Literature Review

To Be or To Do? Women and Men's different styles of grievingComposing Life Out of Loss; by Joy Berger; retrieved 6/12/25

Local community unites for 'Together in a Day' to transform homes and lives for Georgia families Media Industry Observer, EINPresswire.com, Athens, GA; Press Release; 6/11/25 In a powerful display of community solidarity, Family Hospice and the Alzheimer's Association, Georgia Chapter, are joining forces to host a "Together in a Day" community service day on June 20, 2025. This one-day volunteer effort will provide vital repairs and safety modifications to pre-selected homes, changing the lives of local Athens, Georgia, families affected by Alzheimer's disease and other forms of dementia. The initiative aims to enable individuals living with dementia to remain safe and comfortable in their homes for as long as possible. By tackling essential home improvements, such as installing ramps and adding crucial safety features, this "Together in a Day" directly addresses both the physical and emotional needs of these families. ... For more information on available resources and upcoming initiatives, visit the Family Hospice website or the Alzheimer’s Association Georgia Chapter website.Editor's note: Bravo and thank you, Family Hospice and the Alzheimer's Association!

From hospital to home: Mastering transitions of care and preventing re-hospitalizations Mayo Clinic; by Mayo Clinic Press Editors; 6/3/25 Physically moving from one healthcare setting to another — whether it be from the hospital to rehab, or rehab to nursing home — can be a complicated process, both logistically and emotionally. And in the midst of all of that hubbub, it can sometimes be hard for the person in the center of it all to feel like they’re properly being heard. On this episode of Aging Forward, Dr. Maria De la Garza talks about the commonality of communication errors between health providers during care transitions, the importance of caregivers and loved ones in the process, a how to center the patient and their wishes in their care.

NPHI proud to announce its partnership on the upcoming documentary for PBS, Caregiving, from Executive Producer Bradley Cooper National Partnership for Healthcare and Hospice Innovation (NPHI), Washington, DC; 5/19/25 The National Partnership for Healthcare and Hospice Innovation (NPHI) is proud to announce its partnership on the upcoming PBS documentary Caregiving, a powerful new film executive produced by Academy Award-nominated actor, director, and producer Bradley Cooper. Created in collaboration with Cooper’s production company, Lea Pictures, as well as WETA Washington, D.C., and Ark Media, Caregiving will shine a national spotlight on the often unseen yet essential work of caregivers across the country. NPHI is honored to serve as a national partner on this important project. Narrated by Uzo Aduba (The Residence, Orange Is the New Black) and directed by Chris Durrance, Caregiving intertwines deeply personal stories of caregivers with the untold history of the American care system. The documentary examines how caregivers—often family members, friends, and frontline professionals—navigate the immense challenges and unseen achievements of their roles.

Hospices facing a US caregiving ‘crisis’ Hospice News; by Holly Vossel; 6/2/25 Family caregivers in the United States are being challenged by a swelling aging population inneed of greater support and stronger policy infrastructures. Much room for improvement exists at both state and federal levels when it comes to recognizing the important roles that family caregivers play, according to Steven Lee, co-founder and CEO of ianacare, a Boston-based patient and caregiver resource company. More innovative care models and disease-specific reimbursement options have widened pathways for hospice providers to improve family caregiver support, Lee said in a recent Hospice News Elevate podcast. But these fall short of addressing the diverse scope of practical, emotional and financial needs, he stated. Editor's note: This article has an excellent map of US states with caregiver categories for "Well-Supported," "Safe for Now," "High Risk," and "Critical" (courtesy of Otsuka America Pharmaceutical). Additionally, our sponsor Hospice Analytics provides the National Hospice Locator, for caregivers/families to find hospices that serve in each US county, and sorted by their quality scores. And, our sponsor Composing Life equips hospice organizations with caregiver/family video libraries that span the continuum of serious illness, hospice, and grief care. 

MLN Fact Sheet: Creating an efffective Hospice Plan of CareCenters for Medicare & Medicaid Services, Medicare Learning Network (MLN); 5/10/25 The hospice plan of care (POC) maps out needs and services given to a Medicare patient facing a terminal illness, as well as the patient’s family or caregiver. CMS data shows that some hospice POCs are incomplete or not followed correctly. This fact sheet educates on creating and coordinating successful hospice POCs. The primary goal of hospice care is to meet the holistic needs of an individual and their caregiver and family when curative care is no longer an option. To support this goal:

All You Need is Love The Republic; by Sharon Mangas; 5/28/25The call came in at 4:00 a.m., waking me from a deep sleep. It was the kind of call that puts you on high alert; like when you have a teenage driver at home, or a mother-in-law on hospice care. ... “Hello. Is this Sharon Mangas? I’m calling from the hospice center. I wasn’t able to reach Mike. I’m sorry to share this news…your mother-in-law, Carmen, passed away a few minutes ago.” ... To the best of my knowledge, I was privy to her last spoken words to family. After Mike and I helped Carmen settle in at the Hospice Center near midnight Saturday, May 3—barely 24 hours before she passed—I bent over to tell her we’d see her in the morning. She looked deeply into my eyes and said, “I love you, Sharon.” I took her hand gently and said, “I love you, too.” ... As the first daughter-in-law in Carmen’s orbit, the two of us had occasional dust-ups and misunderstandings that challenged our family bond. But we shared a lot of love, too, and love is healing. 

ALS and mental health: The importance of caring for the whole person ALS Association; by Amber Johnstone, MSW, LISW-S; retrieved from the internet 5/27/25 ... May is ALS Awareness Month and also Mental Health Awareness month. ALS and Mental Health go hand in hand. One of the first things I tell newly diagnosed individuals that I work with is that ALS affects the whole family. And to be truthful, it affects many more than just that nuclear family unit. A person living with ALS is like a pebble thrown into a pond. That first splash is the biggest, but then the water ripples all the way out to the edges of the pond. Those ripples are all the people with which the person with ALS shares their journey. ... The ALS Association understands how important mental health can be.  ... The ALS Association is proud to offer ALS Academy to community healthcare professionals and caregivers.  ALS Academy is free, online, self-paced, catalog of ALS education videos.  

"You're next": People are sharing the last words they heard someone say as they were dying, and they're not all inspiring BuzzFeed; by Mike Spohr; 5/21/25There's so much we don't understand about the end of life. Recently, we shared a post where Quora users shared their experiences being present for the final moments of someone's life...and hearing their last words. Well, as it turns out, BuzzFeed's readers wanted to share their experiences hearing someone's last words too, so we rounded them up here:

What caregivers should know about end-of-life rallies  AARP; by Jamie Ducharme; 5/19/25People with advanced illnesses sometimes experience unpredictable bursts of energy or clarity. Here’s how caregivers should handle these episodes. Roughly a decade after her mother was diagnosed with Alzheimer’s disease, Liz Donnarumma got her back — but only for an instant. It happened one evening in 2021, more than a year after Donnarumma first realized her mother, Theresa, didn’t recognize her. Theresa took Donnarumma’s face in her hands, called her by her nickname and thanked her. “When she put her hands on my face and I looked into her eyes, she was totally there. It was my mother,” Donnarumma says. “It was like a second, just one second, and it was gone.” Donnarumma’s mother had an episode of “paradoxical lucidity” — that is, an unexpected burst of mental clarity, despite her advanced condition. While these moments are as unexplained as they are unexpected, experts say they are more common than many people realize. ...

Yes, you can die from a broken heartMedscape; by F. Perry Wilson, MD, MSCE; 5/14/25 A patient comes crashing into the emergency room with severe chest pain. The EKG looks like this: A patient comes crashing into the emergency room with severe chest pain. The EKG looks like this: [graphic]. As a doctor, if you see this, you’re calling the cardiac cath lab. This is an ST-elevation myocardial infarction — the big one — indicative of a blood clot blocking blood flow to a large section of the heart. The sooner you get that blood clot out, the better chance the patient has to survive. So the patient is rushed to the cath lab, and they find… nothing. Clear coronaries. No blood clot. Further questioning reveals that the patient, an older woman, lost her husband recently. This is stress-induced cardiomyopathy, medically known as Takotsubo cardiomyopathy (TC). It’s the pathophysiologic manifestation of a broken heart. First described in 1991, Takotsubo syndrome occurs in the setting of deep psychological, emotional, or physical stress.

Finding her strength in silence: CSU Pueblo student graduates twice, carring her mother's dream Colorado State University Pueblo, Pueblo, CO; by Soni Brinsko; 5/14/25 The porch was still new when the professors arrived that late November evening. Hand-laid tiles, each one carefully placed by a father during what should have been vacation time. He’d built it for his wife so she could sit outside, feel the Colorado breeze one more time. That night, the porch became something else entirely. It became a stage for a graduation ceremony that wasn’t supposed to happen until May. Alondra Solis Ayala is about to walk across the commencement stage at Colorado State University Pueblo this week. It will be her second graduation. The first one happened in her family’s living room, with her dying mother watching from a chair, too weak to stand but strong enough to declare “esa es mi hija”—that’s my daughter—as faculty members in full regalia handed over a diploma cover and stole in what became an impromptu, deeply personal ceremony.

[June 12-18, 2025] Why celebrating CNA Week is a big deal ShiftMed; by Sarah Knight; 4/23/25 National Certified Nursing Assistant (CNA) Week, which kicks off on the Thursday of the second full week of June, is an annual tribute to the dedicated individuals who form the backbone of our healthcare system. So, as we approach CNA Week 2025, we must recognize their tireless efforts and unwavering commitment. ... CNA Week 2025 kicks off on Thursday, June 12 and runs through Wednesday, June 18. This year’s theme, “We Are the Champions,” celebrates CNAs as the unsung heroes of frontline care—professionals who ensure patients feel seen, heard, and truly cared for every single day. ...