Literature Review

Early electronic advance directives reduce burdensome end-of-life care News Medical & Life Sciences | Wiley; 5/20/26 Advance directives document patient preferences for future care, including end-of-life. An analysis in the Journal of the American Geriatrics Society found that older patients with an advance directive that had been uploaded into the electronic health record at least six months before death were 25% less likely to experience potentially burdensome end-of-life care (19.9% versus 26.8%) and 31% less likely to have died in the hospital (23.2% versus 32.1%).

10 of the biggest regrets nurses hear from dying patients SavingAdvice.com; by Amanda Blankenship; 5/15/26 ... Hospice nurse Bronnie Ware famously documented several of the most common regrets she heard from patients nearing death, including working too much and failing to stay close to loved ones. These end-of-life regrets offer important lessons for anyone hoping to live with fewer disappointments and more peace.

Clinician grief is a hidden crisis in modern hospice care MedPage Today's KevinMD.com; by Linda Ellington, RN; 5/12/26 I stood knocking at the door of my hospice patient like I did every Monday for the past eight months. A musically talented man in his early 40s was always waiting for my weekly nursing visit, more so for the aspect of socialization. He was diagnosed with colon cancer two years prior and had a colostomy bag, leaving this once vibrant, social, even handsome man a shell of what he once was. He became introverted and allowed only one friend to check on him occasionally. He had no family and only one estranged child who lived in another country. There was no answer at the door ...

End-of-life care behind bars: A periodic literature search - May 2026Current Thinking; by Barry R. Ashpole; 5/6/26The current issue includes:

‘Moving the mindset’ of equitable hospice accessHospice News; by Holly Vossel; 5/7/26Hospices’ diversity and inclusion efforts have hit several barriers in recent years. Policy reform and more person-centered care integration represent two significant propellants toward improvement. Today’s providers often lack sufficient resources to improve health equity in substantial and sustainable ways, said Dr. Kimberly Curseen, board president for the American Academy of Hospice and Palliative Medicine (AAHPM). Workforce shortages, challenging economic conditions and inefficient reimbursement are among hospices’ greatest challenges, she stated. Hospices need structured community outreach processes that measure cost, outcomes and quality improvements across diverse patient populations, Curseen indicated. Having dedicated health equity resources would go a long way to better understanding the range of both unmet needs and under-reached service regions.

Closing the gender gap in medicine: 5 ways to support women physicians CAPC | Center to Advance Palliative Care; by  Laurel Kilpatrick, MD, FAAHPM and Sonia Malhotra, MD, MS, FAAP; 4/27/26 From allyship to advocating for systemic change, learn how you can you champion women physicians so they can lead and thrive. Having more women physicians in medicine isn’t just a matter of equity—it’s important for patient outcomes. ... The strategies outlined at the end of the blog apply to all female health care professionals, not just physicians. 

The financial and social costs of caregiving: 2026 U.S. News survey U.S. News & World Report; by Annika Urban; 5/4/26 For many of the more than 60 million American caregivers, small acts of love to help out a loved one escalate into a major commitment. This 2026 U.S. News survey examines the emotional and financial burden of caregiving and how home health agencies fit into their support network.

Wearable technology impacts hospice staff safety, satisfaction Hospice News; by Holly Vossel; 5/4/26 Wearable technologies have the potential to improve safety and communication among home-based hospice workers in the field. Hospice professionals navigate several unknown factors when providing care in the home, said Kenny Kelley, founder and CEO of Silent Beacon. Established in 2016, the safety company provides wearable devices featuring a panic button system for emergency response and workplace communication. Ensuring clinicians’ safety and well-being are important to strong staff retention, Kelley said. 

Hospice nurses are changing how we care for patients at the end-of-life South Florida Hospital News and Healthcare Report; by Karen Peterson; 5/1/26 Hospice nurses are often associated with compassion at the end of life. What is less understood is that they are also among the most clinically skilled nurses in healthcare. During National Nurses Week (May 6-12), it is important to recognize the many ways nurses shape patient care across the continuum. Hospice nursing is not a step away from acute care. It is an extension of it. ... A hospice nurse may be called to a patient’s home late at night for uncontrolled pain or severe shortness of breath .... In that moment, the nurse must assess, intervene and stabilize, while also supporting the family through fear and uncertainty. 

Local boy becomes honorary doctor with Hospice Family Care teamFox 54, Huntsville, AL; by Caleb Aguayo; 4/24/26 A young boy battling what his caretakers call a "likely incurable disease" got to live out a dream Friday when his hospice care team made him an honorary doctor for the day, complete with scrubs, a white coat bearing his name, a name tag and his very own stethoscope. Abobakr Almageleh, who has spent years surrounded by medical equipment, has long shown a fascination with the tools and routines of the health care professionals caring for him, from listening to his own heartbeat to tracking the rhythm of monitors nearby. His caregivers at Hospice Family Care took notice.

Chapters Health System launches new pediatric program PR Newswire, Temple Terrace, FL; Press Release; 4/23/26 Chapters Health System announced the launch of Chapters Kids, a system‑wide pediatric hospice and palliative care program. Chapters Kids will expand resources for pediatric patients and families throughout the Chapters Health System service area and unite existing pediatric programs from several affiliates. "The launch of Chapters Kids is another critical step forward as we work toward fulfilling our mission of taking care of patients, or taking care of those who do," said Andrew Molosky, President and CEO, Chapters Health System.

End-of-life guidelines [in the ICU] emphasize unified care American Association of Critical-Care Nurses, in "Clinical Voices April 2026"; 4/21/26 New guidelines for end of life (EOL) care in the ICU call for clearer communication with families, stronger support for decision making and coordinated teamwork across disciplines to align treatments with what patients can realistically achieve and reduce suffering. “Society of Critical Care Medicine Clinical Practice Guidelines on Adult End-of-Life Care in the ICU ,” in Critical Care Medicine, highlights the need for standardized processes, including identifying legal surrogates, using shared decision making tools and adopting protocolized withdrawal pathways. Additional priorities include early palliative care involvement, spiritual support and focused education to reduce conflict. Recommendations are summarized in three major areas:

3 Wishes Program humanizes end-of-life care University of Washington Department of Medicine; by Vishva Nalamalapu; 4/15/26 In hospitals, healthcare teams tend to zero in on patients’ conditions and treatments. When patients are nearing the end of their lives, however, it’s important for them to feel like their whole selves. Matthew Smith, a physician assistant at UW Medical Center – Montlake in Seattle, founded the hospital’s 3 Wishes Program to create experiences and keepsakes that recognize the patient’s personality. Wishes commonly fall into one of three categories: humanizing the room, connecting with loved ones and creating keepsakes for them. Costs for attaining these wishes tend to be minimal and covered by donations. Since it began in 2022, the program has fulfilled about 1,500 wishes for more than 600 patients.