Literature Review

Heart & Soul: Nikki HarrisCharleston Area Medical Center, Charleston, WV; 4/8/25 Nikki Harris is a Charge Nurse on 4 West at Memorial Hospital. Harris’ coworkers say she always provides excellent care but went out of her way for one man who wasn’t even her patient. The man’s wife was near the end of life in Hospice at Memorial Hospital. He had not been able to see or visit her since his own hospitalization. Recognizing the importance of this moment, Harris went above and beyond by personally escorting him to his wife’s side. She ensured that he had the time he needed to hold her hand, express his love and say goodbye before her passing. Harris’ compassion and selflessness in providing this extraordinary gesture of care during such a difficult time was deeply appreciated. She made a meaningful difference in this patient’s life and honored the final moments of his wife’s life.

You've got a friendtor in me: Innovations in peer mentoring for mid-career palliative care clinicians American Journal of Hospice & Palliative Care; April Zehm, Andrew J Lawton, Leah B Rosenberg, Sudha Natarajan, Bethany-Rose Daubman; 3/14/25 Mentoring is crucial to professional success, but little is known about the professional development needs of mid-career hospice and palliative medicine (HPM) clinicians. ... An interprofessional "friendtor" group of five HPM clinicians from three academic medical centers met monthly and for a year-end focus group. ... Several themes emerged that highlight the importance of ...

Nurse honor guard hoping to grow in South Dakota Sisseton Courier, Sisston, SD; by Brenner Cariveau; 4/4/25Nurse Honor Guard is a national organization which aims to honor the life of a nurse in funeral services. Traveling home, health and hospice nurse Laura Frankenhoff said the ceremonies help highlight the career of the nurses and is a way to ensure they are recognized for the work they have done as a nurse. Nurse Honor Guard has been performing ceremonies to honor the lives of nurses nationwide since their inception in the 1980s, Frankenhoff said. Regarding the honor guard, the base is made up of volunteers, according to Frankenhoff. "It's a volunteer chapter. You can make a chapter anywhere." Editor's note: Especially for pioneer hospice organizations--typically non-profits but definitely not all--do you honor those who laid the foundations for the work you're able to do now? If not, how can you? While nurses are absolutely core, how might you also honor your aides, social workers, chaplains, grief counselors, executives, office staff, and others who invested their talents and years in hospice care? May we remember. May we humbly thank and honor them.

What happens when someone passes at home? It depends Bozeman Daily Chronicle, Bozeman, MT; Chris Remely "discussions with a funeral director"; 4/5/25 One of the most common questions we get asked as funeral directors is, “What happens if I pass away at home?” The answer is ... it depends. Home death is fairly common in the context of someone being on hospice care. For many individuals who have been given a difficult medical diagnosis that is terminal, they often prefer to be at home surrounded by loved ones for as long as possible. ... In this scenario, hospice will pronounce the death and work with the funeral home to transfer the individual into their care. ... However, when someone passes away at home and they are not on hospice, this is considered an “unattended death” — meaning a medical professional is not involved. In this case, the coroner’s office is required to investigate the death to determine the cause and manner of death — as well as pronounce the death. ... When someone from the coroner’s office arrives, they will do several things. They will visit with the next of kin and ask them questions about their loved one’s medical history and investigate the scene where the death occurred. Editor's note: Too often, hospices gloss over this all-important information for caregivers and families. Death is traumatic enough. Families are left in a lurch. Conflicts can erupt at the family's most vulnerable moments. Yes, timing and delivery for such sensitive information is important. Our sponsor Composing Life Out of Loss provides empathic, sensitive videos for hospice teams to use with caregivers and families, with interdisciplinary team guides for tending individuals' different readiness for education and preparation.

‘The most someone wants is to be heard’: Students foster connection, create memoirs for hospice patients The Daily Texan - University of Texas, Austin, TX; 4/3/25 ... Brought to UT in 2023, Last Writers is a service organization where student volunteers interview hospice patients over the course of several months to write a memoir that is then printed and given to the patients and their families. The process is intended to bring comfort to hospice patients and create a physical memento for the families, representing their lives once they pass. ... “It’s not often that you’re a college student and you get to meet someone who is going to pass away in the next few months,” Nguyen said. “To be with them in that very vulnerable point, it gives you a lot of perspectives. A lot of our members come out of it realizing how much they have to live for. … It makes us more grateful in life and puts our mortality into perspective.” [Continue reading ...]

Navigating the intersection of heart failure and palliative care: A holistic approach to improving quality of life Cureus; by Awanwosa V. Agho, Fatimot Disu, Efeturi M. Okorigba, Okelue E. Okobi, Safiyya Muhammad, Toheeb Bakare, Chioma Ezuma-Ebong, Nneka Muoghalu; 3/30/25 ... Historically, palliative care has often been perceived as a last-resort option, introduced only when curative treatments have failed, creating a false dichotomy between life-prolonging therapies and symptom management. However, modern palliative care frameworks emphasize its integration throughout the disease trajectory, particularly for chronic, progressive illnesses like heart failure. ... Palliative care should ideally be initiated at diagnosis of advanced heart failure or with early signs of significant symptom burden to ensure timely, patient-centered support, as recommended by ACC, AHA, and HFSA guidelines

The most personal column I’ve ever written The Times, United Kingdom; by Professor Tanya Byron; 3/31/25 ... This column will be more personal than any other I have written in my now 20 years writing for The Times. I write it four days after my sister Katrina and I lost our beloved mum, Elfie, who ... had advanced end-stage dementia. Where do we start when trying to describe the many moments of heartbreak and the challenges that come with the long goodbye we have faced with our parents? Dementia is unpredictable. We say goodbye more than once and so the pain of bereavement does not begin at the time of death. Instead it is a prolonged pain marked by gradual losses. Watching a loved one slowly fade away over months or years brings grief, exhaustion and deep emotional turmoil. Amid all this is the experience of being on a rollercoaster of loss and hope, an experience that creates huge lurches between perceptions and emotions. There are moments of clarity and regression, ... [Continue reading ...]

[UK] Play 'humanizes' pediatric care and should be key feature of a child-friendly NHS, report suggests Medical Xpress; by University of Cambridge; 3/30/25 The report, by University of Cambridge academics for the charity "Starlight," calls for play, games and playful approaches to be integrated into a "holistic" model of children's health care—one that acknowledges the emotional and psychological dimensions of good health, alongside its physical aspects.  ... Both internationally and in the UK, health systems have, in recent decades, increasingly promoted play in pediatric health care. There is a growing understanding that making health care more child-friendly can reduce stress and positively improve younger patients' experiences. Despite this recognition, play often remains undervalued and inconsistently integrated across health care contexts. For the first time, the report compiles evidence from over 120 studies to make the case for its more systematic incorporation. [Continue reading ...] Editor's note: Click here to access the report, Playing with children's health? 

MaineHealth Memorial Hospital leverages telehealth in unexpected ways MaineHealth, North Conway, ME; Press Release; 3/312/25 When a patient presenting with stroke symptoms arrives at MaineHealth Memorial Hospital's emergency department, time is of the essence. It could take hours to arrange for medical transport and get that patient to a tertiary care center like MaineHealth Maine Medical Center to see a stroke neurologist. Using telehealth, these patients can receive this specialized care if it is necessary in less than 30 minutes. While telehealth is often associated with remote home visits, MaineHealth Memorial Hospital also uses it to enhance on-site care. Using remote consult technology, MaineHealth specialists can offer local care teams expert advice at the bedside or in the exam room. [Continue reading ...]

Long-overdue recognition: Vietnam veterans welcomed home at emotional ceremony Grice Connect; by DeWayne Grice; 3/29/25 A poignant and heartfelt welcome home ceremony was held at Ogeechee Area Hospice, honoring Vietnam veterans from the surrounding communities. The event, filled with emotional tributes and personal stories, aimed to provide long-overdue recognition for the sacrifices made by these veterans. The ceremony, organized by Ogeechee Hospice, the American Legion Post 90, and Georgia Department of Veteran Affairs, brought together veterans, their families, and community members. The atmosphere was one of gratitude and respect, as attendees acknowledged the often-overlooked service of those who served during a tumultuous period in American history.Editor's note: We add this to previous posts, 

‘Show up and share’: How one UCLA ICU helps patients and staff live with dying Los Angeles Times; by Corinne Purtill; 3/20/25 

The COVID mistake no one talks enough about The Atlantic; by Sunita Puri; 3/25/25 Deaths in isolation have been treated as a painful memory, not as a problem that hospitals need to address. He was one of the few ICU patients whose face I saw in early 2021, when COVID raged through Los Angeles. As a palliative-care physician, my job was to meet, over Zoom, with the families of intubated patients to ensure that they had complete medical updates and to help them make difficult medical decisions on behalf of their loved one, particularly when that person faced death. But in a surreal departure from my usual practice, I’d never once seen these patients myself: At the time, to minimize exposure to COVID, the only people permitted to enter the ICU regularly were members of the ICU team. ... His wife told me that during his many previous illnesses, she had slept every night in his hospital room, making sure he asked for pain medications and watching movies with him to pass the time. “He fought harder to live when I was there,” she told me. [Continue reading ... full access may require a free trial or subscription]