Literature Review

'It’s comfort, dignity and time': Agrace receives CuddleCot donation from JackPack GazetteXtra, Janesville, WI; by Kylie Balk-Yaatenen; 1/4/26 For nearly a decade, a Janesville family has worked to ensure that parents facing the loss of a baby are given something they themselves never had: Time. Through The Jack Pack, a local nonprofit founded after the stillbirth of their son, Jack, in 2015, Jackie Harwick and her husband, Garrick, have donated 14 CuddleCots to hospitals and hospice providers across southern Wisconsin. Their most recent donation went to ... Agrace’s pediatric hospice program. A CuddleCot is a temperature-controlled bassinet insert that slows natural changes after death, allowing families to spend extended time with their baby; ... That time can allow parents to hold their child, invite loved ones to meet the baby, create memories and begin grieving in a more supported way.

Hospice of the Valley GUIDE program supports caregivers The Arizona Republic - AZBigMedia.com; by Lin Sue Flood; 12/10/25 James, a lifelong athlete with 82 marathons under his belt, is facing his toughest challenge now: a type of dementia called primary progressive aphasia. But he’s not alone. He has his wife of 34 years, Reesa, by his side, and the support of a Hospice of the Valley dementia educator, who helps the couple navigate challenges like communication as the disease progresses. ...

Pediatric respite homes provide a survival mechanism for struggling families [podcast]Medpage Today's KevinMD.com; by KevinMD; 1/1/26Certified coach and professor Kathleen Muldoon and co-founder of Ryan House and Children’s Respite Homes of America Jonathan Cottor discuss the article “The need for pediatric respite care.” Kathleen shares the personal story of raising her son Gideon who lives with over 42 medical diagnoses and explain why the family had to move across the country to find safety. They highlight the critical difference between taking a break and surviving the relentless cycle of 24/7 medical vigilance required for medically complex children. 

Patients with hematologic cancers value blood transfusions most in hospice services Healio; by Josh Friedman; 12/29/25 Key takeaways:

Laramie Car Club hosts private show for 11-year-old boy fighting cancer Cowboy State Daily, Laramie, WY; by Dale Killingbeck; 12/22/25 Like many 11-year-olds, Wyatt loves cars, especially tricked-out classic rides that are blinged-out to the max. But as a cancer patient in hospice care, he can’t get out to the car shows he loves. So, the show came to him Sunday. Wyatt got to watch from hospice as a parade of classic cars and trucks slowly cruised by. Jimmy Mora, a member of the Rollerz Only Car Club and owner of a 1936 Plymouth P2 Deluxe Coupe, helped organize the private parade for Wyatt.

Heart failure deaths shift to home, hospice, but racial disparities persistAJMC, Cranbury, NJ; by Sabrina McCrear; 12/23/25 Key Takeaways: 

Hospice created Christmas for patient in NovemberBBC News; by Harry Whitehead; 12/24/25 Guernsey's hospice recreated Christmas for a patient in November so she could enjoy a festive experience with her family before she died. Carrie Watson's mother Tracey De La Mare passed away just days after nurses at Les Bourgs Hospice made her wish of a final Christmas come true. Mrs. Watson said her family were "blown away" by the effort put in by hospice staff. 

Palliative care staff attitudes toward music therapy for hospitalized adult patients American Journal of Hospice and Palliative Medicine (AJHPM); by Katherine A. Carney, APRN, CNP, MS, Rachel M. Wiste, APRN, CNP, MSN, Susanne M. Cutshall, APRN, CNS, DNP, MS, Christina Wood, MA, MT-BC, Rachel C. Gentes, APRN, CNP, MSN, Brianna E. Larsen, MA, MT-BC, Nana A. Tiwaa, MAS, Amelia E. Tetlie, APRN, CNP, DNP, and Regina M. Mackey, MD; 12/18/25 ... Top reasons for music therapy (MT) referral were psychosocial support, pain and symptom management, and coping. The most common symptom-focused indications were anxiety, mood, and existential distress. A variety of factors influenced decisions to refer for MT. Most felt that at least half of their patients could benefit from MT, and nearly all rated MT as “extremely” or “very” effective for improving patients’ quality of life.Editor's Note: Visit stories about music therapy the American Music Therapy Association. For extensive uses of music therapy in hospice and bereavement care, I invite you to explore my book, Music of the Soul - Composing Life Out of Loss, published in Routledge's Series in Death, Dying and Bereavement, 2006. 

End-of-life care needs cultural humility and social justice BMJ; by Jamilla Akhter Hussain, Rekha Vijayshankar, and Mary Hodgson; 12/18/25 Death, dying, and grief are not medical events—they are profoundly social, relational, and shaped by the histories people carry into their final days. ... [A] key question is: how can end-of-life care services become more trustworthy? Too often, institutions respond with so-called cultural competency initiatives. ... What is needed is cultural humility and social justice. Cultural humility involves ongoing self-reflection and acknowledgement of bias at individual, organisational, and system levels. Palliative care must prioritise cultural humility and social justice: trust grows not through outreach alone but through shared creation of knowledge, meaning, and care—and at the end of life ...

She has a young hospice patient who can’t financially afford the $2,400 to die ChipChick; by Emily Chan; 12/17/25 Most people worry about how they’ll live, not how much it costs to die. But for TikToker Jordan ..., who is a hospice nurse, one heartbreaking conversation with a young patient exposed a reality that many people don’t want to think about. She has a young patient who is dying and needs to make plans for the end of her life. She was looking into cremations because those are usually cheaper than caskets. Still, they are expensive, and this patient told Jordan that she cannot financially afford to die.

Is moral adequacy possible in the face of structural disadvantage? The experiences of health and social care staff in supporting homeless people using substances at the end of life Palliative Care and Social Practice; by Gary Witham https, Gemma Anne Yarwood, Sarah Galvani, Lucy Webb, and Sam Wright; 11/26/25 Background: Homeless people using substances at the end-of-life face many challenges in accessing and receiving good care. These can relate to poor interdisciplinary working by health and social care practitioners, stigma and structural disadvantage. Results: The data analysis resulted in three key discourse positions relating to how practitioners position themselves in relation to the practice challenges of supporting homeless people using AODs and approaching end of life. These were as follows: (i) what constitutes a good death and where, (ii) the limitations of professional boundaries and (iii) maintaining moral adequacy in the face of traumatic death.

I was 36 when my husband died — here's what most of us get wrong about grief Yahoo!Health; by Laura Williams, MS, ACSM EP-C; 12/16/25 Grief is universal, yet deeply personal. Instead of trying to "fix" or "help" someone who's grieving, it's important to make space for them to perpetually navigate the permanent reality of death. ... It turns out, time doesn't heal all wounds. Life simply grows around the immediacy of the pain — the sun rises and sets, and new experiences accumulate, whether or not you want them to, gradually taking the edge off. However, grief isn't just "deep sadness." It's not depression. It's not something you "get over" or "move on from." Grief is the loss of someone you loved — a voice you'll never hear again, a laugh you'll never share. It's the inside jokes no one else understands, the clothing that won't be worn again, ... It's a bed that won't be slept in, a dining room chair that remains empty, a silence that won't be filled.Editor's Note: This first-person reflection gives language to what grief truly is—and is not. It dismantles the myth that time “fixes” loss and instead names grief as a lifelong companion shaped by absence, memory, and love. If this piece feels uncomfortable or heavy at first glance, that discomfort may be instructive. For hospice and palliative leaders, it invites a sober question: how well does your organization acknowledge grief as enduring—and provide timely, meaningful support beyond death?

Bereavement service deserts: A 2024 statewide assessment of  bereavement services Death Studies, open access; by Christopher W. Giang, Luisa Kcomt, Joshua Truchan, Kara Dickinson, Rebecca J. Evans-Polce & Sean Esteban McCabe; 12/5/25 ... This paper introduces the term “bereavement service desert” to describe geographic areas with high mortality and little to no access to bereavement services. Bereavement services deserts are especially concerning where elevated death rates are met with an absence of formal grief supports, trained providers, or community-based resources. As these trends in death have continued to rise over the last decade, the social and economic costs of unresolved grief are becoming more apparent in families, schools, com munities, workplaces, and healthcare systems. ...Editor's Note: Though this research focuses on bereavement agencies across Michigan's 83 counties, its methodologies and outcomes provide data, references, and insights relevant to examining bereavement care in all U.S. states. What are the "bereavement service deserts" in the your state(s)? In the areas you serve?