Literature Review

Husband with Parkinson's was admitted into at-home hospice program and has dramatically improved. Have others experienced this? Aging Care; by Klwolf; 1/21/26 My DH has Parkinson’s that has been getting progressively worse for months. In early December we had him assessed for hospice and he was admitted. Since then, he’s improved dramatically. Has anyone else experienced dramatic improvement AFTER hospice enrollment? The hospice staff simply shrugs and says this sometimes happens and that we need to be prepared for him to revert back to his previous state. Editor's Note: Many clinicians have seen individuals improve after hospice enrollment, often due to better symptom control, reduced stress, or consistent interdisciplinary care. The concern here is not the improvement itself, but the hospice team’s reported response. A shrug can feel dismissive to families already living with uncertainty. How do we teach teams to communicate about improvement—honoring hope while preparing families with clarity, compassion, and trust?

Why asking about “critical abilities” is misguided: Lessons learned from the updated Serious Illness Conversation Guide Journal of General Internal Medicine; by Joel Michael Reynolds, PhD and Michael Pottash, MD, MPH; 1/20/26 The Ariadne Labs’ Serious Illness Care Program is a care delivery model that aims to improve conversations between patients and their clinicians about serious illness. This is accomplished through its foundational tool: the serious illness conversation guide. ... As of 2022, the Serious Illness Care Program has a footprint in over 44 countries and in all 50 states. The conversation guide had been translated into over 13 languages and nearly 18,000 clinicians had been trained on its use. In 2023, the Serious Illness Care Program released an updated conversation guide. ... Gone was the future-oriented question about critical abilities: “What abilities are so critical to your life that you can’t imagine living without them?” A more present-focused question about activities replaced it: “What activities bring joy and meaning to your life?” ... The revision of the Serious Illness Conversation Guide signals more than a semantic change. Its revision of the critical abilities question instead reflects a deeper reckoning with the ethical limitations of traditional advance care planning and with the import of disability bioethics. 

How hospice social workers create everyday moments that matter Severna Park Voice, Severna Park, MD; by Chris Gooding, LCSW-C, social worker Hospice of the Chesapeake; 1/15/26  There are many moving stories about how a hospice social worker helped a patient get married or take that one last trip to the ocean. These are impactful, memory-making moments that go a long way to honor the patient’s final wishes while helping a family heal after they’re gone. But I’m not going to share those kinds of moments. I’m going to share moments like helping the patient make a phone call to an estranged family member - or giving them permission to not make that phone call. Counseling a daughter whose mother no longer knows who she is due to dementia. These are moments that matter, everyday moments, that are nurtured by a hospice social worker. 

How physical therapy supports comfort and connection in hospice care CBS News Baltimore, Baltimore, MD; by LifeBrdge Health; 1/13/26 ... Physical therapy in hospice looks different from traditional rehabilitation. Instead of focusing on long-term recovery, it centers on day-to-day steadiness and comfort. Every visit is shaped around what the patient feels able to do that day. "I try to emphasize what patients can do versus what they can't," Jennifer says. "Big goals can always be broken into smaller and more manageable steps." Therapy commonly supports three important areas.

Hospice patient fulfills final wish of meal with his wife at Hard Rock Casino Fox 23 News, Catoosa, OK; by Paris Rain; 1/8/26 For one hospice patient, a simple trip to the Hard Rock Casino buffet became a final wish and thanks to a dedicated care team and community partners, that wish came true. For months, 84-year-old Tommy Evans talked about wanting to return to the Hard Rock Casino to enjoy the buffet, a place he and his wife once visited regularly. ... Transportation for the couple was donated, and the Hard Rock staff welcomed Evans on Thursday evening. “It’s an honor for me, as a chef, to be able to be a participant in this,” said Alfredo Vargas, executive sous chef at Hard Rock Hotel and Casino. “We don’t have requests like this too often, so when this happened, we wanted to embrace it and make sure we did the best we could.” For Regina Marshall, the Compassus volunteer coordinator, the moment reflects the heart of hospice care.

Precision Radiation Oncology Rhode Island and HopeHealth Hospice & Palliative Care announce Collaborative partnership Today in Business, Providence, RI; Press Release; 12/30/25 Precision Radiation Oncology Rhode Island (PRORI) ... along with HopeHealth, provider of palliative care and hospice services, are proud to announce a new collaborative partnership, aimed at improving quality of life and Precision outcomes for patients undergoing cancer care, beginning January 2026. This collaboration brings together two organizations with complementary missions: delivering state-of-the-art cancer treatment while ensuring compassionate, patient-centered support throughout every stage of the patient’s cancer journey. By working closely together, in a synergistic manner, PRORI and HopeHealth will provide a seamless continuum of cancer care that addresses not only the clinical aspects of cancer treatment, but also the physical, emotional, and psychosocial needs of patients, their families and caregivers.

Hospice created Christmas for patient in NovemberBBC News; by Harry Whitehead; 12/24/25 Guernsey's hospice recreated Christmas for a patient in November so she could enjoy a festive experience with her family before she died. Carrie Watson's mother Tracey De La Mare passed away just days after nurses at Les Bourgs Hospice made her wish of a final Christmas come true. Mrs. Watson said her family were "blown away" by the effort put in by hospice staff. 

A woman in hospice granted a wish of one last swim WEAU-13 News, Bloomer, WI; by Danile Gomez; 7/16/25 Often times the small things are taken for granted. Like a dip in the pool. For Barbara Melby, it was on the final list of things to do as she lives out her time in hospice care. “Barbara has been doing pretty well. She has had some fatigue and some tiredness,” said Leah Grace, the registered nurse with St. Croix Hospice assigned to Melby’s case. ... Grace worked hard to make sure Melby’s last dip in the pool would come to fruition. She cleared it with Melby, her family and the managers at the hospice center. The aquatic center helped in granting the wish too. ... “The way the chair put me in down the water was very nice,” said Melby. Of those in Melby’s family that jumped in the pool with her included Stoll and her kids Colby, Sydney and Brody. “I grew up swimming in my grandmother’s pool. ...” said Stoll. She is happy to be there for her grandmother’s last swim. “Just a pretty special memory we will all hold on to for a pretty long time.” Melby was a swim instructor, ... It was something she always loved and it made her happy to have had her wish granted.

Refuge: How people experiencing homelessness spend their final days NBC News, KUSA-9, Denver, CO; by Chris Vanderveen and Chris Hansen; 12/21/25 If few cities and states know how to effectively deal with their unhoused populations, far fewer know what to do when the unhoused enter the final days, weeks, and months of their lives. The 9NEWS documentary “Refuge” represents a deeply personal examination of one of the more invisible crises of American life today: hospice care for the unhoused. “People like to think somehow, some way it’s being taken care of, but it’s not,” said James “JP” Hall, founder of Denver’s Rocky Mountain Refuge, one of a handful of places around the country that offers custodial end-of-life care for people experiencing homelessness.

End-of-life care needs cultural humility and social justice BMJ; by Jamilla Akhter Hussain, Rekha Vijayshankar, and Mary Hodgson; 12/18/25 Death, dying, and grief are not medical events—they are profoundly social, relational, and shaped by the histories people carry into their final days. ... [A] key question is: how can end-of-life care services become more trustworthy? Too often, institutions respond with so-called cultural competency initiatives. ... What is needed is cultural humility and social justice. Cultural humility involves ongoing self-reflection and acknowledgement of bias at individual, organisational, and system levels. Palliative care must prioritise cultural humility and social justice: trust grows not through outreach alone but through shared creation of knowledge, meaning, and care—and at the end of life ...

The results are in: Palliative care professionals share how they’re doing in 2025Center to Advance Palliative Care - CAPC; by Rachael Heitner, MPH; 12/16/25 CAPC’s second annual Palliative Pulse survey offers insight on how palliative care professionals across the country are feeling this year and what they’re focused on—see how they responded. ... In this blog, we share four key findings from participants’ self-reports and take a closer look at the data behind each one. ...

Is moral adequacy possible in the face of structural disadvantage? The experiences of health and social care staff in supporting homeless people using substances at the end of life Palliative Care and Social Practice; by Gary Witham https, Gemma Anne Yarwood, Sarah Galvani, Lucy Webb, and Sam Wright; 11/26/25 Background: Homeless people using substances at the end-of-life face many challenges in accessing and receiving good care. These can relate to poor interdisciplinary working by health and social care practitioners, stigma and structural disadvantage. Results: The data analysis resulted in three key discourse positions relating to how practitioners position themselves in relation to the practice challenges of supporting homeless people using AODs and approaching end of life. These were as follows: (i) what constitutes a good death and where, (ii) the limitations of professional boundaries and (iii) maintaining moral adequacy in the face of traumatic death.