Literature Review

Grief care efforts should include settings outside of hospice, provider group say McKnights Senior Living; by Kimberly Bonvissuto; 7/3/24 If standards are developed for high-quality bereavement and grief care, they must apply to settings outside of traditional hospice care, such as affordable senior housing, where there is a “critical lack” of mental health services. That’s according to LeadingAge, which submitted comments last week to the Agency for Healthcare Research and Quality on a draft report from a research project that will inform an independent panel that will develop standards for high-quality bereavement and grief care. Katy Barnett, LeadingAge director of home care and hospice operations and policy, highlighted the need for cross-continuum grief and bereavement assessments, interventions and resources, including in settings outside of traditional hospice care, such as affordable senior housing.

KCAD grad Brianna L. Hernández explores intersection of art, death, and grief through prestigious Hyperallergic curatorial fellowship Ferris State University, Grand Rapids, MI; 6/25/24 As Brianna L. Hernández grieved the loss of her mother, she understood she was not alone in the experience and her thoughts turned to helping others. Her work to share the experience has earned recognition. Hernández, a 2016 graduate of the Kendall College of Art and Design of Ferris State University, was one of five people selected for the prestigious 2024 Emily H. Tremaine Journalism Fellowship for Curators ...  Every year, the fellowship offers five curators $5,000 to support their research while developing their journalistic skills. ... [Experiencing her mother's death] profoundly shifted her work toward a focus on death, and the living who are left behind to cope with loss. “As she was dying and right after she died, I knew I needed to make work about it for my own healing, but I also knew that my situation was not unique,” Hernández said. “I felt like it was of both artistic and social importance to put that out there in a way that hasn't been addressed.”

Narrating final memories from spousal loss: The role of place and quality of deathAmerican Journal of Hospice and Palliative Medicine; by Emily L Mroz, Susan Bluck; 8/24Personal memories of the death of a spouse can guide bereavement adjustment. Place of death and quality of death are end-of-life factors that are likely to influence death experiences and formation of subsequent personal memories. The current study employs narrative content-analysis to examine how place and quality of death relate to affective sequences present in older adults' final memories from the death of their spouse. ... Final memories are carried with the bereaved long after their loss. Positive final memories appear to stem from witnessing a comfortable, medically appropriate death outside of a hospital setting. End-of-life 'that is' between care and aligned with patients' values for place and treatment may be critical for spouses' formation of constructive final memories and bereavement adjustment.Editor's Note: Per Yale press release: Emily Mroz, PhD, postdoctoral fellow in the Yale Department of Internal Medicine’s Section of Geriatrics, recently received the Association for Death Education and Counseling (ADEC) Edie Stark-Shirley Scott Early Achievement Award. The honor is presented annually to a woman in the initial years of a career in thanatology—the study of death, dying, and bereavement—who has distinguished herself through activity in scholarship, service, research, clinical practice, or social action.

Building bridges before loved ones pass - personal perspective: The loss of a loved one Psychology Today; by Sarah Rayner; 6/10/24 ... Last year I lost my mother ...  The only parent I have left is my stepmother. We have had our rows over the years, as she would leap to defend my father so swiftly. Now I appreciate that this was because she loved him deeply and committedly. ... From what I can see, she is going to be with us for a few years. She is an intellectual force of nature and at 88 was granted an honorary doctorate. ... “Wow,” I said, impressed. “You are an inspiration.” She brushed off the compliment. “I’m nothing. You should see my friend, Pam, she is 100! We all have to die sometime," she said. "We have to make way for the next generation." ... t's worth building bridges before loved ones pass. But whether you love or hate your parents, I believe it is often worth building bridges before they pass away, for the sake of both parties. Few people want to look back on the final encounter they had with a loved one regretting all the words left unsaid.

Bereavement care, often an ‘afterthought,’ should be public health priority Healio; by Jennifer Byrne; 5/26/24 Health care institutions and their staffs must take action to ensure bereavement care shifts from “an afterthought to a public health priority,” according to a position paper published in The Lancet Public Health. Bereavement support often is considered part of palliative care; however, there often is a lack of continuity of care for bereaved individuals after a person dies in palliative or end-of-life care settings, the paper’s authors contend. Healio spoke with [co-author Wendy G. Lichtenthal,PhD] about what bereavement care encompasses, why it should be prioritized and how institutions can support grieving individuals who may require assistance.

Church group fashions 'dignity quilts' for palliative care unitCanada - Local Journalism Initiative; by Wayne Doyle; 5/22/24It’s such a simple thing. But the volume of respect it signifies is unimaginable. The impact it has on surviving family members, equally so. It’s called ‘code dove’ and it’s a special paging phrase; ... staff and residents join the family of the deceased as they gather at the front entrance to say goodbye as the resident leaves the home for the last time. “When our residents are leaving, they exit through the front lobby, the same way they came in,” said Peggy Sauve, assistant director of resident care at the IOOF on Brooks Street in Barrie. “It’s all about respect for the individual and their family. “We hold flameless candles, play their favourite music and take one last chance to say goodbye,” she added. ... As the resident leaves the home for the last time, their body is covered with a dignity quilt, designed and handmade by members of the Elmvale Presbyterian Church Craft group.

When families fight over a relative with dementia, it’s time to call in the mediator The New York Times; by Paula Span; 5/13/24 Trained negotiators can help families struggling with vexing elder-care issues.  The four adult children were in agreement. Their father, William Curry, a retired electrical engineer and business executive, was sinking deeper into dementia. ... [But their mother] remained determined to continue caring for her 81-year-old husband at home, despite the increasing toll on her own health. ... As the weeks passed, “we were really at an impasse,” [a daughter] said. “Do you override your mother?” ...  [Increasingly,] families seek elder mediation privately, before disputes land in court and imperil or destroy family relationships. [Continue reading for descriptions of how mediation differs from arbitration, from family therapy, and for cautions about this being "a fairly new field with no nationwide certification or licensing requirements."]Editor's Notes: Executive leaders, what community education and resources are you providing for Advance Directives? What family systems education and and problem-solving are you providing for your interdisciplinary team members and grief counselors? Family conflicts are inherent--in some form or fashion--with almost anyone needing dementia care, especially when paired with palliative or hospice care. (If in doubt, ask your seasoned, front-line professionals.)

St Oswald's Hospice launches 'emotional' portraits exhibition highlighting end-of-life care Chronicle Live, United Kingdom; by Sam Volpe; 5/11/24 An emotional new exhibition has opened highlighting "the bond that doesn't die" when a loved one dies and promoting the care offered by St Oswald's Hospice. Entitled Portraits with Purpose: Continuing Bonds, and created by Fenham artist Leanne Pearce, the exhibition features twelve portraits of people who have received or are receiving palliative and end-of-life care at St Oswald's. Leanne has created the artwork working closely with the families - who have experienced care and support from the charity at the most difficult of times. 

A Mother’s Story: Grieving a child on Mother’s Day KEYT3, Santa Barbara, CA; by Patricia Martellotti; 5/10/24For many, Mother’s Day can be a bittersweet reminder for mothers who have lost a child. Rosy Bucio lost her daughter, Nina, age five from a rare childhood cancer. ... Bucio offers ideas to help those who are grieving cope on Mother’s Day. Find out how Hospice of Santa Barbara also helped Bucio through the grieving process on News Channel 3.

Exploring grief: Cleveland Institute of Art student copes with loss through her paintings FreshWater, Cleveland, OH; by Karin Connelly Rice; 5/8/24 Maddie Cantrell, 21, and a painting major at the Cleveland Institute of Art (CIA), grew up in the small town of Traveler’s Rest, South Carolina, with her grandparents, Alaine and Jim Sosebee, living just around the corner. ... Now a rising senior at CIA, Cantrell has found her art to be an outlet for coping with the sudden deaths of her grandparents. The result of her effort her exhibit is, “Living with Grief,” four paintings that illustrate the experience of living with grief, at Hospice of the Western Reserve’s The Elisabeth Severance Prentiss Bereavement Center, ... “My work is centered around having to grow up without [my grandparents] and making a bridge between where I exist and where they exist,” Cantrell explains of her works. “... How would I speak to them if I could? Or, how would we have a conversation, even though they're not here?” ...

Building connections, showing compassion and bringing peace to patients and families St. Louis Post-Dispatch; by Mary McHugh; 5/3/24Three thousand colorfully painted rocks are artfully arranged in the landscaped outdoor meditation courtyard at Evelyn’s House, a part of BJC HealthCare, a ranch-style hospice home located adjacent to Barnes-Jewish West County Hospital. Each rock pays tribute to a patient who has spent their last days of life there. Decorated by the staff, the stones are visible through the garden window from the home’s central gathering space for families. It’s one of the first sights visitors see when they enter the facility. For the staff, including nurse Dawn Anderson, the stones are a unique and memorable way to honor the lives who have passed and prepare the staff to care for those who have yet to come. ...

Chesapeake Life Center offers monthly LGBTQIA+ drop-in grief support group Southern Maryland News Net; 5/6/24 Chesapeake Life Center will host a monthly drop-in grief support group for members of the LGBTQIA+ community. ... Grief is a hard and vulnerable time, and it is important to have safe spaces to process what we are going through. This group is intended for adult members of the LGBTQIA+ community who are grieving a past or approaching death. The group will be facilitated by a licensed queer therapist but will be loosely structured to offer an opportunity for participants to share their feelings and grieve with community.Editor's Note: Hospice & Palliative Care Today does not post upcoming, local hospice events, grief support groups, volunteer trainings, etc. However, we're posting this LGBTQIA+ grief support due to its unique need, with opportunities for replication in other hospices. 

When a parent dies: A scoping review of protective and risk processes for childhood bereavementDeath Studies; by Rebecca Hoppe, Marcia A. Winter, Chelsea D. William, and Irwin Sandler; 4/15/24Abstract: The death of a parent can have profound effects on child development. ... A scoping review was conducted in samples of parentally bereaved children to identify key processes, synthesize results, and determine research gaps. This scoping review identified 23 studies (mainly from the United States), published between 1990 and 2023, that reported child (ages 3–22 years) individual and/or environmental protective and/or risk processes that contributed to bereavement outcomes. Findings can be used to apprise clinicians, families, and policymakers of the unique nature of childhood bereavement and to identify malleable processes to target in interventions designed to prevent problematic outcomes in bereaved children.Funding: This work was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development through the Ruth L. Kirschstein National Research Service Award [F31HD110247].