Literature Review

Palliative care knowledge, attitudes, and self-competence of nurses working in hospital settingsJournal of Palliative Care; by Mona Ibrahim Hebeshy, Darcy Copeland; 6/25With the growing need to integrate palliative care into healthcare systems, nurses in hospital settings often provide care for patients with life-limiting conditions, many of whom lack formal education in palliative care. [Conclusions:] Nurses generally feel competent; however, they often lack confidence in addressing patients’ social and spiritual needs. They experienced unease when discussing death and exhibited paternalistic attitudes. Significant differences were found in educational background, nursing experience, personal caregiving experience, and practice setting. Positive correlations exist between attitudes, knowledge, and self-competence, indicating that greater knowledge and competence were associated with better attitudes toward end-of-life care.

20 states sue after the Trump administration releases private Medicaid data to deportation officials Associated Press (AP), Washington, DC; by Amanda Seitz and Kimberly Kindy; 7/1/25The Trump administration violated federal privacy laws when it turned over Medicaid data on millions of enrollees to deportation officials last month, California Attorney General Rob Bonta alleged on Tuesday, saying he and 19 other states’ attorneys general have sued over the move. Health secretary Robert F. Kennedy Jr.’s advisers ordered the release of a dataset that includes the private health information of people living in California, Illinois, Washington state, and Washington, D.C., to the Department of Homeland Security, The Associated Press first reported last month. All of those states allow non-U.S. citizens to enroll in Medicaid programs that pay for their expenses using only state taxpayer dollars.

Palliative care in the ICU: From oxymoron to standard of careIntensive Care Medicine; by Nancy Kentish-Barnes, Judith E. Nelson; 6/25Palliative care can be integrated into intensive care through ICU clinicians and palliative care specialists, and these approaches are complementary and synergistic. One study found that proactive specialist involvement in ICU rounds for high-risk patients led to more and earlier family meetings and shorter hospital stays. However, collaboration challenges, such as continuity of communication, highlight the need for close team cooperation. The integrative model trains intensivists and ICU nurses to embed palliative care into routine practice, ideally starting in medical and nursing education. Research has shown that improved communication and support from intensivists and ICU nurses are associated with better bereavement outcomes for families, including reduced post-traumatic stress, anxiety, depression, and prolonged grief.

Texas floods: "Ways you can help" and "Community crisis and grief resources for hospices"Lists and links compiled at Composing Life Out of Loss - Community Grief; by Joy Berger; updated 7/8/25 

Medicaid provisions threaten home and community-based services for millions of vulnerable Americans National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 7/3/25The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the House’s passage of the “One Big Beautiful Bill Act,” also known as the Reconciliation bill, which now heads to President Trump’s desk for his signature. “The Alliance is deeply troubled by the Medicaid provisions within the One Big Beautiful Bill Act, which has passed both chambers of Congress and now awaits President Trump’s signature,” said Alliance CEO Dr. Steve Landers. “These provisions—including work requirements, reduced provider taxes, and new cost-sharing mandates—prioritize short-sighted budget savings over the health and wellbeing of our most vulnerable citizens who rely on home and community-based services (HCBS).” The home care community advocated throughout the legislative process for Congress to mitigate these harmful Medicaid provisions.

Pallitus Health Partners receives CHAP Accreditation for Adult Palliative Care and Pediatric Care Certification for Kourageous Kids Pallitus Health Partners, Louisville, KY; Press Release; 7/8/25 Community Health Accreditation Partner, Inc. (CHAP) has awarded Care Guide Partners, Inc. (dba Pallitus Health Partners) CHAP Accreditation under the CHAP Palliative Care Standards of Excellence. The nonprofit also received certification for its Kourageous Kids (KKids) palliative care program. CHAP Accreditation demonstrates that Pallitus Health Partners meets the industry’s highest nationally recognized standards. The rigorous evaluation by CHAP focuses on structure and function, quality of services and products, human and financial resources, and long-term viability. Simply stated, adherence to CHAP’s standards leads to better quality care. ... Pallitus Health Partners, an affiliate of Hosparus Health, offers comprehensive palliative care for serious illnesses in Kentucky and Indiana. Editor's Note: Congratulations to Pallitus Health Partners and Hosparus Health! This accreditation marks yet another milestone of excellence for this organization—originally founded as Hospice of Louisville—which established one of the nation’s first pediatric hospice teams in 1980. I had the privilege of serving on the Pediatric Team of Hospice & Palliative Care of Louisville from 1997 to 2001. Profound experiences with these children, their parents, siblings, grandparents, our dedicated team members, and community partners are embedded in me, forever. They continue to shape my perspective and purpose in my role as editor in chief of this newsletter. 

[Korea] Alzheimer Disease in Breast Cancer survivorsJAMA Network; by Su-Min Jeong, Wonyoung Jung, Hyeonjin Cho, Hea Lim Choi, Keun Hye Jeon, Ki-Woong Nam, Yun-Gyoo Lee, Bongseong Kim, Kyungdo Han, Dong Wook Shin; 6/20Is breast cancer survivorship associated with the risk of Alzheimer dementia (AD), and how are cancer treatments associated with this risk? Breast cancer survivors may have a slightly lower risk of AD compared with cancer-free individuals, potentially influenced by cancer treatments, underscoring the need for further research on long-term neurocognitive outcomes in this population.

The Alliance responds to Senate passage of Reconciliation Bill National Alliance for Care at Home, Alexandira, VA and Washington, DC; Press Release; 7/1/25 The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the Senate’s passage of the “One Big Beautiful Bill Act,” also known as the Reconciliation bill. “The Alliance is alarmed by the Senate’s passage of the One Big Beautiful Bill Act, which prioritizes misplaced budget cuts over the health and wellbeing of our most vulnerable. The legislation will reduce access to care and support for the millions of Americans who rely on home and community-based services (HCBS),” said Alliance CEO Dr. Steve Landers. ... “The Alliance continues to maintain that the complexity of the Medicaid program makes it nearly impossible to reduce expenditures by the amounts contemplated by this legislation – potentially exceeding $1 trillion over ten years – without impacting services to older adults and people with disabilities. The Alliance will advocate on behalf of Medicaid enrollees, families, and providers nationwide ...

How Empath Health integrates end-of-life care into PACEHospice News; by Jim Parker; 6/26/25Under the Programs for All-Inclusive Care of the Elderly (PACE) model, patients generally do not transition to the Medicare Hospice Benefit as they near death. Consequently, Empath Health has taken pains to ensure quality end-of-life care is integrated into its program. Empath considers these services to be a key component of its “Full Life Care” model, that seeks to longitudinally support patients over the course of their serious or terminal illness, according to Dr. Nick Joseph, senior vice president of Empath’s Complete Care Division. The organization provides end-of-life care in the home, with services that mirror its hospice program.

Providence hospice workers to hold 1st strike Becker's Hospital Review; by Kelly Gooch; 6/30/25 Providence workers are set to begin a two-day strike July 2 at Hospice of Petaluma (Calif.) and Memorial Hospice in Santa Rosa, Calif. The action marks their first-ever strike and comes amid ongoing contract negotiations. The strike involves more than 100 nurses, social workers, home health aides, chaplains and other hospice workers, according to their union, the National Union of Healthcare Workers. Union-represented hospice workers have been negotiating their first contract with Renton, Wash.-based Providence since 2023, when they unionized, according to NUHW. They contend that Providence has not adequately bargained — a concern compounded by the system’s planned transition of home-based care services to Compassus through a joint venture. 

HOPE Tool Anxiety, Part II: From planning to practice Teleios Collaborative Network (TCN); by Melissa Calkins; 6/30/25The countdown has begun. With October 1 on the horizon, hospice teams across the country are deep into training and testing—but preparation alone won’t guarantee success. The shift to HOPE isn’t just operational; it’s cultural. And real readiness goes far beyond timelines and task completion. It demands that every clinician, across every shift and care setting, understands what’s changing and feels confident in how to respond. This is the critical moment when planning must translate into practice—because once HOPE is live, the margin for error disappears.

The Alliance Responds to CY 2026 Home Health Proposed RuleNational Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 6/20/25The National Alliance for Care at Home (the Alliance) issued the following statement today in response to the Centers for Medicare & Medicaid Services (CMS) Calendar Year (CY) 2026 Home Health Prospective Payment System Rate and Durable Medical Equipment, Prosthetics, Orthotics, and Supplies Competitive Bidding Program Updates proposed rule, which proposes payment and regulatory updates for Medicare home health agencies (HHAs). The proposed rule includes policies that would reduce payments to HHAs by over $1 billion dollars in 2026, at a time when providers also continue to experience unmatched inflationary pressure in a challenging labor market — making it difficult, if not impossible in some areas, to deliver care to Medicare beneficiaries entitled to receive it.

TCN & HPCT Podcast: Plans of Care, Ethics, Robotics, and more! Top News Stories, June 2025 Teleios Collaborative Network (TCN); podcast by Chris Comeaux with Cordt Kassner; 7/2/25 What makes Hospice special isn't magic—it's the masterful implementation of coordinated care plans that align interdisciplinary teams with patient priorities.  This month's deep dive into June's most critical Hospice and Palliative Care developments explores how this "secret sauce" remains simultaneously the heart of our philosophy and our most common survey deficiency. In this episode of TCNtalks, host Chris Comeaux and Cordt Kassner, Publisher of Hospice & Palliative Care Today & CEO and Founder of Hospice Analytics, discuss relevant top news stories in Hospice and Palliative Care for June. They also explore technology's dual-edged potential, suggesting that AI and robotics should enhance, rather than replace, the human elements of Hospice Care.  As Daniel Pink notes, "if a robot can replace you, you should be"—allowing us to focus our irreplaceable human capacity on meaningful connection rather than routine tasks.