Literature Review

Death Matters: The gift of presence: Tips for visiting someone who is dying Squim Gazette, Squim, WA; by Jeanette Stehr-Green, Volunteer Hospice of Clallam County; 2/12/25 We sometimes avoid visiting friends or family members who are terminally ill. We make lots of excuses. We don’t know what to say. We don’t know how to act. We don’t want to be a bother. The hard truth is that dying, the final stage of life, can be a lonely experience without the presence of family and friends. A visit during this time can bring comfort to the dying person and their family. It can also provide an opportunity to share feelings, reminisce, and say goodbye. Visiting a dying person seems difficult because most of us lack experience. It only takes a little courage and a few ideas to create a meaningful moment. ... Editor's note: These excellent guidelines empower hospice patients' families and friends--and protect patients' vulnerable energies and emotions--in multiple settings across the trajectory of dying. How might you adapt these for your own patient/caregiver support and community outreach?

How to help caregivers of patients with dementia Physician's Weekly; by Linda Girgis, MD, FAAP; 2/13/25 Dr. Linda Girgis discusses how physicians can assist caregivers of patients with dementia, helping these critical caretakers avoid experiencing burnout. ... As doctors, we all have witnessed caregiver burnout. Often, it was a family member who bore the brunt of the responsibility, one for whom there were no vacation days or sick time available. Whatever specialty we practice, we know patients with dementia can present a significant problem. ... How can we assist caregivers of patients with dementia?

Bringing children home: Kentucky Children’s Hospital’s approach to pediatric end-of-life care American Hospital Association; 2/8/25 When parents have a child with a serious illness, all they want is for their child to get well. If that no longer becomes a possibility, often all they want is to bring their child home. Most — around 70% — of pediatric deaths related to illness occur in the hospital, but the Kentucky Children’s Health Pediatric Advanced Care Team offers some families the chance to transport their child home using life-sustaining technology. That’s not an easy feat; these patients are medically fragile, and the outcome can be unpredictable. A team made up of hospital administrators, hospice providers, coroner and the transportation team comes up with a plan. The child’s parents complete an informed consent procedure, recognizing that their child may not survive the journey home. The transportation team tries to ensure that the journey is as comfortable as possible, as well as planning what to do if the child’s condition deteriorates on the journey. If that happens, he or she will be supported as they pass without resuscitation efforts.

What we talk about, or not, when talking about death Enumclaw Courier-Herald; by Wire Service; 2/9/25 Death is a guarantee for everyone, so why do people shy away from talking about it and using words like death and dying? ... As a death doula and grief coach, Kathleen Putnam hopes that providing care to those who are grieving can help change the language surrounding death. ... Putnam explains that in present society, people want to avoid grief and pain. With medical advancements and industries and marketing systems focusing on keeping people alive, the rhetoric surrounding dying has become negative. Putnam also pointed out that instead of using phrases like “they died” or “they’re dying,” other phrases like “pass away” and “they went to sleep” have become popular when talking about a loss.

4 phrases successful leaders intentionally use to motivate their teams Forbes; by Dr. Cheryl Robinson; 2/1/25 ... Great leaders understand that their words can shape company culture, influence behavior and impact employee engagement; it’s about delivering messages with clarity and intent. The tone, phrasing and timing of communication can energize a team or deflate morale. A well-placed word of encouragement can spark motivation, while careless criticism can hinder progress. Whether providing constructive feedback or navigating tough conversations, leaders who speak with intention create a culture where employees feel valued and driven to contribute their best. ... 4 Phrases Successful Leaders Use:

Well-being and choosing the best job for youJAMA Internal Medicine; Jamile A. Ashmore, PhD; J. Michael DiMaio, MD; 1/25Well-being is emerging as the catch-all term describing the field dedicated to understanding and addressing the way in which the health care system, work environment, and individual interact to influence the fulfillment and meaning that health care workers derive from their work. Clinician well-being is often led by a chief wellness officer (CWO) or other executive leader who is compensated to focus on well-being. In addition to strategic planning and oversight, the CWO’s role is to ensure that well-being is considered in administrative and operational decisions including in those related to governance, rewards systems, and culture. Health care systems’ moving from the triple to the quadruple aim are signaling that they are committed to taking care of those that care for the patients. Indeed, health care systems cannot have optimal patient care without a healthy and fulfilled workforce. 

What can we learn from the dying? Newscastle's News Letter Journal (NLJ), Newcastle, WY; by Kelly Evans-Hullinger, MD; 1/26/25 For the last five years, I have had the great privilege of serving my local health system as Medical Director for Home Hospice. Every week I sit in a meeting with the multidisciplinary caretakers on this team ... Patients facing their own deaths want to talk about their lives. Our staff frequently tries to facilitate what they call a “life review” in which a patient can openly talk about their childhood, family, career, service, and sometimes their regrets. This is therapeutic for the dying patient and their loved ones.  ... I have recently thought about this particular human need – to reflect and remember one’s life. I take this as a reminder to both seek those stories from my own loved ones (I wish I had asked my grandmother more questions about her life) and, perhaps, to tell and write about the things in my own life I would want to be remembered after I am gone. For if there is another thing I’ve learned serving patients on hospice, it is that my death is also inevitable; but, I think, life’s finality is what gives it beauty and meaning. 

Palliative care is essential for seriously ill patients—at any ageAMA (American Medical Association); by Kevin B. O'Reilly; 1/27/25 The AMA House of Delegates has adopted new policies outlining physicians’ ethical obligation to provide or seek optimal palliative care for patients with serious illnesses who can benefit from comprehensive management of pain and other distressing symptoms—not only those with terminal illnesses or on the precipice of death. “Physicians have clinical ethical responsibilities to address the pain and suffering occasioned by illness and injury and to respect their patients as whole persons,” says one of the new policies adopted at the latest AMA Interim Meeting, held in Lake Buena Vista, Florida. “These duties require physicians to assure the provision of effective palliative care whenever a patient is experiencing serious, chronic, complex or critical illness, regardless of prognosis.” 

Some wary of Providence home health joint venture with for-profit company Herald Net, Everett, WA; by Jenna Peterson; 1/23/25 Some nurses in the state say an upcoming joint venture between Providence Home and Community Care and Compassus, a for-profit company with private equity ownership, could have an adverse effect on health care. The deal, expected to be finalized in Washington early this year, ... impacts locations in five U.S. states. ... Boyle and Compassus spokesperson Dana Coleman said there will be no changes in care or staffing under the joint venture. But some nursing advocates, like Ian Mikusko, worry that a for-profit, private equity influence could be harmful for health care.“Private equity is somewhat more extractive because there’s a pressure to provide large dividend payments to investors,” said Mikusko, strategic researcher with the Washington State Nurses Association. Mikusko cited research that shows quality of care diminishes when private equity companies become involved in health care, such as a 2023 study from the Center for Economic and Policy Research.

Spread some love to seniors this Valentines Day WKBN Youngstown, OH; by Dave Sess; 1/21/25 As you’re making Valentine’s Day plans, consider spreading some love to local seniors. You can make special cards or buy a thoughtful card and share the love. Home Instead is organizing the collection again this year. It has three schools already committed to making cards as it hopes to double last year’s total of 1,000. Each of the Valentine’s Day cards will carry a heartfelt message to seniors in nursing homes and assisted living communities that they’re loved, appreciated and remembered. ... The seniors will also receive flowers from Harmony Hospice. “These seniors appreciate anything from a simple smile to a card or a flower and just a simple hello,” said Sara Stevens with Harmony Hospice.Editor's note: Calling community outreach professionals--what a simple, meaningful way to engage your community for meaningful, intergenerational engagement and support. Now's the time! What can you do?

New data reveals the hidden costs of workplace violence in healthcare Perceptyx; by Ellen Lovell, PhD and Stephanie Schloemer, PhD; 1/17/25 Workplace violence has become an impossible-to-ignore crisis in healthcare, threatening the safety of medical professionals, patients, and institutions. The severity and frequency of these incidents have reached alarming levels, demanding immediate attention and action. ... The human cost is staggering.  ... While our research confirms the widespread nature of safety concerns in healthcare, a deeper analysis reveals significant variations across different healthcare environments and roles. This granular view helps us understand where intervention is most urgently needed. Editor's note: Although "hospice settings reported the lowest agreement at 54%," this statistic should be considered too high for comfort. Actions need to be taken to reduce it. From your professional leadership role, examine the importance of protecting hospice professionals' safety--typically in home settings--and through moments such vulnerable, emotional, conflicted times within families. What can your agency improve?

At United Hospice good leadership makes all the difference Mid Hudson News, Goshen, NY; by Mid-Hudson News Staff; 1/19/25 In the world of healthcare, there are few environments as emotionally charged and delicate as hospice care.  Here, patients face the final chapter of their lives, and their families must grapple with the profound weight of grief and impending loss. It’s a space that requires not only clinical expertise but also an extraordinary level of compassion, empathy, and resilience. At the heart of it all is leadership—a factor that can profoundly shape the quality of care, support, and comfort patients and families receive during this challenging time. [Cara Pace, United Hospice CEO] noted that leadership in hospice care is not about wielding authority or simply managing logistics. It’s about embodying a vision of compassionate, patient-centered care that resonates throughout the organization. A good hospice leader knows how to create a culture of empathy, where every member of the team understands the profound impact their work has on the lives of patients and families.