Literature Review
All posts tagged with “Clinical News.”
Witnessing a living funeral
02/18/25 at 03:10 AMWitnessing a living funeral Parkview Health; by Tim O'Sullivan, MA, Spiritual and Social Services Supervisor, Parkview Hospice; 2/16/25 ... Rather than planning services after they pass and miss out on a gathering of the people who are most precious to them, some are choosing to schedule a "funeral" while they are still living so they can be a part of the ceremony. These events are known as Living Funerals. As a hospice caregiver, I have seen a rise in the number of these pre-death celebrations of life. While this may not be for everyone, it can be a meaningful experience for those who have chosen to remember a life in this way. I was invited to one of these events and witnessed firsthand the power of acknowledging death while fully living in the moment. ... [Click on the title's link to continue reading.]
Americans who’ve become caregivers rose by a third in 10 years
02/18/25 at 03:00 AMAmericans who’ve become caregivers rose by a third in 10 years The Daily Sentinel, Grand Junction, CO; 2/14/25 A growing numbers of family members now provide care for older adults who live at home or in residential care settings, a new study shows. Their ranks increased 32%, from 18.2 million to 24.1 million, between 2011 and 2022, according to new research in the journal Health Affairs. The number of hours that these folks spent caring for older adults with dementia jumped by nearly 50%, from an average 21.4 hours per week in 2011 to 31 hours in 2022. Exactly what is driving the increase in family or unpaid caregiving is not fully understood, but researchers speculate that it may be due to a rise in the number of people who live with the folks who they assist. For the study, researchers culled data from the National Health and Aging Trends Study (NHATS) and the National Study of Caregiving (NSOC) in 2011 and 2022.
Center for Hospice Care's BreatheEazy Program supports patients with respiratory issues
02/18/25 at 03:00 AMCenter for Hospice Care's BreatheEazy Program supports patients with respiratory issues LaporteCounty.Life; by Garrett Spoor; 2/13/25 One of the toughest health challenges a person can face is the trouble of breathing. Center for Hospice Care comes across a lot of patients who experience this issue and encourages many of them to become a part of their BreatheEazy program. Dr. Karissa Misner, medical director at Center for Hospice Care, considers the BreatheEazy program to be a monumental boost for patients who might have respiratory issues. “This is a specialized pulmonary program for our patients with chronic obstructive pulmonary disease,” Misner said. “It can also be used for many other terminal diagnoses that affect the lungs. Whenever there is any type of illness that causes difficulty in breathing, we can utilize this program.”
Advanced cardiac care boosts symptom management, quality of life
02/17/25 at 03:00 AMAdvanced cardiac care boosts symptom management, quality of life Carolina Caring, Newton, NC; by Cassidy Collins; 2/12/25 For those living with advanced heart disease or heart failure diagnoses, access to the right medical care can greatly improve their quality of life. This Heart Month, Carolina Caring is spotlighting the Advanced Cardiac Care Program, which provides treatment and clinical support to help patients with heart failure manage their symptoms from wherever they call home. It is the first program of its kind in North Carolina and one of the first established in the nation. It also recognized as a Certified Care program in Palliative/Hospice Heart Failure from the American Heart Association (AHA). Since this certification, Carolina Caring saw a drop to zero readmissions for primary congestive heart failure Hospice patients by the end of 2024. The benefits of this comprehensive, home-based cardiac care program are best illustrated through individuals such as Shirley, a hospice patient who began her journey with Carolina Caring last spring.
People with depression develop long-term health conditions quicker than those without, study finds
02/17/25 at 03:00 AMPeople with depression develop long-term health conditions quicker than those without, study finds McKnights Home Care; by Kristen Fischer; 2/13/25 Adults who have experienced depression develop long-term physical conditions about 30% faster than those without depression, a new study finds. Authors of the report said depression needs to be viewed as a “whole body” condition, with treatment approaches that address mental and physical health. The report was published Thursday [2/13/25] in PLOS Medicine. Investigators evaluated the association between depression and the rate at which conditions accrued in midlife and older age.
The number of family caregivers helping older US adults increased from 18 million to 24 million, 2011–22
02/17/25 at 03:00 AMThe number of family caregivers helping older US adults increased from 18 million to 24 million, 2011–22 Health Affairs; by Jennifer L. Wolff, Jennifer C. Cornman, and Vick A. Freedman; 2/25 The evolving composition and experiences of the family caregiver workforce have profound ramifications for public policy but are not well understood. Drawing on the linked National Health and Aging Trends Study and National Study of Caregiving, we found that the numbers of family caregivers providing help to older adults increased by nearly six million between 2011 and 2022, rising from 18.2 million to 24.1 million. ... For family caregivers as a whole, challenges persist, and for those assisting people with dementia, tailored surveillance and effective support programs are needed.
Death Matters: The gift of presence: Tips for visiting someone who is dying
02/17/25 at 03:00 AMDeath Matters: The gift of presence: Tips for visiting someone who is dying Squim Gazette, Squim, WA; by Jeanette Stehr-Green, Volunteer Hospice of Clallam County; 2/12/25 We sometimes avoid visiting friends or family members who are terminally ill. We make lots of excuses. We don’t know what to say. We don’t know how to act. We don’t want to be a bother. The hard truth is that dying, the final stage of life, can be a lonely experience without the presence of family and friends. A visit during this time can bring comfort to the dying person and their family. It can also provide an opportunity to share feelings, reminisce, and say goodbye. Visiting a dying person seems difficult because most of us lack experience. It only takes a little courage and a few ideas to create a meaningful moment. ... Editor's note: These excellent guidelines empower hospice patients' families and friends--and protect patients' vulnerable energies and emotions--in multiple settings across the trajectory of dying. How might you adapt these for your own patient/caregiver support and community outreach?
How to help caregivers of patients with dementia
02/14/25 at 03:00 AMHow to help caregivers of patients with dementia Physician's Weekly; by Linda Girgis, MD, FAAP; 2/13/25 Dr. Linda Girgis discusses how physicians can assist caregivers of patients with dementia, helping these critical caretakers avoid experiencing burnout. ... As doctors, we all have witnessed caregiver burnout. Often, it was a family member who bore the brunt of the responsibility, one for whom there were no vacation days or sick time available. Whatever specialty we practice, we know patients with dementia can present a significant problem. ... How can we assist caregivers of patients with dementia?
Rebuilding trust in medical science: How doctors and scientists can bridge the misinformation divide
02/13/25 at 03:00 AMRebuilding trust in medical science: How doctors and scientists can bridge the misinformation divide Association of American Medical Colleges (AAMC); by Patrick Boyle; 2/11/25 Medical science has not fully recovered from the distrust that erupted among some segments of the public during the COVID-19 pandemic. Skepticism and misinformation about vaccines and other health matters are spreading. Can anyone help doctors and scientists build faith in medical expertise? Reed Tuckson, MD, is trying. Tuckson is cofounder and chair of the Coalition for Trust in Health & Science, a nonprofit that focuses on “ensuring that everyone is empowered to make informed and personally appropriate health decisions … based on accurate, understandable, and evidence-based information.” ...Tuckson recently spoke with AAMCNews about applying what has been learned over the past several years to responding to misinformation and distrust in medical science. ...
How to live when you know you are dying
02/13/25 at 02:00 AMHow to live when you know you are dying Equity Atlas; 2/11/25 Living with the knowledge of impending death is an incredibly challenging and emotional experience. Whether facing a terminal illness or a life-threatening situation, the idea of living when you know you are dying can be overwhelming. However, it is possible to find peace, acceptance, and even joy in the midst of such difficult circumstances. In this article, we will explore how to navigate this journey with grace and courage. ... How does one navigate this difficult journey? We turned to professionals in the field for their insights on how to live when you know you are dying.
Men to share stories of grief on charity walk
02/12/25 at 03:00 AMMen to share stories of grief on charity walk BBC News, West of England; by Dawn Limbu; 2/8/25 Hundreds of men from Somerset and Wiltshire are being encouraged to share their experiences of grief and bereavement on an eight-mile (12km) charity walk. Dorothy House Hospice Care is hosting its annual 'Men's Walk to Support' to raise funds to help the charity continue to provide free end-of-life care. The walk on 8 March will take participants from the charity's hospice in Winsley, Wiltshire, to Bath Pavillion in Somerset. Dan Varley, community and events fundraiser, said the walk can be really "powerful" for men who have experienced bereavement.
Bringing children home: Kentucky Children’s Hospital’s approach to pediatric end-of-life care
02/12/25 at 03:00 AMBringing children home: Kentucky Children’s Hospital’s approach to pediatric end-of-life care American Hospital Association; 2/8/25 When parents have a child with a serious illness, all they want is for their child to get well. If that no longer becomes a possibility, often all they want is to bring their child home. Most — around 70% — of pediatric deaths related to illness occur in the hospital, but the Kentucky Children’s Health Pediatric Advanced Care Team offers some families the chance to transport their child home using life-sustaining technology. That’s not an easy feat; these patients are medically fragile, and the outcome can be unpredictable. A team made up of hospital administrators, hospice providers, coroner and the transportation team comes up with a plan. The child’s parents complete an informed consent procedure, recognizing that their child may not survive the journey home. The transportation team tries to ensure that the journey is as comfortable as possible, as well as planning what to do if the child’s condition deteriorates on the journey. If that happens, he or she will be supported as they pass without resuscitation efforts.
What we talk about, or not, when talking about death
02/11/25 at 03:00 AMWhat we talk about, or not, when talking about death Enumclaw Courier-Herald; by Wire Service; 2/9/25 Death is a guarantee for everyone, so why do people shy away from talking about it and using words like death and dying? ... As a death doula and grief coach, Kathleen Putnam hopes that providing care to those who are grieving can help change the language surrounding death. ... Putnam explains that in present society, people want to avoid grief and pain. With medical advancements and industries and marketing systems focusing on keeping people alive, the rhetoric surrounding dying has become negative. Putnam also pointed out that instead of using phrases like “they died” or “they’re dying,” other phrases like “pass away” and “they went to sleep” have become popular when talking about a loss.
The health care experience of Hispanic patients with serious illness: A literature review
02/11/25 at 02:00 AMThe health care experience of Hispanic patients with serious illness: A literature reviewCAPC press release; 2/10/25CAPC conducted a literature review of peer-reviewed journal articles indexed in PubMed to understand the health care experience of Hispanic patients with serious illness, and their families and unpaid caregivers. [Please click on the link above for the literature review of 200+ journal articles and 14 key findings.]
Volunteer and her 3 dogs provide joy through Hospice of the Valley's pet therapy program
02/10/25 at 03:00 AMVolunteer and her 3 dogs provide joy through Hospice of the Valley's pet therapy program AZCentral; by Lin Sue Flood, Hospice of the Valley; 2/7/25 Marian Wallace loves dogs and loves volunteering, so she put the two together to provide joy to others. [Her] three adorable Labradors — Mattie, Harper and Richey — are the newest members of Hospice of the Valley’s pet therapy program. They visit youngsters at Ryan House, which provides respite support to families with medically fragile children. ... Marian joined Hospice of the Valley’s pet therapy program was about 10 years ago. A friend who had a therapy pet inspired her to rescue and train dogs. She began visiting hospice patients with her first two labs, Shiloh and Amy. ... “It’s that child-animal interaction that I find so incredible,” she said. ... One of the most endearing qualities she sees in all of her Labs is how intuitive they are, tapping into the moods and emotions of children to comfort them. ... Editor's note: Ensuring pet therapy training and certification is crucial, for both the pet and the owner. Click here for an extensive national list of Pet Therapy Organizations. If you have--or plan to provide--a pet therapy program, be sure that insurance is provided (by the pet therapy organization and/or by you) in case an incident occurs.
New report details financial, emotional toll of Parkinson’s on family caregivers
02/07/25 at 03:00 AMNew report details financial, emotional toll of Parkinson’s on family caregivers McKnights Home Care; by Foster Stubbs; 2/4/25 A new report sheds a light on the unique challenges faced by family caregivers who care for loved ones with Parkinson’s disease (PD). The report, Parkinson’s Disease Caregiving in the US, features insights from secondary analysis and supplementary interviews with 10 PD caregivers. These caregivers average 31 hours of unpaid care per week; half of interviewed caregivers exceed 100 hours each week, according to the report. The National Alliance for Caregiving (NAC), with support from The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and Arcadia University, released the report.
How to prepare children for hardships and tragedies
02/06/25 at 03:00 AMGarlock: How to prepare children for hardships and tragedies The Citizen; by Dr. Victor Garlock; 2/4/25 All of us must face hardships and tragedies. How well we are able to get through difficult times is a major factor affecting the overall quality of our lives. Sometimes these challenges arrive individually, as in a sudden serious illness, an accident, or the death of a loved one. Sometimes — as in last fall’s devastating floods in North Carolina or the recent wildfires in Southern California — entire communities must find a way to move forward. ... Resilience is the capacity to recover from challenges and adversity. Tragic optimism is the determination to remain optimistic and find meaning and purpose in the face of tragedy. [With children:]
Hiding in plain sight: The most harmful and costly hospital-acquired infection
02/06/25 at 03:00 AMHiding in plain sight: The most harmful and costly hospital-acquired infection Infection Control Today; by Dian Baker, PhD, APRN; 2/5/25 Nonventilator hospital-acquired pneumonia (NV-HAP) is among the most deadly, harmful, and costly hospital-acquired infections (HAI). In a 2023 study of 284 US hospitals, NV-HAP was attributed to 1 in 14 hospital deaths with an inpatient mortality of 22.4%. NV-HAP is associated with significant morbidity and mortality, the incidence of sepsis, longer hospital stays, increased discharges to skilled nursing facilities and hospice, costs, and higher intensive care unity (ICU) utilization.
No one should die alone. A Cape Fear Valley initiative aims to make that true for patients
02/06/25 at 03:00 AMNo one should die alone. A Cape Fear Valley initiative aims to make that true for patients The Fayetteville Observer, Fayetteville, NC; by Lizmary Evans; 2/5/25 No one should take their last breath alone, and the mission of a new volunteer group at Cape Fear Valley Medical Center will make sure that doesn't happen. The No One Dies Alone program, an internationally recognized initiative that began in 2001 at Sacred Heart Medical Center in Eugene, Oregon, provides trained companions to sit with dying patients who do not have loved ones available during their final moments, according to a news release. ... "Sitting at the bedside of another human being, keeping awake and alert — it’s a vigil," [Mary Draughn, the hospice patient care manager at Valley Hospice House in Fayetteville] said last week. "This vigil provides comfort, meaning, resolution and peace to both the dying person and the companion."
Advice on navigating complex caregiving
02/05/25 at 03:00 AMAdvice on navigating complex caregiving Philadelphia Corporation for Aging; by Jay Nachman; 2/3/25 The biggest challenge for someone taking care of a parent or loved one is “accepting your loved one for who they are now. Not who you knew them to be,” said Dr. Kiplee Bell, an internal medicine physician who has created a practice focused on caregiving. ... It’s not uncommon, according to Bell, for minority community members to live in multi-generational households. Additionally, in some homes, grandparents are raising grandchildren. Then there is the flipside, where young children are helping to take care of their older family members. And when English is not a native tongue, language barriers can preclude an adequate understanding of how to navigate the social service and health care systems. ...
ASCO updates Guidelines for Ovarian Cancer
02/05/25 at 03:00 AMASCO updates Guidelines for Ovarian Cancer Cancer Therapy Advisor; by Jen Smith; 2/4/25 The American Society of Clinical Oncology (ASCO) has updated its guidelines on neoadjuvant chemotherapy use in patients with newly diagnosed, stage III-IV epithelial ovarian, fallopian tube, or primary peritoneal cancer. The guideline authors used data from 61 studies to provide recommendations. ... [Click here for the research article.]
Oncologists overtreat patients at end of life: “There’s a real deficit in our training”
02/04/25 at 03:00 AMOncologists overtreat patients at end of life: “There’s a real deficit in our training”Oncology News Central; by Nathan I. Cherny, Robert A. Figlin; 1/29/25When it comes to end-of-life care for patients with cancer, “I think that there is a real deficit in our training,” says Nathan I. Cherny, MD, director of the Cancer Pain and Palliative Medicine Unit at Shaare Zedek Medical Center in Jerusalem, Israel. Dr. Cherney and colleagues recently examined factors contributing to oncologists overtreating patients at the end of life. He discusses key findings and ways to address this continued problem with Robert A. Figlin, MD, the Steven Spielberg Family Chair in Hematology-Oncology at the Cedars-Sinai Cancer Center in Los Angeles. “When one reads practice guidelines, they never include a section of when further treatment is more likely to be harmful than helpful,” Dr. Cherny notes. “Unless it appears in every illness guideline, the message does not necessarily get through that this is something that is really important.”
Palliative care slashes ED visits, hospitalizations in people living at home with dementia: study
02/03/25 at 03:00 AMPalliative care slashes ED visits, hospitalizations in people living at home with dementia: study McKnights Long-Term Care News; by Kristen Fischer; 1/30/25 A program that provides palliative care to people with dementia and their caregivers lowered the number of emergency department visits and hospitalizations by approximately half in about a year, a new study shows. Those who benefitted the most from the Indiana Palliative Excellence in Alzheimer Care Efforts (IN-PEACE) initiative were Black people and those with lower incomes. A report detailing the findings was published in JAMA ... The 50% decrease in emergency department visits and hospitalizations among people who received the intervention shows that the program can keep some people with dementia out of the hospital, where they can develop complications and functional declines.
High reliability in action — a closer look at Unit-Based Quality Rounds
02/03/25 at 03:00 AMHigh reliability in action — a closer look at Unit-Based Quality Rounds Mass General Brigham; 1/7/25 ... “We’re creating a new process and I’m so proud of all of you because what you have accomplished so far has been amazing,” Nursing Director Vivian Donahue, RN, said at the opening of the huddle with just over 20 physicians, nurses, advance practice providers (APPs), unit staff and hospital and system senior leaders in attendance, including Thor Sundt, MD, chief of Cardiac Surgery for Mass General Brigham. ... At the unit’s first huddle in October, a conversation about the availability of hospice care generated a new referral process that connects patients receiving end-of-life care and their families to hospice services and ongoing emotional support for those coping with the passing of a loved one. At the Dec. 11 huddle, Donahue reported that the unit had provided this welcome, deeply appreciated additional support to five patients and their families.
Opioid painkillers less available to people of color
01/31/25 at 03:00 AMOpioid painkillers less available to people of color HealthDay News / Coastal Breeze News, Marco Island, FL; 1/30/25 People of color now have less access to prescription opioid painkillers than white patients, an unintended consequence of efforts to stem America’s opioid epidemic. Communities of color have a 40% to 45% lower distribution of commonly prescribed opioids, compared to majority white communities, researchers reported in a study published Jan. 23 in the journal Pain. This could prevent opioid painkillers from reaching those in true need of them, like cancer patients, researchers said.
