Literature Review

Teaching end-of-life care: Q&A with professor of medicine Medical Xpress; by Mahima Samraik, Yale University, edited by Sadie Harley; 10/20/25 Every year, thousands of families sit in hospital rooms hearing words no one wants to hear: "We have done everything we can." What happens next, whether doctors stay engaged or step away, can transform one of life's most difficult moments for patients and their families. Unfortunately, for too many patients, the shift from curative care to end-of-life care leaves them feeling stranded. ... "But it doesn't have to be this way," says Matthew Ellman, MD, professor of medicine (general medicine) at Yale School of Medicine (YSM) and director of Medical Student Palliative and End-of-Life Care Education. Ellman has spent decades at patients' bedsides and now teaches medical students about death and dying. In his recent essay in Academic Medicine, he draws from his personal experiences as a physician and encourages fellow doctors to embrace difficult conversations around end-of-life care.

The essential role of Speech-Language Pathologists in end-of-life swallowing intervention: A narrative reviewASHA Perspectives; by Sanora Yonan; 9/25Speech-language pathologists (SLPs) are essential in the intervention of dysphagia, particularly at the end of life (EoL), where their guidance can significantly improve patients' comfort and quality of life. However, despite a growing recognition of their importance in this palliative setting, SLPs continue to face obstacles for consistent involvement on the palliative care team. Three primary themes emerged [from this study]: diet texture adjustment, compensatory swallowing strategies, and patient and caregiver education. The review also identified significant barriers to SLP involvement, including inconsistent practices, limited resources, legal concerns, and a lack of interdisciplinary integration.Assistant Editor's note: In my experience, SLPs were rarely, if ever, utilized with hospice patients. However, this article clearly describes ways that SLPs could be helpful for patients with swallowing difficulties. SLPs can also be very useful for patients with speech difficulties. I think the IDT simply does not think of it-does not think of how a SLP could be helpful. Maybe it is also partly due to lack of knowledge of their value. Perhaps, both hospice and palliative care teams might consider arranging for an inservice from a SLP so that team members can learn more about how such therapy could be helpful in improving the quality of life of patients.

New AI tools target providers looking to succeed in TEAM demo Modern Healthcare; by Diane Eastabrook; 10/10/25 Key Takeaways

What we get wrong about death, according to end-of-life workers Yahoo Lifestyle, originally appeared on HuffPost; by Monica Torres; 10/10/25 The one big thing that people have in common is that we all will die, and we likely will experience the death of someone we love, too. ... That’s why it can help to hear the insights of people who see death all the time, because understanding it now can help us better process grief about others and feel more at ease when thinking about our own mortality. ...

The expanding role of family medicine in Alzheimer's Disease and other dementias Patient Care; by Grace Halsey; 10/7/25 [From the 2025 Family Medicine Experience conference] Family medicine's unique position in dementia management spans initial diagnosis through end-of-life care. ... Dementia Staging: Clinical Assessment and Hospice EligibilityFor practical bedside assessment and hospice determination, the Functional Assessment Staging Tool (FAST) proves particularly valuable.1 The FAST scale includes 7 main stages, progressing from no impairment (stage 1) through severe dementia requiring total care (stage 7). Stage 7 breaks down further into substages (7a-7f) that capture specific functional losses including ambulation, independent sitting, smiling, and head control. Eligibility for hospice care generally requires FAST stage 7c or beyond, indicating ... [continue reading this important criteria] Editor's Note: Leaders must understand hospice eligibility criteria when setting census goals, guiding teams, and communicating with families. Getting it wrong risks fraudulent billing, angry caregivers when live discharges occur, or too little care that comes too late. Getting it right ensures dignity, humanity, and meaningful final moments amid dementia's long goodbyes—true measures of compassionate hospice dementia care.

'I spent 36 years holding dying patients' hands' BBC News, Ireland; by Grace Shaw; 10/5/25 For hospice nurse Trish Carling, holding a dying patient's hand through the dark hours of the night was a privilege to share. The 66-year-old has just retired after 36 years working in palliative care at St Michael's Hospice in Harrogate. Her first shift was in November 1989, and she has worked almost every Christmas Eve and New Year's Eve since. Despite the demands of the job, she originally chose the pathway because it worked around family life when her children were young. "At first I found the night shifts practical - they then became my preferred hours," she said. ... [Continue reading]Editor's Note: In what ways do you honor your longtime employees? How do you tell their stories of passionate compassion? Of loyalty to your core mission through changing times and operational practices? So many of these valued employees began in a pre-digital era. Imagine: before cell phones, the internet, websites, electronic employee files, EMR systems, and so much more. Crucial employee data can get lost especially during organizational name changes, Mergers & Acquistions, or a short-term leave of absence. Let this article be a catalyst for you to research and honor your employees with long tenures. Without their faithful foundations, your work today would not be the same.

Hospice: A vital safety net for sepsis survivors South Florida Hospital News and Healthcare Report; by Lauren Loftis, MD, VITAS regional medical director; 10/1/25Sepsis remains one of the most complex and deadly medical conditions treated in hospitals today. ... For patients with advanced illness or multiple comorbidities, the post-sepsis period is often marked by functional decline, emotional distress, and a high risk of rehospitalization or death. ...For sepsis survivors with advanced illness, hospice offers a bridge between high-intensity hospital care and the realities of life at home. It provides interdisciplinary support—including a physician, nurse, hospice aide, social worker, chaplain, volunteer, and bereavement specialist—tailored to the patient’s evolving needs.

Instilling hope: A comprehensive model of cancer care for younger adults Targeted Oncology; by Andrea Eleazar, MHS and Shane Dormady, MD, PhD; 9/29/25 In the past decade, the incidence of numerous cancer types has increased, particularly among younger adults under age 50. For younger adults, many of whom are primary breadwinners of their households or in the height of their educational or professional careers, a cancer diagnosis at this life stage can be unexpected and jarring. ... In an interview with Targeted Oncology, Shane Dormady, MD, PhD, medical director of El Camino Health Cancer Center, describes the unique needs and challenges of younger adults, outlines El Camino Health’s comprehensive care strategy, and offers insights and considerations for treating and interacting with this patient population.

Long COVID hitting doctors and nurses hard Medscape; by David Brzostowkicki; 9/3/25 Jeffrey Siegelman, MD, contracted COVID-19 in August 2020 and, 3 months later, published a paper online in JAMA about his experiences. Today, he’s still dealing with the symptoms, as one of many healthcare providers who have long COVID. He said his experience highlights the impact of long COVID on hundreds of thousands of doctors, nurses, and other healthcare workers, by some estimates, who have been on the frontlines fighting the pandemic from the beginning. “I reflect on that paper from JAMA, and I thought that 3 months was a long time,” said Siegelman, associate professor of emergency medicine at the Emory University School of Medicine and a practicing emergency room doctor in Atlanta. “And here I am, 5 years later, and I still have symptoms. I think that’s the case for a lot of patients with long COVID, that it just keeps getting longer.”

Living with dementia: To improve lives, we need to change how we think and talk about this experience in aging societies EurekAlert! - AAAS (American Association for the Advancement of Science); peer reviewed publication by The Hastings Center; 9/24/25 To experience or even contemplate dementia raises some of the most profound questions: What does it mean to be a person? How does someone find meaning in life while facing progressive neurological deterioration? ... To improve the lives of our fellow citizens who are living with dementia or providing dementia care, all of us need to pay attention to how we imagine and talk about these interwoven and increasingly common experiences, concludes Living with Dementia: Learning from Cultural Narratives in Aging Societies, a special report published by The Hastings Center for Bioethics. This report responds to calls from health care and social service practitioners for new ways to depict and talk about dementia, a collective term for Alzheimer disease and related dementias. Editor's Note: Click here for free access to multiple articles in this crucial report, such as

How hospice chaplains improve patient outcomes Hospice News; by Jim Parker; 9/19/25 Patients may seek spiritual guidance from a number of places, but hospice chaplains remain essential. Hospice chaplains receive specialized training in caring for patients at the end of life that clergy in the larger community may not have. They are trained in active listening and to address the intricacies and sensitivities of end-of-live conversations with patients and families. Nearly 8,000 hospice chaplains are working in the United States, according to a study in the journal Work, Employment and Society. About 66% of these chaplains identify as men, and 20% are members of the LGBTQIA+ community. Close to 72% are white, 10.8% are Black and 8.5% are Latino. Nearly 42% of hospice chaplains have a bachelor’s degree, an equal percentage have masters degrees and 7% hold a Ph.D., the study indicated. Editor's Note: Hospice chaplains are often misunderstood or underestimated. Their role is not simply to pray or read Scripture, but to offer skilled, sensitive spiritual support—often through life-review, family conflict, presence, words and actions that honor diverse beliefs. Effective chaplains know when not to pray, how to avoid imposing religious language, and how to remain aware of their own biases while creating space for another’s faith or worldview. Their contributions can profoundly shape the patient and family experience at the end of life. When hiring, look for credentials such as BCC, BCCI, or BCC-PCHAC and learn more through the Association for Professional Chaplains. 

AI can aid in end-of-life care decisions, but can't replace human teams MarylandToday; by Fid Thompson; 9/19/25 “Would I be surprised if this person were not alive 12 months from now?”  This so-called “surprise question,” combined with clinical risk calculators, helps doctors make decisions about care for patients near the end of life. Increasingly, clinicians also use artificial intelligence (AI) models to predict remaining life expectancy and better inform palliative care decisions. In a recent study out in the Journal of Palliative Medicine, a University of Maryland researcher sought to understand what palliative care teams think about these AI tools that give an estimated life expectancy or prognosis in end-of-life care, and found mixed reactions. 

What makes a good death? GeriPal - A Geriatrics and Palliative Care Podcast for Every Healthcare Professional; by Alex Smith with Karen Steinhauser, Rasa Mikelyte and Edison Vidal; 9/18/25What is a “good death”? How should we define it, and who gets to decide? Is the concept of a “good death” even useful? ... In today’s podcast, we are honored to have Karen join us to discuss this pivotal study and the nature of a “good death”. We are also joined by Rasa Mikelyte and Edison Vidal, co-authors of a recent study comparing the perspectives of people with dementia in the UK and Brazil on what constitutes a good death. In addition to exploring the nature of a good death and their individual studies, we will discuss: