Literature Review
All posts tagged with “Clinical News | Caregivers - Caregiving.”
Parting Stone celebrates serving 10,000 families with solidified remains service
03/06/25 at 03:00 AMParting Stone celebrates serving 10,000 families with solidified remains service Business Insider, Santa Fe, NM; Press Release; 3/5/25Parting Stone, an innovative death care company transforming the way families memorialize loved ones, is proud to announce that it has served 10,000 families with its solidified remains service. … s more families choose cremation for a loved one or pet, they seek meaningful ways to navigate grief, Parting Stone has emerged as a trailblazer in reshaping the narrative around death and memorialization. By offering a new form of remains that resembles a collection of 40–80 smooth stones, the company is helping people find comfort and connection in the grieving process. Solidified remains are a complete alternative to conventional “ashes.” … The National Funeral Directors Association predicts that by 2030, nearly 80% of Americans will choose cremation over traditional burial. Editor’s note: Click on the title’s link to see a photo.
Central Coast VNA & Hospice expands registered nursing services in Monterey
03/06/25 at 03:00 AMCentral Coast VNA & Hospice expands registered nursing services in Monterey Buzz; 3/5/25 Central Coast VNA & Hospice is significantly expanding its registered nursing care services in Monterey, providing residents with increased access to high-quality, personalized healthcare delivered directly in their homes. … Key expanded services include advanced care planning, which helps patients and families make informed medical decisions, and a palliative care program focused on relieving symptoms and reducing stress for patients with serious illnesses. The organization also offers specialty programs targeting specific health conditions such as cardiac care, diabetic care, and orthopedic support.
Bride rushes wedding so dying dad can walk her down aisle
03/05/25 at 03:00 AMBride rushes wedding so dying dad can walk her down aisle Doniphan Herald, Doniphan, NE; by TImogen Howse; 3/4/25 A bride planned her wedding in less than 24 hours - so her dying dad could walk her down the aisle. Maurice Haynes, 69, is currently being cared for at St. Giles Hospice in Whittington, Staffs. [UK], ... His daughter Hannah Haynes, 29, was desperate for him to be present at her upcoming wedding - and knew Maurice had always wanted to walk her down the aisle. So she made sure her dad's dream came true. With the help of the hospice staff, Hannah and her partner, Josh, also 29, organized their special day in less than 24 hours. Carers transformed the hospice's chapel into a beautiful venue - complete with bunting and candles - and Hannah managed to secure a wedding dress on the morning of the ceremony. Just hours later, on February 18, Maurice, from Cannock, Staffs. [UK], walked Hannah down the aisle ... Hannah said: "What St Giles have done for my dad is unbelievable.
My mother and brother have terminal cancer. I'm worried I won't feel anything when they die.
03/05/25 at 02:00 AMMy mother and brother have terminal cancer. I'm worried I won't feel anything when they die. Business Insider; essay by Kimanzi Constable; 3/1/25 ... My brother was diagnosed with Cutaneous T-cell lymphoma (CTCL) three years ago, and my mother found out she had stage four lung cancer a year ago. I got a call earlier this year that the cancer was spreading, and I flew to spend time with them. I knew it would be hard seeing them battling late-stage cancer, but what I walked into was my brother in the Advanced Cancer Care Center, unable to move, and my mother wanting to hold an "end of life" planning meeting. It was worse than I anticipated. It was hard to see him not moving and the nurses having to help him do everything. My mother looked like she weighed 50 pounds ... I'm worried I won't feel anything when they pass away. ... I think it might be just another day when they pass away. I've been thinking — what does that say about me? Am I a bad person for not falling on the ground and losing it for over half of my family dying? Or is this nothingness an OK feeling due to the complicated relationship we've had most of my life? ... Editor's note: Leaders, welcome to the daily world of your clinicians, especially your social workers, chaplains, and grief counselors. Read this with openness to the normalcy of this author's conflicted relationships, emotions, thoughts, and empowered actions toward "not wanting to regret how I handled this opportunity to say goodbye more healthily."
Breaking bad news: Guidance on disclosing a dementia diagnosis
03/04/25 at 03:00 AMBreaking bad news: Guidance on disclosing a dementia diagnosis Medscape; by Megan Brooks; 3/3/25 As biomarker testing for Alzheimer’s disease (AD) evolves, timely and compassionate disclosure of a diagnosis is more complex than ever. Yet, clinicians may struggle with how — or in some cases whether — to disclose that a patient has mild cognitive impairment (MCI) or dementia. A recent perspective offers a practical roadmap to help clinicians navigate these challenging conversations. The authors from the Perelman School of Medicine, University of Pennsylvania, Philadelphia, noted that disclosure of a dementia diagnosis “is particularly nuanced and requires a conscientious approach. Clinicians must assess patients’ understanding and appreciation of symptoms, goals for the evaluation, and desire for information.”
Local care specialists launch first-ever ‘memory cafe’ in the Upstate
03/04/25 at 03:00 AMLocal care specialists launch first-ever ‘memory cafe’ in the Upstate WSPA Greenville, SC; by Simone Jameson; 3/3/25 Some Upstate care providers are bringing a new concept to the region they said will benefit families of adults with dementia. The Blake at Hollingsworth Park Assisted Living and Think Different Dementia are two partners behind a first of its kind ‘memory cafe’ in Greenville. ‘The Upstate Memory Cafe’ provides a community setting where people living with dementia and their caregivers can bond. ... Organizers told 7NEWS the ‘memory cafe’ offers a space where attendees play cards, make flowers and do other activities together. They said ten to twelve home health care and hospice representatives are present for each meeting and educate families on best dementia care practices, while offering them support and respite services.
Charges dismissed against chef accused of trying to kill his Monterey county mother
03/04/25 at 03:00 AMCharges dismissed against chef accused of trying to kill his Monterey county mother KSBW Action News-8, Monterey, CA; by Felix Cortez; 2/28/25 A popular San Francisco area chef who was arrested along with his sister and charged with trying to kill their mother more than two years ago has had attempted murder charges dismissed against him. “In over 30 years of practice, this was one of the saddest cases I have ever seen and one of the most incompetent investigations by the Monterey County Sheriff’s Department that I have ever seen,” said Juliet Peck, the attorney for James Stolich. ... The mother was terminally ill and lived on a ranch off Highway 68 outside Salinas. “James’ mother’s only wish was to die at home without pain, surrounded by her daughter, son, and pets,” Peck said. But that never happened; Tinker died about a week later in a hospice facility, never to see her children again, because an emergency protective order obtained by the sheriff’s office prevented the children from visiting their dying mother. ... According to court documents, the daughter, Whitney, was the “agent designated to make all health care decisions for her mother,” which included administering medication to help alleviate her mother’s pain. ...The original criminal complaint alleging attempted murder charges said Whitney or a co-conspirator “crushed up pills with a mallet.” A close friend of Tinker was willing to testify that Whitney had no intent to kill her mother but was simply following her mother’s “directive to provide effective and sufficient palliative care even if it hastened her death.”Editor's note: This case raises numerous issues, including but not limited to community education (including law enforcement), Advance Directives, patient and caregiver education and support, MAiD (Medical Aid in Dying) or the End Of Life Option Act (EOLOA) in California, ethics, and the dying process (note that "the mother died about a week later in a hospice facility).
How much does end-of-life care generally cost?
03/04/25 at 03:00 AMHow much does end-of-life care generally cost? 50 Plus Finance; by David Leto; 3/3/25 [For the public] ... Knowing how much end-of-life care generally costs can help you manage and prepare your finances appropriately to ease the burden on you and loved ones when the time comes. ... The cost of end-of-life care can vary widely depending on the services required. On average, however, Americans spend between $10,000 and $70,000 on such care, with the majority of expenses often occurring in the last year or month of life. These costs can stem from hospital stays, at-home care, or nursing facility care. Hospice, which focuses on comfort and pain management, typically costs less than intensive medical treatments but still averages several thousand dollars each month, or around $150 a day with insurance. Understanding these figures helps you set realistic financial expectations and prepare for them. ...
Aging With Adventure: The challenge of caring
03/03/25 at 03:00 AMAging With Adventure: The challenge of caring Daily Hampshire Gazette, Northampton, MA; by Eric Weld; 2/28/25 I made a mistake. I took a hiatus from writing in this space about aging with adventure because I thought I was taking a hiatus from adventure. Boy, was I wrong. I errantly thought that spending more than a year caring for my elderly mother in her final time on earth was taking me away from adventure. I am honored to have enabled my mother’s final days spent at home — not her home, but my sister’s private home — instead of in a public or private nursing facility. ... I assumed, in taking on the role of her co-caretaker, I would temporarily preempt my semi-retirement modus operandi of striking out on great adventures. To the contrary, what I learned from spending nearly two years co-caring for my aging mother is that end-of-life care is, indeed, every bit an adventure on many levels. And of course, it’s certainly about aging. [Click on the title's link to continue reading this inspirational caregiver story.]
'Dear God, I need help on this one': How a prayer from Hildegard House's founder was answered
03/03/25 at 02:15 AM'Dear God, I need help on this one': How a prayer from Hildegard House's founder was answered ABC News WHAS-11, Louisville, KY; by Doug Proffitt; 2/27/25 Up from the dirt of an 1800's camelback style house on Story Avenue, in Louisville’s Butchertown neighborhood, Karen Cassidy has a plan. "We’re standing on the original dirt floor of the house, that’s the way they built things," she said. She's the former nurse who founded the Hildegard House 11 years ago. Hildegard is a place for the terminally ill to die in peace. With three private bedrooms and around the clock care, it’s a peaceful haven for people who have no home, or loved ones to care for them, so that they may die with dignity. ... It is funded successfully and solely by both private donations and foundations. Now, in the new space, the plan is to build a refuge called the "Center for Care Giver Education" at the Story Avenue location. “This is for caregivers that are at home trying to maintain their loved ones at home," Cassidy said. ... At the new center they will teach families the basics. ... The owners of the historic Story Avenue house helped by cutting her a deal. She says they told her they would sell it to her $100,000 less than what they put it on the market for. Donations from foundations helped her buy the house with cash. But then, she got estimates for the renovation and restoration totaling $450,000. “I said 'dear God, I need help on this one,'” Cassidy said. Then God, from that prayer, appeared in a most modern way. ... “Two weeks later I got an email from an attorney who said, ‘Can you meet me for lunch? Somebody has left their estate to Hildegard House,'" she told WHAS11 News. "It was $450,000. That did it!” The out-of-the-heavens donation means they are funding the renovation, top to bottom with cash. Nothing will be owed. Cassidy later learned why that money came her way. “We had cared for someone’s mother and they were so grateful,” she said. Editor's note: I am honored to serve on the Board of Directors of the Hildegard House. I continue to be amazed at the profound care and superb systems envisioned, implemented and moved forward by Karen Cassidy, her staff, 80+ volunteers, the Board, and community support.
WVU nursing faculty aim to enhance rural home care for chronically ill through NIH award
03/03/25 at 02:00 AMWVU nursing faculty aim to enhance rural home care for chronically ill through NIH award WVU Today - West Virginia University, Morgantown, WC; Press Release; 2/26/25 Three West Virginia University nursing faculty know firsthand the difficulties faced by family caregivers and their chronically ill loved ones. With a $2.7 million award from the National Institutes of Health’s National Institute of Nursing Research that is one of the largest ever for the WVU School of Nursing, the faculty researchers aim to support these families while increasing access to care in the rural reaches of the Mountain State by testing an integrated, nurse-led intervention for family home care management of end-stage heart failure and palliative care. ... Through their lived experiences, as well as their previous studies using nursing science to develop and test nurse-led interventions, the three said they hope to improve family caregivers’ and their loved ones’ overall health and well-being, including reducing depression and anxiety, and monitoring and managing end-of-life symptoms.
“You sure feel like you’re alone, kind of flailing away out there”: Family caregiver perspectives of caring for an individual with glioblastoma multiforme
03/01/25 at 03:10 AM“You sure feel like you’re alone, kind of flailing away out there”: Family caregiver perspectives of caring for an individual with glioblastoma multiformeCambridge University Press; by Christy Muasher-Kerwin, Abby Baumbach, Yujun Liu, M. Courtney Hughes; 2/25Glioblastoma multiforme (GBM) is the most common and aggressive form of brain cancer... Nineteen current and former family caregivers for individuals with GBM participated in semi-structured interviews from October 2023 through January 2024... Three themes emerged from the interview analysis: (1) overwhelming caregiver burden, (2) difficulties coping with the caregiver role, and (3) gaps in caregiver support... Family caregivers for individuals with GBM desire more straightforward and proactive information and education about their care recipients from their medical providers. There is an opportunity for more utilization of hospice, palliative, and rehabilitation services to provide necessary training to GBM patients and their caregivers.
Informal caregivers connecting on the Web: Content analysis of posts on discussion forums
03/01/25 at 03:05 AMInformal caregivers connecting on the Web: Content analysis of posts on discussion forumsJMIR Formative Research; by Michelle L Foster, Chinenye Egwuonwu, Erin Vernon, Mohammad Alarifi, M Courtney HughesAbout 53 million adults in the United States offer informal care to family and friends with disease or disability. Such care has an estimated economic value of US $600 million. Most informal caregivers are not paid nor trained in caregiving, with many experiencing higher-than-average levels of stress and depression and lower levels of physical health. Some informal caregivers participate in web-based forums related to their caregiving role. This study aimed to explore how informal caregivers use easy-to-access caregiving web-based forums, including the types of information they share and seek from others... Domains identified included handling interpersonal challenges, navigating complicated systems, gathering tactical coping strategies, managing emotions, and connecting with others in similar situations... Informal caregivers play an essential role in society. Many experience multifaceted challenges related to their caregiving role, and some turn to the internet for community. Accessing web-based discussion forums is a low-barrier method for informal caregivers to connect with others who may be experiencing similar emotions and challenges. Gaining a greater understanding of the ways informal caregivers seek advice and offer support to one another provides insight into the challenges they face.
Our Hospice to add new personal care services
02/27/25 at 03:00 AMOur Hospice to add new personal care services 1010WCSI.com, Columbus, IN; 2/26/25 Our Hospice of South Central Indiana is announcing a new service to assist those in need and to help them remain in their homes as long as possible. The personal care service is meant to help provide care that can help clients remain independent. Personal care services can include daily living needs such as bathing and grooming, dressing and toileting, meal preparation, medication reminders, light housekeeping and laundry and transportation to appointments. ... The program will be in addition to existing hospice and palliative care programs provided by the non profit group. ... Our Hospice of South Central Indiana, based in Columbus, serves clients and their families in 22 counties. There are also offices in Greensburg and North Vernon.
North Texas doctor helps parents facing infant loss deal with the unimaginable
02/27/25 at 02:00 AMNorth Texas doctor helps parents facing infant loss deal with the unimaginableCBS News - Texas; by Andrea Lucia, Lexi Salazar, Katie Standing; 2/25/25[Background story for parents Yvette and Thoms Ngo upon dealing with the news that their in-utero baby girl Zoe was diagnosed with Trisomy 13, would likely miscarry, or die soon after birth. Dr. Terri Weinman, their neonatologist offered rich palliative care interventions and support.] "When we met Dr. Weinman and her team the first time, she would say things like, 'So, what are we going to do when Zoey is here,' which changed my mindset completely," Yvette Ngo said. ... For the first time, the Ngos began to consider what Zoey's life, short as it might be, could look like. "It made us more comfortable with the situation, I mean as comfortable as you can be," Thomas Ngo said. "She just gave us hope." Zoey was born on April 18, 2024. She met her parents, her siblings and her grandparents. She was baptized. "They made us little crafts and mementos for us to take home, like footprints, really ways to help cherish Zoey's life," Yvette Ngo said. "They took her heartbeat and recorded it for us. Little things that we wouldn't necessarily think of." Zoey even had a chance to go home. But after 36 hours of life, Zoey passed away in her father's arms. The perinatal palliative care Zoey received remains rare. But for families like the Ngos, it provides a small sense of control when it's needed most. "Being able to plan so much in advance and think about all the different scenarios and how we wanted it," Yvette Ngo said. " I think, looking back on our time with Zoey..." "We wouldn't have done anything differently," Thomas Ngo said. Editor's note: Pair this with "Improving knowledge, confidence, and skills in perinatal bereavement care through simulation in baccalaureate nursing students," posted 2/24/25.
‘Global problem’: Numerous factors, biases contribute to overtreatment at end of life
02/27/25 at 02:00 AM‘Global problem’: Numerous factors, biases contribute to overtreatment at end of life Healio; by Josh Friedman; 2/26/25 Nathan I. Cherny, MD, has worked all around the world. At every stop — from Australia to Israel, and Memorial Sloan Kettering Cancer Center in between — he has seen people with cancer receive overly aggressive treatment at the end of life. ... In a review published in ESMO Open, Cherny and a cohort of multinational colleagues highlighted numerous reasons why overtreatment occurs among patients approaching the end of life, ... They listed more than 20 contributing factors, including desire for control of the cancer, denial and anger, family pressure and hope preservation. The two factors that contribute most to overtreatment are optimism bias and the “counterphobic determination to treat,” which involves clinicians having a difficult time introducing the suggestion of palliative care revert to offering further treatments, Cherny said. ... Responsibility for decisions does not need to fall solely on oncologists, Cherny added. Palliative care physicians, social workers, chaplains and others can be part of a team to assist patients with their choices. ... The number of patients who are overtreated differs at each institution. “Each institution has its own culture of care,” Cherny said. Editor's note: This article puts forth significant insights for all palliative and hospice clinicians, interdisciplinary teams, and palliative/hospice executive leaders. Apply Cherny's to your referral sources: "Each institution has its own culture of care." Apply these findings to your own palliative and hospice services.
How boomers are personalizing their last chapter
02/26/25 at 03:00 AMHow boomers are personalizing their last chapter Broadview; by Larry Krotz; 2/19/25 From death doulas to digital legacies, this generation is flipping the script on end-of-life traditions. ... I confess that I don’t generally think much about dying, though many in my generation do. Baby boomers, that great bulge in the population whose concerns for so long have dominated the culture, have moved from preoccupations with creative retirement or the adequacies of the health-care system to a fascination with death. Witness the immense popularity last year of the Royal Ontario Museum’s multisensory exhibit Death: Life’s Greatest Mystery or the growth of death cafés ... For my contemporaries, death has become the next item on the to-do list. What it will look like. How to prepare for it. How to make it your own. ...
Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study
02/26/25 at 03:00 AMInterdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study BMC Palliative Care - Part of Springer Nature, Open Acces; by Annica Lagerin, Christina Melin-Johansson, Bodil Holmberg, Tove Godskesen, Elin Hjorth, Lena Junehag, Carina Lundh Hagelin, Anneli Ozanne, Johan Sundelöf & Camilla Udo; 2/19/25... This study aimed to gain an in-depth understanding of healthcare professionals’ (HCPs) experiences of existential conversations with patients with PC needs and their next-of-kin by generating a theoretical model. ... To emphasize the importance of ethical competence for quality patient care, particularly in PC, a combination of care ethics, clinical proficiency, relational skills and effective communication is essential. ... The potential obstacles we identified that require attention include the need for managers ... to support HCPs by allowing time for reflection, developing new routines, and providing education focused on existential conversations in PC. However, the main contribution of this study is the description of the interdisciplinary strategies HCPs used to establish meaningful, existential conversations by maintaining presence, as this paved the way for trusting conversations with patients and next-of-kin. Editor's note: Pair this with today's article "Why being trustworthy is a leadership hack that drives success."
Daughter indicted for killing mother with morphine in Evans
02/26/25 at 03:00 AMDaughter indicted for killing mother with morphine in Evans The Augusta Press, Augusta, GA; by Greg Rickabaugh; 2/25/25The daughter of a woman who died in an Evans assisted living home from a fatal dose of morphine has been indicted for malice murder. Rachel Elaine Waters, 41, is expected to surrender this week on murder charges in the death of 74-year-old Marsha Sprayberry Foster, according to Columbia County authorities.An indictment says that Waters administered a lethal dose of morphine on July 12, 2023, while her mother was at the Marshall Pines assisted living on North Belair Road. The cause of death was determined in an autopsy, showing that excessive use of the unprescribed morphine was the reason for her death. Foster had Alzheimer’s disease, and the morphine was reportedly left behind by hospice workers and used by the daughter without authorization.
Candice Bergen’s caregiving journey and how estate planning can help
02/26/25 at 03:00 AMCandice Bergen’s caregiving journey and how estate planning can help FindLaw; by Catherine Hodder, Esq.; 2/20/25 Candice Bergen is a movie and television star and comedienne best known for her role as Murphy Brown. ... Bergen’s husband of over 20 years, Marshall Rose, recently passed after battling Parkinson’s disease. Her first husband, director Louis Malle, died from lymphoma. In Bergen’s memoir “A Fine Romance,” she describes the struggle of caregiving for someone who is critically ill. She writes, “It really costs you to take care of someone who is critically ill day after day.” Many caregivers can relate. According to the NIH, 50 million people care for a disabled, older adult, or chronically ill family member or friend. ... However, there are estate planning tools available that can help caregivers manage the health and support of their critically ill loved ones. ...
Patients without family or health care proxies face overtreatment or limbo in hospitals
02/25/25 at 03:00 AMPatients without family or health care proxies face overtreatment or limbo in hospitals WHYY - PBS; by Maiken Scott; 2/24/25 A program matches unrepresented patients with volunteers who can make care decisions for them during health care crises. ... [Intensive care physician David] Oxman says unrepresented patients are a small, but growing group. Some have outlived their family members, or are estranged from them. Maybe they’ve moved a lot, sometimes substance use or homelessness plays a role. The situation is especially complicated with patients who have dementia, or who can’t communicate their wishes for other reasons. ... Most states have provisions where medical guardians and medical decision makers can be appointed by a court, but that takes a long time. In the meantime, a search for relatives begins. David Sontag, director of ethics for Beth Israel Lahey Health in Massachusetts, ... created a matching program where health care professionals volunteer to represent patients, not within their own hospital systems because that could cross ethical boundaries, but at other hospitals. “This is an opportunity for us to help some of the most vulnerable members of our communities, those who have nobody to speak for them when they can no longer speak for themselves. And that allows us to respect their autonomy throughout their lives,” he said.
What is death positivity?
02/25/25 at 03:00 AMWhat is death positivity? Phaneuf Funeral Homes & Crematorium, New Hampshire & Vermont; by Phaneuf; 2/19/25 Death positivity is a growing movement that challenges the long-held taboos surrounding death. Rather than shying away from the subject, death positivity encourages individuals and communities to discuss mortality openly. It’s about accepting death as a natural part of life, reducing the fear and stigma often associated with it, and using that acceptance as a foundation for better end-of-life planning and living more fully. Historically, many cultures—including those in the New England region—often treated death as a private, somber affair. Today, however, a new narrative is emerging: one that celebrates the life lived, honors the memories left behind, and helps families make informed, compassionate decisions about the future.
Pennsylvania lawmaker introduces ‘No Patient Left Behind Act’
02/25/25 at 03:00 AMPennsylvania lawmaker introduces ‘No Patient Left Behind Act’ WHTM - PA Homepage; by Brady Doran; 2/19/25 A Pennsylvania lawmaker introduced a bill that would ensure hospitals have visitation policies that balance patient needs with public health protocol. According to Sen. Doug Mastriano (R-33), elderly patients left alone in hospitals experience faster physical and cognitive decline. The No Patient Left Behind Act, introduced by Mastriano, would ensure Pennsylvanians with medical treatment or end-of-life care have support by their sides. “Hospitals should be places of healing. However, for far too many, they have become places of loneliness, despair, and unnecessary suffering,” Mastriano said.
[UK - St. Christopher's Hospice] Woman with rare brain disease dances with husband for first time in years
02/24/25 at 03:00 AM[UK - St. Christopher's Hospice] Woman with rare brain disease dances with husband for first time in yearsReposted in Daily Journal from Talker News, Tupelo, MS; by Isobel Williams; 2/20/25 This is the touching moment an elderly woman living with a rare brain disease slow danced with her husband - for the first time in years. Constance Bartholomew, 69, has progressive supranuclear palsy (PSP), a neurological condition which has left her struggling to walk. The disorder - which is estimated to affect around 4,000 people in the UK - can cause problems with balance, movement, vision, speech and swallowing. Constance began physiotherapy at St. Christopher's Hospice in Sydenham, south-east London in September last year - at which point husband Dennis, 72, joked he would pay a million pounds to dance with her again. Upon hearing the remark, rehab assistant Ralitsa Angelova ... made it her mission to make it happen. ... “She is unable to walk, to articulate, her eyesight has failed. It’s a terrible condition. I wouldn’t wish it on anyone. But she is fully aware. There is absolutely nothing wrong with her memory or comprehension. ..." The video has been released as hospices in London come together to change perceptions of hospice care and highlight the vital importance of gifts in wills to their holistic palliative care services for adults and children in their communities. The hospices are taking part in the This is Hospice Care campaign, a national collaboration of 143 hospices across England, Scotland and Wales, brought together by Hospice UK.Editor's note: St. Christopher's Hospice--founded by Dame Cicely Saunders--is the home for modern day hospice care. Click here for a YouTube video of Constance and Dennis. Click here for the article we posted on 2/21 about the UK's "This Is Hospice Care" initiative.
Improving knowledge, confidence, and skills in perinatal bereavement care through simulation in baccalaureate nursing students
02/24/25 at 03:00 AMImproving knowledge, confidence, and skills in perinatal bereavement care through simulation in baccalaureate nursing studentsState Nurses Associations - Kansas State Nurses Association; by Shelby True, MSN, RN; Libby Rosen, PhD, RN, IBCLC; Ashley Seematter MSN, RN; Jeri Harvey & Karly Lauer, MSN, RN; 2/20/25Many baccalaureate nursing programs throughout the United States thread concepts of bereavement and end-of-life care throughout their curriculum. However, a standardized education program for nursing students that increases the knowledge, confidence level, and application of skills a nurse must possess when providing perinatal bereavement care is often absent from the curriculum (Sorce & Chamberlain, 2019). Perinatal loss can have a profound impact on parents and their loved ones, leading to emotional, psychological, physical, and spiritual trauma that deeply affects the lives of those involved. The nursing care each parent receives at the time of the loss may be remembered for years to come and is crucial to determining the nature of the grieving process (Sorce & Chamberlain, 2019). ... To improve the knowledge, confidence, and skill level of nurses providing perinatal bereavement care, a role-play perinatal bereavement simulation was developed and implemented in two Midwestern universities’ baccalaureate nursing programs in the maternal/newborn courses. Editor's note: Having served our hospice's Pediatrics Team for four years, the grief of parents, grandparents, siblings affected me deeply. I remember vividly a young mom unable to physically leave her baby's body with the hospital's nurse. Gently, we held her baby together. Over the course of about 15 minutes, the mother gradually shifted the weight of holding her baby over to me, before the hardest task of her life--leaving the hospital without her child. (It was Christmas week. I bawled when I got home.) Visiting them at the funeral home and after in their home, I experienced horrible, disenfranchised comments and attitudes from others (especially a local preacher). Leaders: tune into your pediatric hospice and palliative team members. What specialized support and education do they need? And, we never know what personal stories of perinatal bereavement those around us continue to carry.