Literature Review

The missing middle in healthcare—and why it matters | part one Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Bridget Sumser and Sonya Dolan; 6/20/26 What happens between a life-changing diagnosis and hospice care?  In Part One of this thought-provoking conversation, Chris Comeaux welcomes Mettle Health co-founder Sonya Dolan and Director of Counseling & Programs Bridget Sumser to explore what they call healthcare’s “missing middle.” ... Together, they unpack how Mettle Health was created to provide a different kind of support: one centered on accompaniment rather than treatment, resilience rather than answers, and human connection rather than healthcare transactions.

Father with terminal illness fights to attend MHSAA championship to see son play Northeaset Mississippi Daily Journal, Tupelo, MS; by Caleb McCluskey; 6/6/26 From the time Carter Barefoot, 17, could walk, he was playing baseball, especially with his father, Alan Barefoot, who played Division I baseball in college. But illness has limited his father’s ability to enjoy the game they have shared throughout their lives. ... “He never missed a game,” Carter said. After doctors diagnosed Alan, 55, with terminal cancer and admitted him to Sanctuary Hospice, he physically could not be there for most of Carter’s junior-year season. Sanctuary made it happen, arranging for Alan to attend the playoffs in Pearl, where he watched his son’s Mooreville team become Class 4A state champion. It meant the world to Carter to see his dad there. 

We couldn't afford to pay for my mom's dementia assisted living anymore. She moved into a tiny house next door to me. Business Insider; as told to Noah Sheidlower; 5/31/26 This as-told-to essay is based on a conversation with Lori Bufka, 64, who is caring for her mother with dementia in Arizona. Assisted living became too expensive for her mother, so Bufka moved her into a trailer next to their home, where her mother would have enough space and safety. This interview has been edited for length and clarity. Editor's Note: From this essay, "She went into hospice care, and we hired someone to come for a few hours a week. It was supposed to be $37 for two hours, but when I got the bill, they tacked on mileage, so it became $92. We figured it wasn't worth it, so now hospice volunteers visit every now and then, and hospice covers medically necessary appointments. ..."

Why physicians need to learn cannabis medicine now MedPageToday's KevinMD.com; by Janice Makela, MD; 5/31/26 I am a geriatrics and hospice and palliative medicine physician with over 20 years of experience. Over the years, I have seen how cannabis has helped my patients, and I am very comfortable with my patients using cannabis. But like many physicians, I was not formally trained in cannabis medicine. ... Since then, I’ve learned a lot about cannabis. And I also learned that ... most doctors have very little knowledge about cannabis or the endocannabinoid system. ... As new policies roll out, health care providers need to take time to educate themselves about cannabis. Otherwise, how can we help our patients?

Compassion fatigue and spiritual care competence amongst palliative care nurses: a moderated mediation model of care quality and job satisfaction Journal of Clinical Nursing / Early View; by Enise Sürücü, Funda Veren, Hülya Kulakçı Altıntaş, Büşra Baş, and Zeynep Acar Demir; 5/30/26 Impact:

What I've learned at the bedside: Jewish wisdom for the time before death ReformJudaism.org - Jewish Life In Your Life; by Ptarmigan Emery; 5/27/26 I have been a hospice nurse for 10 years. ... I am also a Jew, though not a particularly observant one. ... What has surprised me is how often those two parts of myself, the nurse and the Jew, have found each other in the same moment at the bedside. Jewish tradition has a great deal to say about the time before death. ... In traditional Jewish law, a person who is actively dying has a name: a goses. The rabbis gave this passage its own category, saying: this time is sacred and deserves our full attention. ...Editor's Note: Sacred Time. Without rushing or turning away, this thoughtful reflection explores how Jewish wisdom honors the moments before death as deserving presence, meaning, and our fullest attention.

Bridging faith and palliative care: Catholic clergy and community engagement in the United States American Journal of Hospice and Palliative Care; by Clotilde Dudley-Smith and Brian Stiltner; 5/27/26 ... Spiritual care delivered by community clergy when disconnected from contemporary palliative care principles may, in some cases, unintentionally contribute to delayed hospice referral and increased use of aggressive, nonbeneficial treatments near the end of life. Drawing on interdisciplinary literature in palliative care, chaplaincy, and sociology of religion, this paper examines structural, educational, and cultural barriers that limit collaboration between palliative care teams and Catholic clergy in the United States.

New! Pediatric e-Journal Issue #83National Alliance for Care at Home press release; 5/20/26The focus of the 83rd issue and the one that immediately preceded it is on topics that relate to trauma and trauma-informed care. This issue specifically addresses trauma and trauma-informed care as they involve providers and care teams.

Dying for a change: understanding compassionate release policies in the United States ehospice; by Shivani Kaushki, PhD, MSSW; 5/25/26 As the United States prison population continues to age, the question of how society supports incarcerated individuals at the end of life has become increasingly urgent. ... Conducting a systematic review utilizing rigorous PRISMA guidelines, this study analyzed decades of research examining U.S. compassionate release policies, programs intended to allow terminally ill or severely debilitated individuals to spend their final days in the community instead of a correctional facility.

Mass General Brigham claims 1,400 lives saved hoodline, Boston, MA; by Benjamin Cortez; 5/21/26 Mass General Brigham says a two year, systemwide push to standardize safety checks, expand hospice and roll out predictive analytics sharply cut inpatient deaths, tallying more than 1,400 lives saved in two years by the health system’s own math. Several front line physicians inside those hospitals are not buying it. They argue that shifts in hospice placement and clinical documentation, not overnight miracles in bedside care, probably explain much of the improvement. The result is a rare, very public tug of war between executives celebrating quality rankings and clinicians who say the numbers do not line up with what they see on the wards.

Early electronic advance directives reduce burdensome end-of-life care News Medical & Life Sciences | Wiley; 5/20/26 Advance directives document patient preferences for future care, including end-of-life. An analysis in the Journal of the American Geriatrics Society found that older patients with an advance directive that had been uploaded into the electronic health record at least six months before death were 25% less likely to experience potentially burdensome end-of-life care (19.9% versus 26.8%) and 31% less likely to have died in the hospital (23.2% versus 32.1%).

A husband’s story of end-of-life care at home MedPage Today's KevinMD.com; by Ron Louie, MD; 11/27/25... When my wife died at home, it wasn’t really a surprise. ... Over the previous few weeks, we had notified her primary care physician’s office of the need for a home hospice referral, but because of some snafu, the correct wording wasn’t used, and the paperwork stalled. ... Years before, we had already obtained a POLST (Portable Order for Life-Sustaining Treatment, our state’s “green form”), signed by a doctor, that made clear my physician wife’s choices in advanced directives: no CPR, tube feedings, or IV treatments. ... Since we didn’t have an active home hospice referral, I knew that firefighters could pronounce her death; my own license had lapsed in retirement. ... The firefighters left, but the police stayed quite awhile until they were cleared by the Medical Examiner’s office. ...Editor's Note: This caregiver story powerfully tells challenges experienced by a retired oncologist/spouse. Calling all leaders who are part of referral and admissions processes, pay attention to the problems caused by delays: firemen, police, and (not named) lack of bereavement care.

My daughter died when she was 2 1/2. I was stunned by how the medical system handled my grief. The Boston Globe Opinion; by Kristen Dillon; 5/11/26 ... My daughter had died only days before and the doctor wanted to find a way to improve my mood. To me, it sent the message that my grief and sadness were pathological, and when the antidepressant kicked in, I would feel better. Drawing from my clinical background, I knew my sadness and despair were not symptoms of a major depressive episode but rather a normal grief experience. ... Ultimately, the providers who I found most successful at grief-informed care have been the ones who ... make room for my grief. They say the thing I most want to hear. Her name.