Literature Review

All posts tagged with “Clinical News | Caregivers - Caregiving.”



Art meets history, grief, boots and landscapes at First Friday Artwalk

04/09/25 at 03:00 AM

Art meets history, grief, boots and landscapes at First Friday Artwalk Steamboat Pilot & Today, Northwest Colorado; by John Componeschi; 4/3/25  April’s First Friday Artwalk will celebrate artistic diversity and storytelling, both of which form the framework of the Yampa Valley’s creative arts community. [Published 4/3/25, before Fri. 4/4/25] ... An emotionally powerful exhibit entitled “Good Grief” will open at the Depot Art Center, ... The works of Krystal Mackey will be presented in partnership with Northwest Colorado Health’s Hospice program. Mackey, who has a background in design and architecture, created the series as an emotional coping outlet. Her pastel on sanded paper and digital drawing pieces offer the viewer an honest and vulnerable exploration of grief. Selected works were displayed during “Tuesdays with Morrie” at Perry-Mansfield in March. “Grief may be scary, sad and hard to look at,” said Mackey. “But it’s worth it.” Influenced by artists Chagall, Kandinsky, Warhol and Lichtenstein, Mackey’s style combines vibrant color with feeling- and grief-based introspection. The exhibit invites viewers to reflect on whether grief has affected them and if they would benefit from talking about their experiences with it.

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What happens when someone passes at home? It depends

04/08/25 at 03:00 AM

What happens when someone passes at home? It depends Bozeman Daily Chronicle, Bozeman, MT; Chris Remely "discussions with a funeral director"; 4/5/25 One of the most common questions we get asked as funeral directors is, “What happens if I pass away at home?” The answer is ... it depends. Home death is fairly common in the context of someone being on hospice care. For many individuals who have been given a difficult medical diagnosis that is terminal, they often prefer to be at home surrounded by loved ones for as long as possible. ... In this scenario, hospice will pronounce the death and work with the funeral home to transfer the individual into their care. ... However, when someone passes away at home and they are not on hospice, this is considered an “unattended death” — meaning a medical professional is not involved. In this case, the coroner’s office is required to investigate the death to determine the cause and manner of death — as well as pronounce the death. ... When someone from the coroner’s office arrives, they will do several things. They will visit with the next of kin and ask them questions about their loved one’s medical history and investigate the scene where the death occurred. Editor's note: Too often, hospices gloss over this all-important information for caregivers and families. Death is traumatic enough. Families are left in a lurch. Conflicts can erupt at the family's most vulnerable moments. Yes, timing and delivery for such sensitive information is important. Our sponsor Composing Life Out of Loss provides empathic, sensitive videos for hospice teams to use with caregivers and families, with interdisciplinary team guides for tending individuals' different readiness for education and preparation.

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‘The most someone wants is to be heard’: Students foster connection, create memoirs for hospice patients

04/07/25 at 03:00 AM

‘The most someone wants is to be heard’: Students foster connection, create memoirs for hospice patients The Daily Texan - University of Texas, Austin, TX; 4/3/25 ... Brought to UT in 2023, Last Writers is a service organization where student volunteers interview hospice patients over the course of several months to write a memoir that is then printed and given to the patients and their families. The process is intended to bring comfort to hospice patients and create a physical memento for the families, representing their lives once they pass. ... “It’s not often that you’re a college student and you get to meet someone who is going to pass away in the next few months,” Nguyen said. “To be with them in that very vulnerable point, it gives you a lot of perspectives. A lot of our members come out of it realizing how much they have to live for. … It makes us more grateful in life and puts our mortality into perspective.” [Continue reading ...]

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Practical tools and heartfelt hope: How Nancy Y Treaster is empowering dementia caregivers worldwide

04/07/25 at 03:00 AM

Practical tools and heartfelt hope: How Nancy Y Treaster is empowering dementia caregivers worldwide Thrive Global; by Stacey Chillemi; 4/2/25 In this empowering interview, dementia care expert Nancy Y Treaster shares practical strategies, emotional insights, and vital resources to help family caregivers navigate the challenges of caregiving with confidence and compassion. ...

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Experiences of family caregivers of children aged 1–23 months who have received pediatric palliative care: A systematic review with qualitative metasynthesis

04/03/25 at 03:00 AM

Experiences of family caregivers of children aged 1–23 months who have received pediatric palliative care: A systematic review with qualitative metasynthesis Sigma Global Nursing Excellence - Journal of Nursing Scholarship; by Juan Manuel Vázquez Sánchez, Manuela Rodríguez Sánchez, Emilio Mota Romero, Ana Alejandra Esteban Burgos, Rafael Montoya Juárez, César Hueso Montoro, Daniel Puente Fernández; 4/1/25 This study underscores the importance of addressing the unique needs of family caregivers of children aged 1–23 months receiving pediatric palliative care (PPC), highlighting their struggles with social isolation, neglected self-care, and disrupted family life. Healthcare providers should prioritize age-specific approaches to PPC, focusing on improving communication, care coordination, and understanding of palliative care principles to better support these caregivers. [Continue reading ...] 

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The most personal column I’ve ever written

04/03/25 at 03:00 AM

The most personal column I’ve ever written The Times, United Kingdom; by Professor Tanya Byron; 3/31/25 ... This column will be more personal than any other I have written in my now 20 years writing for The Times. I write it four days after my sister Katrina and I lost our beloved mum, Elfie, who ... had advanced end-stage dementia. Where do we start when trying to describe the many moments of heartbreak and the challenges that come with the long goodbye we have faced with our parents? Dementia is unpredictable. We say goodbye more than once and so the pain of bereavement does not begin at the time of death. Instead it is a prolonged pain marked by gradual losses. Watching a loved one slowly fade away over months or years brings grief, exhaustion and deep emotional turmoil. Amid all this is the experience of being on a rollercoaster of loss and hope, an experience that creates huge lurches between perceptions and emotions. There are moments of clarity and regression, ... [Continue reading ...]

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Hospices must ‘evolve’ to better support next generation of caregivers

04/03/25 at 03:00 AM

Hospices must ‘evolve’ to better support next generation of caregivers Hospice News; by Holly Vossel; 3/31/25 Individuals in the millennial and generation Z (Gen Z) age groups represent a swelling proportion of today’s family caregivers. They face unique challenges when providing support for hospice patients compared to others, recent research has found. ... Understanding the competing, complex priorities of these generations is pivotal for hospices’ ability to deliver quality care, according to Nicole McCann-Davis, senior client advisor and research director at Transcend Strategy Group. [Continue reading ...]

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Study raises questions about GUIDE model’s helpfulness for caregivers of loved ones with dementia

04/02/25 at 03:00 AM

Study raises questions about GUIDE model’s helpfulness for caregivers of loved ones with dementia McKnights Home Care; by Adam Healy; 4/1/25 The Guiding an Improve Dementia Experience may need to be fine-tuned to better serve caregivers of those living with dementia, according to a new study published in Alzheimer’s & Dementia. The researchers identified 565 older adults and 555 caregivers eligible for GUIDE using data from the 2022 National Health and Aging Trends Study and National Study of Caregiving. They found that approximately half of GUIDE-eligible people with dementia received care from two or more caregivers, and about a third of these caregivers reported experiencing high caregiving strain. [Continue reading ...] 

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Stetson University professor joins millions of Americans as she embraces caregiver role for her aging parents

04/02/25 at 02:00 AM

Stetson University professor joins millions of Americans as she embraces caregiver role for her aging parents Spectrum News 13, Orlando/Deland, FL; by Nicole Griffin and Devin Martin; 3/31/25 According to the U.S. Bureau of Labor Statistics, more than 10 million Americans act as unpaid caregivers for an elderly parent on a regular basis. Millions in that group not only have a full- or part-time job, they are also part of the so-called “sandwich generation” — people who find themselves supporting their children and parents at the same time. ... Stetson University professor Wendy Anderson is part of that group. ... She has moved in with her parents to help care for her elderly father and mother, who is in at-home hospice care. [Continue reading ...]

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[UK] Play 'humanizes' pediatric care and should be key feature of a child-friendly NHS, report suggests

04/01/25 at 03:30 AM

[UK] Play 'humanizes' pediatric care and should be key feature of a child-friendly NHS, report suggests Medical Xpress; by University of Cambridge; 3/30/25 The report, by University of Cambridge academics for the charity "Starlight," calls for play, games and playful approaches to be integrated into a "holistic" model of children's health care—one that acknowledges the emotional and psychological dimensions of good health, alongside its physical aspects.  ... Both internationally and in the UK, health systems have, in recent decades, increasingly promoted play in pediatric health care. There is a growing understanding that making health care more child-friendly can reduce stress and positively improve younger patients' experiences. Despite this recognition, play often remains undervalued and inconsistently integrated across health care contexts. For the first time, the report compiles evidence from over 120 studies to make the case for its more systematic incorporation. [Continue reading ...] Editor's note: Click here to access the report, Playing with children's health? 

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Honoring a young girl’s love of nature on her final day

03/31/25 at 03:00 AM

Honoring a young girl’s love of nature on her final dayMayo Clinic News Network; by Mayo Clinic Staff; 3/27/25 On a Saturday evening in September of 2024, Mae Helgeson arrived at Mayo Clinic in Rochester, her small body reeling from the trauma of a life-threatening accident. Although she was intubated and sedated, it didn't take long for the care team to learn what made this little girl special. ... "I often ask parents to tell me about their child. Is there anything you think is important or that I should know about your family?" says Paige Dighton, one of the Child Life specialists who partnered with Mae's family. "This allows them to share the special things — those unique qualities that make them a family. You learn more than just what's in their chart." ... It was only a couple of days later that Mae's family was faced with the devastating decision they'd hoped to avoid. ... The question shifted from "Can we save her?" to "How do we say goodbye?" Following their lead, the team began focusing on end-of-life care. "Dr. Schiltz gave us the space to think and process our emotions — it didn't feel rushed," says Matt. 

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Dana Trabulsy bill aims to help families get death certificates faster

03/31/25 at 03:00 AM

Dana Trabulsy bill aims to help families get death certificates faster Florida Politics; by Gabrielle Russon; 3/27/25  'This will solve a problem and be able to help these families move on sooner with the things that they need to do to start healing.'Families whose loved ones die in hospice are often stuck waiting for death certificates because of a backlog. One lawmaker wants to speed up the process to help them get the documents they need. Fort Pierce Republican Rep. Dana Trabulsy is pushing a bill that would allow advanced practice registered nurses providing hospice care to sign death certificates with a physician’s protocol. HB 647 passed its first committee stop Thursday with a 17-0 vote in front of the Health Professions and Programs Subcommittee.

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Hospital workers share 26 deathbed regrets they’ve heard that changed their lives

03/31/25 at 02:00 AM

Hospital workers share 26 deathbed regrets they’ve heard that changed their lives Boredpanda; by Ruta Zumbrickaite; 3/28/25 While painful, regret can also be a motivator for learning and growth, encouraging us to avoid repeating past mistakes and make better decisions in the future. We guess that’s why self-help author Debbie Ford once said, “Pain can be our greatest teacher.” Someone on the web asked hospital workers, “What regrets do you hear from dying patients?”, and folks who’ve been there in people’s last moments shared the words that hit them the hardest. Here’s a list of some of their most profound responses.  

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Mitchell Hospice House celebrates upcoming grand opening

03/28/25 at 03:00 AM

Mitchell Hospice House celebrates upcoming grand opening KTIV-4 News, Sioux City, IA; by Acacia Phillips; 3/25/25 ... On Tuesday, Mitchell Hospice House celebrated its grand opening, which is less than a week away. At the celebration, members of the community had the opportunity to tour the facility. ... Mitchell Hospice House has a total of 9 rooms. ... They also have rooms for family members so they can be close to their loved ones. The goal is to provide a space for those who need that end-of-life care but want a place that feels like home. They officially open next Monday, March 31. [Contintue reading ...]

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Saying goodbye to Dad

03/28/25 at 03:00 AM

Saying goodbye to Dad MidlandsLife; by Jeff Becraft; 3/27/25 I know my last article talked about my Dad moving on to Higher Ground, but while it is still fresh on my mind, I’m going to delve into the process of saying goodbye.  Perhaps it will resonate with someone who has already been down this path… or maybe someone who will be going down this path. I know that many people have been on a longer road than what I am going to describe. I won’t try to cover everything and there are some very significant things that are left out because of space; I will be simply giving my perspective on the overall experience of the last days. [Continue reading ...]Editor's note: If you have to dive into only one article today, this is the one. If you have experienced the vigil of a loved one's final days, this likely gives voice to your journey: "Each day we thought was going to be Dad’s last. It was certainly a time of changing emotions." If you have not experienced this, read to learn common rhythms and themes, dissonances harmonies, and final release into death. Thank you Jeff Becraft for your meaningful reflection.

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Thompson Scholars and AdventHealth host successful Health Equity Health Fair

03/28/25 at 03:00 AM

Thompson Scholars and AdventHealth host successful Health Equity Health Fair AdventHealth Manchester, Manchester, KY; by Christina Couch; 3/25/25 The Thompson Scholars Foundation and AdventHealth are proud to announce the successful completion of the Health Equity Health Fair held [March 24] ... in Manchester, KY. With over 250 participants, the event brought together medical professionals, community representatives, and attendees to address health disparities and promote wellness within the community. The Health Equity Health Fair featured a wide range of activities and resources, including: ... Hospice Care ...

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Hidden battles: Keeping cancer secret

03/27/25 at 03:00 AM

Hidden battles: Keeping cancer secret Harvard Health Publishing - Harvard Medical School; by Maureen Salamon; post is dated 4/1/25, retrieved from the internet 3/25/25 Some people choose to conceal their diagnosis and treatment. Here's why — and reasons that approach can sometimes backfire. ... [In addition to privacy motives, Cristina Pozo-Kaderman, a senior psychologist at Harvard-affiliated Dana-Farber Cancer Institute] says cancer patients may also wish to:

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Daughter embraces mom’s hospice journey

03/27/25 at 03:00 AM

Daughter embraces mom’s hospice journey City Sun Times, Phoenix, AZ; by Lin Sue Flood; 3/25/25 As a nurse, Robin Benton is used to caring for people who are ill. But it’s different when your mother is the one who is sick. Her mom, Charlotte Brewer, a former nurse herself, has multiple myeloma, a rare type of blood cancer. In March 2024, the 80-year-old Valley resident decided to stop curative treatments in favor of comfort care with Hospice of the Valley, where she worked for over 10 years, before retiring in 2007. ... Charlotte’s Hospice of the Valley nurse, Kelly Langston, admires the way the family is living this stage of life with great intention, creating new ways to deepen their love for each other. “They came up with an idea for a hug shirt,” shared Kelly. “Everyone in the family painted their arms then took turns hugging each other — stamping an imprint of encircled arms on the shirts. It’s a way to feel each other’s hugs even when they aren’t together.” [Continue reading ...]

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Executive producer Bradley Cooper's film Caregiving to premiere on PBS for nationwide broadcast June 24, streaming begins May 27

03/26/25 at 03:00 AM

Executive producer Bradley Cooper's film Caregiving to premiere on PBS for nationwide broadcast June 24, streaming begins May 27ABC WHTM-27, Harrisburg, PA; 3/20/25 PBS and WETA Washington, DC, today announced that Caregiving, the documentary created with executive producer Bradley Cooper highlighting the challenges and triumphs of caregiving in America, will premiere Tuesday, June 24, 2025 at 9 p.m. ET on PBS (check local listings), and on the PBS YouTube Channel. Caregiving will be available to stream on PBS.org and the PBS App beginning Tuesday, May 27, 2025. Award-winning actress Uzo Aduba (The Residence, Painkiller, Orange is the New Black) was also announced as the film's narrator, bringing her own experience as a caregiver for her mother to the project. The two-hour documentary is centered on the personal experiences of caregivers providing for loved ones, and the challenges and triumph they face each day. These stories are interwoven with the broader context of the cultural and economic conditions in the U.S., leading to a care system tipping into crisis. [Continue reading ... including "Bradley Cooper Invites the Public to Share Their Caregiving Story]

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Trellis Supportive Care to host day of support for caregivers

03/25/25 at 03:00 AM

Trellis Supportive Care to host day of support for caregiversThe Chronicle, Winston-Salem, NC; by WS Chronicle; 3/22/25 Trellis Supportive Care is hosting a day of support for caregivers, free of charge and open to the public.  The program, “Caring for You: A Day of Support for Family Caregivers,” is set for Friday, April 4, from 8:30 a.m. – 3:30 p.m. at the Intergenerational Center for Arts and Wellness in Winston-Salem. This full-day program is both a retreat and educational day for caregivers. “We understand that caregivers are often unable to attend events such as this, therefore, we are removing that barrier,” shared Jacob Gordon, director of community programming with Trellis Supportive Care. For those responsible for caring for an adult family member, Trellis is arranging respite care in coordination with local partner agencies so that caregivers can attend.   ... “We hope this provides an opportunity for people to regroup, rejuvenate, and leave with valuable tips for moving forward as a caregiver,” shared Gordon.   

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'They mourn just like you and me': Local nonprofit cares for animals of terminally ill owners

03/25/25 at 03:00 AM

'They mourn just like you and me': Local nonprofit cares for animals of terminally ill owners The Gazette, Colorado Springs, CO; by Kelly Hayes; 3/22/25 The car ride back to the home of Randy and Linda Gearhart was near silent that February day. The husband and wife from Colorado Springs had just picked up 12-year-old Kimi, a tan, medium-sized dog, and 11-year-old Sage, a slightly larger kelpie mix. ... Sitting in the trunk of the car was all the pups had known: several cushions, their bowls, plenty of toys and a heap of blankets. But there was something — or rather, someone — missing. Their owner, who died recently. “I didn’t wash these until last week,” Linda said, pointing to their cushions. “I think having the smells, having their same beds, that familiarity, was good for them.” For nearly three decades, Safe Place for Pets has served as a new home for animals of terminally ill owners in Colorado Springs. With the help of about 50 volunteers, two part-time employees and a handful of fosters such as the Gearharts, the nonprofit shoulders a heavy responsibility: caring for beloved pets after their person dies. [Continue reading this heart-warming story ...]

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Carolyn Hax: Does sibling love justify traveling to abusive mom’s deathbed?

03/25/25 at 03:00 AM

Carolyn Hax: Does sibling love justify traveling to abusive mom’s deathbed?The Washington Post, Washington, DC; 3/24/25 Sister asks the letter writer to join her at their dying mom’s bedside — despite their PTSD-inducing childhoods. [The rest of this article may require a subscription to The Washington Post.]Editor's note: Even if you're not able to access the full article, what does this question stir in you? Be aware that many family caregivers (or simply family members) face complex, conflicted relationships with the persons they are tending--or in this case, even considering visiting or not. Be attuned to these common, everyday occurrences that your direct care interdisciplinary team members regularly navigate. What family systems' education and support do you provide for them?

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Mt. Hood Hospice to present third Grief Made Visible art exhibit in April

03/25/25 at 02:15 AM

Mt. Hood Hospice to present third Grief Made Visible art exhibit in April Sandy Post, West Linn, OR; by Brit Allen; 3/23/25 Aside from in-home hospice services, Mt. Hood Hospice offers numerous other resources to the community, regardless of income or if they have any other ties to the organization. Among them are grief support groups that utilize art as a tool of healing. As a result of these groups, 16 artists will have the art that they created in these groups on display at AntFarm Café & Bakery, 39140 Proctor Blvd., throughout the month of April, from April 3-30, while the cafe is open. ... “This art show creates a space that normalizes talking about mental health and grief,” said Mt. Hood Hospice Bereavement Services Director Laura Lirette. “In a culture where grief is often experienced alone and behind closed doors, our hope is that this exhibit will invite conversations about grief and supporting grievers.”

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How our partnership with LovEvolve fosters the message of compassionate care

03/21/25 at 03:00 AM

How our partnership with LovEvolve fosters the message of compassionate care Carolina Caring, Newton, NC; 3/20/25 ... Founded and designed by professional artist Sunny Goode, LovEvolve is a mission-driven organization producing scarves, blankets, and swaddles which hold creative attention to color theory and the message of love. ... LovEvolve has distributed their products across thirteen hospitals nationwide, allowing over 61,000 newborns to be wrapped in love. ... Cardinal Kids [Carolina Caring's pediatric palliative medicine and hospice program] began distributing LovEvolve blankets and swaddles to our hospice patients in December 2024. Though these items are a recent addition to our story, families have already shared that these gifts bring lasting meaning to their hospice experience. These blankets are memory makers, reminding families of the impact that their child has had on this world. Sometimes, parents use the blankets whenever they spend the night with their children at the hospice house. The blankets have also been regifted to siblings as a tangible reminder of their brother or sister. The visual cue of love has been a source of peace for many of our Pediatric nurses, as well.

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Hosparus Health hosts senior resource fair for community

03/21/25 at 03:00 AM

Hosparus Health hosts senior resource fair for community NBC WNKY News 40, Bowling Green, KY; by Noah Faerber; 3/18/25 Hosparus Health invited partners from the community to WKU’s Medical Science Complex for a senior resource summit. It offered seniors a chance to speak with different organizations that can help them prepare for their future. From Bowling Green Parks & Rec’s fitness department to different healthcare groups, staff were excited to have so many groups out to help look toward what’s next.

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