Literature Review
All posts tagged with “Clinical News | Caregivers - Caregiving.”
Transforming care: Spencer Health Solutions and Pharmerica partner to simplify medication management and improve lives
01/23/25 at 03:00 AMTransforming care: Spencer Health Solutions and Pharmerica partner to simplify medication management and improve lives The MarCom Journal, Morrisville, NC; by Leigh White, PharMerica and Daphne Earley, Spencer Health Solutions; 1/21/25In a move set to redefine how medication is managed, Spencer Health Solutions (SHS), a leader in innovative healthcare technology, and PharMerica, one of the nation’s largest and most trusted long-term care pharmacy services provider, are joining forces. This transformative partnership aims to make managing medications easier and more reliable for individuals with complex medication needs, senior living communities, and payers nationwide. ... Spencer Health Solutions (SHS) is dedicated to transforming medication management through innovative healthcare technology. ... PharMerica ... serves the long-term care, senior living, hospital, home infusion, hospice, behavioral, specialty and oncology pharmacy markets.
Free Death Cafés provide a venue for difficult conversations
01/22/25 at 03:00 AMFree Death Cafés provide a venue for difficult conversations The Northern Virginia Daily. Stephens City, VA; by Brian Brehm; 1/20/25... Blue Ridge Hospice, in partnership with Bowman Library, wants to spark the death-related conversations that many people want to have but are comfortable initiating. Starting this month, the two organizations will be hosting a Death Café on the fourth Thursday of every other month. ... According to a media release from Blue Ridge Hospice, “Death Café is not a grief support group or a counseling session, but rather a casual and welcoming space for people to reflect on death-related topics, with the aim of helping us live life more fully. Whether you’re curious, thoughtful or seeking meaningful conversation, come as you are and engage in this judgment-free, agenda-free discussion.”
Sovereign Hospice empowering young adults to understand hospice
01/21/25 at 03:00 AMSovereign Hospice empowering young adults to understand hospice Fox-40; Press Release by Sovereing Hospice; 1/20/25 Sovereign Hospice ... in Aubrey, Texas, is shedding light on the essential role young adults play in understanding and supporting hospice and palliative care services. Through their latest blog, “Spreading Insight: What Young Adults Should Know About Hospice & Palliative Care,” the organization aims to debunk myths, explain key differences between hospice and palliative care, and emphasize why early awareness is critical for families navigating complex health journeys. Many young adults assume caregiving responsibilities earlier than expected, often balancing personal and professional commitments. Studies show that nearly 1 in 4 adults aged 18–34 provide care for a loved one, underscoring the need for awareness about hospice and palliative care.
New data reveals the hidden costs of workplace violence in healthcare
01/21/25 at 03:00 AMNew data reveals the hidden costs of workplace violence in healthcare Perceptyx; by Ellen Lovell, PhD and Stephanie Schloemer, PhD; 1/17/25 Workplace violence has become an impossible-to-ignore crisis in healthcare, threatening the safety of medical professionals, patients, and institutions. The severity and frequency of these incidents have reached alarming levels, demanding immediate attention and action. ... The human cost is staggering. ... While our research confirms the widespread nature of safety concerns in healthcare, a deeper analysis reveals significant variations across different healthcare environments and roles. This granular view helps us understand where intervention is most urgently needed. Editor's note: Although "hospice settings reported the lowest agreement at 54%," this statistic should be considered too high for comfort. Actions need to be taken to reduce it. From your professional leadership role, examine the importance of protecting hospice professionals' safety--typically in home settings--and through moments such vulnerable, emotional, conflicted times within families. What can your agency improve?
DeKalb library to host memorial pillow workshops Jan. 25
01/21/25 at 03:00 AMDeKalb library to host memorial pillow workshops Jan. 25 Shaw Local News Network, Dekalb, IL; by Kate Santillan; 1/19/25 The DeKalb Public Library will partner with Northern Illinois Hospice to host two workshop sessions for patrons to create pillows out of a loved one’s shirt. ... Participants can create up to two pillows out of a T-shirt or button-down shirt. Seamsters will be available to assist. Attendees should not bring jackets, thick fabrics or denim. Bereavement support and information will be provided.Editor's note: Do you know that healing grief actually begins with "accepting realities" and its later, ongoing "Task of Mourning" is to develop "enduring connections" or "continuing bonds" with the person or thing that has been lost? [J. William Worden, Grief Counseling & Grief Therapy; 5 editions since 1982] Similar memorials have been created by other hospices using the deceased person's clothing (ie., teddy bears, etc.). This simple, practical method can be adapted easily, with years of meaningful connection and generations of storytelling ahead.
For 27 years, I had minimal contact with my abusive mother. Then she moved in with me.
01/21/25 at 02:30 AMFor 27 years, I had minimal contact with my abusive mother. Then she moved in with me. HuffPost; by Carole Brodsky; 1/20/25 ... Living with my mom was the last thing I ever thought I’d be doing as an adult. Perhaps I accepted her back into my life because there were no other options available. Perhaps it was because I was the daughter of someone who in today’s vernacular would be called a “tiger mom,” and I’d been taught caring for an aging parent was what “good daughters” did. ... As a child, my mother was abusive. ... [Now, as] Mom’s verbal skills declined, we had to use our eyes, guts and hearts to discern the needs of a person whose tether to this world was fraying before our eyes. ... My partner has a saying: I always forgive, but I never forget. I have unequivocally forgiven my mother for everything. I have tried, with varying degrees of success, to let the vestiges of her abuse die with her and not invade the lives of my children, grandchildren and now, great-grandchildren. The work on forgiving myself will continue for the rest of my life.
Woman reveals terminally ill mom asked for just 'one thing' before passing
01/21/25 at 02:00 AMWoman reveals terminally ill mom asked for just 'one thing' before passing Newsweek; by Jack Beresford; 1/17/25 A terminally ill woman asked for "one thing" from her adult daughter before she died: to let her be her mom one last time. ... "I had a torn meniscus in my knee that I had been putting off, hoping it would improve, but it was only getting worse," Johnson said. ... [The mom] told her daughter: "I'm going downhill, and I know the end is coming, and if you don't hurry up and take care of this knee, then I'm gonna miss taking care of you in your recovery." ... "She didn't want me going through it without her," Johnson said. "She had already gone on hospice, and all treatments for her cancer had stopped. So, I called my orthopedic surgeon and told him I was ready to get it fixed. I was scheduled just a few days later." [Johnson's mom] cooked and cleaned despite being in a considerable amount of pain herself. She even slept in a chair by her daughter's bedside. That was her way of showing she cared.
‘Those who have made death their life’ Part 2: Family
01/20/25 at 03:00 AM‘Those who have made death their life’ Part 2: Family The Daily Yonder - Keep It Rural; by Hannah Clark; 1/16/25 Hannah Clark spent six months riding along with the nurses and certified nursing assistants (CNAs) of Hearth Hospice who provide in-home care to those living in Northwest Georgia and Southeast Tennessee. These hospice workers often drive up to a hundred miles a day to visit a handful of patients scattered across the Appalachian landscape in both rural towns and urban centers. What will follow this introductory essay is her photo reportage in three parts, documenting what she has witnessed accompanying these caregivers. The intimate portraits and vignettes show tender moments at different stages towards the end of one’s life. Their beauty lies in the companionship Clark captured in moments of need and vulnerability. Editor's note: Click here for Part 1, which we posted 1/16/25.
Effective solutions for caregivers of older adults: A review of systematic reviews
01/18/25 at 03:10 AMEffective solutions for caregivers of older adults: A review of systematic reviewsJournal of Applied Gerontology; Molly McHugh, Ellen Munsterman, Hannah Cho; 1/25This umbrella review aims to describe caregiver interventions tested across populations of informal caregivers of older adults and to examine the effect of caregiver interventions on depression, burden, and quality of life across intervention types and care-recipient populations. Most commonly, interventions focused on improving outcomes for caregivers of older adults with dementia. Among the included reviews, caregiver depression was most likely to be reduced by caregiver interventions, and cognitive behavioral therapy (CBT) and mindfulness-based interventions (MBI) were most effective. The use of information and communication technologies to deliver caregiver interventions is increasingly common. Standardization of intervention classifications and transparent reports of intervention delivery details will strengthen research in this field.
Knoxville nurses bring wedding to UT Medical Center for bride’s dying mother
01/17/25 at 02:00 AMKnoxville nurses bring wedding to UT Medical Center for bride’s dying mother WATE Knoxville, TN; by Molly O'Brien; 1/15/25 Nurses on the Progressive Care Unit at UT Medical Center planned a wedding for one of their patient’s daughter. Samantha Barry and her now husband, Phillip Bastelica, were supposed to get married in a few months. Barry, like most daughters, always planned on her mother being at her wedding day. Her mother, Lynn, is battling a terminal illness and was recently released from the Progressive Care Unit to hospice. ... It seemed unlikely that Lynn would be able to attend the wedding planned for August, so Barry and Bastelica decided to move the day up. ... The nurses who cared for Lynn jumped into action to plan a wedding for Barry.
New Hampshire woman’s father dies in hospice care [in fire evacuation zone] when California fires broke out
01/16/25 at 03:00 AMNew Hampshire woman’s father dies in hospice care when California fires broke out CBS News WBZ, Boston, MA / YouTube; 1/15/25 Just two hours before the fire evacuation--Merle Fetter--Barbara's husband of 64 years died in Royal Oaks Hospice Care, with Barbara holding his hand until the end . … As the fire moved through Altadena towards Monrovia Barbara was forced to leave Merrill's body, unable to be evacuated. ... [Daughter in New Hampshire:] “I didn't know where my mother was. I didn't know what happened to my father's body.” Barbara's daughter—Joy—thousands thousands of miles away in New Hampshire couldn't fly to Los Angeles until Friday. When she finally landed she received a reassuring call from Royal Oaks her mom was OK and her father's remains taken to the coroner's office. Staff feel like residents here are their family.
Guidelines for evaluating, diagnosing, and disclosing dementia published by Alzheimer’s Association
01/16/25 at 02:10 AMGuidelines for evaluating, diagnosing, and disclosing dementia published by Alzheimer’s Association Practical Neurology; 1/14/25 The Diagnostic Evaluation, Testing, Counseling, and Disclosure Clinical Practice Guideline (DETeCD-ADRD CPG) Workgroup, convened and funded by the Alzheimer’s Association, has developed new recommendations for clinicians to use when evaluating patients with possible Alzheimer disease (AD) or AD and related dementias (ADRD). An executive summary of the recommendations for use in primary care and other practice settings was published in Alzheimer’s & Dementia, along with a companion article summarizing specific guidance for specialists. The Workgroup included representatives from primary, specialty, subspecialty, long-term, and palliative care disciplines as well as the fields of health economics and bioethics. Editor's note: Click for open access to the Alzheimer's Association clinical practice guideline ..., executive summary of recommendations for primary care.
My husband almost died. When I asked his doctor for help, I was appalled by the insensitive response.
01/14/25 at 03:00 AMMy husband almost died. When I asked his doctor for help, I was appalled by the insensitive response. HuffPost; by Carrie Severson; 1/13/25 ... The physician’s assistant came in and looked at Gavin [the author's husband]. As soon as she took her seat, I told her I wanted to schedule him for a feeding tube, expecting her complete understanding and compassion. Instead, she laughed. “I recommended a consult for a feeding tube last week, and you declined it,” she said sharply. “Now I have to start over from scratch and reach back out to the GI team to see how we can get him in.” My mouth dropped open. I stared at her, bewildered. “I wasn’t ready last week. I’m ready now,” Gavin mumbled, barely audible. “What did he say?” the physician’s assistant snarled. I very calmly repeated what Gavin said, my heart breaking for him and rage racing through my body. “Well, you certainly have made my job harder. And now I’ll have to see what I can do for you. You’ll hear from me about your next steps, and you better follow them. It might be too late because of your attitude,” she barked. I leaned in, looked at her straight on, meeting her nasty tone, and said, “No. Your attitude has made this harder. And it’s very much not appreciated right now. He’s in pain, and your job is to help us. In fact, you took an oath to do no harm, and what you’re doing in this room is harmful.” ...
Caregiver confessions: ‘How much more can we take?’
01/14/25 at 03:00 AMCaregiver confessions: ‘How much more can we take?’ New York Magazine - The Cut - Family; as told to Paula Aceves and David mack; 1/13/25 Eleven people who care for aging and sick relatives share their fears, resentments, and guilt. “Where did those ten years ago?”: the daughter struggling to make ends meet while caring for her mother with Alzheimer’s. I never left home, like a good Cuban. My dad died when I was 9, and my mom never remarried, so I always felt a responsibility for her as her only child, especially since I’m not married and don’t have children of my own. [Click on the title's link to read this and other caregiver stories.]
The anonymous advantage: How anonymous patient surveys can improve healthcare outcomes
01/10/25 at 02:00 AMThe anonymous advantage: How anonymous patient surveys can improve healthcare outcomes Forbes; by Lauren Parr; 1/9/24 When it comes to improving patient care, feedback is the compass that guides healthcare providers in the right direction. But here’s the catch, traditional feedback often fails to capture honest patient opinions due to fear of judgment, privacy concerns and other potential repercussions. This is where anonymous surveys prove to be valuable. Studies have demonstrated that anonymous surveys yield more candid responses, leading to a deeper understanding of patient experiences. This increased transparency fosters trust between patients and healthcare providers, enabling a more collaborative approach to care. Free from fear of judgment or consequences, patients can provide honest feedback, highlighting strengths and identifying areas for improvement. This ultimately leads to better healthcare outcomes.
Daughter arrested for neglect after elderly mother found stuck to mattress
01/07/25 at 03:00 AMDaughter arrested for neglect after elderly mother found stuck to mattress The Augusta Press; by Greg Rickabaugh; 1/6/25 An elderly woman from Augusta was found in a state of severe neglect last week, prompting her daughter’s arrest. The 82-year-old was discovered incoherent and physically stuck to her mattress during a medical emergency on Dec. 30 at the home they shared on Rollingwood Drive, authorities said. When paramedics arrived at the family’s home, they found the woman non-responsive, with her skin literally adhered to the mattress due to untreated bedsores. She was rushed to Wellstar MCG Health, where she was stabilized. Authorities later arrested 54-year-old Tyrossale Peak, the woman’s daughter, charging her with neglect of a disabled or elderly adult. ... Investigators revealed that Peak had discontinued hospice care for her mother in June but failed to provide adequate care or maintain a safe living environment.
UnitedHealthcare taught us ways to deny claims: Former employee
01/03/25 at 02:00 AMUnitedHealthcare taught us ways to deny claims: Former employee NBC News Channel 8, Tampa, FL; by Damita Menezes; 12/30/24A former UnitedHealthcare claims representative says employees were systematically trained to deny medical claims and rush distressed customers off phone lines, revealing internal practices at the nation’s largest health insurer amid growing scrutiny of the industry. Natalie Collins, who worked for UnitedHealthcare for nine months, said Saturday on “NewsNation Prime” that staff received “so many different ways to deny” claims during their two to three months of training, with supervisors often standing behind representatives instructing them on denial methods. “We weren’t given proper instruction to actually pay the claim, and there wasn’t enough monies in certain files in certain companies to pay medical claims,” Collins said. “We would have to just get the client off the phone as fast as we could.” Collins described crying at her desk while handling calls from desperate patients, as supervisors laughed.
Hospice workers share the foods that bring patients comfort till the end
01/02/25 at 03:00 AMHospice workers share the foods that bring patients comfort till the end: Plus, they reveal how families can support their loved ones with scents, small bites and shared memories HuffPost; by Julie Kendrick; 12/30/24... We all live, we all die and we all enjoy food along the way. The memory and meaning of food, along with the bliss of being able to savor a cherished flavor, are still present in our lives, even as we head toward a last meal, a soothing sip of water or a final bit of sustenance. “Food often plays an emotional role in the last stages of life,” said Dr. Kurt Merkelz, the chief medical officer at Compassus, a home-based care company. “Some patients may reminisce about favorite meals or foods that connect them to fond memories and loved ones. There are instances where patients crave a specific dish that reminds them of their family or heritage, even if they can’t eat much.” ... People often ask for things like mashed potatoes, ice cream and chicken soup, according to Gail Inderwies, the founder and president of KeystoneCare, a hospice and home health provider in Pennsylvania. ... Sometimes, those comforts are part of a culinary heritage.
Muslim community-engaged research highlights Muslim Americans' end-of-life-healthcare gaps and needs
12/26/24 at 03:00 AMMuslim community-engaged research highlights Muslim Americans' end-of-life-healthcare gaps and needs WisconsinMuslimJournal.org; by Sandra Whitehead; 12/20/24 Few Muslim Americans use hospice care, despite its posited benefits. A multi-sectoral team of academicians and community leaders in southeastern Wisconsin decided to find out why. ... Muslims are one of the fastest-growing religious communities in the United States, numbering between 3 to 5 million, with projections it will double by 2050. “With an aging Muslim population, there is a growing need for specialized healthcare services like hospice and palliative care,” the team’s research explains. ... Through a qualitative descriptive study with a Muslim patient and 10 family caregivers, the research team identified their perceptions of hospice care, ethical concerns and experiences. Among their varied perceptions, many saw it as useful only in the last hours of life. Participants also had ethical concerns about the use of sedative medication and with cessation of feeding terminally ill patients. Some had concerns about how hospice care might lead to unnecessary interventions or even hasten death. ... The team is developing an informational resource, Islamic Bioethical Considerations for the End of Life: A Guide for Muslim Americans, to help Muslims who struggle when thinking about death and dying.
For young adults, caregiving isn't just hard. It can shape you for life.
12/26/24 at 03:00 AMFor young adults, caregiving isn't just hard. It can shape you for life. National Public Radio - CAI - Local NPR for the Cape, Coast & Islands; by Kat McGown; 12/23/24 ... There are days when Jordyn Glick, 27, can't eat or drink at all. She gets so tired and weak she can barely stand up. She has gastroparesis, where food stalls out in her stomach and doesn't get digested. It comes with unpredictable bouts of nausea, periods of agony in her guts, and malnutrition. ... Dakota Heath, her 26-year-old boyfriend of four years, is her watchman, "always picking up on the small things," he says. He's on alert for her next flareup, the kind that can leave her bedridden for a week. ... Young caregivers have always been there, doing all the same things that adults do — ... About one-quarter of all family caregivers are between 18 and 36, according to the National Alliance for Caregiving. One survey suggests that almost half of them are men. They're more likely to be Latino or Black; a survey in 2018 found that only 17% were white. They've just been invisible. "They fall into every potential crack that exists," says Melinda Kavanaugh, a professor of social work at the University of Wisconsin Milwaukee who is one of the few researchers who study this population. In terms of resources, "Nothing is targeted for a 22-year-old. Nothing."
Hospice study reveals contrasting views on managing dementia behaviors
12/23/24 at 03:00 AMHospice study reveals contrasting views on managing dementia behaviors McKnights Long-Term Care News; by Donna Shryer; 12/20/24 A new study finds that healthcare providers and family caregivers often disagree on how best to manage dementia behaviors during end-of-life care. The research, published in the Journal of the American Geriatrics Society, involved interviews with 23 hospice clinicians and 20 family caregivers. With dementia affecting 33% of adults over age 85 and now ranking as the primary diagnosis for Medicare hospice services, understanding these differing perspectives about managing dementia behaviors has become increasingly important. The study found that while both groups identified agitation as the most concerning behavioral symptom, they approached it from different angles. Clinicians primarily worried about physical safety risks, while family caregivers were more distressed by personality changes in their loved ones.
The Denver Hospice delivers holiday meals to 347 Coloradans; initiative ensured Coloradans facing hardship can celebrate with a holiday meal
12/23/24 at 02:00 AMThe Denver Hospice delivers holiday meals to 347 Coloradans; initiative ensured Coloradans facing hardship can celebrate with a holiday meal GlobeNewswire, Denver, CO; by The Denver Hospice; 12/20/24 The Denver Hospice, in collaboration with dedicated staff, provided 76 meals to patients and their families facing hardship during the holiday season. Over 347 people will enjoy a festive dinner as a result of the nonprofit’s healthcare organization’s holiday initiative. “At this time of the year, it can be especially hard for people to admit that they need help,” stated Susan Finke, director of clinical services at The Denver Hospice. “I want to thank everyone who helped deliver dinners today as we are caring for more people than just our patients. Hundreds will now have the opportunity to gather next week and enjoy being with their loved ones.” ... This is an annual event held by The Denver Hospice in support of their hospice and palliative care patients. Working in tandem with social workers, clinical and administrative staff, the nonprofit identifies and supports vulnerable patients across the Denver metropolitan area. The holiday season can be an especially difficult time of year for those facing life-limiting illnesses.
Loneliness and social and emotional support among sexual and gender minority caregivers
12/21/24 at 03:25 AMLoneliness and social and emotional support among sexual and gender minority caregiversJAMA Network Open; Zhigang Xie, PhD; Hanadi Hamadi, PhD; Kassie Terrell, PhD; Laggy George, MPH; Jennifer Wells, BA; Jiaming Liang, PhD; 12/24In the current landscape of US health care, informal unpaid caregiving provided by family members and friends is indispensable for managing diseases and ensuring long-term care in residential settings. Sexual and gender minority (SGM) adults in the US are more likely than their non-SGM counterparts to provide informal care to their family members and/or friends. Caregiving can impose substantial physical, mental, and social connection issues on caregivers.Conclusions and Relevance In this cross-sectional study of social connections, SGM adults experienced significantly higher levels of loneliness compared with straight adults, irrespective of caregiving status.
Mom, 26, dies days after choosing to enter hospice following 13 years of living with kidney failure (exclusive)
12/20/24 at 02:15 AMMom, 26, dies days after choosing to enter hospice following 13 years of living with kidney failure (exclusive) People; by Zoey Lyttle; 12/18/24 Though she left behind a 4-year-old daughter, Sara Long told PEOPLE her feelings about death were "more certain" than they'd ever been when she started end-of-life care. “I think a lot of people spend a lot of time thinking about what it means to have a good life. And don't get me wrong, I did that too,” Sara Long, 26, told PEOPLE over the phone just shy of a week before she died at the hospice facility into which she had just recently moved. ... Long said she’s spent “the last two or three years” deliberating about her idea of a “good death.” She decided that it wasn’t just about how she would experience these last expected few weeks of her life in hospice. What Long really wanted was to be surrounded by her most precious loved ones — including her husband Justin, 32, and their 4-year-old daughter Riley Jean — but she didn't want them to watch her die while intubated and attached to hospital equipment as she was half of her life. “I just feel like if I pushed it any harder, then I was going to get to a place where it was going to be outside of my control,” said the mom of one. “I was going to wind up dying in a hospital alone, afraid, full of tubes, scared. My daughter wouldn't be able to be part of the process, and it would just be really lonely, and that's really not the goal.” Detached from the familiar yet foreign medical equipment, Long told PEOPLE she was freed from fear knowing she would only survive another couple of weeks in hospice. (She died with a week less than anticipated.) Editor's note: This another follow-up post to this profound young woman's story that we post on
[United Kingdom] 'My son died at 24 - now I'm doing his bucket list'
12/19/24 at 03:00 AM[United Kingdom] 'My son died at 24 - now I'm doing his bucket list' BBC News; by Adam Eley and Alison Holt; 12/16/24 Alex Spencer's son Declan - who had Duchenne muscular dystrophy - died last year at the age of 24, and she admits she has still not gone a day without crying. "I think society has a misconception that a carer gets their life back [when a loved one dies]," she said. Declan had drawn up a bucket list but died before he could finish it. Now Alex, who wants to raise awareness of the difficulties disabled people face in getting the right care, is taking up the challenge - including visiting Paris, getting a tattoo Declan designed and taking his adapted van around a famous German race track.