Literature Review

Early hospice care has transformative impact McKnights Senior Living; guest column by Aaron Housh, CEO of Good Samaritan Hospice in Roanoke and Christiansburg, VA; 11/25/24 Hospice care is more than a medical service — it’s a lifeline of compassion, connection and support during one of life’s most vulnerable moments. For more than 20 years, I’ve witnessed the profound impact hospice can have, not just on residents and patients but on the families who love and care for them. But this impact is magnified when hospice care is introduced early. ... One of the greatest gifts hospice provides is time — time to prepare, time to connect and time to say goodbye. A friend once shared how hospice changed her family’s experience with her mother’s death. The nurse spent time explaining what to expect, answering questions and normalizing the changes they were seeing. That preparation eliminated panic, allowing the family to focus on being present. Her mother passed with dignity, surrounded by love and understanding. This story illustrates what I’ve seen time and again: families who enter hospice early have the opportunity to build trust with their care team, process emotions and fully use the services available to them. Those families are better equipped to navigate the physical and emotional challenges of end-of-life care, creating space for meaningful moments and lasting memories.

Hospice of Baton Rouge: New grief center opens offering vital support and healing Unfiltered With Kiran, Baton Rouge, LA; by Megan Kelly; 11/25/24 As the holiday season approaches, a time often filled with joy and togetherness, it can also be a profoundly challenging period for those experiencing grief. The Hospice of Baton Rouge has recognized this need and has transformed a property into a haven of healing: The Retreat at Quarters Lake. This newly established grief center aims to address the significant gap in resources for grieving individuals, a void that became especially apparent during the COVID-19 pandemic. “The Retreat at Quarters Lake provides hope, healing, and connectivity for the grieving through counseling, support groups, alternative grief therapies, and community education,” reads a statement on their website. The facility offers both traditional grief services, such as individual counseling and support groups, and unique, holistic approaches that include art therapy, music therapy, and pet therapy. The goal is to provide a comprehensive support system that caters to individuals of all ages and backgrounds. “We are focusing on some alternative therapies like yoga, meditation, gardening, and even fishing,” said Catherine Schendel, CEO of The Hospice of Baton Rouge. “We want to utilize the beautiful landscaping here to offer non-traditional grief support as well.” 

Your children or spouse might not be the best power of attorney — what you can do about it Medical Economics; by Howard Enders; 11/25/24 It’s easy to assume that your spouse or children will be the most suitable candidates for this role, but that isn’t always true. Family members may be emotionally compromised or lack the expertise needed to handle complex medical or financial decisions. So, how can you ensure that your health, finances and legacy are protected? Let’s explore the key elements of estate planning, including setting up the right power of attorney, maximizing savings for future medical expenses and preventing unnecessary financial burdens on your loved ones. ... [Click on the title's link to continue reading.]

Elizabeth Nemacheck: The personal consequences of EPH's discontinuation of in-home hospice Estes Park Trail-Gazette, Estes Park, CO; by Elizabeth Nemacheck; updated 11/22/24 I am writing regarding Estes Park Health's decision to eliminate in-home hospice and home health care in Estes Park. Hospice helps the family by dismantling hospice, Estes Park Health has off-loaded the end-of-life burden solely on the family, during one of the most difficult and totally predictable life events. I hope to illustrate three key issues we identified by sharing my story. My father died at home in September of 2024. After his terminal cancer diagnosis midsummer, my family discussed my dad's wishes in consultation with his oncologist and primary care doctor. Like so many of us, my dad decided that he would very much like to die at home, so that became our goal. We sought alternatives to hospice support beyond Estes Park Health's discontinued home hospice care; once we confirmed that the only hospice available in Estes was in-hospital hospice, we built the infrastructure ourselves to be able to keep my dad at home. Thankfully we had the financial resources to do so, and a lot of gumption. While we were able to keep him at home, we identified three key issues:

Thanksgiving reflections: Gratitude and grieving in hospice care Faith  Hope Hospice & Palliative Care, Pasadena, CA; 11/20/24 Thanksgiving is traditionally a time for joy and gratitude, but it can bring mixed emotions for families with a loved one in hospice care. In the diverse communities of Los Angeles, Beverly Hills, and Hollywood, Faith and Hope Hospice provides compassionate guidance on how to balance grief with gratitude, helping families find moments of peace and connection during this reflective time. ... Gratitude can be a healing force, offering comfort to those grappling with loss. In hospice care, where families confront profound challenges, finding space for gratitude can significantly impact emotional and psychological well-being, fostering resilience and a sense of peace.

'My charity wedding dress brought me closer to Mum' BBC, Manchester, United Kingdom; 11/16/24 Like many brides, when Jo Johnson started planning her wedding, she wanted her mother to be an integral part of the day. But as June Kiely had died nine years earlier, she faced a puzzle as to how to bring her into the ceremony, until she realised there was a way of both feeling closer to her mum and honouring those who cared for her in her final days. June Kiely died at the St Ann's Hospice in Little Hulton, Salford, in 2015, and in the run up to getting married, Jo found herself at the charity's bridal and vintage shop in Stockport. The 38-year-old said it was a "magic moment" as she knew instantly it was the place where she would find the perfect dress. Jo said getting her dress from the shop was "a really special way to include my mum but also to give back to the hospice for everything they'd done." She said the hospice had given her mum "incredible care" and as soon as she walked into the shop, she knew she was "doing the right thing."

Owatonna MN Hospice Care Program by Freedom Home Care updated and relaunched Freedom Home Care, Owatonna, MN; 11/15/24 Freedom Home Care announced the relaunch of its enhanced Hospice Care Supplement Program, designed to provide support for families and their loved ones receiving hospice care. The program addresses critical gaps by offering additional assistance with daily household tasks, personal care, family respite, overnight caregiving and 24 hour care.  ... The Hospice Care Supplement program is designed to complement the essential medical and emotional care provided by hospice teams, creating a holistic approach that prioritizes both the patient’s and the family’s well-being.

Cancer caregiver anxiety over time: The influence of palliative careJournal of Palliative Care; Laura A Siminoff, PhD; Maureen Wilson-Genderson, PhD; Marcin Chwistek, MD, FAAHPM; Maria D Thomson; 10/24Our analysis detected 3 distinct cancer caregiver groups reporting low, elevated, and very high levels of anxiety. Caregivers with elevated or high anxiety also demonstrated increasing anxiety overtime; however increases were attenuated with patient receipt of palliative care. For cancer caregivers with elevated and high levels of anxiety, palliative care buffers further deterioration of their mental health. Caregivers with the lowest level of anxiety were more likely to be Black, report fewer symptoms of depression or caregiver burden and higher self-rated physical health. Caregivers who were younger reported higher anxiety.

Meals on Wheels substantially reduces risk of senior hospitalizations: report McKnights Home Care; by Adam Healy; 11/8/24 Home-delivered nutritious foods programs can help keep seniors out of the hospital and reduce their feelings of social isolation, according to a new report by Meals on Wheels and home care technology firm WellSky. The report examined how Meals on Wheels programs helped seniors recover after being discharged from a hospital stay. Each meal delivery also involved a social determinants of health assessment, which allowed Meals on Wheels staff to engage with participants and gauge their wellness and safety. After 30 days of the program, the researchers observed an 85% decrease in hospitalizations among participants. Approximately 98% of meal recipients said that Meals on Wheels helped their recovery, and 61% said it lowered their feelings of social isolation.Editor's note: While we know hospice patients experience a significant decline in appetite, the person's changing needs for nutrition continue. Pair this data with several recent articles we've posted regarding seniors' struggles compounded by living alone, isolation, and depression. We invite you to explore this educational/support video for caregivers/families of persons experiencing serious illness, palliative, or hospice care: Small Words - Big Meanings: EAT. Disclosure: Composing Life Out of Loss is a sponsor of our newsletter.

National Partnership for Healthcare and Hospice Innovation, and American Cancer Society unveil Advanced Cancer Guide to Support Patients & Families Facing Terminal Cancer Cision - PR Newswire, Washington, DC; 11/13/24 Today, the National Partnership for Healthcare and Hospice Innovation (NPHI), the national voice for nonprofit serious illness care providers, proudly introduces the Advanced Cancer Care Patient & Caregiver Guide, developed in collaboration with the American Cancer Society. This essential resource is designed to assist individuals living with cancer and their caregivers by providing critical information that enables them to receive care in the comfort of their own homes. ... This comprehensive guide aims to minimize hospital and emergency room visits, easing stress for patients, families, and medical facilities alike. Drawing on the expertise of over 100 serious illness care providers and the American Cancer Society, it delivers practical, reliable support for those navigating cancer care at home. Editor's note: The National Partnership for Healthcare and Hospice Innovation (NPHI) is a sponsor for our newsletter.

A doctor’s life-changing realization about empathy after becoming a patient [podcast] MedPage Today's KevinMD.com; podcast by KevinMD; 11/10/24 Join us for a conversation with Fazlur Rahman, a hematology-oncology physician and author of Our Connected Lives. In this episode, we explore how Fazlur’s journey from physician to patient transformed his understanding of empathy. He reflects on the importance of personal connection in medicine, the impact of a lack of empathy on both doctors and patients, and the need for medical education to include the humanities to foster compassionate care. This episode dives deep into the role empathy plays in improving patient outcomes and doctor-patient relationships. Fazlur Rahman is a hematology-oncology physician and author of Our Connected Lives. He discusses the KevinMD article, “From doctor to patient: a life-changing lesson in empathy.”

It takes more than love to care for a loved one Tri-Cities Area Journal of Business; guest column by Jason Erskine, AARP; 11/5/24 Chances are, if you aren’t a family caregiver, you know someone who is. Every day, more than 820,000 Washingtonians help their parents, spouses, siblings, grandparents, neighbors and other loved ones to live independently at home – where they want to be. November is National Family Caregivers Month, a time to highlight the important work these folks do. But simply thanking them isn’t enough. ... AARP and United Way have teamed up to connect caregivers with trained, compassionate people in your community who can help you find AARP caregiving resources and more. It’s called 211, it’s a free service, and you can talk to specialists who can help you find local resources for caring for your loved one … and for yourself too. ... AARP Washington is here to help with information and resources to support and connect caregivers. Go to: aarp.org/caregiverswa.

Physician explores family's end-of-life journey in new podcast: "There were so many places that we ran into unexpected obstacles" MedPage Today; by Rachael Robertson; 11/4/24 As host of the TED Health podcastopens in a new tab or window, Shoshana Ungerleider, MD, is no stranger to podcasting. But now, the internist turned the mic on herself to explore death and mortality through the lens of her own experience losing her father to pancreatic cancer. Her eight-episode show is called "Before We Go" and is available on all podcast platforms (Spotify, Apple) with new episodes each week through early December. ... Ungerleider: My father died from pancreatic cancer in the spring of 2023. In my experience as an internist and as someone who is an expert on end-of-life through my work with End Well, there were so many things that kind of shocked me along the way. Despite the fact that I had the knowledge, the expertise, and the resources to provide him with a good end-of-life experience, there were so many places that we ran into unexpected obstacles. I wanted to share my story, really, with the goal of helping other people who might be facing the same kind of journey, and how to find the balance between being a doctor and being a daughter.  ...