Literature Review

Translating palliative care narratives into art: An arts-based knowledge translation pilot with young adult artists Palliative Care and Social Practice; by Kristina A. Smith, Philippe Blanchard, Susan Law, and Kelli Stajduhar; 2/25/26 Objectives: This knowledge translation project explored arts-based approaches for translating palliative care narrative data into creative forms, examining the feasibility of converting research narratives into accessible art forms that could facilitate engagement with death-related topics. Results: Over 25 artistic works illustrating death and dying experiences were created. The collaborative translation process revealed that undergraduate artists could effectively interpret and visualize complex palliative care narratives through diverse artistic approaches. Course evaluations and informal feedback indicated that artists found the experience meaningful and challenging, and expressed interest in further exploration of death-related topics. Editor's Note: Go to this article and scroll down past "Results" to see photos of these artworks and their descriptions.

The non-professional virtues of the hospice volunteer Journal of Applied Philosophy; by Michael B. Gill; 3/12/26 Volunteers have long played a significant role in hospice care. Much of the care volunteers provide consists of weekly hour-long in-home visits. Home-visiting hospice volunteers are not professionals, nor are they strangers or intimates. Hospice volunteers will not typically face moral dilemmas, nor be called upon to make dramatic decisions. Nonetheless, hospice volunteering can exemplify a neglected area of in-between ethics – a subset of what Brownlee has called the ‘ethics of interacting’ – that can redound to the wellbeing of all concerned. This article explores the in-between ethics of hospice volunteering and the opportunities it affords to cultivate virtues of attention and gratitude.

[Japan] Half of hospice and palliative care unit inpatients' family members are surprised by death Journal of Palliative Medicine; by Satoko Ito, Tatsuya Morita, Masanori Mori, Isseki Maeda, Yutaka Hatano, Takashi Yamaguchi, Hiroyuki Otani, Tetsuya Yamagiwa, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Kento Masukawa, Mitsunori Miyashita; 3/10/26 Background: Sudden unexpected death can occur even among patients with advanced cancer receiving hospice and palliative care. How bereaved families perceive this remains unclear. ... Design/setting/subjects: We analyzed longitudinally linked data from a prospective cohort of advanced cancer patients in 23 palliative care units in Japan and a nationwide survey of bereaved families. Conclusions: Compared with physicians' perspectives, bereaved family members perceive death to be sudden or unexpected more frequently and differently, and their perceptions are associated with postbereavement mental health.

Thyme Care launches Integrated Social Support model, bringing proactive oncology social work to 8 million Americans upon diagnosis PR Newswire, Nashville, TN; by Thyme Care; 3/5/26 Thyme Care today announced the public launch of its Integrated Social Support (ISS) model, a redesigned approach to oncology navigation that positions licensed master's-level social workers as the first to intervene when members experience barriers to navigating their cancer. The announcement coincides with National Social Work Month in March, recognizing the essential role social workers play in improving health outcomes. An estimated 44% of individuals affected by cancer experience psychosocial burdens, which are associated with poorer health, clinical, and economic outcomes for patients and caregivers. Thyme Care's ISS model flips the approach by making licensed social workers one of the first points of contact for social, emotional, and practical needs, assessing members from day one and throughout their journey ...

Chronic pain and unrecognized grief: epistemic barriers to personal and social recognition Medicine, Health Care and Philosophy; by Christopher Jude McCarroll, Ying-Tung Lin, Dominik Koesling, and Claudia Bozzaro; 3/29/26 What is it to grieve? What is the nature of grief? ... Importantly, a close examination of the phenomenology of chronic pain helps illuminate the ways in which it also involves the kind of losses that we can grieve over. The losses involved in experiences of chronic pain impact one’s practical identity in ways that can lead to grief. This chronic pain grief remains largely unrecognized, however. We outline four epistemic barriers to recognizing the grief involved in experiences of chronic pain. ...

Hyperactive Delirium during hospice patients’ last week of life in a home care setting 

Cambia Health Foundation releases comprehensive evaluation of Sojourns Scholar Leadership Program Business Wire, Portland, OR; Press Release; 3/3/26 Cambia Health Foundation today released the results of a comprehensive evaluation of its Sojourns Scholar Leadership Program, demonstrating the significant impact of a 10-year, $25 million investment in developing the next generation of palliative care leaders.  ... The program’s goals were measured against more than 175 sources, as well as 18 individual interviews, 5 focus groups and a comprehensive written survey completed by 117 individuals, including program participants and industry experts. Notable findings include:

Why time becomes ever more precious towards the end of our days ehospice; by Brian Dolan, OBE; 3/2/26 In health care, conversations about finance, workforce, and facilities often dominate the agenda. Yet, the most valuable and universal currency within our health systems is something less tangible but far more immediate: time. ... Time is the thread that connects patients and staff, shaping experiences, outcomes, and well-being. For patients, time is deeply personal. It is the time that comes dripping slow as hours are spent waiting in emergency departments, days of confinement to a hospital bed, and, ultimately, the quality of the life they return to when they are finally discharged. For staff, time determines how effectively they can deliver care, make decisions, and balance the demands of an increasingly pressured system. 

Do you feel like an emotional sponge? Here’s how to protect your energy and refocus Real Simple; by Nandini Maharaj; 3/1/26 It’s possible to stay compassionate without feeling drained—experts explain how. ... [There's] a difference between healthy forms of distraction—like going for a walk or taking deep breaths—and unhealthy habits. We asked mental health experts about healthy and unhealthy distractions and how to protect your energy when you’re feeling like an emotional sponge.

Handmade patchwork quilts bring comfort to Taree palliative care patients and their families ABC - New South Wales, Australia; by Emma Siossian; 2/21/26 Kaye-Maree Hinton's husband Garry was in end-of-life care with a rare type of brain cancer, when a nurse laid a bright, handmade quilt over his hospital bed. Ms. Hinton, 62, says the simple act of kindness provided a spark of colour and comfort in the stark and sterile hospital environment. ... "It was so comforting … to cover him with something so beautiful, instead of just hospital sheets and hospital blankets in cold, stark white." ... The quilt is now set to become a family heirloom, already laid in a crib ready for the upcoming birth of Ms. Hinton's newest grandchild. ... Recently the project surpassed a total of 2,000 donated quilts.

Palliative care and quality outcomes in patients with brain metastases and poor prognosis: A multi-institutional analysis JCO Oncology Practice - An American Society of Clinical Oncology Journal; by Rohit Singh, MD, Camilo E. Fadul, MD, Emily Kopp, MS, Guneet Sarai, MD, Roger Anderson, PhD, Ryan F. Amidon, MD, Samantha Schuetz, MD, Amy Chang, MD, Ausia N. Iqbal, MD, Joseph A. Bovi, MD, and Alissa A. Thomas, MD; 2/23/26 Purpose: To analyze the patterns of palliative care (PC) consultation for patients with brain metastases (BMETs) and its association with treatment, overall survival (OS), and quality metrics (eg, advance directives [ADs], hospice enrollment). Conclusion: The involvement of PC services correlated with higher completion rates of ADs and increased hospice utilization, without compromising survival or significantly altering other treatment options. There is an unmet need for PC among patients with BMETs with poor prognosis.

Doing everything FOR the patient, not TO the patient HIStalk - Healthcare IT News & Opinion; by Nassib Charmoun; 2/23/26 “Do as much as possible for the patient and as little as possible to the patient.” That single sentence, written by Bernard Lown, MD in “The Lost Art of Healing,” should serve as a universal guide to thinking about medicine, caregiving, and what it truly means to heal. Dr. Lown was my mentor beginning in my early 20s and remained a close friend until his death in 2021 at age 99, He was decades ahead of his time. He believed that medicine should integrate scientific rigor with moral imagination, and that clinical excellence without compassion is incomplete care. ... Increasingly, the evidence suggests that quality of life, not simply quantity of life, must be the defining outcome.

A multidimensional narrative review of disparities in hospice care use American Journal of Hospice and Palliative Medicine; by Komal Patel Murali, PhD, RN, ACNP-BC, Gwenneth Wang, BS, Daniella Torres, BA, Laura Tycon Moreines, MSN, RN, Abraham A. Brody, PhD, RN, FAAN, Karen Bullock, PhD, LCSW, and Leah V. Estrada, PhD, RN; 2/19/26  ... Findings: Guided by the Social Ecological Model, the objectives of this narrative review are to (a) discuss disparities in hospice care use, (b) explore multidimensional levels and factors contributing to such disparities, and (c) outline implications and imperatives for improving access to and use of hospice care. ... System-level solutions include integrating hospice referrals into routine care workflows, improving hospice-related policies, strengthening partnerships with community organizations, and transitional care research. Clinicians are uniquely positioned to identify care preferences, advocate for timely referrals and support the hospice transition, and build trust with patients and families at the end of life.