Literature Review

Closing the gap in end-of life care coverage: The role of nonprofits in policy advocacy Forbes; by James Dismond; 4/14/25... As the demand for end-of-life care grows, so will the gap between the care that patients need and what they receive. ... Workforce shortages, restrictive regulations, outdated reimbursement models and misconceptions around hospice services are keeping millions of Americans from accessing quality hospice and palliative care services. ... These barriers disproportionately affect low-income families, rural communities and communities of color. ... Unlike for-profit entities, we can prioritize community needs over shareholders. We can prioritize patient well-being over profits—or, to say it more directly, we put people over profits. And I’ve seen firsthand how advocacy can drive progress. Nonprofits must engage in:

Ahead of National Healthcare Decisions Day, aging and hospice expert urges Americans to commit to vital advance care and end-of-life conversationsNational Partnership for Healthcare and Hospice Innovation (NPHI) press release; by Tom Koutsoumpas; 4/10/25With National Healthcare Decisions Day next Wednesday, April 16, 2025, the National Partnership for Healthcare and Hospice Innovation (NPHI) is marking the occasion by encouraging Americans to use the day as an opportunity to have conversations with family or loved ones about steps they have—or have not—taken regarding their advance care and end-of-life plans. To help with conversations and prepare individuals to have the most effective discussion with their loved ones about these difficult topics, NPHI is also releasing its Five Point Guide below to show everyday Americans on how to have advance care planning conversations. [Points include:]

Opportunities and barriers to artificial intelligence adoption in palliative/hospice care for underrepresented groups: A technology acceptance model-based review Journal of Hospice & Palliative Nursing; by Tuzhen Xu and Gloria M Rose; 4/2/25 Underrepresented groups (URGs) in the United States, including African Americans, Latino/Hispanic Americans, Asian Pacific Islanders, and Native Americans, face significant barriers to accessing hospice and palliative care. ... Findings suggest that AI has the potential to improve decision-making, enhance timely palliative care referrals, and bridge language and cultural gaps. Artificial intelligence tools were found to improve predictive accuracy, support serious illness communication, and assist in addressing language barriers, thus promoting equitable care for URGs. However, barriers such as limited generalizability, biases in data, and challenges in infrastructure were noted, hindering the full adoption of AI in hospice settings. Artificial intelligence has transformative potential to improve hospice care for URGs by enhancing cultural sensitivity, improving communication, and enabling more timely interventions. However, to fully realize its potential, AI solutions must address data biases, infrastructure limitations, and cultural nuances. Future research should prioritize developing culturally competent AI tools that are transparent, explainable, and scalable to ensure equitable access to hospice and palliative care services for all populations. [Continue reading ...]

Top ten tips palliative care clinicians should know about dysphagia and adult swallowing interventions in serious illnessJournal of Palliative Medicine; Sanora Yonan, Taylor Wilde, Alexa Rogers, Kelly J Trumpatori, Kristie Calix, Christina Barnes, Terri Durkin, Eric Mecusker, Christopher A Jones, Caitlyn M Moore, Laura Chahda, Amanda Stead, Lisa A LaGorio, Paula Leslie; 3/25This article highlights the important role of speech-language pathologists (SLPs) in palliative care (PC), emphasizing their contribution to supporting people with eating, drinking, and swallowing difficulties during serious illnesses and at the end of life. The recommendations underscore the necessity of interdisciplinary collaboration among SLPs and other PC team members, the importance of patient and caregiver education, and the application of patient-centered, comfort-focused approaches to dysphagia intervention. Drawing on current research and expert insights, this article explores the use of SLP services in PC, as well as the challenges in supporting people with eating and drinking difficulties in advanced stages of illness, embedded with practical tips for clinicians.

2 key trends shaping the hospice workforce in 2025 Hospice News; by Holly Vossel; 4/4/25 Hospice providers have unveiled two key themes that are impacting the ability to sustain and grow their workforce. Staffing shortages have long topped the concerns of hospice executives nationwide. Rising demand for hospice care has been outpacing the supply of clinical resources for several years running. Labor strains have also mounted among nonclinical and back-office administrative, billing and IT roles. ...

National Healthcare Decisions Week highlights the importance of Advance Care Planning JAX Chamber - Jacksonville News, Jacksonville, FL; 4/1/25 National Healthcare Decisions Week kicks off on April 14, 2025, with a nationwide effort to raise awareness about the importance of advance healthcare decision-making. This initiative encourages individuals to take proactive steps in planning for their future healthcare needs. Through various events and resources, the week aims to promote thoughtful conversations about healthcare decisions and the completion of advance directives to ensure patients' wishes are known and respected. ... For more information about National Healthcare Decision Day, please visit http://nhdd.org.

Home care aides largest occupation in US as of last May, BLS reports McKnights Home Care; by Adam Healy; 4/7/25 As of May 2024, home health and personal care aides made up the largest single occupation in the US with 4 million workers, according to the Bureau of Labor Statistics’ Occupational Employment and Wages Summary report released Wednesday. The next highest groups were retail salespeople and fast food counter workers, which each had 3.8 million. Registered nurses also were among the top 10 largest US occupations, and they were one of only two top 10 workforces that earned above-average wages. RNs’ average salary in May 2024 was just over $98,000. Meanwhile, home health and personal care aides earned an average yearly salary of $35,000, or about $17 per hour.

Interprofessional advance care planning to enhance end-of-life care: A community assessmentCreighton Journal of Collaborative Practice and Education; Meghan Potthoff, Amanda Kirkpatrick, Jenny Jessen, Cathy Fox, Victoria Haneman, Megan Piotrowski, Beatriz Rodriguez, Sydney Langlois; 3/25Lawyers and financial planners are more often sought for estate directives than primary care providers for end-of life planning. Lack of role clarity and divergent views about advance care planning (ACP) responsibility among healthcare providers lead to further delay of these important discussions. A qualitative, exploratory design was employed to investigate ACP understanding, barriers, and needs among aging Nebraskans and Omaha-metro community agencies that serve these consumers. Conclusions: Improved ACP discussions are needed for supporting value-aligned end-of-life care by educating aging adults about, and documenting their wishes for, life-sustaining treatments and other decisions surrounding death. Enhanced role clarity, increased competence, and a collaborative approach are needed among interprofessional team members involved to improve these end-of-life discussions. 

Stroke deaths and their racial disparities increased over last 20 years EurekAlert! - American Association for the Advancement of Science (AAAS); by Peer Review Publication; 4/9/25 Over the last two decades, ischemic stroke mortality rates in the U.S. have grown, with almost 3 in 10 deaths occurring at home, and increases particularly among racial minorities and rural residents. These growing disparities were among the findings of a new study publishing April 9, 2025, in the open-access journal PLOS One by Jason Lim of Georgetown University School of Medicine, U.S., and colleagues. ...  The analysis included 237,617 recorded ischemic stroke deaths. The study found that age-adjusted ischemic stroke mortality rates, after years of decline, have increased across all urbanization levels since 2009, with the most pronounced rises in non-metropolitan areas. Additionally, there has been a noticeable shift in the place of death, with more people dying at home instead of in hospitals or other medical facilities. From 1999 to 2020, the percentage of at-home deaths increased from 8.44% to 29.31%.Editor's note: Pair this research with ongoing shut-downs of rural hospitals, rural emergency room access, and more. This ongoing increase is one of many, ongoing alarms. Ethics. Integrity. Mission. It's past time to improve patient care.

Statement by the American Nurses Association on organizational restructuring within the US Department of Health and Human Services American Nurses Association (ANA); Press Release; 4/8/25 The American Nurses Association is aware of the recent personnel changes and organizational restructuring within the US Department of Health and Human Services (HHS). These developments have sparked concerns among nurses nationwide regarding the potential impact on essential programs and services delivered by HHS in collaboration with nurses, patient advocates, and other healthcare providers. ... The association will monitor that re-structured capacity and promptly report any gaps we identify to the Administration and Congress to ensure the needs of nurses, and the public are met by our federal partners. It is imperative that Secretary Kennedy and Administration leaders ensure the uninterrupted continuation of the vital work of these agencies. Federal agencies must have the necessary staff to carry out the public health, research, quality, and operational work that the American people rely on for their health and well-being. [Continue reading ...]

America's Health Rankings: 2024 Annual Report, State Summaries HHS.gov - 2024 State Summaries; data from the U.S. Government Human Health Services; retrieved from the internet 4/4/25[Examine current data for each U.S. state, and apply relevant information to the services you provide:]

Niagara Hospice to offer free community presentation for National Healthcare Decisions Day Niagara Frontier Publications; Press Release; 3/28/25 April 16 is National Healthcare Decisions Day, which is a day set aside to educate and empower individuals to discuss and document their end-of-life health care wishes. Niagara Hospice invites the community to attend the free presentation, “Advance Care Planning: Advance Directives for Health Care,” ... Advance care planning includes advance directives like health care proxies, do not resuscitate (DNR) orders, and living wills. Advance directives help to ensure end-of-life care wishes are followed if one is unable to make necessary decisions for themselves. [Continue reading ...]Editor's note: For more information about National Healthcare Decisions Day (NHDD), explor The Conversation Project, at the Institute for Healthcare Improvement. Is your hospice providing a 2025 National Healthcare Decisions Day event? Email me a URL link to your local news coverage, press release, or your website's specific page. We will compile a list of participating organizations (with URL links) to highlight Advance Care Planning outreach, education, and implementation across the nation.