Literature Review

End-of-life doctors reveal 5 common fears people face in their final moments SavingAdvice.com; by Amanda Blankenship; 5/3/26  Most people avoid thinking about death, but doctors who work in hospice and palliative care say the same fears come up again and again. ... Research shows that death anxiety is common, with many people experiencing fear tied to the process of dying, not just death itself. ... here are five of the most common fears [identified by these doctors] among people facing their final moments.

The importance of communication in pediatric and perinatal palliative care Catholic Exchange; by serenella Verduchi; 4/20/26 The word “communicate” comes from the Latin communicare, which means “to share,” “to make known,” or “to bring together.” ... The etymology of this word prompts us to reflect on how communication is more than just a space for interaction or a duty; it is a gift. Just as we strive to pay attention to the details when offering a gift, so too must we show care for others when choosing our words, because the power of words is great—they can give hope and transform a person’s life for the better, or they can linger and affect the person for the worse.

Local boy becomes honorary doctor with Hospice Family Care teamFox 54, Huntsville, AL; by Caleb Aguayo; 4/24/26 A young boy battling what his caretakers call a "likely incurable disease" got to live out a dream Friday when his hospice care team made him an honorary doctor for the day, complete with scrubs, a white coat bearing his name, a name tag and his very own stethoscope. Abobakr Almageleh, who has spent years surrounded by medical equipment, has long shown a fascination with the tools and routines of the health care professionals caring for him, from listening to his own heartbeat to tracking the rhythm of monitors nearby. His caregivers at Hospice Family Care took notice.

Cultivating interdisciplinary shared wisdom through a structured case conference American Journal of Hospice and Palliative Medicine; by Meredith A. MacMartin, MD MS, Amelia M. Cullinan, MD, and Catherine H. Saunders, PhD MPH; 4/8/26 Objectives: To develop and understand the impact of a structured, case-based, facilitated discussion of communication challenges on the function and wellbeing of an interdisciplinary specialty palliative care team. Conclusions: Embedding a weekly facilitated case discussion in the usual practice fostered a virtuous cycle of individual growth and team connectedness among interdisciplinary palliative care providers. Similar conferences could be implemented in other medical teams to teach practical wisdom and reduce burnout.

Medical ethics unpacked: clinical ethics consultation in practice Consultant LIve; by Dominic Sisti, PhD and Aliza Narva, JD, BSN, MS; 4/20/26 In this episode of Medical Ethics Unpacked, Dominic Sisti, PhD, a bioethicist from Penn Medicine, speaks with Aliza Narva, JD, BSN, MSN, director of ethics at the Hospital of the University of Pennsylvania, about the practical realities of clinical ethics consultation. ... Common consult themes include end-of-life decision-making, surrogate disputes, and clinician moral distress. She emphasizes that ethics consultants are often called when clinicians feel constrained or uncertain about next steps.

Woman indicted for mother's death turns tragedy into advocacy WJBF-6 ABC News, Augusta, GA; by Kim Vickers; 4/16/26 A woman is speaking out after she was indicted last year for the death of her mother. Rachel Waters gave her mother morphine provided by a hospice company, which authorities believed led to the woman’s death. Six months later, the charges were dropped. Now, Waters is turning her experience into something positive. ... Foster was diagnosed with Alzheimer’s and bone cancer and eventually her oncologist recommended home hospice care. The hospice company prescribed an end-of-life care kit for Waters to use when Foster needed it. End-of-life care kits contain several drugs specific to the patient’s needs, including liquid morphine. We spoke to several Hospice nurses who told us they are commonly prescribed to families and caregivers to administer to their loved one.

Sovereign Hospice: addressing late-stage renal condition care gaps in Fort Worth MyCarrollCountyNews.com, Dallas, TX; by Sovereign Hospice; 4/16/26 End-stage kidney disease affects hundreds of thousands of Americans each year. When kidneys can no longer sustain life without dialysis or a transplant, families are left to make decisions that few feel prepared for. Sovereign Hospice ... is drawing attention to a gap many families face: not knowing that hospice care services exist as a legitimate, fully supported option at this stage of illness. ... For patients with end-stage kidney disease, the shift away from aggressive treatment means that symptom management becomes the priority. Common symptoms at this stage include fatigue, pain, restlessness, and fluid retention. The interdisciplinary team is trained to address all of these through individualized care plans.

Owner opened restaurant on day off to fulfill dying man's last wish to feed hospice nurses who cared for him People; by Erin Clack; 4/11/26 "To me, it means the world to see that kindness, that greatness spread," the dying man's brother said of the restaurant owner.  Tommy Milani didn't hesitate to step up and help when he received a request from a grieving family. Before his death, Frank Ozimek — who spent six weeks at Niagara Hospice in Lockport, N.Y., bonding with and being cared for by the dedicated staff there — asked his younger brother, Ken Ozimek, to make sure the nurses were treated to a meal on Easter Sunday, per local outlet WKBW.

The power of showing up: how families can support loved ones who are aging or ill Good Men Project; by Harvey Max Chochinov; 4/14/26 For many families, visiting a loved one who is aging or seriously ill can feel surprisingly hard. ... What if the problem is not that families have too little to offer, but that we misunderstand what truly helps? ... By emphasizing presence over fixing, dignity over distraction, and meaning over outcomes, it helps families:

Managing clinical uncertainty Baylor College of Medicine; by Dr. Avni M. Kapadia and Dr. Hannah L. Kirsch; 4/10/26 In the day-to-day routine of critical care physicians, end-of-life care and medical ethics are frequently incorporated into comprehensive care plans. What happens when the laws impede the ability to honor family wishes? ... Recent ethical debates surrounding the care of brain-dead or severely neurologically injured pregnant patients highlight growing tension between clinical ethics and public policy. These cases are medically complex and emotionally devastating for families. But cases involving pregnancy and severe neurological injury also are especially difficult for the medical team. 

Improving quality for gender-diverse hospice patients Hospice News; by Holly Vossel; 4/8/26 Various factors impede the ability of transgender and gender-diverse individuals to receive goal-concordant care at the end of life. Individuals in the LGBTQIA+ community often face greater risks of privacy violations, cultural suppression, disrespect and trauma compared to others, according to Amanda Monteiro, palliative care social worker at Mount Sinai Hospital. ... LGBTQIA+ individuals are often referred to hospice or palliative care later in their disease trajectories compared to others, according to Dr. Alexis Drutchas, palliative care physician at the Dana-Farber Cancer Institute. ... Clinicians need better tools to help guide end-of-life conversations with gender-diverse patients and their loved ones, said Dr. Ramón Rodriguez, palliative care physician at Massachusetts General Hospital.Editor's Note: For a definitive, groundbreaking resource, examine LGBTQ-Inclusive Hospice and Palliative Care : A Practical Guide to Transforming Professional Practice, by Kimberly D. Acquiva. 

How does Parkinson’s progress? End-stage symptoms and what to expectMass General Brigham; by Todd M. Herrington, MD, PhD; 4/7/26 The journey with Parkinson’s disease looks extremely different from person to person. ...

How to navigate a multigenerational team in health careHomeCare; by Kimberly Skehan & Jennifer Kennedy; 4/2/26 For the first time in history, five generations are working side by side in today’s organizations. Each cohort brings distinct experiences, values, communication styles and expectations. In health care, these differences influence not only workplace culture but also how care is delivered, received and supported. Understanding generational differences is no longer a soft skill. It is a strategic competency tied directly to quality, compliance, workforce sustainability and patient experience. The 5 Generations: