Literature Review

CAREGIVING:  Aging with adventure - The challenge of caring Daily Hampshire Gazette, Northampton, MA; by Eric Weld; 2/28/25  I made a mistake. I took a hiatus from writing in this space about aging with adventure because I thought I was taking a hiatus from adventure. Boy, was I wrong. I errantly thought that spending more than a year caring for my elderly mother in her final time on earth was taking me away from adventure. I am honored to have enabled my mother’s final days spent at home — not her home, but my sister’s private home — instead of in a public or private nursing facility. ... I assumed, in taking on the role of her co-caretaker, I would temporarily preempt my semi-retirement modus operandi of striking out on great adventures. To the contrary, what I learned from spending nearly two years co-caring for my aging mother is that end-of-life care is, indeed, every bit an adventure on many levels. And of course, it’s certainly about aging. Editor's note: This son defines adventure as having four key components: "challenge, risk, education and movement. 

10 ways to embrace Mother’s Day with a seriously ill mother Roze Room Hospice, Culver City, CA; Website; retrieved from the internet 5/8/2025Spending Mother’s Day with a seriously ill mother can be emotional, but it’s also an opportunity to create meaningful and loving memories. Here are 10 ways to embrace Mother’s Day with a seriously ill mother:

Hospice nurses: specialized care, focused on comfortIndex Journal, Greenwood, SC; by St. Claire Donaghy; 5/7/25 For hospice nurses Kayla Beaty and Elizabeth "Regina" Ross, their goal is to provide patients comfort rather than cures, in the face of life-limiting illness with irreversible decline. Beaty is a home care nurse. Ross is a hospice house nurse. The two are employed by Hospice and Palliative Care of the Piedmont, based in Greenwood. ... "In this line of work, you seek to provide comfort, find out a patient and families' true needs and build a rapport," Ross said. Ross' dad died when she was 12. "That's what started me wanting to be a nurse," Ross said. "My mother also took care of my grandmother in her home while I was growing up. What brought me to hospice was a sister passing, here at this Hospice House. She was only 40 years old. My mother died a year later and my oldest sister passed last month. It's not just a job to me. It's a work of heart." ... "Comfort looks different to everybody," Beaty said. "It's about quality of life. It's not all doom and gloom either. We have fun with our patients and laugh and joke. It's often little things we take for granted."Editor's note: Reminder, National Nurses Week is May 6-12. It's crunch time. If not already, can you still reach out to your local media to feature a story about your nurses? 

New York State Department of Health announces revision of Medical Orders for Life-Sustaining Treatment (MOLST) form New York State Department of Health, Albany, NY; 5/2/25 The New York State Department of Health announced the revision of the Medical Orders for Life-Sustaining Treatment (MOLST) Form, a form that records a patient's preferences for life-sustaining treatments, such as CPR, ventilation, and other interventions, to ensure all patients are considered. The comprehensive revision was a collaboration of the Department, New York State Office for People with Developmental Disabilities (OPWDD), the New York State Office of Mental Health (OMH), and the MOLST Statewide Implementation Committee. ... All information regarding the MOLST, including the form, supporting checklists, glossary, and instructions are available on the NYSDOH Center for Hospice & Palliative Care's webpage.

Group estimates 7.2M US residents have Alzheimer's disease: Cases rise as Alzheimer's research funds are halted  MedPageToday; by Judy George; 4/29/25 The number of people with Alzheimer's dementia in the U.S. exceeded 7 million for the first time, new data from the Alzheimer's Association showed.An estimated 7.2 million Americans ages 65 and older now have Alzheimer's dementia, up from 6.9 million last year, according to the 2025 Alzheimer's Disease Facts and Figures. Nearly three-fourths (74%) of that group are 75 and older. While prevalence studies of dementia in young people are limited, researchers estimated that approximately 110 of every 100,000 people ages 30 to 64 -- or about 200,000 Americans in total -- have young-onset dementia, the Alzheimer's Association said.

A powerful film chronicles one man’s last days within a loving community for all to witness. Monterey County Now, Seaside, CA; by Pam Marino; 5/1/25 Facing certain death from a brain tumor, Ethan “E3” Sisser adopted a mantra. “I am embodied. I am empowered. I am ecstatic,” the 36-year-old would tell himself, in order to ward off oncoming seizures, carry himself through pain or recite for his many followers on social media. “E3” became his nickname. We see Sisser, looking into the camera, recite the mantra early in the documentary, The Last Ecstatic Days, released in 2024. We also meet his hospice and palliative care physician, Aditi Sethi, who leaves her position to become his death doula and friend. She fulfills his wishes for a peaceful death surrounded by a caring community, filmed for others to learn from. Director Scott Kirschenbaum – who made one of the definitive documentaries about birth, These Are My Hours – spent the last two weeks of Sisser’s life near his side with a camera, capturing each moment.

Dr. Drabek's "The Comfortologist" hits #1 bestseller, revolutionizing pain management & end-of-life care approaches Classic 96.7 FM BWZ, Yukon, OK; Press Release; 4/28/25 Dr. Steven Drabek's groundbreaking memoir, "The Comfortologist: A Physician's Empathetic Perspective on Compassion, Caring, and Pain Relief," has achieved #1 bestseller status, resonating deeply with healthcare professionals, chronic pain patients, and families navigating end-of-life care decisions. Drawing from his four-decade career and personal journey as a cancer survivor and chronic pain patient, Dr. Drabek offers readers a unique dual perspective that has earned him recognition as a "comfortologist" a term he coined to describe his approach to medicine that prioritizes patient comfort and dignity. "My experience as both physician and patient taught me that modern medicine often misses what matters most," says Dr. Drabek. "Technical expertise means little without empathy. We must treat the whole person, not just the symptoms."

Video: California firefighter ‘Living the best of these last months’ on hospice care VITAS Healthcare, Irvine, CA; Press Release; 4/28/25 “Hospice is not something that means death right away. It means health and happiness,” said Debbie Forrester, spouse and patient caregiver for former firefighter Jim Forrester of Orange County, California. In a new video, launched during Patient Experience Week, VITAS® Healthcare shares the story of a patient with terminal cancer whose life was dramatically impacted by the help of his hospice care team. Within a week of being cared for by the interdisciplinary team at VITAS, Mr. Forrester, who had been depressed and was unable to walk, began enjoying time with his grandchildren and even riding his bike again.

Wings of remembrance: NorthBay butterfly release memorial focuses on healing hearts The Reporter, Fairfield, CA; by Robin Miller; 4/26/25Under a sky painted in soft gray, the air a cool 60-degres, families and friends gathered quietly Saturday morning for a moment both tender and powerful. They had come to NorthBay Health Hospice & Bereavement memorial butterfly release — an event born from love, loss, and the enduring process of healing. ... Before the release, Darren Paulson, a hospice chaplain with Kaiser Permanente, stepped forward to speak. ... “Each of you came here with someone,” he said, “a companion you didn’t ask for and didn’t want: grief.” He spoke of a culture uncomfortable with sorrow, one that urges us to hide our tears and move on too quickly. But grief, he reminded them, doesn’t follow a schedule.

Hospice of the Chesapeake unfurls new advanced lung care program Hospice News; by Jim Parker; 4/25/25 Maryland-based Hospice of the Chesapeake has unveiled a new Advanced Lung Care Program. The hospice and palliative care provider developed the program in partnership with the American Lung Association and the National Partnership for Healthcare and Hospice Innovation (NPHI). The initiative is designed to provide specialized care for patients experiencing severe symptoms from chronic lung disease, which includes chronic obstructive pulmonary disease (COPD), chronic bronchitis, emphysema, asthma, cystic fibrosis, bronchiectasis, pulmonary fibrosis, sarcoidosis and pulmonary hypertension. 

What doctors wish patients knew about decision fatigueAMA; by Sara Berg; 3/21/25The daily flood of decisions can be exhausting. Lisa MacLean, MD, a psychiatrist at Henry Ford Health, shares how to overcome decision fatigue. From the moment we wake up, we are seemingly bombarded with choices—what to wear, what to eat, which emails to answer first. By the time we’ve navigated our morning routine, our mental energy has already taken a hit. And as the day wears on, the sheer weight of decision-making can start to take its toll, often without us even realizing it. Making decisions day in and day out can be exhausting and cause people to feel overwhelmed, anxious or stressed. [Key points include:]

5 risk factors at 50 can steal a decade of life Medscape; by Nadine Eckert; 4/17/25 Five classic risk factors for cardiovascular disease — high blood pressure, high cholesterol, obesity, diabetes, and smoking — at age 50 can reduce life expectancy by more than 10 years. This is the conclusion of an international study led by German researchers and presented at the 2025 American College of Cardiology Scientific Session. These five factors account for approximately 50% of the global burden of cardiovascular diseases. ... The findings, also published in The New England Journal of Medicine, show that lifestyle changes and risk management in middle age can make a significant difference. Lowering blood pressure and quitting smoking had the most significant impacts.

7-year-old Clayton girl battling stage 4 cancer enters hospice care at her home CBS-17 News, Raleigh/Clayton, NC; by Matthew Sockol, Maggie Newland, Greg Funderburg; 4/18/25 A seven-year-old girl battling an aggressive cancer has returned to her home in Clayton, her family said Friday. Noelle Franklin was diagnosed with stage four osteosarcoma less than a year ago and received treatment at UNC Children’s Hospital. In a video post on the Noelle Strong Facebook page, her mother Toni said Noelle is entering hospice care at their home. “The staff of UNC went above and beyond,” Toni Franklin said in a statement. “The care Noelle had was more than we could ask for. “Noelle has touched so many people, not just in our community, but in the hospital too,” she continued in her statement. “Seeing how many people came to celebrate Noelle breaking out overwhelmed me with joy. We paraded three different floors, wouldn’t expect anything less for Noelle. “We are home. We are at peace.”