foster compassionate care. This episode dives deep into the role empathy plays in improving patient outcomes and doctor-patient relationships. Fazlur Rahman is a hematology-oncology physician and author of Our Connected Lives. He discusses the KevinMD article, “From doctor to patient: a life-changing lesson in empathy.”

The dozen phrases doctors warned never say to patients, including ‘everything is going to be fine’ What's New 2Day; by Alexander; 11/8/24 “Everything is going to be okay.” No doubt you or someone you know has heard those words from a doctor, but doctors are now being warned to stop doing so because it could raise false hope. A new report has identified 12 “never phrases” that doctors should never use with patients with serious illnesses, such as heart failure, cancer and lung disease. They explain that these “isolated words or phrases not only lack benefits but can also cause emotional harm and accentuate power differences.” If a patient is seriously ill, for example, a doctor should never mention the words “withdraw care,” as this implies that the medical team is “giving up.” While “everything will be okay” may seem like a comforting phrase, researchers say this could offer false hope when dealing with a serious illness and a better expression might be “I’m here to support you through this whole process.” [Click on the title's link for the dozen phrases they identify, with alternative language and rationale.]

Pennsylvania LPNs will now be able to make death pronouncements Tri-State Alert; 11/4/24 A bill sponsored by Sen. Lynda Schlegel Culver (R-27) was signed into law this week to enable licensed practical nurses (LPNs) working in a hospice setting to make death pronouncements. “I am grateful for the governor’s support of this important legislation,” Culver said. “LPNs are with patients and their families until the moment of death, providing essential care during emotional times. Allowing LPNs to make death pronouncements, which was previously only a function of doctors, RNs, physician assistants, and coroners, can alleviate wait times that grieving families often experience.” The bill was amended in the House of Representatives to also provide needed clarification on the waiver of birth and death certificate fees for members of the armed services, veterans, and their families. The law now outlines specifically whose documents qualify for the waiver, as well as applicants and scenarios for which the fee may be waived. 

How end-of-life dreams and visions are bringing comfort to dying patients: A conversation with Christopher W. Kerr, MD, PhD The ASCO Post (American Society of Clinical Oncology); by Jo Cavallo; 11/1/24 Just weeks or even days or hours away from death, the majority of conscious terminally ill patients often experience growth and meaning in their lives and the absence of fear through end-of-life dreams and visions, according to research by Christopher W. Kerr, MD, PhD. Dr. Kerr is Chief Executive Officer and Chief Medical Officer of Hospice and Palliative Care Buffalo, New York, and coauthor of Death Is But a Dream: Finding Hope and Meaning at Life’s End (Avery, 2020). ... In this interview with The ASCO Post, Dr. Kerr discussed how end-of-life dreams and visions bring comfort to dying patients, the difference between these experiences and hallucinations, and the importance of ensuring that patients understand the reality of their prognosis when cure is no longer attainable.

I'm a palliative care nurse and I look after patients on their deathbeds - these are the top 5 regrets I hear from people in their final days DailyMail.com; by Ellen Coughlan; 10/30/24 When people are faced with their own mortality they experience a variety of emotions and gain perspective on their lives. A palliative care nurse, who works at Old Colony Hospice in Massachusetts, wrote a blog post, which has since resurfaced, revealing the top five regrets people express on their deathbed.  ...

How to celebrate veterans in hospice on Veterans Day 3HC, Goldsboro, NC; by 3HC; retrieved from the internet 10/31/24 Some served our country in foreign lands while others dutifully protected us on our home shores. All of them demonstrate commitment and courage, helping secure the rights and freedoms we so often take for granted. These brave men and women should be celebrated every day—not just on Veterans Day. ... Do you have a relative or loved one in hospice care who is a veteran? Read more to discover great ways to celebrate veterans in hospice on Veterans Day. ...

Guidelines vary when surrogates with power of attorney disagree with advance directives  Healio, Boston, MA; by Richard Gawel; 10/30/24 Inconsistent guidelines can lead to conflicts when surrogates with powers of attorney disagree with what may be described in a patient’s advance directive, according to a poster presented at the CHEST Annual Meeting. ... Key takeaways: